TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraines I haven't had any side effects. I started on 50 mg twice a day and the Dr. gradually increased me until the headaches went away. I am on 125 mg twice a day now. F 63
125mgs 2X day
3/24/2010
Email
 5  MIGRAINE VERY THIRSTY,CANT SLEEP AT NIGHT,HOT AND COLD FLASHES. PINS AND NEEDLES FEELING IN HANDS AND FEET, SLURRED SPEECH,CONFUSHION,CANT REMEMBER WHAT I WAS SAYING IN THE MIDDLE OF A SENTENCE. FELT STUPID,MY SPELLING IS BAD NOW, BAD LEG PAINS NO WEIGHT LOSS THOUGH I WAS 13 WHEN I STARTED HAVING MIGRAINES. I HAVE BEEN PUT ON EVERY KIND OF MEDICATION YOU COULD IMAGINE. NOTHING WORKED,UNTIL I WAS PUT ON TOPOMAX. I WAS ON TOPAMAX FOR 4 MONTHS BUT,THEN I THOUGHT THE SIDE EFFECTS WERE NOT WORTH IT SO I WENT OFF OF IT. MY MIGRAINES CAME BACK EVERYDAY LIKE I USED TO GET THEM. I USED TO GET THEM EVERY DAY. SOMETIMES FOR A WEEK I WOULD BLACK OUT, GO NUMB LAY IN BED FOR DAYS. SO I HAD TO GET BACK ON IT AND NOW I REALIZE THAT THE SIDE EFFECTS OF TOPOMAX IS WELL WORTH IT.. BELIEVE ME I WENT TO THE DR AND NOW IM BACK ON IT AND NOW IM BACK TO HAVING MY MIGRAINE'S 1 WEEK INSTEAD OF EVERYDAY. F 28
2/7/2006
 5  
4/2/2006
 5  migraine tired, moody, loss of sex drive, tingling in hands and feet, in middle of sentence lose my train of thought which is very aggrivating, bad taste in mouth constantly, weight loss, hair breakage and loss Topamaz is a life saver....i can now take care of my 10month old son the way i need to. I was getting up to 15 migraines a month and eating relpax like it was candy.....i wish i had known about topamax years ago. I started slowly and was up to 75 mg. when the headaches came back. My dosage was raised to 100 mg. and I have been almost headache free (with the occasional headache) for about 3 1/2 months now! F 34
12/27/2006
 5  
8/12/2005
 5  migraines tingling in fingers and toes, weight loss cut migraines in half, side effects were minimal glad I took it. I have been on Topamax for 3 years and still on same. F 64
1/9/2007
 5  Migraines Weight loss, rigning in ears, loss of taste for soda pops, some things do not smell right any more. At first was shakey but that has stoped now. I love it for the migraines though. F 28
12/8/2004
 4  
10/9/2008
 4  mood stabilization, weight mgmt my precious diet coke tastes like FLAT battery acid, yuck! Also some short term memory loss, writers/speakers block, thinking and moving at a slower pace, weight loss (woohoo!), sleepy This is my second time on Topamax and for the most part I am very happy with it. It seems to "boost" the effectiveness of my antidepressant (zoloft), as well as offset its weight gain side effect. The yucky tasting soda is a blessing in disguise as I find myself drinking more water. My headaches are very few and far between. The worst part for me is the "foggy" mind and the writers/speakers block. I have not had tingling, numbness, or vision issues. F 30
10/19/2008
 4  Migraines Weight loss :) Good for me. soda tasted flat,almost like a chemical. EXTREMELY tired.Tingling in fingers and feet. Dizzy. And pressure in head.. loss is breathing, felt like elephant on chest. I have been taking Topamax for a month now and lost 20 pounds which is great. But at first my head hurt slightly a lot.. And i constantly felt like i had a elephant on my chest, and always needed to take a deep breath like a short breath wasn't enough.. i felt trapped. I felt tingly in hands and feet. i felt dizzy and unbelievably exhausted.. But felt like i couldnt concentrate much in school either. M 14
25 1X day
2/23/2010
 4  Nerve pain Mild tingling in hands and feet. Some disorientation and difference in my ability to taste. I am taking the generic form of topamax for nerve pain in the back and it is helping a little and I will keep trying its the only thing besides injections thats helped at all. F 43
50mg 2X day
12/31/2010
 4  depression, mood problems soda tasted different, insomnia While on topamax not alot of things bothered me, the dark and scary things didn't really affect me. I would be able to sit and watch tv, and not hafta get up or move around. So it decresed restlessness. In other ways, even though it seemed very good, it seemed too good to be true at times. And at low doses can change your mood, or affect it in such a way as to change your personality. Is a good drug for the short term maybe, but u wouldnt want to take a drug for short term anyways. M 26
25 mg 1X day
10/20/2011
Email
 4  Migraines/Ultradian Bipolar 1 F 35
50MG 1X day
4/23/2015
Email

Patient History
 3  I was having really bad migraines. Tingling, loss of appetite, depression, word loss, It helped at first, but then the side effects came. I'm more than likely going to stop taking it, and ask my doctor to find something else for me. F 15
100 MG 1X day
9/19/2010
 3  severe osteoporosis F 58
1X day
5/2/2013
Email
 3  anxiety hair loss, soda tastes flat, numb hands, spacey feeling, returned acne, motivation loss, smelly smelly farts. F 18
11/25/2005
 3  migraine Tingling in hands and feet, but not objectionable. Very dry mouth. I typically feel as if I've just eaten a bag of chips. Loss of appetite. Sinus problems resulting in troubling breathing and thus sleeping at night. Low energy level. I started taking topomax three months ago and although I have not had a severe migraine since, I do not like the way I feel on a daily basis. F
3/29/2004
 3  Reflex Sympothetic Dystrophy / Pain Headache, Swollen sore Gums, Confussion, Tired, Muscle twitches, weight gain, hunger (I know odd), Heart burn, did I mention confussion! I have taken many drugs over the past 22 years. Topamax does reduce the pain. I always said that the only thing I had left was my mind, that my body was nearly gone with the pain, like a migrane all over your body every day for 22 years, then came along topamax. I took it for several months. Just couldn't get used to the brain fog and stopped. I became near bed ridden again. I finally restarted topamax again. I have taken it slower this time around and will deal with the cofusion if I must, it is much better than living in pain. F 41
3/16/2007
 2  Migraine Tingling in legs, arms, face. Nausea,tired, no appetite, soda tastes awful, the first two weeks I was really irritable. I have been sleeping better. Can't think of obvious words (that's frustrating). Somebody said dry skin, I don't think I have dry skin, but I have been itchy which could be related to the tingling. All of these symptoms get better as I am on the dose for a while. I just went up to 100mg two days ago, so I am going through it all again, it's annoying. I know this has changed some peoples lives when it comes to migraines. So far I haven't noticed a big difference, I have only been on it for a month, started on 25 and worked up to 100mg. I have many of the "common" side effects. Probably why my headaches are still lingering. Maybe when side effect subside things will get better. It's the tingling that's driving me crazy. F 22
8/12/2007
Email
 2  Migraines/Bipolar Ummmm...no differrent than Zyprexa. My sweet tooth has come back 3 fold and I have lost 120 pounds off LI2CO3. Getting off of of it immediately. Not good with my chemistry. Rather have the thirst and dehydration versus the intense sweet hunger with and cognititive dysfunction witith topamax. Jeez. Try it out for yourself. You have to decide. 2 days was more than enough for me to know how bad it was gonna be for me. M
100 2X day
11/10/2013
  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

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