TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  migranes brief weight loss, then some weight gain. Sexual sensation loss. extreme thirst with extreme body dryness and incredible, insane itching. extreme hair loss. extreme memory loss. increased head aches, with still having migraines and still having to take other medications to help mitigate the migraines. loss of motivation. loss of thought process in the middle of the thought. Just keep with it, the doctor says, it will get better....it has never gotten better! in fact I read all of these other people and wonder if we are all not some huge laboratory experiment! I have been suffering through this waiting for the day that the promise of no migraines actually happen! BULL POKEY! I a stopping this stuff today and going natural because at least natural I am not going to itch and thirst all the dang time!!!! F 45 5 months
100 mg 1X day
2/24/2015
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 3  migraines severe brain fog, tingly toes, loss of appetite, and HAIR LOSS it did reduce the number of migraines per month, but I couldn't deal with the hair loss. it continued for 8 months after stopping the medication. be warned. F 34 18 months
50mg 1X day
2/17/2015
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 1  migraine headaches Weight loss, insomnia, brain fog, blurred vision, depression, agitated, dizziness, constantly tierd and still had mild headaches. The side effects where the worst of any I have ever endeared with any medication. I could not get off this fast enough; an with having to taper being a slow process seemed like forever. Congrats to all that have success with this medication. F 44 1 months
100 mg
2/17/2015
 3  Seizures and migraines Weight loss, brain fog, memory loss, fatigue, insomnia, extreme joint and muscle pain, dizziness F 22 8 years
100mgx2
2/3/2015
 1  migraines Lost my hair!!!memory loss!! No migraines. F 44 1 years
100
2/3/2015
 5  migraine Memory loss, tingly fingers. Love this med. Changed my life F 42 1 years
150
1/29/2015
 3  occipital neuralgia;periperal neuro Extreme weight loss. After trying Gralise which caused horrible abdominal distress, I went on topirimate. It was magic for getting rid of migraines. I am very petite and have lost 13 lbs and continue to do so. I feel and look like a skeleton. Neurologist is going to try me on something else. I hate side effects. Going for my med. marijuana card cause I know that helps (at least at night). The pain from the occipital neuralgia and the peripheral neuropathy is hard to explain to anyone, but what do you do when a med works on the symptoms, but causes worse side effects? M 64 8 months
25 1X day
1/29/2015
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 1  Migraines Memory problems, hair loss, Raynaud's Even if Topamax had completely eradicated my migraines, I still would quit taking it. It's not worth it. F 30 1 years
75mg 1X day
1/23/2015
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Patient History
 2  Binge eating, weight loss Increased appetite (i know...) and nighttime eating - quite the opposite goal and side effect here. Incresead menstrual flow. Noticeable and heavy flow. Also, every time i lightly hit my arm or leg at something a very dark bruise forms and stays for like 10 days it's embarassing and scary. I recently noticed a little hair falling out. Tiredness. When i tried 100mg i felt dizziness, like i was going to pass out. Where did all the bubbles go? After 2 weeks on 50mg i tried 100mg and felt sick. After noticing these side effects and not losing a pound or the desire to binge, this drug didn't help my problem so i'm weaning off. Knowing it works for so many people on weight loss/binge eating, at least i tried it. But the fact that it incresead my appetite and my binge episodes was too much. I had to quit. Didn't like it a bit. F 38 40 days
50mg 1X day
1/22/2015
 1  Weight loss/ pseudo seizures EXTREME body pain (deep ache) and lethargy Tried a couple of years ago when docs thought I was having pseudo seizures and had those side effects. Then tried again bc it's part of the new weight loss drug, Qysmia. Days after I stopped taking it, I'm still having side effects. F 33 3 days
23
1/21/2015
 1  Occipital seizure Couldn't pee, severe mental slowness, severe lightheaded, freezing cold chills, numbness in toes intermittently, forgetful, burning vag tissues, hands tingling, dizziness, sleepiness, severe insomnia i will never take it again! F 59 3 weeks
25 mg 1X day
1/14/2015
 5  Migraines Weight Loss / Then gained it back Slight loss for words and spelling Decreased beverage taste Tiredness Dull Mood Lowered Sex Drive (Vision issues at the very beginning) I have experienced many side effects on this but they far out way the migraines. I hardly get any now from being on the Topamax for me it has been a life saver. At the beginning I did experience weird vision issues in low light. Kind of trails and light halos but I stuck it out and they went away just fine. My eye dr said my eyes were fine. In the adjustment phase my brain was sort of catching up with my eyes in a way. Most people may not have waited through this but this medicine was the only thing that helped me. I hope it helps others. I did also loose about 20 lbs which was an added bonus but after a year or two I gained it all back and I'm still on the medicine I have no idea what will happen when I go off of it. F 36 5 years
50 MG 3X day
1/12/2015
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 4  severe migraines None I dont understand all these side effects these people are having from this drug its not a narcotic so they are probably imagining or reading other peoples comments there is nothing in this drug to whack you out!!!! F 59 5 years
100 mg
1/12/2015
 1  pseudotumor cerebri, seizures Blurred vision, stammering words, forgetful, fatigue, weight loss, no appetite, metallic taste with carbonated drinks, feeling of being "dumb" because of speech and memory problems, dizziness, overheating/getting hot easily, clumsy, off balance, muscle weakness, irregular menstrual, heart palpitations, increased/affected seizures F 30 7 months
250mg
1/12/2015
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 1  Chronic Daily Headache/Migraine First no side effects at all but started at 12.5 mg. Titrated to 37.5 slowly and that's when the hell started. This drug dried me out completely; each and every body part inside and out! Lungs, nose, mouth, tongue, throat. It was awful. No amount of water (and let me tell you I drank copious amounts, round the clock) could hydrate my body. I've never experienced anything like it. Also horrible insomnia. Night after night without any sleep whatsoever. I did a lot of research before I took the drug but couldn't take the headaches any longer. After being on Topamax for a short period of time, I'll take the headaches over the side effects produced by this poison. It was also very frustrating when my neurologist insisted that the extreme dehydration and insomnia were not reported while on Topamax. A simple search on drugs.com come up with these side effects immediately. If you spend any time googling the drug you will find report after report of patients complaining of these such symptoms. Makes you wonder if the doctors are even paying attention... F 52 4 weeks
37.5 mg
1/8/2015
 1  Migraine Headaches RAGE, ANGER and IRRITABILITY I cannot believe how angry I got on this drug. I really, really wanted to take it long enough to see if it would help prevent my migraines, but I was only on it for 2 weeks before I HAD to get off. The normal everyday things in life that make you mad were making me SEVERELY AGNRY. I was lashing out at myself, at my husband, and at my poor 3 year old twins. I HATED everyone. I HATED everything. I became anti-social and dreaded everything in life that normally makes me happy (and this included being around my kids!). Not cool. I went cold turkey off this stuff (and I was only on 25mg a day!). I am on day 4 of no Topamax and I feel SO much better! I wish I could have seen if this worked, but there was no way I was going to continue on this medication. My Neurologist said that everyone is different, so if you're about to start taking Topamax, you may not experience what I did. However, if you find yourself more angry than usual or full of rage as the days go on, get off this stuff! I had no other side effects. F 39 2 weeks
25 mg 1X day
1/6/2015
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 2  Chronic Migraines Tingling of hands and feet; increased depression/lowered mood; dramatic loss of hair (worsening over time); coughing/pain & irritation to lungs; skin irritation/itching/sensitivity Although it did help reduce the number of migraines that I had, the breaking point for me was when my hair started falling out--and then it worsened over time instead of ceasing. No drug is worth my hair falling out, so I stopped taking it without titrating off of it as per my neurologist. I am getting rebound headaches, but I'm hoping that my hair will stop falling out as the drug leaves my system. The coughing/irritation to my lungs worsened over time, as well, and that is finally ceasing after stopping the drug. F 42 3 months
150 MG 1X day
1/4/2015
 4  Migraines & seizures Weight loss, diaherra, metallic taste, tingling in hands & feet I lost 35 lbs on this drug. Had a migraine every other month keep my seizures under control. then I switched from generic to brand and gained 15 lbs back F 31 4 years
100
12/31/2014
 3  migraines The 1st and best thing about the medications is that within 5 days I walked away from smoking , I told my husband that I just didn't want it anymore. My migraine eased off after a week and no dizziness. I do feel anxious sometimes and have trouble sleeping. I woke up one night and had no idea where I was, I was sitting straight up in my bed. I am very constipated and it is driving me crazy. I am very moody, my daughter told me to go get a pack of cigarettes. I can eat or do without, it really doesn't matter to me. A lot of things I ate or drank do not taste good to me anymore. F 36 1 months
25 1X day
12/28/2014
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 3  Migraine and Tension Headaches I had the tingling,pins and needles for about two months.Food doesn't appeal to me like it use to,which is great,since I gained 40-45# while taking Lyrica for my fibromyalgia. I am having a lot of hair thinning problems. I am also having short term memory loss. I have problems with my gait being unsteady. I feel like I'm in a fog all the time. I'm also having problems with my vision getting increasingly blurry. My headaches aren't as frequent as they were,but I have to get off this med. F 42 5 months
100mg
12/22/2014

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