TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  
4/2/2006
 5  
8/12/2005
 5  Acute Migraines Pins & needles in extremities and nose would be numb. Couldn't drink soda- tasted metallic. Before Topamax, was getting Migraines 2-3x per week. Now get migraine 1-2x per month. And when I do get one- it is not as severe. The side effects of the drug do go away after about 2-3 months. I am taking 200mg twice a day. I started at 50mg 2x per day and worked my way up over 2 months. 40 3 months
5/25/2004
Email
 5  Vestibular disorders Diarrhea Tingling feet and fingers Words loss 57 30 days
100 mg
11/20/2019
Email
 4  Bipolar Best mood stabilizer i have ever tried! I was happy, upbeat, optimistic. I felt like my old self. Unfortunately it caused vision problems in both of my eyes. So I quit after two months of taking it. Lost my sense of taste, everything taste gross. Appetite reduced, Blurred vision. 34 55 days
50 mg 1X day
5/9/2021
 4  
10/9/2008
 4  mood stabler at first, weight loss, I have had tingling in fingers and some numbness, even blue finger tips a few times. I don't know if this is related i take many other medications weightloss seems to have leveled off maybe I take 75 mg daily 54 8 months
4/13/2006
 3  Bipolar II So far I don't really mind it. I was so scared to start it. I have increased sex drive, increased appitite, can't sleep much, and am a little anxious. It helps me sit still. I forget words and spell things wrong sometimes. I kind of feel stoned or something. I also feel nauseous. I am still sort of scared of this medication. I don't really want to lose any weight. And I don't want it to make me an air head either. 1 weeks
10/19/2008
 3  headaches minor tingling in feet after waking up, MEMORY LOSS i was in love with this med for a while. I was only on 25mg daily too, and after about two months, i began to feel like i was losing short term memory abilities, specifically the inability to retrieve memories, names, things i needed to remember for SCHOOL, etc. the drug worked for about a month; i had no headaches for a month (before i had about 4 a week); i didn't have the memory loss. then boom, it started happening. i felt stupid and frustrated. I'm not saying this drug is bad...everyone has different experiences, on different dosages. it worked, for me, and you should try it if suggested by your doctor, because it may just work. 19 2 months
3/25/2008
 3  Bipolar II Tingling in hands, fatigue, depression, decreased appitite I've only gotten up to 50mg but so far I don't like how this medcine is making me feel. My depression has been worse since switching. I've been extremely tired and feeling really weak... I don't think these side effects are worth it. And it's not a very good mood stabilizer. 25 3 months
2/17/2009
 2  migraines tingling in face, constant head pain I've only been taking Topamax for about 2 months, but i can already see it has done nothing for me. My neurologist has had to increase my dosage THREE TIMES because it has done nothing but made my migraines WORSE. Before my migraines were a 7, but now they have escalated to a 50! My face feels tingly all the time, and i have a constant headache, not migraine, but headache, that won't go away, no mattter what i take. Oh, and i've also seen no weight loss weight so ever. 22 2 months
7/23/2008
 1  
5/18/2004
 1  
2/6/2005
 1  seisures It slowed my cognitve function as compared to dilantin and it made me very sleepy. Also, it made me feel hot and sweaty all the time so that I was always thirsty or struggling to go to sleep at night. It makes you dumb and sleepy; don't use it; use dilantin instead. 2 months
6/2/2005
 1  Simple Seizures due to a hetertopia Tingling and slurred speech. I couldnt think of the last word of sentences for a month. My doctor told me to take more ( 400 mg a day) and the side effects would go away. Sounds dumb right? It was, i shouldnt have listened. Worst drug ever. I now take carbamazepine which is generic Tegretol. Costs me 2$ a month, where as my topamax I think was around 50$. Depakote isnt bad but Carbamazepine is cheaper. 24 7 months
10/2/2007
 1  Chronic vertigo. Tingling legs, arms, face. Forgot words. Agitated. Angry. Insomnia. Severe period bleeding. Excessive blood loss!! Uterine cramping. Severe thigh cramping felt like muscles were locked on. Confusion. Depression. Unable to eat. Unable to think!!! Seriously dangerous side effects. 7 days
25mg
10/22/2019
 1  Weight loss Topamax caused interstitial cystitis and severe urgency to void. I actually took the drug a 2nd time thinking the symptoms were coincidental but the symptoms were even worse the 2nd time. I have been off of the medicine for 3- 4 weeks and still have symptoms. I hope the symptoms pass in time. 53 10 days
25- 50mg
2/20/2017
 5  Migraines/Lupus Related Symptoms Sometimes forgetting words, occasional tingling in hand, soda tastes like acid (not a bad thing at all!) So far I LOVE Topamax! I feel like this is my "miracle medicine". I was in a very bad place with pain, headaches, extreme fatigue, restless legs and arms, and other Lupus related symptoms for so long I thought I would never find the "old me" again. I was at my wits end having been on so many meds even my Dr. was at a loss. Finally he suggested the Topomax and after only 2 days I noticed a difference; I started feeling like ME again. It's only been a week but I feel amazing. I can't say enough about it because to some people, something as simple as being able to get up and brush your hair isn't much but to me, it's a big deal. A week ago, and for the past couple of years, I wasn't doing that, or much of anything else due to pain, but I am now and I hope I can continue to with the Topomax... F 40 7 days
50 MG
3/24/2017
Email
 5  Daily Migraine Word loss, tingling feet, cough, blurred vision, constipation, mental fog, slight breathing difficulty Migraines completely gone within 3 days. Have had migraines for over 30-years and have taken Excedrin but needed to stop due to rebound headaches. At this point the side effects are worth it because I am 98% headache free but I worry about the long term issues. I had word loss prior to taking medication where as I knew what the word at least began with - now I usually don't know what the word begins with. I am thin and have lost 7 pounds so the doctor is keeping an eye on that. I am a bit moody so trying to be aware of it and not let it control me. But honestly when you have daily life controlling headaches - so far I'm not willing to give this up unless I find out it is harming me in a way that will take or reduce my life. F 50 2 months
25 2X day
3/28/2017
 5  Migraines/ice pick headaches My neurologist tapered me up on this, so perhaps that helped me. Side effects are minimal--some grogginess, definite loss of appetite, carbonated drinks taste strange. This has been a miracle drug for me. Tapering up on it probably helped minimize the side effects. I developed ice pick headaches (aka primary stabbing headaches) very suddenly. After an MRI and MRA to check for underlying conditions, I was diagnosed with this condition--apparently it's something that can happen to people in middle age who have a history of migraines. My migraines had been very manageable--no more than a one or two a year--and very treatable. I just dealt with them. But then I began suffering from these very intense, short lasting, unpredictable, and debilitating ice pick headaches. I couldn't work, and they began to appear 6-8 times a day, 4-5 times a week. If you suffer from these headaches, you know that you would be willing to suffer some mild grogginess in order to prevent the development of the headaches. The headaches stopped after the first dose. everyone has to make the best decision based on the information from their their doctors, but for me this drug has given me my life back. I'll take the slight dizziness over the headaches any day. F 49 1 months
50mg
3/25/2017
  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

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