There are 539 ratings for the drug: NEURONTIN in the Askapatient database.

Key to ratings for neurontin: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine.

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Rating	Reason	Side Effects	Comments	Sex	Age	Time Taken		Date Added
				F  M
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5	depression/anxiety/insomnia	None! Possibly weight gain, which I need to monitor (cannot afford to gain weight as I am already 50# overweight.) Could be post holiday.	I have suffered from mild depression, anxiety, and INSOMNIA since memory. I have tried all of the SSRI's, Wellbutrin, and Nardil. All alleviated the depression, acted some on the anxiety - but had to stop because my insomnia went from rotten to worse. I stopped taking medication for about two years and my symptoms became unbearable. Could not function at work because I was surviving on 3 - 4 hours of sleep and a nervous wreck. Klonapin worked for sleep - but I limited it to two nights a week to avoid dependency - but my insomnia was worse the nights I did not take it. Decided to have sleep study and the neurologist asked me if I ever tried Neurontin. I told him no. I then asked my shrink for a Rx. I started on weekly increments of 100 mgs and ended with a final dose of 900 mgs at bedtime. This is drug I have been waiting for! Sleep is not perfect, but if I get up at 3:30 or 4 AM I am able to fall back to sleep. Depressive symptoms gone! Anxiety reduced by about 75% - all this and able to have orgasms! This med has changed my life. I just hope the weight gain stops. I strongly recommend this med for others who "have tried everything" without success.	M	56	3 months		1/28/2010
3	back and leg pain	I am finding the MEMORY LOSS a big problem, find very embarassing in front of children and other adults. I forget words, names, what I was looking for etc. Also, I say one thing and mean another. Hasn't got any better in 2 years I have taken it !!	Managed to get over the initial side effects of drowsiness, loss of appetite (lost nearly a stone in weight), over time. Slowly increased dose up to 1800mgs a day over 3 doses. Still need to take tramadol and diazepam as needed for back pain. I thin there is tachyphylaxis involved with this drug (the longer you take it the more you will need to escalate the dose) although the dr will not comment!! Certainly not the magic bullet it was at the beginning of treatement (for the first 9 motnhs or so). I would only advise use if really needed as I find explaining my memory loss to other adults at the age of 35 demeaning !! Sometimes consider coming off it but have read bads press by people trying to come off it !!	F	35	2 years		1/27/2010
4	BiPolar, Cervical Radiculopathy	Nervousness/short term memory loss/ hair will not grow	It was originally prescribed for my Cervical Radiculopathy (C6 damage). It was the only medicine that seemed to help with the alternating pain & tingling/numbness in my right neck/shoulder/arm/hand. A few years later, I was treated for depression until it was discovered that I was Bipolar II. At first the Neurontin was maxed to 3000/mgs a day, being that I was on Neurontin for pain mgmt. I became mega manic. I was reverted back to 300/mg 2x/day & Lamactil was added, which I love. So many meds were tried to manage my depression episodes of Bipolar, and this combination seems to work well. I have had weight gain issues, but I have learned that I can control that with exercise & healthy eating. I will not be 125 lbs as when I was young, but I will be happy at 145 which is the weight I leveled out to on the Neurontin in 1998. My struggle is with the hair loss issue. My hair will not grow as it used to on this medicine. Prior to taking it, my hair length was to the middle of my back. Now my right side only grows to my shoulder, while the left side grows normally. I am researching on vitamin supplements to help promote my growth. I also have Fibromyalgia, and it helps with muscle pain as well.	F	44	7 years		1/23/2010
5	lymph node dissection from melanoma	If I miss a dose the severe nervousness sets in. I think I gained weight and it seems impossible to take it off while continuing the drug.	This drug saved my life. I had severe nerve pain after 3 months of healing. Nothing stopped the pain not even morphine. The first few doses totally ended the nerve pain and made every day life tolerable. I would take this drug no matter what now.	F	47	5 years		1/19/2010
1	Spinal Cord Nerve Pain	On the smallest dose 100mg of Gabapentin, with in hours of taking this medicine I experienced hot flashes. A few hours later I had a sunburn rash on my face. My entire face was red and my cheeks burned. These side effects lasted 2 days after the initial dose.	I've also noticed that my thinking was slowed with just this one dose. I felt like I was drunk and disconnected from my body.	F	35	1 days		1/16/2010
3	Yes	Fatigue, Depression, Thoughts of suicide, nasuea.	I had my 2nd back surgery, which after 3 weeks resulted in being hospitalized again b/c I got MRSA in the incision area. I have no reflexes in my right foot and since the last surgery have been suffering from pain down the back of my legs. I was put on nuerontin, b/c I was tired of being on pain killers. I have noticed some differences in my day to day activities, but still have pain and taking pain killers. I have also been on depression meds for 4 years. It worries me that I am having such terrible thoughts. Even on how to do it so my family does not have to clean up the mess. My depression has been under control until the third week of taking the neurontin. I go in to see my doctor again here soon, but thinking I should go sooner.	F	33	4 weeks		1/3/2010 Email
4	Mastectomy Nerve Pain	Horrible trying to get off this drug. Extreme mood swings since tapering dosage down slowly. Currently down to 100mg 3xd with crying/depression/nervousness. I had problems years ago, like this, trying to get off an SRI, so I know the symptoms.	This drug did work for my nerve pain following bilateral mastectomies. After 3 weeks of intense pain following my surgery, was put on 100mg to take every few hours up to 900mg a day. The side effects were tough, most talked about already. Yet my pain was worse, so put up with it. Now that nerve pain has decreased, I want to get off of this but not easy because of increased side effects. Which probably means this drug has addictive tendencies.	F	51	6 months		1/2/2010 Email
5	anxiety, social phobia, severe OCD.	drowsiness and dizziness ( at the beginning ), chenges in libido,	it helped and helps me a lot in combo with other medications to have relief in anxiety disorders that affect me whole life. it akes me calmer, reasonable, and without fear to interact with other people. i'm on 900 mg daily and it works well. try to do not increase dosage because of extreme drowsiness.	M	23	1 years		12/28/2009
1	Disc herniation	Tremors, dropping things all the time, extreme anxiety and rapid weight gain	I will not take this drug again, it didn't even help the pain, doctor wanted to increase dose, I was on 900mg per day but I refused becaue of side effects	F	66	30 days		12/23/2009 Email
3	Bipolar 2 Mood Stabilizer +GAD	Clumsiness, brain 'fog', lack of concentration, increased appetite, decreased judgement,'bad mix with alcohol (I don't drink any more, anyway), weight gain (if appetite is not kept in check), somnolence. Anxiety also increases/returns when my body adapts to the dosage.	I have been on this drug for a long time, it has been a decent medication, for the most part. It's mild, compared to the benzos and much easier to titrate off of. However, your body will adapt to the drug, as it has a short half life and works rather quickly. Increases in dosage are common for me; I have doubled the amount that I was initially prescribed over the years. A better strategy is to knock down your dosage for awhile and then increase it; you'll have better results. I take between 900mgs and 1200 mgs a day along with 200mgs of Lamictal and it has been a good combination for me. The side effects are annoying, but the mood stabilization/lack of mania is worth it.	M	29	9 years		12/16/2009 Email
2	Periferal and centr. neurop. pain	Difficulties breathing/Dysphnea.	Neurontin helped me for almost a month, but ended up with giving me problems breathing. So I had to drop it, unfortunately. Because it gave me great pain relief.	M	33	30 days		12/14/2009
5	radicular leg pain	i have been taking a very low dosage (600 mg) for the past ten years. I knew it helped, but did not realize just how much until i had to discontinue it for a surgical procedure. i was in tremendous pain, which is managable now.		F	50	19 years		12/8/2009
5	Severe Sciatica & Herniated Disks	It's hard to know if symptoms result from neurontin gabapentin or medical conditions. Symptoms include: intense and persistent cough (but I have allergies & asthma); cognitive decline, difficulty concentrating, memory loss, and trouble finding words and doing simple things (but I suffer from neurotoxicity to VOCs in environment--have even prior to taking gabapentin).	Neurontin is like a miracle drug; without it I couldn't function. 300 mg, t.i.d. keeps sciatic pain manageable as long as I (1) do not lean or bend forward, (2) do not lift or push more than a few pounds infrequently, and (3) keep most other physical activity to a minimum. So, even with Neurontin, herniated disks and sciatica force me to greatly limit most normal everyday activities.	F	58	7 years		12/4/2009
4	Sensory Neuropathic Cough	Hair falling out at rapid rate; weight gain (40 pounds in 7 months and that is with daily assertive exercise; at times forgetful; Low energy for sure but still had enough to do things like 70 miles a week long distance bike riding until the pain in toes and calves began. **this has begun to rapidly decrease as my dosage has decreased the last 2 weeks. Possible hyperness at times as some have observed in my behavior. DO NOT drink alcohol while on this drug.	OFF LABEL USE - Took 900mg every 8 hours (2700mg) for the first 6 months. Have begun to decrease the last month VERY SLOWLY - 600mg every 8 hours during day and 900mg at bedtime. After 2 weeks of this decrease began 300mg every 8 hours and then 600mg at bedtime for this week and next. Then will do 300mg every 8 hours total of 900mg per 24hrs. Aim is to be off totally to see how the chronic cough is. For now, there has been little change since decreasing doseage except my feet no longer ache (side affect?). Dr. is using this RX as off label. Sensory neuropathic cough - have had a dry chronic cough for 5 years. They put me on everything to help solve problem. I did find much relief from using Gabapentin - about 90% improvement. I hope to go completely off this rx in the next month. Do not like taking it and believe it has helped my cough. But, wondering if cough could be something else... will know in the next couple of months. If cough returns to 100% of the time, literally was, then I will most likely return to Rx. Standing in faith and prayer.	F	50	7.5 months		12/3/2009
4	nerve pain pinched nerve in neck	none noticeable	seems to help pain and also helps me sleep better at night	F	59	2 months		12/3/2009
1	peripheral neuopathy	severe brain fog,personality change,short term memory problems,suicidal ideation,dry mouth, nervousness,runny nose,tremors,depression.	I would never have taken this drug had I known that it would cause permanent brain damage!It has been almost 11 months since I took it and no improvement in my condition has happened.	M	61	2 days		12/2/2009 Email
1	peripheral neuopathy	severe brain fog,personality change,short term memory problems,suicidal ideation,dry mouth, nervousness,runny nose,tremors,depression.	I would never have taken this drug had I known that it would cause permanent brain damage!It has been almost 11 months since I took it and no improvement in my condition has happened.	M	61	2 days		12/2/2009 Email
4	Migraines	Initially, moments of absentmindedness that dissipated; sleepiness	Started at 300mg, week later 600mg, then three months later 900 mg and am still at that dosage. Appears to be helping as migraines reduced from almost daily to about 10 a month. I have to admit during this same period I added Magnesium, B2, CQ10 and butterbur. I replaced Butterbur with feverfew which I couldn't take. Anyway, at this time I would say it helps. I don't plan to increase dosage. I do end up in bed by 9, but then again am up early--3-4 am-- (I'm a morning person anyway so it's not a problem). The absentmindedness is in the nature of that moment when the word's on the tip of your tongue but you can't think what it is. I forewarned my friends; initially, I had frequent moments now it's not as often. I've tried various prescriptions, acupuncture, etc. It's early to say this is my "miracle" drug (7 months). I have a history of good short term success, but rarely long term; so we'll see.	F	45	7 months		11/21/2009
5	chronic migraine	weight gain, dizziness, and slowed thought processes on 1800 mg	Neurontin has changed a daily headache to a treatable weekly headache. This drug gave me pain free time to do the things I enjoy.	F	57	6 months		11/20/2009
2	Nerve Entrapment Pain & poss MS	took at night, first morning, whoah, hang-on the world is spinning which lasted a few hours, didn't dare drive, extremely tired. Leg didn't hurt though. Second morning, less dizziness, still extremely tired, could drive though. Third night, had to take 2 pills 6 hours apart to get relief. Fourth night, refuse to take more than 1 pill as surgery is in two days and tomorrow I won't take it.	Interesting how quick the dose had to be increased to get relief. Other pain areas that are from irritates nerves settled down immediately and stayed settled down as long as they were not re-irritated. Was somewhat a staggering drunk the first two days on it and took several hours to feel awake. After taking the dose, the problem area became almost locked in position, not wanting to bend normally. Somewhat dulls one's perceptions and releases inhibitions, where I did stuff I ought not to have, nothing criminal, but I may later regret those actions. After halving the previous night's dose, the pain is as if I had taken nothing at all.	F	31	4 days		11/16/2009
1	numbness in legs and arms with move	Took 300 mg for two nights. Felt goofy and sluggish the first day. The second day I woke up ok but felt really weird. Mental fog then right side of face and head felt like it was burning while the left side of face esp nose felt like it was swelling. Said wrong names of people I know well!	Don't risk it. I had to be driven home by coworkers and on the way I took two benedryls for an allergic reaction and went to sleep.	F	34	2 days		11/13/2009
5	L4 Disc Herniation	This has been a wonder drug for sciatic pain. I still have a herniated disc after re-herniation after microdisc. in 7/9 wonder now if I needed surgery in first place if was put on neurontin sooner. 300 3x a day. side effects manageable. Some weight gain maybe, but am not exercising as much. try it	Great medication ....start out slowly if it makes you tired initially...like at 100 mg	F	43	3 months		11/10/2009
4	degenerative scoliosis	"Brain Fog" occassionally, word loss, forgetfulness, weight gain...hmmmm, it may have turned me into a ditz. Just kidding, the side effects are mild, and I certainly do not get high as some others have posted.	I was ready to wait my turn for extreme back surgery (read up on it sometime) at the hospital ER. I was put on 300mg 3 times a day. With the occassional help of hydrocodone it made my severe problem, liveable. No longer do I have an icepick buried in my lower back, and a lump of burning coal resting on my leg just above my ankle. I will deal with the side effects in exchange for the relief.	M	53	28 months		10/30/2009
4	RSD Right Leg/L5 - S1 Bulged Disc	Only been on it for a week. So far no real side effects other than feeling a little sleepy the next day, but that was only for about 2 or 3 days.	I have noticed already that if I don't take it one day, the pain comes back immediately. Prescribed 300 mg - 3 x's day but only taking one at night because I don't want to be tired during the day. Injury from car accident & surgeries due to accident. I am very concerned about the weight gain I have been reading about. I don't want that to happen.	F	38	1 weeks		10/28/2009 Email
4	nerve pain	Felt foggy at first, but that subsided. Noticed recently that I've gained weight and have been concerned with hair loss. Have had some on and off depression,and I do find that I forget things frequently.	I tried to cut back to 3 300mg per day, but I couldn't stand the nerve pain, so I went back up. The side effects outweigh the pain.	F	44	9 months		10/26/2009
2	sciatica, leg pain and tingling	brain fog and dizziness	Decided to give neurontin a second try after my first experience several months ago. No different this time. Took 300 mg at night after 10 hrs of sleep I can barely function.Was prescribed 1-3 caps per night. Can't imagine taking 3, I'd be comotose.I know I should give this drug more than 2 days to work, but I'm not willing to feel like a zombie while it does the job. I know this drug works for others including 2 of my friends who have been on it for years, but unfortunately it's not for me	F	75	2 days		10/22/2009
4	Transverse Myelitis	Some weight gain, terrible hair loss (which I have stopped with generic rogaine 5% 1Xday). Extreme fatigue but TM causes that too.	The worst is how dependent I am. Without it the nerve pain is beyond what I can endure. Dosage was 300mg 3Xday, now 4003X. I fear having to take this in increasing dosages. I will know in another year or so if I am one of the lucky 1/3 of people who recover. TM is rare so there is no research $. Neuro can just prescribe meds & cross fingers.	F	64	5 months		10/19/2009 Email
2	migraines	weight gain and hair loss.	Taking 1800mg a day, gaining weight and losing hair everyday! I'm asking to go off and back to Topamax. I am concerned that my hair may not go back to "normal" for me. I still have a headache everyday too.	F	45	3 months		10/18/2009
1	Off label back pain management	DO NOT TAKE THIS DRUG FOR ANY OFF LABEL USE. I have suffered thses side effects for almost 10 years. The drug company, Pfizer, has settled some law suits but they make literally 100's of billions of dollars on this usage, and have only paid out a few billion, so it is profitable for them to continue to market it to doctors who are encoouraged to prescribe it for any type of nerve pain and even psychiatric conditions. I developed Meniere's disease. Symptoms are vertigo, ear ringing,nausea,hearing loss. This side effect never went away, nor will it, and has rendered me disabled. It is a disease that has no cure nor any consistently effective management techniques. One never knows when it will strike and I have had acute episodes that have lasted over a month. It feels like the absolute worse case of motion illness you can imagine. Often one cannot even walk or lift one's head. One can not even move one's head slightly without making it worse. The acute symptoms are managed with l	DO NOT TAKE THIS DRUG FOR ANY OFF LABEL USE, or any drug for off label use. Basically "off label" means there is no verifiable data that supports that the drug is useful in any way for any conditions not specifically approved. This means there is no data nor any information being officially compiled about the off label use. The drug companies can and do just make up the idea that it is useful for other purposes other than those for which it is approved., and they are not suppose to market it for off label use but they do. Thery have had to pay the "whistle blowers" billions, but not enough that the products aren';t still profitable. If one makes $1 Billion and only has to pay out $100 million out in settlements, they will continue. This is a common business practice. The auto industry is known for this. It is cheaper to pay off the families of the dead than to fix the problem. You may recall the gas tank explosions that would have reqired a change costing less than $50, but it was still cheaper to let some consumers burn up, than to fix the car.	F	57	90 days		10/15/2009
3	fibromyalgia	I have taken this drug for about one week this time.I also took this drug in April of this year but stopped. My side effects are memory lost, sometimes i jumble words up or just plain forget what I was about to do. The first time i took it i had some thoughts of self harm but that has not been the case this time.	This has helped some with the pain. Not as much as i hoped since the pain can be bad. I don't want to be addicted to pain killers so this is really the only option. I was also given lyrica but decided not to take it after hearing bad feed back. I also have diabetes so that might contribute to my pain.	F	31	7 days		10/13/2009 Email
3	Peripheral Neuropathy -non diabetic	Memory loss (went from 4.0 college student to a 3.0) and that in only 8 short weeks. I cannot remember jack sh*t. Laziness, weakness in the entire body. Zero sex drive. Dizziness, blurred vision, moments of binging for sweets (Never done that before prior to this medication)	I began taking this drug 4 months ago. I started out at 200mg every 8 hours which was near impossible to keep up with. I had funny dizzy type feelings at first then it went away. I was fine pain gone, then pain back, doc upped me to 600mg every 12hrs. Ok pain gone, now I cannot remember anything. NOTHING! I ask people things twice then ask again. My college classes are getting so difficult I cannot hardly do it. I was a 4.0 student! Not anymore. I haven't gained any weight, but have no sex life period any longer. I get strange feelings that come over me, insomnia you name it. While the pain is gone it isn't worth it I have to find something else. I check out lyrica and cymbalta and I am terrified of them too!	F	37	4 months		10/8/2009 Email
5	Nerve pain	I just recently started Neurontin and for the first few days felt no side effects and still had nerve pain on the side of my head due to a vp shunt placement. After 3 day of being on the medication, I felt dry mouth, developed hives on arms, some trouble concentrating and focusing and trouble finding the right words to say, this is only right after taking Neurontin. Besides the side effects, I no longer have nerve pain.	I only take 600 mg a day. I have not had a problem w/weight gain at this time. I feel at this time, the medication is worth taking. But only time will tell.	F	43	2 weeks		10/6/2009 Email
5	disc herniatian L4	Some memory problems, forgetting words. Initially was drowsy...drunklike, but that went away. I think the side effects are pretty manageable for the great gain.	This drug worked wonders for my sciatic pain after a microdiscetomy. I was on a lot of vicodin...and have propensity to abuse opiates. So neurontin really helped take the need for narcotics away. It does seem to take a bit to work but I do notice it helps the pain soon after. I usually need to take it up to 4x a day. I usually take 100mg as needed in am and pm and at bedtime I do 300 mg.	F	43	5 weeks		9/23/2009
3	leg numbness/tingling	At 600 and then 900 mg/day, very slight memory problems and mixing up letters and words. When starting and increasing dose, drowsiness & dizziness, but these faded to quite mild within a couple of days. In summary, pretty mild effects compared to some other drugs I've taken, though my dose is fairly low.	I'm not yet sure how much this is helping my leg pain/numbness/tingling (secondary to a spine injury) because these things improved somewhat while taking oral steroids just before starting the Neurontin. The improvement has held while I've been on the Neurontin. I'll have a better idea of the benefit when I further increase the dose (as my doc recommended), or when I someday taper off and quit.	M	50	45 days		9/19/2009
1	fibromyalgia	dizziness,ear infecion, major loss of concentration or ability to funtion, fatigue, mood swings	I am a student in high school and this drug has really been bad. Ive had ear pain for over a week. I was always a good student i had a 4.0 and always cared about school. Since i started taking it i can't focus at school, im really tired, i spell things wrong, i forget what i learned. I was always good at math and now I cant do basic math. My whole mind set has changed and i feel like i dont care anmore. I get angry and then upset. I stutter. I space out. It hasn't helped for my pain either. It's the worst medication ive ever taken. I am weaning myself off. I hope things go back to normal.	F	16	3 weeks		9/16/2009
4	migraine prevention	felt "stupid" at first, gradually that went away	cut down on frequency and intensity of migraines by about 1/2	M	61	4 years		9/13/2009
4	fibromyalgia, restless leg syndrome	I cannot take 900 mg daily as my dr prescribed because I do medical transcription and midday I was totally wiped out and unable to work; very sleepy, brain fog, blurred vision. I now take 300 mg am and 300 mg p.m. After 1 day I had a drastic improvement in the RLS; gone completely, and it had suffered badly with this. It has helped enough with the fibro that I can tell a difference, but not a huge difference. Without a midday dose I can work fine, but definitely need it for pain about 5 p.m. which begins to become almost intolerable.	I have gained 45 lbs taking Neurontin only 9 months. SO I decided to wean myside and see what would happen. I weaned slowly over a 2-week period. After just 1 day of no Neurontin IMMEDIATELY the RLS returned and kept me awake at night with leg pain. But the really scary part - I believe to have tremor-like seizures in my head; it felt like I had a drill turned on in my skull for a few seconds that left a taste in my mouth and my teeth sore. I stood this for about 1-1/2 weeks of these seizures increasing to 3 a day average and I jumped back on the Neurontin. It tooks another 2 weeks for my head to "feel normal" and the seizures just gradually weaned away. So, no matter how large I get (I am 230 now) I will be too afraid to ever stop the Neurontin again. But I tell myself it is worth it for the leg pain to be gone. I would toss and turn all night and feel a deep ache in both legs and a feeling as if electricity was running up and down my legs, even in my feet. To have that gone and be able to sleep is worth wearing a size 20, although a devastating blow has been struck to my vanity.	F	59	9 months		9/12/2009 Email
5	chronic pain due to neck injury	I am so depressed and am having suicidal thoughts and am at the end of my rope. I think it's time for me to get some help. This drug has been a lifesaver so far as almost totally eliminating my pain, but recently have woke up screaming from nightmares and this depression will take my life if I don't do something soon.		F	47	2 months		9/4/2009 Email
4	Stage 3 Lyme w/Neuropathy & Tremors	Dizziness, loss of coordination, drowsiness, word-finding difficulty, articulation errors, pooling of fluids in hands and forearms, numbness/tingling in lips and tongue, headaches.	The first couple days I felt foggy-headed, but otherwise great. Symptoms disappeared with no other side effects. I'm taking only 300mg daily, an hour before bed. After 3 days, side effects began to appear and increase steadily. Though distracting, they are still preferable to the condition they are treating, which seems to be controlled. No more seizures disrupting sleep. No more "clenched" feeling in throat. No more constant muscle tremors and random twitching. The side effects are increasingly annoying, however, particularly the poor hand dexterity and puffy feeling in fingers, making it difficult to perform precise small-motor functions. It's getting difficult to write with a pen or use the computer keyboard without frequent typing errors.	M	52	12 days		9/4/2009
4	RLS/nerve damage in legs	Started with 300mg 2 times a day, and 2400mg at night to combat the RLS. This medicine works pretty well for RLS, and my episode per month have gone down quite a bit. Gabapentin was also invaluable for me when I was withdrawing from Vicodin. It made the opiate withdrawal much more bearable. I only had one uncomfortable incident after taking a larger dose one day; I became very manic, wouldn't shut up, mind was racing, and I felt like I was under the influence of alcohol. This has not happened again, but I do get a noticeable mood lift (almost euphoric) from Gabapentin, and it often makes me feel inebriated.	Works pretty well for RLS, but be careful because you can have a nasty withdrawal if you've been on high doses of Gabapentin for a while.	F	24	4 months		9/3/2009
1	Diabetic Neuropathy Pain	It helped my neuropathy pain; but the horrible next day groggiest wasn't worth it. I have never felt this dreadful with any pill the next morning as I have with Neurontin. I cannot imagine how people report taking 600-1000-1200 mg. a day.	300 mg at night about did me in.	F	60	60 days		9/3/2009
2	Trigeminal Neuralgia	Depression, Suicidal Ideation	I don't know if this drug would have worked for my neuralgia or not, as I never reached a really therapeutic dose. At 900mg/day, I started thinking about killing myself all the time. I have never had suicidal thoughts before in my life! I had noticed feeling depressed at lower doses, but hadn't given it much thought until the terrible thoughts started happening. Take care with this med -- the suicidal ideation came on quite suddenly, and was very frightening.	F	42			8/26/2009
2	Meralgia Paresthetica	Groggy, dopey, losing my balance, blurry vision, very dry mouth and thirsty all the time. Gaining weight.	Neurologist wanted to start me at 900 mg/day and then cut back if I had ill effects. I said I would prefer to start at 300 mg/day and work up slowly unless I had ill effects. Got to about 600 mg/day and started feeling groggy,etc. He had me cut back a bit but I am weaning myself off and will figure out some other way to deal with the leg pain! This side effects of this medication are worse than the problem it was supposed to help. I've since had others tell of similar problems with Neurontin. Thanks but no thanks.	F	68	2 months		8/23/2009
4	Rapid Cycle Bipolar	Fatigue, grogginess,memory impairment. If doses are taken too close together, it has an alchol-like effect on me. Also, if I take too much of near bed time, I have a harder time waking up and have a 'hang over'. The side effects can be a pain, but's better than manic cycling.	This has been a good medication for me; it prevents manic episodes and is works for anxiety. For those of you with bipolar disorder, this medication is worth a try. It's a good mood stabilizer for me and I haven't had terrible side effects from it. Something to bear in mind; neurontin IS a safer drug than the benzos; it's not addictive and is much easier to get off of. It's also the best medication I have found for sleep and I have been on quite a few; a dose taken an hour or so before bed time works very well; as long as I don't take too much. I have found that, at the higher doses (900mgs+), it's important to space the doses out evenly; it will limit the side effects.	M	27	7 years		8/16/2009
3	Damage to the meylin in my arms	constipation		M	42	1 months		8/16/2009
3								8/12/2009
1	seizures	Getting off dilantin, dr. recommended. Felt I was going crazy, out of control emotionally, all this quit when I was tapered off.	A extremely poor drug for me w/ complex partial seizures.	M	55	30 days		8/5/2009 Email
1	chronic joint pain	I was prescibed this drug for chronic joint pain. It did absolutely nothing for pain, but it did cause me to gain 45 lbs. in 6 weeks. I am only 5"2' , so 45lbs. is a lot of weight for me.	Before the Neurontin I was a thin person throughout my whole life. Now, because of the qweight, I am predisposed to diabetes, heart disease and many other health problems. I cannot lose the Neurontn weight because of the chronic pain and other issues for wbhich I sought treatment/ When my now ex-doc saw the 45lb. weight gain on my chart she casually said, "Oh yeah, that always happens," Do not take Neurontin for pain because it is usesless and dangerous. Take it only if you have the seizure disorder for which it was designed. Even then, I'd get as second pinion.	F	57	6 months		7/29/2009
5	Neuralgia	Sleepiness, dizziness, memory loss.	I have been on Neurontin several times, and the side effects are always the same. I am sleepy all the time, dizzy all the time, and have no short term memory. I have bounced so many checks because I forgot that I used my debit card. I think the makers of Neurontin should pay my overdrafts!	M	24	6 months		7/27/2009
5	post -herpetic nueralgia	Have taken 300mg 3x aday up to 1200mg 3x a day for 7 years higher dosages made me tired falling asleep driving is very easy be careful at high dosage. Ive had feeling of elation at higher dosages also. I have eye discharges but flushing them clears it. I have had vision changes over that time but do not know if its the drug. Miss a dose I get aggitated. 2 years ago I started having severe low back pain and pain down my leg have now started with lyrica that helps with that I have had multiple injections and mri's starting to wonder if it is from prolonged use of neurontin I will update this when I find out. Do not stop taking without a doctor!! you need to ween off over time. I have gained 40lbs in 7 years could be older age to? I didnt gain much when I was working long hard hours as an electrician but now as work slowed and now laid off its going on quicker! lower activity jobs and lifestyles weight gain will increase. I have never had suicidal thoughts while taking this drug in 7 year	It has helped greatly with my nerve pain and hyper sensitivity from shingles I was hopeless before I finnaly found this drug!!!. To me it was a life saver! nerve pain is very aggitating and this drug has helped rid me of that feeling so I can function. I have an email link feel free to ask some questions.	M	30	7 years		7/22/2009 Email
1		Nerve damage, back & hip pain & tingling	Wish I would have read this board before I began taking gabapentin (300mg 2X/day). Have experienced most every side effect mentioned. Hair loss begun a few weeks ago and it is frightening. It did help the tingling which had prevented walking. Just not worth it. If you've been able to get off this drug please tell me what I can expect to go through. Also if you had hair loss, did it ever grow back? I hate this stuff. If you are considering taking it -- DON'T.	F	64	3 months		7/19/2009 Email
5	geniculate neuralgia (ear pain)	Tired at first, jittery/restless/shakey if I forget to take it	I was tired when I first started taking this drug, but I eventually got past that. I take 300mg twice a day and has totally wiped out my ear pain. The only side effect I have now is if I forget to take it at bed time. Which is rare. About two hours later I'll wake up jittery/restless/shakey. It goes away in about 30 minutes after I take it and can go back to sleep. So my body is addicted to the medicine. If I decided to stop, I would have to ween off slowly.	F	42	3 years		7/17/2009
4	plantar fashia pain-high arches	dry mouth, groggy for an hour or two after waking	pain kept me from sleeping, neurontin resolves the pain, I only use the medication as needed, 2 to 3 times a week at 800 mg prior to sleep--knocks the pain out and is worth the side affects	F	54	2 years		7/16/2009
1	peripheral neuropathy (Feet)	Tired, very drowsy, back and legs ached, very clumsy, unable to walk straight, blurred vision, slurred speech, trouble concentrating, irritable and easily angered, increased BP (116/60 ->163/82). One 300 Mg dose. Diarrea the day after (when I did not take another).	As one diagnosed with autism, it seemed like voltage to brain was reduced. 24 hours later, neuropathy pain returned more than ever before. It "made me stupid", clumsy, edgy, and 'fuzzy' while only moderating my Charcot foot pain slightly. I need to use my brain A LOT to be 'highly functional' autistic...this stuff did not help at all. Won't take it again.	M	55	1 days		7/13/2009 Email
3	peripheral neuropathy		Doctor had to keep increasing the dose. It would work for awhile, then stop working. I am still in the process of trying to get good results.	M	67	7 weeks		7/9/2009
5	Central (Thalamic) Pain Syndrome af	Weight gain. Brain fog, esp after increasing dosage. More vivid often nightmatish dreams. Word forgetfulness, even in the middle of a sentence.	I developed CPS after a stroke - a constant horrible cold burning pain on one side of my body. I am lucky that gabapentin helps me control it by lowering the pain intensity. It has saved my life. No joke. It has made me forgetful and thickened my waist. But at least I am not crawling on the floor, retching with unbearable pain, which is what happens when I do not take it. Gabapentin has side effects. CPS is Hell - a never ending burning pain that does not consume your flesh. Given a choice, I will continue to take the drug.	F	52	21 months		7/6/2009 Email
4	insomnia	slight dizziness but worth it	seems to be helping for my sleep	F	43	2 days		7/1/2009
3	Bipolar/panic + lamictal 150mg	sudden mood shifts, headache, inability to think of words, typing is next to impossible, tired, loss of equilibrium, weight loss	am taking 1800mg in conjunction w.150mg of Lamictal for bipolar + agoraphobia w/panic attacks + insomnia. i had been on Wellbutrin and Zoloft when they thought i had clinical depression - turns out it was bipolar. they put me on Zoloft & lamictal - the zoloft made me manic no matter what. then just lamictal but i wasnt sleeping and i was having more frequent panic attacks due to my agoraphobia. then i was given Ambien - i hallucinated on that. then they gave me xanax and ativan - neither did ANYTHING for my agoraphobia. so my psychiatrist consulted a psychopharmacologist who recommended 1800mg of Neurontin witht the Lamictal. seems to be working OK so far. i feel off-balance a lot, and i have tension in my back & nexk, and i have headaches and i am not hungry at all. i also notice that my eczema doesnt hurt or itch as much as it did before to started teh Neurontin....	F	31			6/17/2009
3	Anxiety, Insomnia	mild dizziness, slow speech.	This drug has helped me with anxiety a bit, and it helped my mood a little. The drug is not addictive as the benzos, it can help with mild anxiety symptoms, it is really used for pain and as an antisconvulsant. Unfortunately, you will need a higher dose to get some of those off label benefits	M	33	3 months		6/13/2009
4	fibromialgia	blurred vision	i recently was diagnosed with fibromialgia a few months ago, and i have been taking 600mg 3 times a day. it has helped a lot with my burning pain that has been shooting up from my hands to my neck and back. it doesn't take all the pain away, but without it, i would be in misery. the only side effect i have noticed is blurred vision, but only slightly, and not all the time.	M	27	3 months		6/8/2009 Email
1	Chronic Pain - from Ruptured Disc	Dizzyness, Equilibrium imbalance, Memory Loss, Comprehention, All-over muscle spasms, sometimes causing "pain spots" throughout body.	I have been taking Neurontin for over 7 years now, at 600mg three times daily. The most noticeable side effect now is Memory Loss. It has escalated to the point family has mentioned they notice a problem. About one month ago, I recieved my usual one month dosage from my pharmacy. Attatched to it was a -complete "mini guidebook" as to all types of adverse reactions that can be attributed to this drug, including interaction with other drugs, case studies and results, effects of this drug on other body systems ect.. I found that Memory Loss is not listed anywhere, and am finding it odd considering it is the biggest long term side effect. No, I do not have epilepsy, therefore it is not related. In addition, I read that this drug can be the instigator for arthritis, particularly in the neck, whiich is where my injury initiated. Arthtis is now and additional medical problem of mine since the injury. In addition I found that one of my other prescribed drugs "time controlled morphine" is exposed to the body 44% times more when taken 2 hours within the time Neurontin is taken.	F	40	8 years		6/3/2009
2	CHRONIC PAIN FROM CAR ACCIDENT	if tired would cause a high feeling, slurred speech, bloating, weight gain of 5# in a month, blurred vision, swelling of hands and feet	Did not take the pain away completely. Dosed up to 2700 mg every day and it didn't take the edge off.	F	29	1 months		5/19/2009
4	Post-Herpetic Neuralgia	Grogginess for the first few weeks and whenever the dose is raised.	I have an atypical PHN that grew dramatically worse in my fifties (I had shingles in my 20s). Neurontin has been a miracle that gets me through the day. It isn't perfect as I still have some pain late in the day, but it isn't an opiate and it makes the pain manageable. I only take 1600mg a day to avoid brain fog.	M	52	3 months		5/18/2009
3			This isn't a review: Could someone tell me how long it took for the drug to kick in? LAst year when I used it, it helped immediately, when I first used it 3 months ago, it also worked within a few hours. Now, even though I've been still on it, my anxiety has returned. We've increased but i haven't seen anything happen. I'm so confused. Does this mean it's not gonna work? Or does this mean it could still work, just take longer? Or since cuz with my body, it has worked fast, the fact that it hasn't means it won't? I know these are questions for my doc, but I wondered what any of your experiences were.					5/15/2009
5	Hot flashes	drowsiness	This has worked wonderfully for me. It makes my hot flashes shorter and less severe, and it lowers the feeling of anxiety that preceedes them. I only take it at night, and since it makes me drowsy, it helps with my insomnia as well.	F	56	7 months		5/13/2009
2	shingles/fibromyalgia	Gabapentin was ok when I only took it at night but when the dose was increased to 3, 300mg a day I felt totally spaced out and was unable to go out!	Maybe I should have continued it at night instead of increasing it as advised by my doctor but as it made me feel so 'wooly headed' I did not take anymore.	F	64	7 days		5/9/2009 Email
2	migraine prevention and rls	Extreme fatigue, weight gain, severe leg twitching, memory problems, no migraine relief at all, dizzy and loss of balance, no energy, legs get weak just walking thru grocery store	I have told my doctor about side effects and no relief from original issues. He increased my dosage and sent me to neurologist who blew me off and said come back in two months. I feel worse now physically than I ever have, I'm only 32 years old and I feel like I'm 70. I want off of this stuff, I've already tapered myself from 1800mg a day to 600mg a day but because the tablets are 600mg I'm not sure where to go from here. I feel like a fool for just getting on the med because my doctor said it would really help. I should have read up on it first. I can't recommend or not recommend but maybe sharing my experience will help somehow. Reading everyone elses experience helped validate a lot of what I was thinking about this drug.	F	32	8 months		5/8/2009
3	shingles	Moody, sleepy ,bitchy.forgetful	My husband is taking 3600 a day... What is this going to do to him ? I'm very concerned. They really dont say you cant drive while taking the meds but he is out of it most of the time..	M	47	30 days		4/30/2009
3	3 weeks post shingles	Sleepy, forgetful, mood swings	Cut back to 600mg a day due to the side effects. It is somewhat effective, Dr. says it is the best for shingles pain..Who knows?	F	59	3 weeks		4/14/2009
2	Bipolar I Disorder	Severe reflux w/food backing up into esophagus; bloating and gray bowel movements; kidney pain and infection; coughing up phlegm; worsening of asthma - highest dose 900 mg./day	Was mildly effective at best. Side effects grew more severe with use. I've been off it for over 1 month and side effects are just now subsiding.	F	55	2 months		4/7/2009
3	Bipolar type 2	None that I'm aware of.	No side effects but it only helps with the anxiety, and not very much.	F	24	3 years		4/3/2009
4	Neuropathic pain caused by MS	Best: Feeling of extreme euphoria (like a high) Worst: sticky stools, smelly gas Other problems may be the MS or the Neurontin	Did a good job of controlling my pain, but at high dose (taking 800 mg 4-5 times a day). Seems to be short acting, would feel it start to wear off after 4-5 hours. Discontinued it due to the GI side effects. Now take Lyrica (but no high :-(	F	47	10 years		4/2/2009 Email
3	Trigeminal Neuralgia	Confusion, nausea, dry mouth, dry throat, poor memory, fatigue.	It helped a little bit with the pain but the side effects outweigh the benefits. I am having trouble remembering things and I feel tired all the time. I was on 1200mg/day for about 10 months. I am currently down to 300mg/day and hope to get off neurontin completely in a few weeks.	F	31	10 months		3/31/2009
2	Lumbar Spinal Stenosis	Dizzyness. Drowsiness.	Taking 300 mg TID. Still have to take Vicodin to get relief from pain.	M	68	20 days		3/27/2009
3	fibromyalgia	weight gain, drowsiness all day and not much relief even at very high dosages.	Pills are huge and difficult to swallow esp when taking several	F	59	2 months		3/25/2009
2		blur vision, tired, dizzy.		M	43	2 years		3/22/2009
4	Trigeminal Neuralgia and Headaches	Weight gain! Thirsty all the time, forgetfulness, forget how to spell words or when talking to someone forget the word of something almost feel like I have alzhiemers at times...also there are times when I go to talk that my mouth doesnt want to move with the words I am trying to say...hard to explain..I have major problems sleeping, which is funny because the medicine does make you sleepy but then I am wide awake like 2 or 3 hrs later or there are times when it doesnt make me sleepy I am just plain wired!	Yes it is a good drug. Definitely decreased my pain!! Basically it is just something you will have to talk to your Dr about and then if he recommends it then just try temporarily to determine how it works for you and if the benefits out weigh the negatives. I have tried to get off the medication before or there are times when I ran out and I was SEVERELY sick!! Major headache and nausea!	F	37	3 years		3/20/2009
1	Fibromyalgia	My heart raced, I was hyper, agitated, edgy, on a "high", but not a good one. Couldn't sleep.	Definitely was not the drug for me. Never felt so "out of sorts" as when I was on it.	F	60	2 days		3/19/2009
4	PLS-Post Laminectomy Syndrome	Extremely chatty :-) , feeling like a "zombie", sleepiness, memory issues, VERY edgy, when decreasing the dosage I've had terrible eye twitches, mood swings and the edginess has gotten worse.	Overall, it has been a GREAT drug for me! I feel that it really has cut down the amount of pain that I would have had without it. I have been able to distract myself (for the most part) from the side effects.	F	32	5 months		3/9/2009 Email
3	Hand tremor and siezure	I feel tired on and off the fatigue goes away. Fine hadn tremor typically around 10 am and also at night 9 - 10 PM when I want to go to bed I feel a fine tremor on my back and neck area. Very funny feeling 2 x 300 mg I may go with 3 x 200mg if I can find it. 600mg/ is a low does for a my size.	Take with a glass a water and make sure you keep hydrated. It seems to dehydrate the body. ALSO if you DO NOT keep hydrated it develops into headache/migraine...lasts 12 to 30 hrs	M	44	14 months		3/9/2009 Email
1	Peripheral neuropathy from Taxol	trouble recalling words, foggy feeling	After 2 weeks, dose was increased to 1200 mg/day. I developed swelling in hands and feet, severe bronchitis and shortness of breath. I read these are both side effects. My internist and oncology doctor are not relating it to the Gabapentin. I am taking myself off of it, gradually, of course.	F	50	22 days		3/1/2009
3	severe osteoarthritis, fibromylgia	increased appetite, weight gain, feeling of depression, and oppression, then loss of appetite, didn't want to leave the house, antisocial behavior	300 mg twice a day and after about a month did have decrease in pain which was incredible but after two and half months the side effects were severe enough that I stopped taking it--then I was so irritable I wanted to twist somebody's head off which passed after a couple weeks	F	56	2 months		2/24/2009
5	post-herpetic neuralgia (shingles)	exteremely blurry vision at times -but perfectly fine vision most of the time. extreme thirst, rapid speech. i have difficulty speaking what is on my mind..i know exactly what i am trying to say but when it actually comes out of my mouth it seems like all of the words come out at once. then i wish i never opened my mouth to begin with. i've managed to embarass myself quite a few times now which is a shame because ever since i began taking neurontin all i want to do is talk and socialize with people -anyone who wants to talk. before neurontin i was mostly shy, reserved and well spoken. my sleep pattern has been somewhat disrupted. i wake several times throughout the night, and can't fall asleep for hours sometimes. other times i want to sleep the day away. i am still in the process of finding the right dose to ease my back pain, but i have found that it does help a great deal with the stabbing and pins and needles sensation.	on the more positive side, people around me have noticed some positive changes. i have been told i look better, and well rested, sound perkier and am just more friendly and approachable..which makes me happy and sad at the same time because i was unaware i was so miserable to be around to begin with. i often feel like i could burst out into laughter for no reason at all. i would recomend giving neurontin a shot...for me, the good has definately out-weighed the bad.	F	24	14 days		2/22/2009 Email
5	interstitial cystitis	1st few days feel very hyper, like a speeding feeling (not that I've ever had speed). Weight gain of about 1 lb a month even after trying very hard to keep it off.	I love this drug!! No side effects, just took all my pain away like I have never had IC! Is amazing!!!! By the 3rd day I was pain free!! I'm upset about the weight gain though. 5 lbs in 5 months on a 1200 calorie diet and exercise. I am on 4 x 300mg daily.	F	34	5 months		2/17/2009 Email
1	Neuropathy	Severe dizziness, forgetfulness, drowsiness, etc. Numbness in hands, delayed movements. Mood swings, personality changes.	I could not be more dissatisfied with this medication. I feel like I am high all the time. I have bruises all over my body from walking into things. I am in graduate school, and I had to take time off because I can't even spell; yesterday, I forgot how to spell the word "does." As a math major with a 4.0 GPA, forgetting the basic multiplication tables (when I am supposed to be working on the "hole argument") is beyond infuriating. I am almost in tears with how much my mental capacity has decreased. The side effects are so severe that I am even forgetting how to do very rote things, like turn on the television or slice a piece of chicken -- that is, if I even remember to eat (sometimes I cannot even identify what that 'weird sensation' in my stomach is, a.k.a. hunger, so I go the entire day without eating). It isn't normal that I cannot coordinate holding a knife and a fork at the same time. Give me a break. This medication is horrible. I have seen no	M	24	7 weeks		2/13/2009
2	Fibromyalgia	none	900mg 3x a day. Didn't even feel like I took it. No effect.	F	19	45 days		2/7/2009
3	nerve pain due to 4 surgeries	Sleepy and feel drunk if I take the pills too close together. Cannot think quickly enough to speak. I talk and then pause for too long before I can find the words to communicate with.	Am happy all of the time even though I have a major problem in my life. I forget things more easily now. When I forget to take a pill and take it an hour or 2 later, I feel drunk. I have no balance, say the wrong words when talking, and feel silly in how I act. Worried about my accuracy at work but am ok. The relief I have is not 100% but it is far better than when I didn't take it so I would like to increase my dosage to see if the pain with leave me. I am still not convinced the pain is from nerve damage. If the pain lessens more then maybe I will believe it. I can deal with the tiredness. The drunk feeling would not happen if I didn't forget some days until later to take a dosage. Do not like the constant happiness when I should be feeling sad. Doctor says the side effects and pain will get better the longer I take it.	F	46	7 weeks		1/26/2009
4	peripheral neuropathy	Son is in wheelchair and nonverbal and was in kidney failure and diabetic PRIOR to starting Neurontin. It did relieve excruciating pain & swelling in feet. Now on for 3 years, and about 18 mos ago he has had unexplained pain and some swelling in left arm, now developing in right. Extreme tendon tightness, feet turning out, floppy legs, and lack of coordination.	Even tho these side effects are listed as rare, they certainly seem to be a pattern, following increase of neurontin over time to control neuopathy. Yes, I know he needs PT, but we have been overwhelmed with home dialysis, other illnesses, and can hardly think to add another specialist to our reigime.			3 years		1/15/2009
3	MS, Peripheral Neuropathy from MS	Taking appx 800 mg for 10 years Different side effects at different times. At this time trying to withdrawal at 100 mg each day is impossible. Neurologist confused and now recommending withdrawl trying to get me on LYRICA. He has correctly noted my sleep pattern of 5 pm to 5am needs fixing to a 10 PM bedtime for circadium rhythems... SIDE EFFECTS --insomnia, burning of hands of feet after taking 1400 Neurontin as a trial. Had that before. Hard to say what else	Seemed to work better in early years,	F	48	10 years		1/12/2009 Email
2	Mood stabilizer	None	I just wanted to share my opinion. I was placed on 400 mg dose for several years. A social worker said it helped me with my mood. However, my antidpressant and benzodiapezine are taken before bed. Based on my sleep, I either will feel refreshed or irritable if not enough sleep. Later on, I switched to a relative of Neurontin for skin pickers which didn't do anything. I gradually decreased off the other med this Dec., one reason being my drug insurance. I feel the same as before. I don't have epilepsy. I am dysthymic but not bipolar.	F	49			1/11/2009
3	brachiradial pruritis (itching arms	Water weight gain, occassional drunk feeling.	My neurologist prescribed this after a diagnosis for this weird itching on my arms with NO rash that we could not pin down that had been happening over 2.5 years. He said we had to build the dosage and it may make me sleepy at first. My highest buildup dosage was 3600 mg daily, and that would be make me feel weird sometimes, BUT it did help lower my core body temperature so that I didn't sweat so much, and thus helped with the arms itching during the summer. However, I was retaining a LOT of water and had to take Lasix daily for water retention. And the itching never completely subsided. I am now taking Buspar and Cyproheptadine for the itching, and that combination seems to do the trick. The only reason I still take Neurontin is to help me sleep at night, and it is a pretty good all-over pain reliever. I just can't get to sleep completely without it, though, and I have read that weaning off of this one completely is very difficult without a few weeks of "withdrawl."	F	41	7 months		1/10/2009
2	postherpetic neuralgia	Sedation,brain burn, head jerking, muscle spasms, acne, poor vision, poor memory/speech, chills, gastro/intestinal distress, sore kidneys, new pains, ringing ears, cluster of sores in mouth/palette, hair thinning, congestion/cough, very low blood pressure, and emotional distress over the side effects. Note: no other drugs were being taken concomitantly. Strictly Neurontin	There is an initial honeymoon period - you get relief from intolerable nerve pain, you're sleeping, so you continue with the standard dosing protocols (300mg day 1 then up)Caution: if sensitive to drugs or coming off others, start low. I was underweight and struggling on drug treatments. No doubt this was a factor, while it reduced the core pain it created new types of pain in different parts. Within 1 hr of dosing I felt the chemicals entering the brain (brain burned),ears ringing, optical noise. Tummy fireworks became tummy torture. Sores on the roof of the mouth, and bronchial inflammation and coughing. These are big red flags. You know you've got stop taking it, but you know you have to taper gradually. My sense is that drugs can/will exacerbate pre-existing conditions or weaknesses, and create new weaknesses. Some of the damage I can see, some I can only sense. Some showed up immediately, some damage will no doubt appear down the road. Sadly, Dr. was't interested in the list of	F	48	72 days		1/8/2009
3	chronic daily headaches	word expression difficult, confusion during conversations, insomnia and speeding feeling	I have had daily chronic headaches for over 4 yrs since my 2nd daughter was born. Neurontin has taken my headaches from a constant 7-8 level pain to around 3. I almost have a sensation like I feel the pain but perceive it less. Most people feel tired but Neurontin almost gives me energy. But I feel anxious sometimes when my mind takes a vacation when I really need it like driving or working! My decision making is horrible - being tormented by choices trying to pick out an apple at the grocery store! It is like the time/space relationship is all mixed up. Like I am on auto pilot almost an out-of-body experience. These all sound horrible but it the adverse events are much less on 100 mg taken 5 x before 5pm.	F	41	6 months		1/4/2009 Email
3	nerve pain - cubital tunnel	numb lips, drowsiness, dizziness, trouble thinking, clumsiness	I can only take at night(300mg) and have to have a lot of coffee in the morning to wake up...I only take when I have a flare up...as needed for the last 5 yrs. Not on it daily.	F	50	5 years		1/3/2009
2	spinal nerve/disk damage	Major mood disturbances		M		10 days		12/18/2008
4	Periphial Neuropathy	Drowsiness, slight short-term memory loss, weight gain	Worked reasonably well for my PN at (2 x 400 mg/day) in conbination with exercise and a healthier diet. You will have to watch your weight gain as I inially gained 20 lbs, but have since taken 10 lbs off that. May cause some depression if you miss a dose.	M	49	1.5 years		12/7/2008
2	Insomnia, fibromyalgic pain	Extreme brainfog, unable to focus on anything, slurred speech	I was taking this along with Remeron (anti-dep) and the combination was absolutely awful. I told the doc that I didn't want to take Lyrica because of the dementia it causes while on it, but he still insisted that I try this (similar to Lyrica and apparently also lowers the energy level) in order to sleep better and without benzodiazempam. I think it's a poor sleeping aid (I couldn't do without the benzo anyway) and the total loss of vitality and ability to think and talk during the day makes it totally not worth the trouble. I prefer the benzos to any of these strange alternatives, they give me no side-effects, I sleep well, feel better as a result, and have no trouble to take a break.	F	42	40 days		12/7/2008 Email
3	Chronic Pain from leg AVM	I am experiencing hair loss from taking 300 mg of neurontin a day.		F	36	6 months		12/3/2008 Email
4	failed lumbar fusion	initiall had excessive dizzy, slurred speech on doses over 300mg/day	Back on Neurontin after a two week trial of Lyrica (so nauseated I could not continue) I am now slowly increasing this drug by 100mg a day every week. Have a great PCP, and feel very supported in my medical care which is invaluable to me navigating through.	F	45	18 months		12/2/2008
1	herniated disk c5c6	dizzines, pin and needle sensation in all my back and tingling in the fingers. Also burning feeling in my back after taking 900 mg daily for one week		F	54	7 days		11/25/2008

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Average rating for drug: 3.1. This page is printer-friendly; use landscape print with background color turned on.

Key to ratings: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine.

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