TEGRETOL-XR Reviews (CARBAMAZEPINE)

Average Rating: 3.4 (51 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TEGRETOL-XR  (CARBAMAZEPINE):  Carbamazepine is used to prevent and control seizures. This medication is known as an anticonvulsant or anti-epileptic drug. It is also used to relieve certain types of nerve pain (such as trigeminal neuralgia). This medication works by reducing the spread of seizure activity in the brain and restoring the normal balance of nerve activity. Some forms of this medication are also used to treat bipolar disorder. Carbamazepine can help to decrease extreme changes in mood and help you feel less agitated.   FDA Approval Date: 1996-03-25 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on TEGRETOL-XR: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR TEGRETOL-XRCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  Seizures Cognitive fatigue, pulsatile tinnitus, insomnia, agitation, low sodium and chloride levels, rapid eye movement, spacy. 57 6 years
800
8/23/2019
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 5  Seizures Get tired easily. When I started getting seizures I was put on Dilantin which was not working for me because I was getting major mood swings. When I was 11 I was put on tegretol XR and that's when I started to get less and less seizures. Now, I have been 7 years without a seizure and I am very happy with what tegretol has done for me! F 20 9 years
300mg 2X day
11/4/2010
 5  Trigeminal Neurolgia Tired, sometimes I struggle to find words, weight gain. I can tell it's burning through the other meds I am taking, so some adjustment is still needed. It has been a miracle drug for my head pain. I still have daily pain, but not as bad. I have to take 2 in the morning and 1 at night because I was having problems waking up in the morning. F 34 8 months
20 mg 3X day
4/17/2012
 5  Seizure disorder I don't take Tegretol but rather Carbatrol ER capsules F 65 26 days
10/5/2007
 5  nocturnal seizure disorder Actually, none. It's awesome. I am able to only use 250 mg a day (two big, one little), which is, I think, possibly beneath the lowest typical dosage. The timed-release is just grand. BTW, I was prescribed this because I am a woman of childbearing age and my two top-notch female neurologists told me that this was the best for childbearing. I had a child with it and had no problems either. Good job. F 44 19 years
7/29/2005
 5  nocturnal seizure disorder none oops. sorry. I posted earlier and said I was taking 250 mg a day. I'm not. I'm taking 500 mg a day. 200 mg in the mornings and 300 at night. I was taking 600 but pushed my doc to lower it since I prefer to take less in the daytime. I heartily disliked dilantin. Ick. F 44 19 years
7/29/2005
 5  trigeminal neuralgia slight drowsiness Tegretol has been a miracle drug for me. After 8 years of being misdiagnosed with atypical facial pain, tmj, dental problems, even cervical facet joint syndrome, a family practitioner diagnosed trigeminal neuralgia and put me on tegretol. For 8 years I took Oxycontin, Vicoden, Darvocet, all kinds of muscle relaxers and antidepressants, etc. and nothing helped. I tried acupuncture, hypnosis, chiropractic, homeopathic medicine, biofeedback, and had counseling with a pain psychologist. Several days a week I experienced nausea and vomiting from the excruciating pain. I prayed for God to let me die. After the third day of taking Tegretol XR, the pain was reduced to an annoying cramp, and since then I have experienced almost complete relief. It has been a Godsend. F 48 10 days
9/15/2004
 5  seizure disorder drowziness F 24 15 years
10/17/2001
 5  seizure control none F 44 20 years
4/4/2004
 5  petit-mal seizures causing migraine I am more tired when I take this medicine. It is very unusual for a person who has my kind of seizures to be on this medicine, but it is the only one that helps me. If I don't take it, I will have a migraine the very same day. I take 2 200 mg tablets twice a day- that's 800 mg/day for those of you who might be confused. I was on Depakote before this, but I grew out of it. F 23 12 years
9/5/2007
 4  bi-polar disorder II hypomania 11/02/07 - some daytime sleepiness but none overall 11/02/07 - I have taken a lot of different mood stabilizer meds and this is the best one so far. It is very hard for me to wake up in the morning but that has been a lifelong struggle. Also, I feel like I crave sweets and have some stomach issues (indigestion, IBS symtoms, etc.) but that may not be a result of the Tegretol. I am also taking 50mg of setraline (Zoloft) and was on Rozerem. I started with the non XR version of carbamazapine and it made me feel drunk and very dizzy in the morning. F 35 7 months
11/2/2007
 4  PARTIAL-COMPLEX SEIZURES DROWZINESS F 22 4 years
11/4/2002
 4  seizure disorder drowsiness, clumsiness, flat affect superior to Dilantin F 54 8 months
6/26/2002
 4  Trigeminal Neuralgia Blurred vision every now and then, feeling a little agitated every blue moon and lingering headache most days. Tegretol has been a miracle drug for me. After 15 months of severe facial pain and being misdiagnosed with tmj and dental problems, inner ear infections, bad vision, neck problems, you name it they claimed I had it. They were giving me every drug known to man until I finally was diagnosed by an emergency room doctor (on a long painful night) when I could not take the pain anymore and thought I would end up dying. After some face and jaw x-rays he said I had trigeminal neuralgia NOT tmj, he put me on Ultram which took about 50% of the pain away and told me to go see a neuralogist. The neuralogist put me on tegretol and about 90% of my pain is gone as long as I stay on track. All day long I seem to have a lingering mild headache but I will take that pain anyday of the week verses the pain I have had to live with before. Every once in a while the pain comes back and the Tegretol XR does not seem to be working but it is few and far between, most days it is wonderful. I really have not had F 41 14 days
9/29/2007
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 4  Bi-Polar, nerve pain DIZZINESS and intoxicated feeling. The off and on dizziness is most bothersome. Also, if I forget to take it at it's usual time, I start to feel very sick. It really make me feel drunk at first, but the effects slowly wore off and I feel great on it now. I take 600mg a day and I feel great. F 29
8/13/2006
 4  seizures General fatigue, ability to fall asleep anywhere, anytime. Loss of sex drive. Weight gain. Serious brain fog. It controls my complex partial seizures, which is good. I haven't had a seizure in more than three years, and I'm now starting to taper the dose downwards VERY slowly (going down by about 100 mg/day this year, maybe another 100 mg/day next year.) On the not-so-good side, Tegretol completely erased my sex drive. It also kind of blunts my emotional responses to events, so that I retain a kind of detachment (which makes sense when you remember that it's also prescribed as a mood stabiliser). I would go off it if I could. F 51 4 years
250 mg 2X day
7/8/2010
 4  Bi-Polar II Fatigue, goes away somewhat, hair loss, skin thinning and spots, easy to burn, dry mouth, insomnia, short term memory problems, word recall problems sometimes, increased appetite For me living without a medication like tegretol is just not possible. As such medications go I have had the fewest side effects on tegretol. I know the hair, skin and probably memory problems have a lot to do with vitamins and I do take a multivitamin but it is not enough. I do not gain weight because of the tegretol but I have to watch my diet because I do feel hungry a lot of the time. Still well worth living with these side effects than the dark hole of depression I most often find myself in with no medication. F 32 8 years
600mg 1X day
7/16/2010
 4  Epilepsy weight gain, tired, skin changes and brown marks, hair loss, osteoporosis F 65 21 years
10/10/2009
 3  tonic clonic seizures I have been on this medication for 15 years (since I was 8) and have had no severe issues. Sometimes I would feel dizzy or disoriented, nausea, or fatigue. That's about it. I still get seizures on the medication, especially if I miss a dose, but not always. I am thinking of switching to Keppra bc Tegretol can produce osteoperosis in women, and newer epileptic drugs tend to have less severe side effects. And getting pregnant on tegretol is not recommended either. Just a heads up. F 23 15 years
3/4/2009
 3  Epilepsy simple partial seizures Tiredness after each increase in dose.Also slower in thinking. I find most days having to sleep during the day.Some days feel absolutely exhausted. Currently taking 1000mg per day.Not had another seizure since last increase beginning of July.Considering changing to Keppra because of fatigue F 46 7 months
7/25/2008
  

TEGRETOL-XR  (CARBAMAZEPINE):  Carbamazepine is used to prevent and control seizures. This medication is known as an anticonvulsant or anti-epileptic drug. It is also used to relieve certain types of nerve pain (such as trigeminal neuralgia). This medication works by reducing the spread of seizure activity in the brain and restoring the normal balance of nerve activity. Some forms of this medication are also used to treat bipolar disorder. Carbamazepine can help to decrease extreme changes in mood and help you feel less agitated.   FDA Approval Date: 1996-03-25 (Sources: U.S. Centers for Medicare Services, FDA)

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