There are 31 ratings for the drug: TEGRETOL-XR in the Askapatient database.

Key to ratings for tegretol-xr: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine.

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Rating	Reason	Side Effects	Comments	Sex	Age	Time Taken		Date Added
				F  M
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3	Seizures	Severe short-term memory loss, occasional blurred/double vision, speech difficulties.	I've been prescribed others, Depakote, Neurontin, Gabatril, Topamax, Keppra. Still on Keppra, speech problems worsened once Keppra was added.	M	43	32 years		11/20/2009 Email
4	Epilepsy	weight gain, tired, skin changes and brown marks, hair loss, osteoporosis		F	65	21 years		10/10/2009
2	seizures	my s daughter is autistic takes tegratol 1hr after taking screaming agatation red skin on face		F	30	20 days		5/16/2009 Email
3	tonic clonic seizures	I have been on this medication for 15 years (since I was 8) and have had no severe issues. Sometimes I would feel dizzy or disoriented, nausea, or fatigue. That's about it.	I still get seizures on the medication, especially if I miss a dose, but not always. I am thinking of switching to Keppra bc Tegretol can produce osteoperosis in women, and newer epileptic drugs tend to have less severe side effects. And getting pregnant on tegretol is not recommended either. Just a heads up.	F	23	15 years		3/4/2009
2	Grand Mal Seizures	Headaches, Loss of Memory, Sleepy all the time. Slurred speech. of balance. cold, Hair shedding.	bad drug	F	42	3 months		12/12/2008
3	Epilepsy simple partial seizures	Tiredness after each increase in dose.Also slower in thinking. I find most days having to sleep during the day.Some days feel absolutely exhausted.	Currently taking 1000mg per day.Not had another seizure since last increase beginning of July.Considering changing to Keppra because of fatigue	F	46	7 months		7/25/2008
1	Seizures- from Shunt	Tegretol over long term (more than 36 months) causes brain damage in patients. I was told this by my neurologist after my seizure activity increased and brain function went down.	Good for short term, bad in the long term	M	29	18 years		2/25/2008
4	bi-polar disorder II hypomania	11/02/07 - some daytime sleepiness but none overall	11/02/07 - I have taken a lot of different mood stabilizer meds and this is the best one so far. It is very hard for me to wake up in the morning but that has been a lifelong struggle. Also, I feel like I crave sweets and have some stomach issues (indigestion, IBS symtoms, etc.) but that may not be a result of the Tegretol. I am also taking 50mg of setraline (Zoloft) and was on Rozerem. I started with the non XR version of carbamazapine and it made me feel drunk and very dizzy in the morning.	F	35	7 months		11/2/2007
5	Seizure disorder	I don't take Tegretol but rather Carbatrol ER capsules		F	65	26 days		10/5/2007
4	Trigeminal Neuralgia	Blurred vision every now and then, feeling a little agitated every blue moon and lingering headache most days.	Tegretol has been a miracle drug for me. After 15 months of severe facial pain and being misdiagnosed with tmj and dental problems, inner ear infections, bad vision, neck problems, you name it they claimed I had it. They were giving me every drug known to man until I finally was diagnosed by an emergency room doctor (on a long painful night) when I could not take the pain anymore and thought I would end up dying. After some face and jaw x-rays he said I had trigeminal neuralgia NOT tmj, he put me on Ultram which took about 50% of the pain away and told me to go see a neuralogist. The neuralogist put me on tegretol and about 90% of my pain is gone as long as I stay on track. All day long I seem to have a lingering mild headache but I will take that pain anyday of the week verses the pain I have had to live with before. Every once in a while the pain comes back and the Tegretol XR does not seem to be working but it is few and far between, most days it is wonderful. I really have not had	F	41	14 days		9/29/2007 Email
2	myoclonic seizures	feeling tired, swelling ankles, increased seizures!!!, blurred vision	It sucks, I had less seizures before I started taking this medicine	F	22	2 years		9/15/2007
5	petit-mal seizures causing migraine	I am more tired when I take this medicine.	It is very unusual for a person who has my kind of seizures to be on this medicine, but it is the only one that helps me. If I don't take it, I will have a migraine the very same day. I take 2 200 mg tablets twice a day- that's 800 mg/day for those of you who might be confused. I was on Depakote before this, but I grew out of it.	F	23	12 years		9/5/2007
1	Mood	Acne like I was 14. Just horrible out of nowhere that took weeks to heal. I was so confused too. uugghh	XR my ass	M	25	3 weeks		3/26/2007
4	epilepsy	Short term memory problems, have to concentrate to remember something detailed like an address for example	I take 200mg twice daily. Epilepsy caused me to have to re-train from a Chemical Engineer to Information Technology. Don't know if related to tegretol, but I have to frequently urinate, and feel fatigued. However, when I exercise it helps. I play squash three times a week to a good standard and have a no problems with the stress of my job. The quality of my life exceeds incomparably that without tegretol. I have driven for 14 years.	M	44	16 years		1/3/2007 Email
4	Bi-Polar, nerve pain	DIZZINESS and intoxicated feeling. The off and on dizziness is most bothersome. Also, if I forget to take it at it's usual time, I start to feel very sick.	It really make me feel drunk at first, but the effects slowly wore off and I feel great on it now. I take 600mg a day and I feel great.	F	29			8/13/2006
4	Epilepsy	Standing balance problems at the beggining, drowsiness, fear.		M	34	5 years		6/26/2006 Email
3	Seizures, Bi-Polar	Sour Stomach,Restlessness,lack of clarity in thought	The drug took forever to find the proper dosage. I now take 1000 mg's a day but I occasionally have interaction problems with the vicodin I take for my knees and back and the clonazepam for sleep. The back of my head would start feeling overpressurized and my eyes would turn yellow, a sign of over dose from one or all drugs, but I never take moire tha usual. A day of of them will usually do the trick.	M	31	4 months		11/28/2005
2	mania	standing balance problems, wrists became so stiff and painful I could not do pushups any more.	blood tests are bothersome, getting off can cause siezures, after I got off my wrist pain went away. Do not overtake this medication, I know two people who did and their judgement of distances made it impossible to walk until the tegretol cleared. Drugs that slow liver cytochromes, like some antibiotics, can cause an overdose without any change to you normal dosage.	M	46	2 years		9/12/2005
5	nocturnal seizure disorder	Actually, none.	It's awesome. I am able to only use 250 mg a day (two big, one little), which is, I think, possibly beneath the lowest typical dosage. The timed-release is just grand. BTW, I was prescribed this because I am a woman of childbearing age and my two top-notch female neurologists told me that this was the best for childbearing. I had a child with it and had no problems either. Good job.	F	44	19 years		7/29/2005
5	nocturnal seizure disorder	none	oops. sorry. I posted earlier and said I was taking 250 mg a day. I'm not. I'm taking 500 mg a day. 200 mg in the mornings and 300 at night. I was taking 600 but pushed my doc to lower it since I prefer to take less in the daytime. I heartily disliked dilantin. Ick.	F	44	19 years		7/29/2005
1	seizure disorder	Have experienced ringing in ears, excessive water weight gain/swelling (20 lbs), pain and feeling of cold in areas where water is most prevelant, memory loss, aggression, to name a few.	Would not reccommend it to others.	F	29	4 years		6/16/2005 Email
4	epilepsy, petit mal,tonic clonic.	Initially drowsiness which went away after a week.	Took Dilantin and Mysoline for 30 years. Couldn't take the drowsiness,lethargy, memory loss, slurred speech depression and, lack of concentration. After switching to Tegretol XR all my seizures were under control except on the rare occasion(3 years since my last seizure). Wish I, swiched 20 years ago!!!	M	41	9 years		4/30/2005
5	Seizure Disorder (grand mal)	None. Maybe some drowsiness.	take 400 mg 2x per day. Just started this large a dose after taking 200 twice a day for 10 years. Working great, no seizures since upping dosage.	M	27	1 years		4/29/2005
5	complex partial epilepsy	Haven't had side effects	Tegretol XR has been a big help. I stated out taking Tegretol Chewables but the dose wasn't strong enough. I'm now taking 700 mg a day and can almost forget that I have epilepsy	M	38	9 years		4/17/2005
5	trigeminal neuralgia	slight drowsiness	Tegretol has been a miracle drug for me. After 8 years of being misdiagnosed with atypical facial pain, tmj, dental problems, even cervical facet joint syndrome, a family practitioner diagnosed trigeminal neuralgia and put me on tegretol. For 8 years I took Oxycontin, Vicoden, Darvocet, all kinds of muscle relaxers and antidepressants, etc. and nothing helped. I tried acupuncture, hypnosis, chiropractic, homeopathic medicine, biofeedback, and had counseling with a pain psychologist. Several days a week I experienced nausea and vomiting from the excruciating pain. I prayed for God to let me die. After the third day of taking Tegretol XR, the pain was reduced to an annoying cramp, and since then I have experienced almost complete relief. It has been a Godsend.	F	48	10 days		9/15/2004 Email
5	seizure control	none		F	44	20 years		4/4/2004
5	eplepsy	none		M	40	10 years		3/23/2004 Email
5	epilepsy	none		M	40	10 years		3/23/2004 Email
4	PARTIAL-COMPLEX SEIZURES	DROWZINESS		F	22	4 years		11/4/2002
4	seizure disorder	drowsiness, clumsiness, flat affect	superior to Dilantin	F	54	8 months		6/26/2002
5	seizure disorder	drowziness		F	24	15 years		10/17/2001

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Average rating for drug: 3.6. This page is printer-friendly; use landscape print with background color turned on.

Key to ratings: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine.

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