| Key to ratings for neurontin: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine. |
| Rating | Reason | Side Effects | Comments | Sex | Age | Time Taken and Dosage | Date Added | |
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| 3 | Neck and Low Back Pain | Loss of mental acuity, Loss of words, extremely lethargic, weight gain, no sex drive, felt like I had an inner ear or sinus infection at times, trouble falling asleep, trouble staying asleep, night sweats, social anxiety... oh and it's also softened the enamel on my teeth to the point I've had to have 6 teeth fixed b/c of cracking or breaking (and I've never had trouble w/my teeth or a cavity up until I started this medication..my prescribing doctor said it wasn't a side effect or possible but my dentist said that Neurontin does weaken tooth enamel in some patients.) | I've been weaning down from 3600 mg/4 day to 400 mg/2 day over the past several months. It's a very slow process. I've noticed though in the past 2 wks since I've been down to 800 mg a day, I've had awful stomach pain and acid. Throwing up daily pretty much. Want to get off this poison though b/c I had surgery on my low back 20 months ago and neck 11 months ago. The surgeries have taken 85% of my nerve pain away so I don't see the need for this medication any longer. Amazingly, the doctors couldn't wait to decrease my pain meds but no one thought to mention it was time to get off this medication. I was given this medication for disc pain and pinched nerves. The PCP sold it to me as a great alternative for pain pills. He never mentioned all these side effects though when he started me on this awful, horrible medicine. Sure I read the insert but who really thinks that they will suffer from the adverse, rare side effects?! I can't wait to be rid of this medicine from my body! I can tell though it's going to be difficult quitting it. The withdrawal for me has been terrible..anxiety, stomach cramping, nausea, vomiting and tiredness. This medicine is the devil. | F | 32 | 5 years 800mg 4X D | 9/1/2010 | 3 | leg/back pain due to herniated disc | Ankle puffiness during the evening hours, weight gain, word retrieval problems, increase of memory problems, latest symptom is eyelid twitching! | Works somewhat for nerve pain (I may need a higher dosage but don't want to gain more weight) Also noticed improvement with my fibromyalgia. | M | 58 | 2 months 300 mg 3X D | 9/1/2010 | 1 | Anxiety | Dear God... This stuff made me stoned out of my mind in only a 200mg dose. No way, I can even function on this stuff. | M | 37 | 1 days 200mg 1X D | 8/30/2010 | 5 | nerve pain from bulging disks | restless sleep due to vivid dreams; feel anxious if I miss a dose | it worked immediately to relieve severe shoulder and arm pain that I had had for months due to bulging c6 and c7 disks. | M | 52 | 300 mg 3X D | 8/18/2010 | 5 | sleep aid, anti-akathisia. | drowsiness, calm, somatic relaxation, all side effects wanted. | the best medication to sleep great, to moderate anxiety and anger, and for antipsychotic induced akathisia. | M | 24 | 6 years 600 mg 1X D | 8/12/2010 | 4 | Neuro pain hands/feet - undiagnosed | Increased libido, swollen feet at night, weight decrease, better sleep and sleepiness, unexpected improvement in anxiety and depression - thank God | I think I need to increase it another 100, and take it 3 times a day. I am surprised that the depression and anxiety I have are gone, and the pain is too. I had no idea just how much pain I was in, it was not limited to just my hands,feet, legs. I think that the results of the pain were an increase in anxiety and depression. Only prob is the swollen feet at the end of the day and sleepiness, but ginger tea seems to help with that. | F | 41 | 2 weeks 100 mgs 2X D | 8/6/2010 History | 4 | Migraines, Leg Pain | Dizzy, the kind of feeling like you get when you've had a little too much to drink, a fog. | I originally started taking this as a migraine preventative but found that it also stopped the constant pain in my calves and back pain that I had had for the past 18 years. It didn't get rid of my migraines but the pain from the migraines was in the background and they were no longer so severe that I lost vision or vomited. It was more the fact that I didn't care that the pain was there. I also added Excedrin Migraine and that, along with gabapentin, seem to take the migraines away, for the most part. I have noticed that I can no longer do much physical exertion because that causes me to get more dizzy. When I first started taking it, I could eat a meal and then five minutes later, I was starved. I knew that was something in the med so I would just not eat more and I haven't gained any weight. I started with a dosage of 600 mg/day, taken at night. Within 30 minutes, the pain in my calves is gone, although occasionally one foot feels hot inside. It is not hot to the touch but I can put it in cold water and it feels good. After another 30 minutes that is gone. I feel great in the morning, although it is difficult to get out of bed because I'm still tired. After I get up, I am a little dizzy and groggy. After work I come home and usually take a nap. I don't want to but I am so tired. After a nap, I am dizzy and groggy again. It isn't a great feeling but it seems so much better than dealing with the leg pain and migraines. | M | 55 | 1 years 600 mg 1X D | 8/3/2010 | 1 | seizures | They have slowly progressed and are very intense and insane now. Weight gain, drowsiness, weakness, all over body pain, chronic severe nausea almost 24/7, I now feel like sometimes I can't stand to put food in my mouth, I have episodes where I feel like i have the flu and fever, chest pain, shortness of breath, arm pain, lumps and knots in arms around elbows, underarm itch without a rash, and I now just feel so very tired all the time even after a 12 hour sleep. | It has slowly claimed my life. I hate it. I loved my job, loved people and working and I feel like I have lost it all because of this drug. | F | 39 | 2 years 800mg 3X D | 8/1/2010 | 2 | suspected crps | increased appetite, weight gain,memory loss,fogginess,sleepiness,made my toes twitch and clench. I have a sensitivity which feels like a mild sunburn over my body which at this point I don't know if from the drug or my nerve damage. Weaning down and hope to be off completely in a few months time. | Great sleeping aid and helped with menopause symptoms. Did nothing for my arthritus pain which seems to have gotten worse over the past few months. | F | 56 | 6 months 100-300mg 3X D | 7/28/2010 | 1 | Migraine headaches from concussion | I didn't experience any side effects on 100 mg 3x/day, but on the day that my doctor told me to start taking 200 mg 3x/day I noticed rapid heart beat and had two severe nightmares accompanied with migraine headaches that woke me up in the middle of the night on the day that I increased the dose. Previously, I never had night mares! | F | 42 | 4 weeks 100 mg/day 3X D | 7/28/2010 | 4 | Fibro | It has made me want to eat more. which is ok, because when I wasn't on it, I couldn't eat because of the pain. | This drug for me, is a miracle drug. I have spent the last 5 yrs in pain due to Fibromyalgia. Dr didn't confirm Fibro til 2 months ago. I have very little to no pain. I am not angry all the time from lack of sleep and pain. I am smiling and laughing. Have not experienced any of the other side effects being talked about. It has changed my life!!! | F | 49 | 2 months 300 3X D | 7/24/2010 | 4 | Pain following back injury | Memory loss to the extreme. Balance problem exacerbated. Spent more time sleeping. | Worked really well at making pain bearable and greatly improved my quality of life. | F | 83 | 17 days 200 2X D | 7/14/2010 | 1 | Lower back pain- spondylosis | Tired, bad dreams,severe loss of memory, falls, no sex drive, hiding things | I could not remember the names of things, and would get easily irritated. I cut my arm with a knife, busted a door, hid things from myself and my husband,got in terrible arguments, and could not remember paying the bills. I sent out bills without checks in them and paid some of them twice. My poor husband almost went crazy. I stopped taking this without asking my Dr. because even after my cutting episode she wanted me to take more. I don't think my brain is right and it has been about 30 days since taking any of it. I would rather have the pain and not so sure it worked anyway.I can't work.Who would have a crazy person who can't remember anything work in their law office? I have had many falls, and have broken both my arms as a result of two of the falls. | F | 50 | 7 months 200mg 3X D | 7/8/2010 | 2 | it was Gabapentin for fibro | It affected my speech at times I couldn't form the words I wanted to say-it would come out as a stutter. I felt very tired and couldn't remember anything from one minute to the next | I discovered I cannot just stop the Gabapentin I need to wean myself. Gabapentin is an older version of Neurontin, although I could not take Neurontin at all-it was like a bad anti-depressant. Gabapentin is also used in epilepsy-maybe why the stuttering. | F | 56 | 12 months 900mg x2 2X D | 7/2/2010 | 3 | Shingles pain | Thinking process has been 'slowed' - feel drowsy by the end of the work day. (More so than usual) Normally had a very high energy level. Take it along with 25mg of Topamaz at night | I still have a lot of pain and itching in my scalp and forehead from the Shingles...it's been since last August. | M | 62 | 270 days 300 2X D | 6/15/2010 | 3 | nerve pain after ankle surgery | its was all good till I tried to take double the dose at night because I thought that I would be able to sleep longer without waking up to a burning foot/ankle. Well, I couldnt sleep at all for a couple hours, I was suddenly very very irritated,fearsome, and nauseated. I tried it again last night thinking it was an isolated case but it wasnt. I cannot take double doses of this thing. oh and libido? whats that? hope I can get off of gabapentin FAST! | it works for nerve pain and will continue to use. I could do without the loss of libido though . my wife doesnt like it lol | M | 32 | 1 months 300mg 4X D | 5/20/2010 | 3 | F | 34 | 1X D | 5/16/2010 | 2 | Neuropathic pains in feet/legs | Can't orgasm!!! | I haven't really taken it long enough to realize any benefit in my pain levels, but the side effects are instant! I can't orgasm on this stuff...wtf? Why doesn't anyone else experience this? | M | 30 | 1 weeks 100 3X D | 5/16/2010 | 5 | PTSD | initially made me feel euphoric, that subsided, i have sensitivity to light, especially florescent - unsure about weight gain, seems to make me retain water | It has helped my anxiety. I can function better. It is a life-saver. I have less flashbacks, and nightmares are becoming less intense. I can't live without it. | F | 41 | 60 days 1500 1X D | 5/15/2010 | 3 | ms | 20 lb weight gain, fogginess, very tired. swelling hands and feet. dry mouth. No sex drive. | neurontin did help with leg spasms. was told weight gain not do to neurontin, don't believe the doc. extreme swelling of hands/feet at night. Some symtoms I am told are from the MS even though I did not have them before. ie...vision problems, stiffness of joints. | F | 42 | 3 months 600 mg 3X D | 5/15/2010 | 1 | sleep | Gettimg off Gabapentin is Hell I just tried to go down 300mg because it syopprd working icoubld not my doctor switched me to 300 mg in morning and 600mmg at night the transition was two weeks of anxiety now i go down 300 at nightI I expect deppression anxirty and insomnia likebefor | F | 51 | 3 months 900 mg 1X D | 5/14/2010 | 1 | Sciatica | I "lost" words and names, became confused easily, feared I had Alzheimer's, eventually lost my sense of balance and had several falls. Have now been off Gapentin completely for 2 weeks. Memory and balance is back to normal. | My pain is also back but the pain is better than the confusion. | F | 69 | 60 3X D | 5/12/2010 | 1 | Pinched Nerve | Completely ruined my memory and concentration. Was sleeping an extra 3 hrs a day and was still tired. Pretty much killed my ability to program. (See comment for my solution.) | Negative side effects ("brain fog", memory loss, excessive sleepiness) lasted for months after I stopped taking the drug. Trying to recover from Neurontin was worse then the pinched nerve it was trying to fix. I tried vitamins and supplements for 6 weeks with almost no mental improvement. Finally found solution: Provigil. Taking a low dosage of Provigil (50mg/day, 4x/week) completely erased the Neurontin/Gabapentin side effects while I recovered. Over time, the negative side-effects have retreated to the point I don't need the Provigil to stay functional at work. Unfortunately, insurance doesn't recognize Provigil for this use and the drug is $$$... but it worked. | M | 45 | 20 days 300 1X D | 5/5/2010 | 4 | Head pain related to brain injury | Severe dizziness, fatigue, constipation, poor wound healing, rashes, hair loss. The dizziness and fatigue diminished greatly with time. After being on for a few months, I started developing skin wounds, rashes and infections that would not heal. Then I noticed that I had bald patches forming on my scalp. I did not notice hair falling out because it affects the forming follicles which turn into something resembling a carpet fuzz. As hair falls out it is not replaced or is replaced by weak and thin hair. Hope it grows back. | This is a very serious drug that I believe should only be used as last resort for short periods of time. I was told that brain chemistry will change to accomodate this medication over prolonged use. I hated being on this medication, but it helped my severe head pain when nothing else would. | F | 41 | 5 months 200mg 1X D | 5/4/2010 | 1 | pain management and menoapause | This in my opinion is a very dangerous drug. I thought at first it might be helping. Looking back over my chart I realize as I increased the dose, my menopause symptoms actually got worse. I began to experience physical depression; fatigue and inability to cope. After four months on it i began to increase the dose on the advice of poorly informed doctors. I began to develop somnalence; swelling of my hands; ataxia; tinnitus and decreased immune system. Saddly, despite my complaints my doctor(s) failed to recognize the connection between the drug and the side effects. Eventually I just was not coping emotionally and psychologically. As Doctor Tom Perry says from the Therapeutics Initiative this drug can in some of us cause brain toxicity and it is hard to describe what is really going on. As I came off I too am experiencing nausea -- and sore stomache. I unfortunately came off too quickly which I would not recommend at all -- I crashed psychologically -- which felt very scary -- I am no | F | 50 | 10 months 1600 mg 1X D | 4/9/2010 | 5 | degen disks neck/ lumbar | No side effects noticed. I was placed on gaba (300mg x5) by Rheumatologist for degenerative disks in neck/osteoarthritis, and two herniated disks with arthritic changes in lumbar due to an old injury. The pain had been so bad for years that I was ready to try surgery. | Gaba has made a huge difference in my neck pain. I rarely have the headaches and neckaches I suffered with almost daily (and which I had thought were partially caused by sinus(evidently not). I also had sciatic pain which the gaba was not overriding. I tried a Chiropractor out of desperation, and one month of adjustments on my hips has eliminated the sciatic pain (or at least enough that the gaba can handle the pain). So far, so good (although the Rheumatologist says you can eventually develope a tolerance and may have to increase the dose sometime in the future. | M | 54 | 3 months 1500 1X D | 4/5/2010 | 4 | Migraines | slighty drowsy at first | I was having headaches about half the days in a month before beginning this med. Has cut down my days with a headache by half. Most of the days I have had a headache since I began the Neurontin were immediately after starting it- only 1 in the last 2 weeks! Virtually no side effects. Follow-up appointment in 2 more weeks, doc may increase dosage. This is the best result I have ever had with a preventative, and I have tried MANY of them. | F | 23 | 3 weeks 300mg 1X D | 4/1/2010 | 4 | Bipolar Disorder/Anxiety | memory loss.....word retrieval problems is the most of it. i have also noticed that my short term memory is pretty bad. it's often hard for me to remember what i did yesterday. or how long ago much of anything happened, unless it's 10 years ago or more. As long as it doesn't get worse or cause permanent damage, i don't really mind too much. | To be fair I am also on 4 other psych meds. So who knows what does what. Also I have PTSD which often causes dissociation and mind fog. However, the Neurontin has helped my mania, irritability and anxiety by leaps and bounds. | F | 41 | 8 years 400 6X D | 3/31/2010 | 5 | Abdominal pain from celiac | I've been a little absent-minded, but nothing serious. | I have celiac and I've gluten-free for almost 7 years, but a large amount of pain has persisted. I've been on a lot of drugs that just made me sick, so I try to avoid them. After the first week with neurontin, the pain was all but vanished, my bowels moved better, and I was more productive at work. Wonderful! | M | 28 | 1 months 300 mg 3X D | 3/30/2010 | 5 | OCD, anxiety, probably ADD. | euphoria, increased libido, sometimes brain fog. | it is awesome... saved my life. it reduced irritability, obsessions, compulsions and delete almost whole social phobia. it raises up my mood better that an SSRI. i suggest to try for its safety too. | M | 24 | 2 months 1200 4X D | 3/24/2010 | 3 | Fibromyalgia | I feel like I am taking a combination of "speed" and codeine. My body still hurts a lot, sometimes my mind feels sort of "swimmy", it keeps me awake which is causing me to move around more and end up hurting more. My mood is improved, however I find that I am also constantly clenching my jaw involuntarity and it is starting to hurt. Also my joints (especially knees) hurt and didn't before. | F | 42 | 4 days 300mg 3X D | 3/19/2010 | 3 | anxiety, depression, insomnia | Weight gain, feeling spaced out, midday tiredness, low energy, unable to remember words. | I wrote a review for Neurontin about 6 weeks ago and couldn't have been more pleased. I thought this was the drug I had been waiting for all of my life. My depression, anxiety, and insomnia were greatly reduced and I could still have organsms. Then, about two weeks ago, it stopped working. I was so disappointment - my insomnia and anxiety (but not the depressive thoughts) returned. My shrink upped the dose from 900 to 1200 mgs at bedtime. Symptoms have not improved and my insomnia is worse than ever. On top of that, the increased dosage has caused me to be extremely tired, lethargic and I am now experiencing the word loss (I gave a talk yesterday and noticed how difficult it was - I had given this same talk numerous times and could not remember my presentation.) I am so upset and disappointed because I thought I finally found the right medicine for me. To make matters worse I took my old sleep inducing standby - Klonapin. With the Neurontin in my system the Klonapin had an antagonistic relationship and I was awake all night! Want to wean off before I gain more weight and lose my job. I really can't blame the Neurontin for the weight gain - it could be because I am too tired to exercise. | M | 56 | 5 months 1200 1X D | 3/12/2010 | 3 | siezures | memory loss ,lose balance, weight gain, can't concentrate, confused, clouded feeling | can't find right word fell like I 'm playing sherades to find words , come out in different order when I told my doctor he said it was not the neurontin I thought It was just me. I wish I found this site earlier.If med are late a nervous feeling.But works for seizures most of time, but some do break thru | F | 54 | 12 years 800 mg 3X D | 3/10/2010 | 1 | Fibromyagia | Feeling like you are floating, indicision, hair loss, nail damage, gas and bloating, chest pain difficulty breathing and extreme irregular heart beat. | symptoms increased in severity over time, was hospitalized for cardiovascular effects. doctors all told me that it wasn't the medicine. I went off the meds and after two weeks felt relief from palpitations. pain returned and I restarted at a lower dose about a week later symptoms returned. Benifits Do Not away the risks! | F | 35 | 7 months 300 mg 3X D | 3/9/2010 | 3 | spinal tumors, sciatica | SIGNIFICANT memory loss and "brain fog". | I have a love/hate relationship with Neurontin. It works wonders on my nerve pain (I have a large, inoperable tumor on the left sciatic nerve), and really calms down some of the fibromyalgia pain. My GP initially tried me with Lyrica, but I had EVERY adverse side effect except organ injury and death. We then switched to Neurontin, and the difference was night and day in terms of pain relief and (mostly) lack of adverse effects. But I have serious issues with the memory loss it causes. My short-term memory is shot to H-ll. I will literally forget what I'm doing, where I'm going, etc., in the MIDDLE of doing something. I've been known to get to a flight of stairs and not remember whether I wanted to go up or down them, and will just stand there with one foot poised to move onto the stairs, which is SERIOUSLY dangerous when you're standing before a descending staircase with your foot dangling in mid-air (and yes, I've fallen down stairs because of it). It affects my work to the point where I'm seriously worried about my job. Would I recommend Neurontin? Maybe. But I'd definitely advise anyone who is taking it to watch out for the memory loss side effects, because they are BAD. | F | 47 | 1 years 600 mg 3X D | 3/7/2010 | 3 | Charcot neuropathy | Significant ataxia (staggering gait). Drowsiness. I now have tinnitus, which I'm wondering might be from the gabapentin? I can't take during the day as it makes me so sleepy (and I don't take that high of a dose) | At times it seems to help my neuropathic pain, at other times I'm not convinced. Studies show it works in diabetic neuropathy, I don't think they're are any for Charcot. I stay on it on the urging of my physician. | F | 58 | 3 years 600 2X D | 2/27/2010 | 3 | sciatica nerve pain and back pain | I have a horrible memory after taking this drug. I often forget where I put things and quickly forget directions and information people tell me. When at work or school I feel like I am working through a fog. I get restless and constantly have to be doing something. I have gained at least 10 pounds since taking this medication. | I take the max dosage (I believe) which is 2700mg a day, and it seems to numb out my body except for the nerve pain in my leg. So It does not really do much for my pain, but I don't have many other options, so I take the medication because it does dull the pain somewhat. | F | 17 | 4 months 300mg 9X D | 2/26/2010 | 1 | spine, fibromialgia and agoraphobia | rage, confusion, hallucinations, voices, hunger, pain all over, migraines from hell, depressed and feeling very suicidal then less suicidal, afraid to act upon it, wanting to do something insane like meet strange men on websites, gave away my poor cat of 3 years then freaked out and wanted him back, extremely paranoid, flashbacks of horrific events that i thought i had forgotten. Also, now mouth sores, armpit and neck sores. | I really wanna get help for my spine, agoraphobia, depression and fibromyalgia...but at what cost? I think i have to see my g.p. before i act upon something or my daughter throws me out for raging at her all the time..ugh~ | F | 49 | 6 weeks 300 3X D | 2/24/2010 History | 3 | anxiety | appetite increase | F | 36 | 9 months 1800 1X D | 2/23/2010 | 3 | back pain | absent minded, tired, no energy | at 600 3x a day my pain level was much lower, however I could not function at work. could not focus on tasks, got confused in the middle of tasks, very forgetful and just dead tired all the time. have cut back to 300 2x a day, still have no energy, back pain is worse, but at least I can focus and remember things most of the time. | M | 35 | 9 months 600 3X D | 2/23/2010 | 4 | Neuropathy neck pain(CM in Spinal C | Mental fogginess, tired for the first week then it completely subsided. | Would give this a 5 since it has worked great for the burning in right foot, neck pain, restless arm and itchiness in left arm following a bleed from a CM in my spinal cord, but over the past month or so I started having some speech issues(slurred) and loss of words and alertness..confusion..weaning myself off to 300 twice a day..my doc wanted to try Cymbalta, but I'm apprehensive to try it due to the bad reviews, so I'm hoping that taking just 300mg will do the trick. I can't deal with the speech issues and loss of words any longer otherwise I would stay on this medication...it gave me my life back. | F | 38 | 5 months 900mg 3X D | 2/18/2010 | 4 | Carotid Dissection | Possible weight gain,hair loss | Started with 300 MG 3x day in hospital and no relief. Increase to 600MG and saw great relief from headache/neck pain. After 2 months pain started returning so neurologist increased to 900 MG 2xday and 600MG 1x day. Seeing relief from that but wondering how long before we have to increase that again. Not happy about weight gain and hair loss but nice to be pain free. | F | 38 | 3 months 900 MG 3X D | 2/8/2010 | 5 | depression/anxiety/insomnia | None! Possibly weight gain, which I need to monitor (cannot afford to gain weight as I am already 50# overweight.) Could be post holiday. | I have suffered from mild depression, anxiety, and INSOMNIA since memory. I have tried all of the SSRI's, Wellbutrin, and Nardil. All alleviated the depression, acted some on the anxiety - but had to stop because my insomnia went from rotten to worse. I stopped taking medication for about two years and my symptoms became unbearable. Could not function at work because I was surviving on 3 - 4 hours of sleep and a nervous wreck. Klonapin worked for sleep - but I limited it to two nights a week to avoid dependency - but my insomnia was worse the nights I did not take it. Decided to have sleep study and the neurologist asked me if I ever tried Neurontin. I told him no. I then asked my shrink for a Rx. I started on weekly increments of 100 mgs and ended with a final dose of 900 mgs at bedtime. This is drug I have been waiting for! Sleep is not perfect, but if I get up at 3:30 or 4 AM I am able to fall back to sleep. Depressive symptoms gone! Anxiety reduced by about 75% - all this and able to have orgasms! This med has changed my life. I just hope the weight gain stops. I strongly recommend this med for others who "have tried everything" without success. | M | 56 | 3 months | 1/28/2010 | 3 | back and leg pain | I am finding the MEMORY LOSS a big problem, find very embarassing in front of children and other adults. I forget words, names, what I was looking for etc. Also, I say one thing and mean another. Hasn't got any better in 2 years I have taken it !! | Managed to get over the initial side effects of drowsiness, loss of appetite (lost nearly a stone in weight), over time. Slowly increased dose up to 1800mgs a day over 3 doses. Still need to take tramadol and diazepam as needed for back pain. I thin there is tachyphylaxis involved with this drug (the longer you take it the more you will need to escalate the dose) although the dr will not comment!! Certainly not the magic bullet it was at the beginning of treatement (for the first 9 motnhs or so). I would only advise use if really needed as I find explaining my memory loss to other adults at the age of 35 demeaning !! Sometimes consider coming off it but have read bads press by people trying to come off it !! | F | 35 | 2 years | 1/27/2010 | 4 | BiPolar, Cervical Radiculopathy | Nervousness/short term memory loss/ hair will not grow | It was originally prescribed for my Cervical Radiculopathy (C6 damage). It was the only medicine that seemed to help with the alternating pain & tingling/numbness in my right neck/shoulder/arm/hand. A few years later, I was treated for depression until it was discovered that I was Bipolar II. At first the Neurontin was maxed to 3000/mgs a day, being that I was on Neurontin for pain mgmt. I became mega manic. I was reverted back to 300/mg 2x/day & Lamactil was added, which I love. So many meds were tried to manage my depression episodes of Bipolar, and this combination seems to work well. I have had weight gain issues, but I have learned that I can control that with exercise & healthy eating. I will not be 125 lbs as when I was young, but I will be happy at 145 which is the weight I leveled out to on the Neurontin in 1998. My struggle is with the hair loss issue. My hair will not grow as it used to on this medicine. Prior to taking it, my hair length was to the middle of my back. Now my right side only grows to my shoulder, while the left side grows normally. I am researching on vitamin supplements to help promote my growth. I also have Fibromyalgia, and it helps with muscle pain as well. | F | 44 | 7 years | 1/23/2010 | 5 | lymph node dissection from melanoma | If I miss a dose the severe nervousness sets in. I think I gained weight and it seems impossible to take it off while continuing the drug. | This drug saved my life. I had severe nerve pain after 3 months of healing. Nothing stopped the pain not even morphine. The first few doses totally ended the nerve pain and made every day life tolerable. I would take this drug no matter what now. | F | 47 | 5 years | 1/19/2010 | 1 | Spinal Cord Nerve Pain | On the smallest dose 100mg of Gabapentin, with in hours of taking this medicine I experienced hot flashes. A few hours later I had a sunburn rash on my face. My entire face was red and my cheeks burned. These side effects lasted 2 days after the initial dose. | I've also noticed that my thinking was slowed with just this one dose. I felt like I was drunk and disconnected from my body. | F | 35 | 1 days | 1/16/2010 | 3 | Yes | Fatigue, Depression, Thoughts of suicide, nasuea. | I had my 2nd back surgery, which after 3 weeks resulted in being hospitalized again b/c I got MRSA in the incision area. I have no reflexes in my right foot and since the last surgery have been suffering from pain down the back of my legs. I was put on nuerontin, b/c I was tired of being on pain killers. I have noticed some differences in my day to day activities, but still have pain and taking pain killers. I have also been on depression meds for 4 years. It worries me that I am having such terrible thoughts. Even on how to do it so my family does not have to clean up the mess. My depression has been under control until the third week of taking the neurontin. I go in to see my doctor again here soon, but thinking I should go sooner. | F | 33 | 4 weeks | 1/3/2010 | 4 | Mastectomy Nerve Pain | Horrible trying to get off this drug. Extreme mood swings since tapering dosage down slowly. Currently down to 100mg 3xd with crying/depression/nervousness. I had problems years ago, like this, trying to get off an SRI, so I know the symptoms. | This drug did work for my nerve pain following bilateral mastectomies. After 3 weeks of intense pain following my surgery, was put on 100mg to take every few hours up to 900mg a day. The side effects were tough, most talked about already. Yet my pain was worse, so put up with it. Now that nerve pain has decreased, I want to get off of this but not easy because of increased side effects. Which probably means this drug has addictive tendencies. | F | 51 | 6 months | 1/2/2010 | 5 | anxiety, social phobia, severe OCD. | drowsiness and dizziness ( at the beginning ), chenges in libido, | it helped and helps me a lot in combo with other medications to have relief in anxiety disorders that affect me whole life. it akes me calmer, reasonable, and without fear to interact with other people. i'm on 900 mg daily and it works well. try to do not increase dosage because of extreme drowsiness. | M | 23 | 1 years | 12/28/2009 | 1 | Disc herniation | Tremors, dropping things all the time, extreme anxiety and rapid weight gain | I will not take this drug again, it didn't even help the pain, doctor wanted to increase dose, I was on 900mg per day but I refused becaue of side effects | F | 66 | 30 days | 12/23/2009 | 3 | Bipolar 2 Mood Stabilizer +GAD | Clumsiness, brain 'fog', lack of concentration, increased appetite, decreased judgement,'bad mix with alcohol (I don't drink any more, anyway), weight gain (if appetite is not kept in check), somnolence. Anxiety also increases/returns when my body adapts to the dosage. | I have been on this drug for a long time, it has been a decent medication, for the most part. It's mild, compared to the benzos and much easier to titrate off of. However, your body will adapt to the drug, as it has a short half life and works rather quickly. Increases in dosage are common for me; I have doubled the amount that I was initially prescribed over the years. A better strategy is to knock down your dosage for awhile and then increase it; you'll have better results. I take between 900mgs and 1200 mgs a day along with 200mgs of Lamictal and it has been a good combination for me. The side effects are annoying, but the mood stabilization/lack of mania is worth it. | M | 29 | 9 years | 12/16/2009 | 2 | Periferal and centr. neurop. pain | Difficulties breathing/Dysphnea. | Neurontin helped me for almost a month, but ended up with giving me problems breathing. So I had to drop it, unfortunately. Because it gave me great pain relief. | M | 33 | 30 days | 12/14/2009 | 5 | radicular leg pain | i have been taking a very low dosage (600 mg) for the past ten years. I knew it helped, but did not realize just how much until i had to discontinue it for a surgical procedure. i was in tremendous pain, which is managable now. | F | 50 | 19 years | 12/8/2009 | 5 | Severe Sciatica & Herniated Disks | It's hard to know if symptoms result from neurontin gabapentin or medical conditions. Symptoms include: intense and persistent cough (but I have allergies & asthma); cognitive decline, difficulty concentrating, memory loss, and trouble finding words and doing simple things (but I suffer from neurotoxicity to VOCs in environment--have even prior to taking gabapentin). | Neurontin is like a miracle drug; without it I couldn't function. 300 mg, t.i.d. keeps sciatic pain manageable as long as I (1) do not lean or bend forward, (2) do not lift or push more than a few pounds infrequently, and (3) keep most other physical activity to a minimum. So, even with Neurontin, herniated disks and sciatica force me to greatly limit most normal everyday activities. | F | 58 | 7 years | 12/4/2009 | 4 | Sensory Neuropathic Cough | Hair falling out at rapid rate; weight gain (40 pounds in 7 months and that is with daily assertive exercise; at times forgetful; Low energy for sure but still had enough to do things like 70 miles a week long distance bike riding until the pain in toes and calves began. **this has begun to rapidly decrease as my dosage has decreased the last 2 weeks. Possible hyperness at times as some have observed in my behavior. DO NOT drink alcohol while on this drug. | OFF LABEL USE - Took 900mg every 8 hours (2700mg) for the first 6 months. Have begun to decrease the last month VERY SLOWLY - 600mg every 8 hours during day and 900mg at bedtime. After 2 weeks of this decrease began 300mg every 8 hours and then 600mg at bedtime for this week and next. Then will do 300mg every 8 hours total of 900mg per 24hrs. Aim is to be off totally to see how the chronic cough is. For now, there has been little change since decreasing doseage except my feet no longer ache (side affect?). Dr. is using this RX as off label. Sensory neuropathic cough - have had a dry chronic cough for 5 years. They put me on everything to help solve problem. I did find much relief from using Gabapentin - about 90% improvement. I hope to go completely off this rx in the next month. Do not like taking it and believe it has helped my cough. But, wondering if cough could be something else... will know in the next couple of months. If cough returns to 100% of the time, literally was, then I will most likely return to Rx. Standing in faith and prayer. | F | 50 | 7.5 months | 12/3/2009 | 4 | nerve pain pinched nerve in neck | none noticeable | seems to help pain and also helps me sleep better at night | F | 59 | 2 months | 12/3/2009 | 1 | peripheral neuopathy | severe brain fog,personality change,short term memory problems,suicidal ideation,dry mouth, nervousness,runny nose,tremors,depression. | I would never have taken this drug had I known that it would cause permanent brain damage!It has been almost 11 months since I took it and no improvement in my condition has happened. | M | 61 | 2 days | 12/2/2009 | 1 | peripheral neuopathy | severe brain fog,personality change,short term memory problems,suicidal ideation,dry mouth, nervousness,runny nose,tremors,depression. | I would never have taken this drug had I known that it would cause permanent brain damage!It has been almost 11 months since I took it and no improvement in my condition has happened. | M | 61 | 2 days | 12/2/2009 | 4 | Migraines | Initially, moments of absentmindedness that dissipated; sleepiness | Started at 300mg, week later 600mg, then three months later 900 mg and am still at that dosage. Appears to be helping as migraines reduced from almost daily to about 10 a month. I have to admit during this same period I added Magnesium, B2, CQ10 and butterbur. I replaced Butterbur with feverfew which I couldn't take. Anyway, at this time I would say it helps. I don't plan to increase dosage. I do end up in bed by 9, but then again am up early--3-4 am-- (I'm a morning person anyway so it's not a problem). The absentmindedness is in the nature of that moment when the word's on the tip of your tongue but you can't think what it is. I forewarned my friends; initially, I had frequent moments now it's not as often. I've tried various prescriptions, acupuncture, etc. It's early to say this is my "miracle" drug (7 months). I have a history of good short term success, but rarely long term; so we'll see. | F | 45 | 7 months | 11/21/2009 | 5 | chronic migraine | weight gain, dizziness, and slowed thought processes on 1800 mg | Neurontin has changed a daily headache to a treatable weekly headache. This drug gave me pain free time to do the things I enjoy. | F | 57 | 6 months | 11/20/2009 | 2 | Nerve Entrapment Pain & poss MS | took at night, first morning, whoah, hang-on the world is spinning which lasted a few hours, didn't dare drive, extremely tired. Leg didn't hurt though. Second morning, less dizziness, still extremely tired, could drive though. Third night, had to take 2 pills 6 hours apart to get relief. Fourth night, refuse to take more than 1 pill as surgery is in two days and tomorrow I won't take it. | Interesting how quick the dose had to be increased to get relief. Other pain areas that are from irritates nerves settled down immediately and stayed settled down as long as they were not re-irritated. Was somewhat a staggering drunk the first two days on it and took several hours to feel awake. After taking the dose, the problem area became almost locked in position, not wanting to bend normally. Somewhat dulls one's perceptions and releases inhibitions, where I did stuff I ought not to have, nothing criminal, but I may later regret those actions. After halving the previous night's dose, the pain is as if I had taken nothing at all. | F | 31 | 4 days | 11/16/2009 | 1 | numbness in legs and arms with move | Took 300 mg for two nights. Felt goofy and sluggish the first day. The second day I woke up ok but felt really weird. Mental fog then right side of face and head felt like it was burning while the left side of face esp nose felt like it was swelling. Said wrong names of people I know well! | Don't risk it. I had to be driven home by coworkers and on the way I took two benedryls for an allergic reaction and went to sleep. | F | 34 | 2 days | 11/13/2009 | 5 | L4 Disc Herniation | This has been a wonder drug for sciatic pain. I still have a herniated disc after re-herniation after microdisc. in 7/9 wonder now if I needed surgery in first place if was put on neurontin sooner. 300 3x a day. side effects manageable. Some weight gain maybe, but am not exercising as much. try it | Great medication ....start out slowly if it makes you tired initially...like at 100 mg | F | 43 | 3 months | 11/10/2009 | 4 | degenerative scoliosis | "Brain Fog" occassionally, word loss, forgetfulness, weight gain...hmmmm, it may have turned me into a ditz. Just kidding, the side effects are mild, and I certainly do not get high as some others have posted. | I was ready to wait my turn for extreme back surgery (read up on it sometime) at the hospital ER. I was put on 300mg 3 times a day. With the occassional help of hydrocodone it made my severe problem, liveable. No longer do I have an icepick buried in my lower back, and a lump of burning coal resting on my leg just above my ankle. I will deal with the side effects in exchange for the relief. | M | 53 | 28 months | 10/30/2009 | 4 | RSD Right Leg/L5 - S1 Bulged Disc | Only been on it for a week. So far no real side effects other than feeling a little sleepy the next day, but that was only for about 2 or 3 days. | I have noticed already that if I don't take it one day, the pain comes back immediately. Prescribed 300 mg - 3 x's day but only taking one at night because I don't want to be tired during the day. Injury from car accident & surgeries due to accident. I am very concerned about the weight gain I have been reading about. I don't want that to happen. | F | 38 | 1 weeks | 10/28/2009 | 4 | nerve pain | Felt foggy at first, but that subsided. Noticed recently that I've gained weight and have been concerned with hair loss. Have had some on and off depression,and I do find that I forget things frequently. | I tried to cut back to 3 300mg per day, but I couldn't stand the nerve pain, so I went back up. The side effects outweigh the pain. | F | 44 | 9 months | 10/26/2009 | 2 | sciatica, leg pain and tingling | brain fog and dizziness | Decided to give neurontin a second try after my first experience several months ago. No different this time. Took 300 mg at night after 10 hrs of sleep I can barely function.Was prescribed 1-3 caps per night. Can't imagine taking 3, I'd be comotose.I know I should give this drug more than 2 days to work, but I'm not willing to feel like a zombie while it does the job. I know this drug works for others including 2 of my friends who have been on it for years, but unfortunately it's not for me | F | 75 | 2 days | 10/22/2009 | 4 | Transverse Myelitis | Some weight gain, terrible hair loss (which I have stopped with generic rogaine 5% 1Xday). Extreme fatigue but TM causes that too. | The worst is how dependent I am. Without it the nerve pain is beyond what I can endure. Dosage was 300mg 3Xday, now 4003X. I fear having to take this in increasing dosages. I will know in another year or so if I am one of the lucky 1/3 of people who recover. TM is rare so there is no research $. Neuro can just prescribe meds & cross fingers. | F | 64 | 5 months | 10/19/2009 | 2 | migraines | weight gain and hair loss. | Taking 1800mg a day, gaining weight and losing hair everyday! I'm asking to go off and back to Topamax. I am concerned that my hair may not go back to "normal" for me. I still have a headache everyday too. | F | 45 | 3 months | 10/18/2009 | 1 | Off label back pain management | DO NOT TAKE THIS DRUG FOR ANY OFF LABEL USE. I have suffered thses side effects for almost 10 years. The drug company, Pfizer, has settled some law suits but they make literally 100's of billions of dollars on this usage, and have only paid out a few billion, so it is profitable for them to continue to market it to doctors who are encoouraged to prescribe it for any type of nerve pain and even psychiatric conditions. I developed Meniere's disease. Symptoms are vertigo, ear ringing,nausea,hearing loss. This side effect never went away, nor will it, and has rendered me disabled. It is a disease that has no cure nor any consistently effective management techniques. One never knows when it will strike and I have had acute episodes that have lasted over a month. It feels like the absolute worse case of motion illness you can imagine. Often one cannot even walk or lift one's head. One can not even move one's head slightly without making it worse. The acute symptoms are managed with l | DO NOT TAKE THIS DRUG FOR ANY OFF LABEL USE, or any drug for off label use. Basically "off label" means there is no verifiable data that supports that the drug is useful in any way for any conditions not specifically approved. This means there is no data nor any information being officially compiled about the off label use. The drug companies can and do just make up the idea that it is useful for other purposes other than those for which it is approved., and they are not suppose to market it for off label use but they do. Thery have had to pay the "whistle blowers" billions, but not enough that the products aren';t still profitable. If one makes $1 Billion and only has to pay out $100 million out in settlements, they will continue. This is a common business practice. The auto industry is known for this. It is cheaper to pay off the families of the dead than to fix the problem. You may recall the gas tank explosions that would have reqired a change costing less than $50, but it was still cheaper to let some consumers burn up, than to fix the car. | F | 57 | 90 days | 10/15/2009 | 3 | fibromyalgia | I have taken this drug for about one week this time.I also took this drug in April of this year but stopped. My side effects are memory lost, sometimes i jumble words up or just plain forget what I was about to do. The first time i took it i had some thoughts of self harm but that has not been the case this time. | This has helped some with the pain. Not as much as i hoped since the pain can be bad. I don't want to be addicted to pain killers so this is really the only option. I was also given lyrica but decided not to take it after hearing bad feed back. I also have diabetes so that might contribute to my pain. | F | 31 | 7 days | 10/13/2009 | 3 | Peripheral Neuropathy -non diabetic | Memory loss (went from 4.0 college student to a 3.0) and that in only 8 short weeks. I cannot remember jack sh*t. Laziness, weakness in the entire body. Zero sex drive. Dizziness, blurred vision, moments of binging for sweets (Never done that before prior to this medication) | I began taking this drug 4 months ago. I started out at 200mg every 8 hours which was near impossible to keep up with. I had funny dizzy type feelings at first then it went away. I was fine pain gone, then pain back, doc upped me to 600mg every 12hrs. Ok pain gone, now I cannot remember anything. NOTHING! I ask people things twice then ask again. My college classes are getting so difficult I cannot hardly do it. I was a 4.0 student! Not anymore. I haven't gained any weight, but have no sex life period any longer. I get strange feelings that come over me, insomnia you name it. While the pain is gone it isn't worth it I have to find something else. I check out lyrica and cymbalta and I am terrified of them too! | F | 37 | 4 months | 10/8/2009 | 5 | Nerve pain | I just recently started Neurontin and for the first few days felt no side effects and still had nerve pain on the side of my head due to a vp shunt placement. After 3 day of being on the medication, I felt dry mouth, developed hives on arms, some trouble concentrating and focusing and trouble finding the right words to say, this is only right after taking Neurontin. Besides the side effects, I no longer have nerve pain. | I only take 600 mg a day. I have not had a problem w/weight gain at this time. I feel at this time, the medication is worth taking. But only time will tell. | F | 43 | 2 weeks | 10/6/2009 | 5 | disc herniatian L4 | Some memory problems, forgetting words. Initially was drowsy...drunklike, but that went away. I think the side effects are pretty manageable for the great gain. | This drug worked wonders for my sciatic pain after a microdiscetomy. I was on a lot of vicodin...and have propensity to abuse opiates. So neurontin really helped take the need for narcotics away. It does seem to take a bit to work but I do notice it helps the pain soon after. I usually need to take it up to 4x a day. I usually take 100mg as needed in am and pm and at bedtime I do 300 mg. | F | 43 | 5 weeks | 9/23/2009 | 3 | leg numbness/tingling | At 600 and then 900 mg/day, very slight memory problems and mixing up letters and words. When starting and increasing dose, drowsiness & dizziness, but these faded to quite mild within a couple of days. In summary, pretty mild effects compared to some other drugs I've taken, though my dose is fairly low. | I'm not yet sure how much this is helping my leg pain/numbness/tingling (secondary to a spine injury) because these things improved somewhat while taking oral steroids just before starting the Neurontin. The improvement has held while I've been on the Neurontin. I'll have a better idea of the benefit when I further increase the dose (as my doc recommended), or when I someday taper off and quit. | M | 50 | 45 days | 9/19/2009 | 1 | fibromyalgia | dizziness,ear infecion, major loss of concentration or ability to funtion, fatigue, mood swings | I am a student in high school and this drug has really been bad. Ive had ear pain for over a week. I was always a good student i had a 4.0 and always cared about school. Since i started taking it i can't focus at school, im really tired, i spell things wrong, i forget what i learned. I was always good at math and now I cant do basic math. My whole mind set has changed and i feel like i dont care anmore. I get angry and then upset. I stutter. I space out. It hasn't helped for my pain either. It's the worst medication ive ever taken. I am weaning myself off. I hope things go back to normal. | F | 16 | 3 weeks | 9/16/2009 | 4 | migraine prevention | felt "stupid" at first, gradually that went away | cut down on frequency and intensity of migraines by about 1/2 | M | 61 | 4 years | 9/13/2009 | 4 | fibromyalgia, restless leg syndrome | I cannot take 900 mg daily as my dr prescribed because I do medical transcription and midday I was totally wiped out and unable to work; very sleepy, brain fog, blurred vision. I now take 300 mg am and 300 mg p.m. After 1 day I had a drastic improvement in the RLS; gone completely, and it had suffered badly with this. It has helped enough with the fibro that I can tell a difference, but not a huge difference. Without a midday dose I can work fine, but definitely need it for pain about 5 p.m. which begins to become almost intolerable. | I have gained 45 lbs taking Neurontin only 9 months. SO I decided to wean myside and see what would happen. I weaned slowly over a 2-week period. After just 1 day of no Neurontin IMMEDIATELY the RLS returned and kept me awake at night with leg pain. But the really scary part - I believe to have tremor-like seizures in my head; it felt like I had a drill turned on in my skull for a few seconds that left a taste in my mouth and my teeth sore. I stood this for about 1-1/2 weeks of these seizures increasing to 3 a day average and I jumped back on the Neurontin. It tooks another 2 weeks for my head to "feel normal" and the seizures just gradually weaned away. So, no matter how large I get (I am 230 now) I will be too afraid to ever stop the Neurontin again. But I tell myself it is worth it for the leg pain to be gone. I would toss and turn all night and feel a deep ache in both legs and a feeling as if electricity was running up and down my legs, even in my feet. To have that gone and be able to sleep is worth wearing a size 20, although a devastating blow has been struck to my vanity. | F | 59 | 9 months | 9/12/2009 | 5 | chronic pain due to neck injury | I am so depressed and am having suicidal thoughts and am at the end of my rope. I think it's time for me to get some help. This drug has been a lifesaver so far as almost totally eliminating my pain, but recently have woke up screaming from nightmares and this depression will take my life if I don't do something soon. | F | 47 | 2 months | 9/4/2009 | 4 | Stage 3 Lyme w/Neuropathy & Tremors | Dizziness, loss of coordination, drowsiness, word-finding difficulty, articulation errors, pooling of fluids in hands and forearms, numbness/tingling in lips and tongue, headaches. | The first couple days I felt foggy-headed, but otherwise great. Symptoms disappeared with no other side effects. I'm taking only 300mg daily, an hour before bed. After 3 days, side effects began to appear and increase steadily. Though distracting, they are still preferable to the condition they are treating, which seems to be controlled. No more seizures disrupting sleep. No more "clenched" feeling in throat. No more constant muscle tremors and random twitching. The side effects are increasingly annoying, however, particularly the poor hand dexterity and puffy feeling in fingers, making it difficult to perform precise small-motor functions. It's getting difficult to write with a pen or use the computer keyboard without frequent typing errors. | M | 52 | 12 days | 9/4/2009 | 4 | RLS/nerve damage in legs | Started with 300mg 2 times a day, and 2400mg at night to combat the RLS. This medicine works pretty well for RLS, and my episode per month have gone down quite a bit. Gabapentin was also invaluable for me when I was withdrawing from Vicodin. It made the opiate withdrawal much more bearable. I only had one uncomfortable incident after taking a larger dose one day; I became very manic, wouldn't shut up, mind was racing, and I felt like I was under the influence of alcohol. This has not happened again, but I do get a noticeable mood lift (almost euphoric) from Gabapentin, and it often makes me feel inebriated. | Works pretty well for RLS, but be careful because you can have a nasty withdrawal if you've been on high doses of Gabapentin for a while. | F | 24 | 4 months | 9/3/2009 | 1 | Diabetic Neuropathy Pain | It helped my neuropathy pain; but the horrible next day groggiest wasn't worth it. I have never felt this dreadful with any pill the next morning as I have with Neurontin. I cannot imagine how people report taking 600-1000-1200 mg. a day. | 300 mg at night about did me in. | F | 60 | 60 days | 9/3/2009 | 2 | Trigeminal Neuralgia | Depression, Suicidal Ideation | I don't know if this drug would have worked for my neuralgia or not, as I never reached a really therapeutic dose. At 900mg/day, I started thinking about killing myself all the time. I have never had suicidal thoughts before in my life! I had noticed feeling depressed at lower doses, but hadn't given it much thought until the terrible thoughts started happening. Take care with this med -- the suicidal ideation came on quite suddenly, and was very frightening. | F | 42 | | 8/26/2009 | 2 | Meralgia Paresthetica | Groggy, dopey, losing my balance, blurry vision, very dry mouth and thirsty all the time. Gaining weight. | Neurologist wanted to start me at 900 mg/day and then cut back if I had ill effects. I said I would prefer to start at 300 mg/day and work up slowly unless I had ill effects. Got to about 600 mg/day and started feeling groggy,etc. He had me cut back a bit but I am weaning myself off and will figure out some other way to deal with the leg pain! This side effects of this medication are worse than the problem it was supposed to help. I've since had others tell of similar problems with Neurontin. Thanks but no thanks. | F | 68 | 2 months | 8/23/2009 | 4 | Rapid Cycle Bipolar | Fatigue, grogginess,memory impairment. If doses are taken too close together, it has an alchol-like effect on me. Also, if I take too much of near bed time, I have a harder time waking up and have a 'hang over'. The side effects can be a pain, but's better than manic cycling. | This has been a good medication for me; it prevents manic episodes and is works for anxiety. For those of you with bipolar disorder, this medication is worth a try. It's a good mood stabilizer for me and I haven't had terrible side effects from it. Something to bear in mind; neurontin IS a safer drug than the benzos; it's not addictive and is much easier to get off of. It's also the best medication I have found for sleep and I have been on quite a few; a dose taken an hour or so before bed time works very well; as long as I don't take too much. I have found that, at the higher doses (900mgs+), it's important to space the doses out evenly; it will limit the side effects. | M | 27 | 7 years | 8/16/2009 | 3 | Damage to the meylin in my arms | constipation | M | 42 | 1 months | 8/16/2009 | 3 | | 8/12/2009 | 1 | seizures | Getting off dilantin, dr. recommended. Felt I was going crazy, out of control emotionally, all this quit when I was tapered off. | A extremely poor drug for me w/ complex partial seizures. | M | 55 | 30 days | 8/5/2009 | 1 | chronic joint pain | I was prescibed this drug for chronic joint pain. It did absolutely nothing for pain, but it did cause me to gain 45 lbs. in 6 weeks. I am only 5"2' , so 45lbs. is a lot of weight for me. | Before the Neurontin I was a thin person throughout my whole life. Now, because of the qweight, I am predisposed to diabetes, heart disease and many other health problems. I cannot lose the Neurontn weight because of the chronic pain and other issues for wbhich I sought treatment/ When my now ex-doc saw the 45lb. weight gain on my chart she casually said, "Oh yeah, that always happens," Do not take Neurontin for pain because it is usesless and dangerous. Take it only if you have the seizure disorder for which it was designed. Even then, I'd get as second pinion. | F | 57 | 6 months | 7/29/2009 | 5 | Neuralgia | Sleepiness, dizziness, memory loss. | I have been on Neurontin several times, and the side effects are always the same. I am sleepy all the time, dizzy all the time, and have no short term memory. I have bounced so many checks because I forgot that I used my debit card. I think the makers of Neurontin should pay my overdrafts! | M | 24 | 6 months | 7/27/2009 | 5 | post -herpetic nueralgia | Have taken 300mg 3x aday up to 1200mg 3x a day for 7 years higher dosages made me tired falling asleep driving is very easy be careful at high dosage. Ive had feeling of elation at higher dosages also. I have eye discharges but flushing them clears it. I have had vision changes over that time but do not know if its the drug. Miss a dose I get aggitated. 2 years ago I started having severe low back pain and pain down my leg have now started with lyrica that helps with that I have had multiple injections and mri's starting to wonder if it is from prolonged use of neurontin I will update this when I find out. Do not stop taking without a doctor!! you need to ween off over time. I have gained 40lbs in 7 years could be older age to? I didnt gain much when I was working long hard hours as an electrician but now as work slowed and now laid off its going on quicker! lower activity jobs and lifestyles weight gain will increase. I have never had suicidal thoughts while taking this drug in 7 year | It has helped greatly with my nerve pain and hyper sensitivity from shingles I was hopeless before I finnaly found this drug!!!. To me it was a life saver! nerve pain is very aggitating and this drug has helped rid me of that feeling so I can function. I have an email link feel free to ask some questions. | M | 30 | 7 years | 7/22/2009 | 1 | Nerve damage, back & hip pain & tingling | Wish I would have read this board before I began taking gabapentin (300mg 2X/day). Have experienced most every side effect mentioned. Hair loss begun a few weeks ago and it is frightening. It did help the tingling which had prevented walking. Just not worth it. If you've been able to get off this drug please tell me what I can expect to go through. Also if you had hair loss, did it ever grow back? I hate this stuff. If you are considering taking it -- DON'T. | F | 64 | 3 months | 7/19/2009 | 5 | geniculate neuralgia (ear pain) | Tired at first, jittery/restless/shakey if I forget to take it | I was tired when I first started taking this drug, but I eventually got past that. I take 300mg twice a day and has totally wiped out my ear pain. The only side effect I have now is if I forget to take it at bed time. Which is rare. About two hours later I'll wake up jittery/restless/shakey. It goes away in about 30 minutes after I take it and can go back to sleep. So my body is addicted to the medicine. If I decided to stop, I would have to ween off slowly. | F | 42 | 3 years | 7/17/2009 | 4 | plantar fashia pain-high arches | dry mouth, groggy for an hour or two after waking | pain kept me from sleeping, neurontin resolves the pain, I only use the medication as needed, 2 to 3 times a week at 800 mg prior to sleep--knocks the pain out and is worth the side affects | F | 54 | 2 years | 7/16/2009 | 1 | peripheral neuropathy (Feet) | Tired, very drowsy, back and legs ached, very clumsy, unable to walk straight, blurred vision, slurred speech, trouble concentrating, irritable and easily angered, increased BP (116/60 ->163/82). One 300 Mg dose. Diarrea the day after (when I did not take another). | As one diagnosed with autism, it seemed like voltage to brain was reduced. 24 hours later, neuropathy pain returned more than ever before. It "made me stupid", clumsy, edgy, and 'fuzzy' while only moderating my Charcot foot pain slightly. I need to use my brain A LOT to be 'highly functional' autistic...this stuff did not help at all. Won't take it again. | M | 55 | 1 days | 7/13/2009 | 3 | peripheral neuropathy | Doctor had to keep increasing the dose. It would work for awhile, then stop working. I am still in the process of trying to get good results. | M | 67 | 7 weeks | 7/9/2009 | 5 | Central (Thalamic) Pain Syndrome af | Weight gain. Brain fog, esp after increasing dosage. More vivid often nightmatish dreams. Word forgetfulness, even in the middle of a sentence. | I developed CPS after a stroke - a constant horrible cold burning pain on one side of my body. I am lucky that gabapentin helps me control it by lowering the pain intensity. It has saved my life. No joke. It has made me forgetful and thickened my waist. But at least I am not crawling on the floor, retching with unbearable pain, which is what happens when I do not take it. Gabapentin has side effects. CPS is Hell - a never ending burning pain that does not consume your flesh. Given a choice, I will continue to take the drug. | F | 52 | 21 months | 7/6/2009 | 4 | insomnia | slight dizziness but worth it | seems to be helping for my sleep | F | 43 | 2 days | 7/1/2009 | 3 | Bipolar/panic + lamictal 150mg | sudden mood shifts, headache, inability to think of words, typing is next to impossible, tired, loss of equilibrium, weight loss | am taking 1800mg in conjunction w.150mg of Lamictal for bipolar + agoraphobia w/panic attacks + insomnia. i had been on Wellbutrin and Zoloft when they thought i had clinical depression - turns out it was bipolar. they put me on Zoloft & lamictal - the zoloft made me manic no matter what. then just lamictal but i wasnt sleeping and i was having more frequent panic attacks due to my agoraphobia. then i was given Ambien - i hallucinated on that. then they gave me xanax and ativan - neither did ANYTHING for my agoraphobia. so my psychiatrist consulted a psychopharmacologist who recommended 1800mg of Neurontin witht the Lamictal. seems to be working OK so far. i feel off-balance a lot, and i have tension in my back & nexk, and i have headaches and i am not hungry at all. i also notice that my eczema doesnt hurt or itch as much as it did before to started teh Neurontin.... | F | 31 | | 6/17/2009 |
| Key to
ratings: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine. |