TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Migraines Started at 25mg at night. First night ringing in the ears started with a horrible migraine. Second night couldn't sleep and I already suffer from chronic insomnia. Driving home from work I almost hit a car because I was zoned out. My hands are freezing, I feel feverish, and my head is pounding....after only 2 doses. Tried to drink a Coke tonight, dumped it out. Worst thing I ever drank. I've lost 3 pounds in 2 days. Food is just "blah." Scared to take tonights dose. Don't know what to do. F 43 2 days
25mg
9/5/2014
 5  Migraines/Mood Swings Some hair loss - comes and goes. Some weight loss without appetite loss, I still eat as much as I ever have. If anything, the only thing I ever want to eat is gobs of sugar and sugary foods! Meat is less appealing. My mood swings have leveled out and my depression has lifted - I feel like my eyes have been opened! Its been wonderful! I was scared of the side effects. But I very slowly worked my way from 16 mg to 25 to 37.5mg to 50. I don't have any issues with memory or brain fog, or feeling dopey - and trust me: I run a business with over 700 clients, so I need to be clear minded at all times. I take this in conjunction with 300 mg of Wellbutrin every day and its been the missing link. My social anxiety is gone, and I feel on top of the world. F 32 2 months
50 Mg 1X day
8/26/2014
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 5  Bipolar, rap.cycl. Pins needles, some weight loss while already underweight, but this stabelized. Some hair loss, stabelized as well. Much more focused. Finally able to do what I want, feel like I can be myself and enjoy life. I do no longer feel locked up. Am a bit annoyed by all those people who speak so negatively about this drug. Yes, I mix up words too, but that is nothing compared to all the crap that has been keeping me from living a life for years and years. Topamax is the first drug that really makes a difference. I feel like all my creativity inside is no longer locked up. I can do something with it now, and that makes me so happy. My eating disorder and all the other things I needed to control my mood is now slowly leaving me. I do not need it anymore. After 1 pill I never purged Again. I felt stable, and no longer scared for switches. This is indeed a drug with many side effects, but it helps me so much, I feel like I can finally live and be the person I always wanted to be. F 33 20 months
150 1X day
8/15/2014
 1  migraines -extreme loss of appetite and weight loss (I was literally never hungry and the thought of food was nauseating- I lost a total of about 40 pounds in two years and at my lowest I was 99lbs and 5'6) -Irritated mood and generally very quick to anger -cognitive functions became very difficult, it was hard to focus and simple things like adding negative numbers became very complicated for me -withdrawal from being weaned off of this drug was the absolute worst thing I have ever experienced This drug ruined my life. Please, please consider any other option first. F 19 2 years
25mg
8/7/2014
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 4  pseudotumor cerebri I would like to start by saying this medication definitely helped the migraines associated with my condistion. However, I've had a lot of side effects. Most of my side effects are when increasing my dose. I have a lot of numbness in my hands and feet. Mostly my fingertips, sometimes to the point that I can't even feel them. I get very nauseous and sometimes can't even look at or smell food. The only thing that helps is orange juice. I have horrible insomnia and sometimes don't sleep for days. I also feel very foggy and have mood swings but that's mostly just around dose changes. My dreams have become very intense and I sometimes have hallucinations at night to the point where I'm unsure if I'm awake or asleep. I know this sounds like a lot but for me it has been worth it because of the excruciating pain I was in. Be sure to consider side effects before you start and weigh out the benefits. F 19 5 months
100MG
8/2/2014
 4  migranes Very new medication and Ive only noticed an insane thirst in the middle of the night and takes awhile for me to wake up. F 34 2 days
25
7/18/2014
 3  Severe migraines Didn't notice any side effects at 25mg twice a day and I actually felt better on the low dose it was making my migraine frequency better but it did nothing for the severity of my migraines so after one month the doctor had me titrate up to 50 twice a day, noticed some tingling, sleepiness which I welcomed because I have insomnia and I didn't need my ambien for a while, side effects generally wore off except tingliness- in the beginning of June she titrated me up to 100 mg and that caused insane lethargy- granted I have other issues that could cause lethargy so this could just be making it worse, mood swings, caused worse tingling, dizziness, anxiety which I already have bad issues with no need for the drug making things worse, I told my new neuro the of side effects and she felt the need to titrate to 150 x2 anyways she told me if my migraines didn't get better at 150 we would go down, and it made all the symptoms even worse, I called my dr office to tell them I couldn't handle this anymore and I'm awaiting a call from my dr office this week to see what I should do because my appointment is weeks away and I can't wait that long. F 24 5 months
25-150mgx2
7/14/2014
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 5  Migraines Tingling Sensation Hands and Feet - Worse in Feet Foggy mental Clarity in the first few weeks Carbonated Drinks taste terrible Loss of sex drive Absoultely no migraines Reading the internet will give Topamax a bad rep but the drug has absolutely changed my life. I was getting 30-40 dizzy spells a day and migraines leaving me bed bound for 3-4 days every couple of weeks. The side effects are uncomfortable at best but have made an incredible difference to my life. F 31 3 months
25MG 4X day
6/24/2014
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 3  sezuires Take 125mg night find it makes my breathing a bit laboured its day 11 for me so up my dowe tonite to 125 started from 25mg to be honest apart from the breathing thing I mentioned I also feel stoned out of my head and it makes me forget to breathe F 41 1 days
125mg
6/16/2014
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 2  Migraine Blurry vision, horrible metallic taste in mouth, slight rash on forearms after swimming in sunny area, upset stomach- constipation for 6 days then diarrea, feel lousy,did relieve migraine but not worth it F 67 1 months
100mg
6/13/2014
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 1  Migraines I was on this medication to help with my chronic migraines. I had only been on it for 4 days. For the first few days I experienced no side effects, yet I still had a migraine. Then on the 4th day, 10 minutes after taking topamax my tongue began to swell, as well as my throat and jaw. I was having in a hard time breathing and I had to call 911. I could barely talk to call 911 because my tongue was numb. I had to get an injection of Benadryl in order to stop the reaction. I have now been on Benadryl for 4 days and I still feel awful. I can not wait until this drug is no longer in my system!! I am sure this drug works wonders for some people, but please be aware of the possible side effects! F 27 4 days
25MG 1X day
6/4/2014
 1  migraines Wish I read more into this dirty drug before taking. Side effects are not fun....blurry vision, foggy mind, tingling in lower legs and feet, constant cold feet, neck aches, decrease in appetite (only good thing), urinating often, agitation, irritability,....there's gotta be something else out there for migraines...I would seriously only consider this med for epilepsy only!!!! F 30 2 weeks
50 mg
4/29/2014
 5  Migraines Weight loss 20lbs in first 6 months then stabilized, tingly hands/feet for first 3 months, memory problems. Good: 15 year hx migraines tapered from daily to weekly to once a month then stopped completely. I stopped topamax and they have not reoccurred in 3 months. Regained 5-10lbs F 30 2 years
50mg
4/27/2014
 5  I'm taking topamax for seizures This medicine works great for me, my only problem is the side effects. It interferes with my speech, my memory and my nerves. Therefore it intereferes with my job. It's to the point where I feel like I can't work anymore. When I'm at work or in public I feel like everyone is watching me I'm always nervous. F 29 4 years
500mg
4/27/2014
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 4  Epilepsy Dry mouth, Short term memory failure, loss of concentration/words through mid sentence, feeling Dumb, insomnia, lower back pain, cold feet, loss of appetite, serious nasal congestion,and acne issues. After being on this medication for many years now, it has controlled my seizures for all those years, but it came with a price and that is the side effects. But after all the seizures I had to deal with before, it was worth it. M 48 4 years
300mg 2X day
4/25/2014
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Patient History
 2  Epilepsy Squeezing head, migraine, foggy, back spasms F 32 1 days
25 mg 1X day
4/23/2014
 4  Mood Stabilizee PARETHESIA (tingling of fingers and toes-I'm a hair dresser, very BOTHERSOME!) ZERO APPETITE (I would rather not have food in my home. I am obsessed with WATER, it is ALL I want. Not even close to kidding. If I eat it's because A. I MAY vomit B. Someone makes me. WEIGHTLOSS(RARE cases would you Gain weight anyway; however lack of appetite, my huge water intake, no soda ect... THINGS I'VE NOTICED: 1. No serious side effects if you slowly up your dose. I STARTED at 25, now at 200. 2. It is WORKING as a MOOD STABILIZER 200mg, combined with 300mg bupropion sr. 3. (I went nearly a year without my period and since starting Topamax four months ago, I've had a period every month?? I don't know Why the Fuck that is. I've been irregular my WHOLE life. I should probably report this to someone important lol... 4.You will prooobably cry a lot when your dose changes but give it 1-2 weeks. It DOES work. I have been on EVERY. THING. F 24 4 months
200mg
4/19/2014
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 1   Makes me dumb and dense. It takes a while to get this side effect but eventually it makes me dull. I just get where I can't understand simple things. It effects my work. right now I am cutting back to 100 mg. I am taking it for headaches but my shrink says it helps my Bipolar 2 also. I don't care. It makes me dumb and that effects work and I can't have that. F 53 6 months
200 mg 1X day
4/9/2014
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 1  Bipolar Disorder/Weight Loss I was extremely agitated and couldn't sleep after one week, so I took it in the mornings. That was also a mistake, because I felt every side effect more profoundly, and most of them were psychiatric. I was so irritated that I was almost homicidal. I was screaming and thought about committing myself. Seriously, too. I only added this med because I thought I'd lose some Weight induced by another med , and believed another mood stabilizer at a low dose couldn't hurt. Wrong. I won't say stay away, because it's beneficial for some, but if irritation starts to come on, it may become 100 times worse rapidly, so be careful! F 46 1 months
50
4/8/2014
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 3  Severe migraines I had to discontinue use of this medication even though it was helping my migraines significantly, because I experienced severe vaginal yeast infections. I also experienced weird taste from carbonated beverages, a sensitivity to both alcohol and caffeine, weight loss, nausea, memory loss, dizziness, muscle fatigue, and insomnia. F 31 3 weeks
50 mg
3/29/2014

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