TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Migraines Tension headaches Cluster | The first night I took this I had tingling in my lips and since then the tingling, which has been mild, is diffuse and likes to roam. Last night it was all over but originated from my hips and butt! It was weird but not painful or particularly distracting. I have fibromyalgia & CFS, so I have headaches daily and my migraine triggers have increased, so I started this med because I really needed relief from the constant pain in my head, it was a quality of life thing. I have had word recall issues but I already get that with the fibro fog so it's not unfamiliar and I've learned how to deal. Ive lost about 5lbs and food does not appeal to me. I already had a lot of fatigue and haven't noticed an increase. I am sleeping better, which is really awesome. | I am feeling more level emotionally but when I get overwhelmed (which I attribute to the fibro, it's a CNS thing) I'm quicker to snap. I haven't noticed any lack of sexual desire, thank god, so many of the meds I've tried made me dead inside and that's a deal breaker. A little tingling and numbness is no biggie considering the chronic pain I'm already in, I did get a moment of pins and needles, but I was sitting funny and I repositioned and it eventually went away. The weight loss is an added perk since I gained 25lbs back in 2011 on lyrica and haven't been able to lose it, like it totally killed my metabolism. I haven't had any weird thoughts like I did with the lyrica or cymbalta, which both caused psychotic breaks and suicidial ideation. I've had one migraine on the day I got my menses and it wasn't as bad as it could've been and I've had one tension headache since beginning this med & I took the fioricet to calm it down. I am considering trirating up to 50mg daily to see if I can't get rid of the hormonal migraines altogether, but I don't want to mess up a good thing. So many people seem to have such bad reactions on this med and for once, I'm not one of them! I will update in a few months, but right now I am very happy with this med and how it's helping me function a little better | F | 39 | 10 days 25mg | 12/15/2014 | 2 | Occasional Complex Migraine | Until I started taking Topamax I had been a relatively "normal" person except that I got several complex migraines per year (aura, scotoma, etc but no pain). Neurologist put me on Topamax with promises it was a wonder drug. Since then I've been "foggy", twitchy, anxious, sort of dulled personality. Some forgetfulness. Feelings of hopelessness but no thoughts of suicide or anything like that. No joy in anything. Somewhat forgetful now, but sometimes my head floods with memories that I didn't actively attempt to recall. Noticed muscle aches which may be from tension - wife noted that I was sitting very rigidly in chair. GP did blood tests the other day, creatinine levels elevated since I started taking this stuff. Hope Topamax hasn't trashed my kidneys. Shame because I was managing my migraines well with simple aspirin and magnesium supplements. | M | 58 | 2 months 50mg 2X day | 12/14/2014 | 1 | Migraine | 1st week: 25 mg /day: tingling in fingers and lips. 2nd week: 50 mg/day: additional major concentration issues and fogginess in the mind | After realizing that my loss of concentration (which was greatly affecting my job) was likely due to Topamax, I asked my doctor the best way to get off this medicine (as I read a cold stop could cause seizures). His instructions were to up my dosage and the side effects would eventually subside. I didn't relent and have now been off the medicine for 3 days. My mind has returned to normal and the other side effects have subsided. This trade -- side effects for headaches was not worth it. The dramatic shift in my life I could see coming from the side effects did not seem to warrant the benefit of less migraines. Side effects this severe are serious considerations to take into account before starting this medicine and I know my doctor did not have any discussion with me about the possibilities I experienced. I didn't even achieve the desired dose of 100mg I was yet to work up to. | M | 40 | 2 weeks 50 mg 1X day | 12/14/2014 | 2 | myoclonic jerks | Medicine stopped clonic jerks but is continuing almost 50 lb. weight loss despite trying to stop it. SEVERE MUSCLE WEAKNESSS, LOSS and FATIGUE that is continuing to get worse almost daily!!!!! Very very scary!!!! Initial hair loss and personality change, brain fog. Those lifted but do feel more "flat." Very concerned about buzzing feeling throughout my body and the shortness of breath and fatigue. Pins and needles in arms and legs. Hate being on the drug. | F | 52 | 1 years 125 mgs | 12/11/2014 | 2 | Daily headaches/ migraines | First, Topiramate works like gangbusters to get rid of my daily headaches. Like 95%. But.... THIS DRUG IS TOXIC! Everything you've read: severe cognitive impairment, say goodbye to your memory, extreme sedation, I also have daily nausea so need additional sedating meds for that plus sea bands. | Topiramate is also used as a mood stabilizer so for me, anyway, there is a severe dulling of emotions - I guess it makes me not care as much that I can barely hold a conversation, or remember what I did yesterday. Thank god I haven't been fired yet as I've explained the situation to my supervisor. But it's dumb and dumber all day then drag myself home, plop on the couch, exhausted from the drug. Life not too much improved! I've also taken generic Pamelor which didn't do much for my headaches but I had some minor psych issues such as suicidal ideation, anxiety, and depression. I'm ready for headache drug #3 | F | 48 | 3 months | 12/11/2014 | 3 | Chronic Migraines | Slight weight loss, hair loss, loss of vision in one eye, memory loss | Absolutely worked with prevention of my daily migraines, as I am now off it and getting them everyday again. But I would routinely lose vision in my left eye (scary!), and lost about 1/3 of my hair. I also ended up with kidney stones for the first time in my life. Side effects were too much for me, so I deal with my headaches by taking Imitrex. Gained 10 lbs back. | F | 38 | 8 months | 12/3/2014 | 3 | Seizures, migraines, Epilepsy | Nausea, stomach cramping, weight loss, memory loss, agitation, emotional, tired, chills, sinus problems, always cold. Food is repulsive to me and sweets are overwhelmingly all I seem to want. But my head aches have seemed to be diminishing as my anxiety is rising. I get tremors like my handshake more now then they ever have which is just a side effect of my neurological disorder and I've been through many meds so I really don't know what the answer is. | 6 years ago I had a VNS implanted for seizures and tried to do homeopathic remedies to get off the poisons of anti epileptic poisons but that is no longer working and my seizures and head aches are back and here I sit back on meds in this twisted guinie pig game with my neurologist at my expense feeling crummier with no answers. You have to out way the good and bad they say. No seizures and headaches they say. But lots of other side effects they don't say. They just hand you a 50 page book and a bottle of pills and say hope you feel better. | F | 39 | 10 days 200 mg er | 11/20/2014 | 4 | Borderline Personality Disorder | Loss of all destructive impulsive desires (good), loss of suicidal thoughts (good), severe loss of appetite and weight (depends on how you look at it), pop tastes flat and poisonous (bad), worsens depression and weeping (bad), (maybe) heightens anxiety, makes finding talking, writing and remembering the right words difficult (and I'm a professional writer), drains away all sense of joy (very very bad). | This works great as an off-label impulse control medication for personality disorders. It helps me stave off alcohol cravings and keeps me from acting out by cutting, over-spending, or engaging in any other kinds of reckless behavior when I'm trying to soothe anxiety. However, it also completely knocks out all feelings of joy altogether, which worsens depression. I'm looking for something to couple this with, or else I might have to ditch it altogether. | F | 28 | 2 weeks 100mg 1X day | 11/17/2014 | 5 | Bulimia | Temporary loss of critical thinking skills, temporary loss of extended vocabulary, tingling in extremities, loss of appetite. | The cognitive side effects were temporary and affected my work but I bluffed and fortunately went out of town and had a sinus infection within the first 10 days on the drug so I played it off nicely. I feel like I am back to about 85% of my pre-Topamax intelligence. I am more than effective at that level. The positives outweigh the negatives. I have not binged and purged one time since I have been on this medication. I suspect it must act on the addiction response center in the brain because my pesky other bad habits have lessened in my time on this med (nail biting, over shopping, over dating, etc.) The weight loss leveled off as well and I stabilized at a healthy weight. Overall I am satisfied. | F | 34 | 1 years 200mg | 11/15/2014 | 5 | Migraine | Works beautifully. Was having 12 blinding migraines months. Some leading to ER visits. I had been to all kinds of specialists and no help. I also lost 40 lbs. which was nice. I really didn't care about that. This drug have me my life back. I have an occasional break through headache once a year, but they are very full and I'm sure it is due to the Topamax! | Thank you! | F | 54 | 5 years 200mg 2day | 11/14/2014 | 4 | Migraine | If for any reason I forgot to take its like a major hangover. A day of hell until I take and it gets back into system. Levels out. | It has been controlling migraines so happy. What its doing to my inners with immune issues well different story. | F | 46 | 6 years 150mg | 11/14/2014 | 3 | Migraines | Weight loss, hair loss!! | This medicine worked great for me as a preventative for my migraines. I lost a little weight which was nice also. However, my hair started falling out and breaking off rapidly after about 6 months of taking it. It didnt occur to me that it was because of topamax until I googled side effects. I lost about 1/3 of my hair and it continued to fall out after I stopped taking it. It wasnt worth it! | F | 25 | 1 years | 11/10/2014 | 3 | Migraines | Before the medication I was getting migraines daily. I would be in my room with the blinds drawn, lights off, laying down in front of the fan, puking with ice on my head with no relief even with my primary care doctors medication. Once I started the medication and the dose got up to 100mg I noticed relief. However the side affects I noticed as well such as the carbonated drinks-- which was fine, I don't care to give that up but the other side affects I did not even know were possible. I would overheat in shorts in a tee-shirt with ice on my neck in 68 degrees inside a house. I have had eye damage since I started this medication and I am a type 1 Diabetic-- that is a huge problem for me and this is a very common (1 out of every 500) issue with this medication. The weight loss didn't bother me at first. In the first 8 weeks I lost pounds and I thought I had stopped losing weight but I weighed myself again today, and I have lost another 5 pounds-- I find this really alarming, I can't cont | Be careful. I realized after taking it and not sleeping for over a month (my doctor told me to take it at night, the idiot) take it in the morning if you want to sleep at night! | F | 23 | 3 months 100MG 1X day | 11/7/2014 | 5 | Migraines | Severe tingling in the feet and hands. Memory loss and speech slip ups all the time. Also severe stomach aches. | Used to get migraines 7x a week after bad car accident and now I can easily go a day without it. If i do, I just double up with relpax and I'm good to go. Though the weight loss is fast so make sure you get food in when you can. | F | 22 | 5 months 100 MG 1X day | 10/31/2014 | 5 | Migraines/Arteriovenous malformatio | This is my second time being prescribed topamax. It has helped me tremendously with my migraines. I went from 5+ migraines a week to an average on 2 or less a month. It is amazing! Most bothersome side effect the first go round was I lost 50+ pounds in about 6 months which really killed my energy. I just wasn't eating enough. The appetite was a problem. After about 3 months of being off the meds my migraines were back up to 5+ a week so I began taking it again about 2 months ago. I have not been losing weight this time. But I am having this tingling in my lips and chin area and twitching in my fingers. The good definitely out weighs the bad! It helps me!! | F | 30 | 3 years 75mg | 10/30/2014 | 2 | migraines | I haven't been on it long but I feel like a different person. My memory is so poor I have been passing my street on my way home from work. I am very clumsy and super fatigued. At this point, I am still taking otc meds to control my headaches. I am hopeful it will get better. | F | 28 | 10 days 25mg 2x | 10/28/2014 | 2 | tbi | Still had severe migrains and had neck stiffness bones in my back and shoulders crack. Lower back pain | F | 49 | 2 years 100mg | 10/17/2014 | 1 | Migraines | Excruciating neck pain and stiffness. My shoulder is also killing me. My upper spine is literally freezing up. I've never had a drug have this severe kind of effect on me. I have a metallic taste in my mouth. I can't turn my head without yelping in pain. I stopped taking it. I think it is a very dangerous drug for off-label use. | F | 49 | 10 days 25 MG | 10/6/2014 | 1 | Intracranial hypertension | Doubling of headache pain, extreme eye pain back of eyes, some tingling in feet, visual disturbance - pulse shynchrinous image of veins in visual field, turned in to a freaking zombie, words refused to come out would just stand there unable to respond to questions, excessive urination, BONE COLD clammy forehead has lasted over 6 months since stopping meds still wearing wear hat 24/7/365. | I know it works for some people but this is an evil drug and should be controlled more. I just got a shunt after 26 years of begging kicking and screaming, it is set a tad low, hopefully a setting change will sort it and it will stop the high pressure headaches (sorry migraines if you believe my old doctors) for as long as it functions, hard op, but so worth it. | F | 31 | 6 days 25mg 1X day | 10/2/2014 | 1 | migraines | people have covered this pretty well. The most bothersome this was the memory and just feeling a little dumber overall. | Be extremely careful with this drug. I had been on it for several years. One day I was driving and lost consciousness. I don't know if it was some kind of seizure or what but I have no memory of what happened. I was on no other drugs and had no history of anything like this. Anyways long story short, I woke up in the hospital. I was was pretty beat up with broken bones and such, but turns out I had caused an accident that caused someone to become severely hurt. They took me to court and I'm basically financially ruined. This drug is serious stuff and I blame it completely for my accident. PLEASE BE CAREFUL IF YOU DRIVE ON THIS POISON | M | 30 | 3 years 150 2X day | 9/5/2014 |