TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Nerve pain Dizziness impaired walking felt like I was an invalid not able to carry bags of food from car to apt apporox 40 ft F 77 7 days
150 mg
3/19/2017
 5   No Side Effects Love Topamax. It's been a lifesaver for me. F 76 25 years
200/4xday 4X day
3/18/2022
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 1  Severe Migraines After two doses: Drunken speech, Memory loss, Exhausted and Suicidal!!! Could not think or stay awake. That probably saved my life. I now know why people committ suicide. Had I been able to stay awake long enough to make a plan the second day on Topamax I would have killed myself. Never in my life have I experienced such a feeling. It was like being in hell with no escape. Couldn't talk, stand up or stay awake. I remembered every thing I did in my life that was wrong, when I ran out of those I started making things up that I might have done wrong. At 75 that is a very long list. NEVER EVER AGAIN would I take another Topamax. It is deadly given to the wrong person. F 75 2 days
11/24/2008
 1  Trigeminal Neuralgia I lost three of my longtime friends because I said something that I don't even remember. Became paranoid and thought I was becoming assertive when in actuality I was being aggressive. Horrible and changed my life forever. I got off the med and am better except I miss my friends so much and can never get that back. F 72 1 months
50mg 1X day
4/4/2022
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 1  tremors depression, attempted suicide, and very aggressive to the point of hurting my wife, confusion I was only on topamax for 1 week but the doctor had me increasing from 25mg a day to100mg a day in 1 week. I ended up in the hospital for 4 days and the doctors there associated my visit to topamax. My son in law had a similar reaction and had he not been there to see that I was taking topamax then I would have never known that this CRAZY medicine was the reason for my actions. After coming off the meds immediately I feel better, like my normal self. I do not recomend this med for anyone. M 72 1 weeks
6/17/2006
 5  headaches can't sleep F 70 9 months
30mg 1X day
8/26/2011
 3  seizure Some of the side effects I have expericenced are memory loss ,tingling in feet, can't sleep for more than five hours. I have recentally developed a need to urinate frequently. I have lost some weight but not any great amount. Have lost desire for sex but that could be my age prior to taking topamax. I was expericeing pain in my shoulders but I have started playing pickle ball four or five times a week and the shoulder pain has gone away. I'm a great beleaver in excersise and it's positive effect on your whole body. My appitite is less that before I started the medication. I do seem to get more aggravated over simple things. I was started on this medication after a seizure but didn't feel I needed an additional medication but the doctor said the measured level at the time of the seizure should have prevented having one. I am not sure i didn't take some dilantin prior to feeling the seizure coming on but aggreeded to take the new prescription. I have been seizure free for two years with the addition. I'm prescribed 100mg but only take 75mg. and it has worked. M 69 1 years
3/3/2006
 3  Weight loss & blood pressure Blurred vision, dry eyes, and worse of all my wife says every single day "you need a shower! " even though I just took a shower. It's the metalic aroma permeating thru my body. I work in a office and have to spray Lysol before someone comes in because I stink so bad from the Topamax, but I am loosing weight and my blood presure is under control. Peeeyooo, what a way to have to do it though!!! My skin stinks metalic. Went to an eye doctor for the blurred vision. He said eyes are ok, no Glaucoma, no Macular degeneration. Advised me to use Liquid Tears. Made no connection to Topamax! Your medical dollar$ at work!! Go figure. I think this is a good drug. but wow, what side effects. Regular blood pressure medications didn't work very well on me, but this seems to work fine, but oh, the smell. I now have a lot of respect for the East Indians who eat curry and work in the enclosed offices. M 68 30 days
12/8/2007
 1   Severe Rash . Large Hives, Trouble Breathing requiring ER treatment with IV solumedrol . Would not recommend to anyone. M 68 7 days
1X day
6/3/2021
 5  Drs advised Improves sex drive Love it! F 67 4 months
100 mg 2X day
10/22/2023
 3  Tingling in legs and feet. Back My sense of well-being is not here. I'm irritable, tired, uncomfortable...My head feels full of "I DON'T KNOW" what! Been taking for 6 days @ 25MG every 12 hours. Today starts 2x25MG every 12hours. However, I'm not going to do this to myself. GOD will help! F 67 6 days
25 MG
11/10/2015
 2  Migraine Blurry vision, horrible metallic taste in mouth, slight rash on forearms after swimming in sunny area, upset stomach- constipation for 6 days then diarrea, feel lousy,did relieve migraine but not worth it F 67 1 months
100mg
6/13/2014
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 1  Weight Loss gained weight, loss of bowels, lots of BMs, yellow nails, excessive hair growth - long eye lashes Not recommended M 67 3 months
5/3/2007
 4  Antidepressant Hair loss..diarrhea..upset stomach....loss of interest in food...weight loss....increased thirst F 66 6 months
30 mg
12/9/2019
 1  mood disorder dizziness, lack of balance, double vision, effect on coordination, spelling, confusion, lack of concentration, nausea, slow short term memory recall, slowed thinking This was an EXTREMELY DANGEROUS medication for me. Unfortunately the duration box is in days. I took ONE 25 mg tablet and had all those side effects within TWO HOURS. Needless to say I will not take a second tablet and am throwing it out. While all of those are the more common side effects I got 7 of 18 common side effects and don't know about several of the others as they take a few days to manifest , I hope. F 66 1 days
25 mg 2X day
8/27/2020
 1  sciatica/nerve pain i was on this drug for about 6 mos.I lost word finding skills,was so dizzy I walked with a cane,or was helped by my children.I lost 30lbs,still have hair loss! I have been off it for a month and a half,and still have difficulty finding words,and some dizziness remains.While on it,I couldn't eat..would gag or throw up when I tried!My blood pressure dropped very low also,and I had eye pain and vision problems.I am seeing a retina specialist this month,I pray it didn't do any permanent damage.My Dr. only told me about the weight loss..NO other s/e's! I think this drug should be taken off the market! I now see why others call it dopomax! I was stupid all the time I was taking it!It leaves you in a fog...Thank God I'm now off it! I no longer see the neuro that prescribed it,it was my family Dr. that caught it!My advice to any who think of taking it...RESEARCH IT FIRST! It may be good for some...but do your research! F 66 6 months
11/8/2009
 1  Migraine preventative It turned me into a paranoid schizophrenic My pain management doctor prescribed this in hopes it would reduce the number of migraines I was getting. I hadn't taken it for more than a week when I began to feel strange "in the head". This drug had me cowering in the corner, afraid someone was coming into my home. I would beg my husband not to leave for work because being alone began to terrify me. I felt detached from the world around me and everything was unreal. When I was forced to go out to buy groceries, I quickly threw items into the cart as having people around me caused great anxiety. All the while I felt like I was walking 2 feet above the floor. Upon getting home I would go to bed and literally hide under the covers until my husband came home. Often he would find me cowering in the corner of the room. It took me a while to realize it was the Topamax. I immediately stopped it and within two weeks I was back to my normal self but it was one of the worst experiences ever. Apparently the drug altered the neurotransmitters in my brain, causing such a horrible reaction. The only good to come of it was that I did gain a new understanding of what for many people is a permanent and frightening mental illness. Schizophrenia is no joke and nothing to make fun of. F 66 3 weeks
50 MG 2X day
3/19/2016
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 5  migraine Stomach ache F 65 1 days
100mg
10/23/2015
 4  Migraines Feeling stupid and unable to contribute to conversations as I was accustomed. I prided myself on picking the best word to use in a conversation, and all of a sudden I had no words, or even thoughts. Could not play my percussion instruments in the community band. I was fearful of driving, too. I did like the weight loss. Began a fast titration where, within 2 weeks, progressed from 25 mg day to 200 mg day. My family noticed a remarkable personality change, and I decided that the ongoining headaches that I had been experiencing for the past 40 years (I am 65) could continue. Doc suggested I start again at a slower rate; within a 6 month period I worked into 100 mg/day. Unless I experience trauma via surgery, or uncontrollable triggers, I am headache free most of the time. It's great. F 65 13 months
2/18/2008
Email
 2  migraines feeling very drunkish or drugged within 5 minutes of taking the drug an it lasts all day. very tired and sleepy. extreme cramping in my lower back, upper legs and joints, shoulder pain that last thru the night. the pain is so uncomfortable that I can't sleep. I've only taken this med for five day's. the sixth day will not be a part of the med program. We will be trying something else. M 65 5 days
30mg 1X day
12/9/2022
  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

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