SINEMET Reviews (LEVODOPA; CARBIDOPA)

Average Rating: 2.5 (87 Ratings)

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 EXTRAPYRAMIDAL MOVEMENT DISORDERS

 Type: Rx Drug

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4 5


RATING  REASONSIDE EFFECTS FOR SINEMETCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Parkinson's disease Terrible confusion, weakness, hallucinations, difficulty in walking. Every.time I suggest that this drug is causing problems, the neurologists deny it. It is their answer to everything. I also discovered how much neurologists get from their conferences connected with drug companies. It was so discouraging to see the money they make on a drug that is causing more problems for the people who are already suffering. F 63 5 years
4X day
2/14/2015
 3  Diagnosed PD Extreme daily sweating and chills as if I had a fever which I don't M 68 10 months
25--100. 3
1/21/2015
Email
 4  for Parkinson's I get spells where my jaw gets stiff, my hands get stiff, my toes curl up, I have difficulty walking, my blood pressure goes up, i sweat and have to lay down. Doctors can't figure it out. I was doing okay until I got the flu last January and have been miserable ever since. One doctor went so far as to tell me I don't have the disease because my brain MRI does not indicate such. F 76 14 years
25 - 100 9X day
12/5/2014
 4  Dopamine responsive dystonia None at first as dose was increased slowly. Main side effect now are sickness and yawning fits. It stops tremor, releases tension in neck, stops twisting of foot, takes hand out of a dystonic hold. Allows me to function without my body feeling it is 100 years old. Must be taken on time with no gaps. Downside was i could never get them out the packet as they were so small. Dosage increased so now take co careldopa. F 38 2 years
8/25/2014
Email
 5  dopa responsive (partial) dystonia Nausea and feeling rotten when first taking in morning, coming off effect, however if you take them correctly and with having something to eat (do not take on empty stomach) it's fine. It's been a great medicine for my family and I having a dominant gene. If we didn't have this medicine we would probably not be able to walk and be in much more terrible pain. F 37 1 years
6x62.50dai
8/22/2014
Email
 4  Pd Confusion joint pain sleepless constipation greed impulsive M 55 2 years
25/100
1/3/2014
Email
 1  Restless leg syndrome Addiction, acute anxiety, suicide ideation, Augmentation, severe dyskenesias, weight loss, weakness and muscle loss. She became a shadow of her previous self. This drug should never be prescribed at This dosage to elderly. No help from her docs weaning her off so I moved in briefly to get her off it myself. A nightmare drug! F 88 1 years
25/100x6
7/16/2013
Email
 1  PD My father was prescribed this medicine for PD. Within 48 hours of starting to take this, he started hallucinating. He couldn't tell what was real and what wasn't real. He was convinced the police were coming to force him back to the hospital. He was up for over 30 hours conversing with people who weren't there. When I talked to him about what was or was not happening - he would sometimes say "so this is all fictitious" but then go right back into that world I couldn't see. It was horrible. I took him off the sinemet. Within 8 hours the hallucinations were completely gone. M 75 2 days
3X day
5/13/2013
 1  Parkinsons Like those already mentioned. Dangerous medication is my opinion after all my husband suffered taking it. WHAT IS THERE THAT A PARKINSON PATIENT CAN TAKE. MIRAPEX AND SINAMET WAS DESTRYING MY DEAR HUSBAND. HE IS OFF THEM AND IT IS THE WORST TIME IN MY LIFE WATCHING HOW BAD HE IS., WE ARE TOLD THERE ISNT ANYTHING ELSE TO GIVE HIM. MY PRAYERS FOR EVERYONE SUFFERING THIS HORRIBLE DISEASE AND I KNOW SO WELL THE PAIN YOU FEEL THAT ARE CARING FOR YOUR LOVE ONE. F 78
4X day
4/21/2013
Email
 1  Parkinson's Terrible hallucinations, paranoia, weight loss, thirst for cold water, crazy dreams, anxiety, aggressiveness. After 3 years Sinemet has made my husband insane! If I up his dose even a little he says he feesl like he wants to crawl out of his skin. He feels like my son and I are his enemies when all we are trying to do is help him. Most of the time he can not be reasoned with. His doctors are not helpful. Life is a living hell! M 61 3 years
10mg 3X day
2/19/2013
 1  Assumed Parkinson's M 74
1X day
12/25/2012
Email

Patient History
 1  parkinson like symptoms Was taking 3 half pills a day, did stop the tremors, then DR upped it to 1 full pill 3x a day, started suffering from extremely detailed, terrifying hallucinations, confusion, tremors, complete madness, seemed like living in a parallel universe where no-one could hear me, had to throw myself on the floor to make sure I was awake, couldn't take care of myself, tell what time of day it was, talked to my dead wife's ghost, people were sitting on my bed talking to me that no-one else could see. Stopped taking sinemet, dr prescribed it for minor tremors and stiff gait, have none of those symptoms currently, no longer hallucinating, no longer confused, no tremors, able to function far better than before I started taking the drug - will not take it EVER again. Went against Dr's orders to stop taking the drug, and glad that I did. M 69 5 months
10mg 3X day
11/15/2012
Email
 1  My brother takes it for Parkinson's My brother has been taking it for several years. I'm not sure of the dosage but he's 65 and has had Parkinson's since he was in his mid thirties. The side effects are terrible. He's convinced his house is full of rats - big fat ones. He's convinced people are in the garage at night starting the lawn mower over and over again. He sees people in black leotards in the hallway at night. When I try to rationalize with him that this isn't real, he just gets mad at me. M 65
not sure 5X day
10/26/2012
Email
 1  Parkinson's Disease Absolutely horrible nausea all the time. Neurologist tried adding Lodosyn to reduce nausea with no luck. Also weak with profuse sweating. Tried everything to get rid of nausea - ginger products of all types, eating protein 30 minutes after med. Nothing worked. Had to be taken off of it. I'd rather shake than be so nauseated I'm dysfunctional Would not recommend unless you like being nauseated all the time. F 53 1 months
25/100mg 3X day
10/5/2012
 3  parkinson M 59 2 years
25/100mg 3X day
9/5/2012
 1  PD This drug combined with depression causes many problems with my mom. I feel the Dr. over prescribed this drug and my mom became addicted. She was obsessed with getting her pills on time. The hallucinations this drug causes for my mom are horrible. She is like a schizophrenic now thinking that everyone is out to get her. At 62 my dad did not want to take care of her so she ended up in a psych ward at 62 and than a dementia nursing home ward. STAY OFF THIS DRUG AS LONG AS POSSIBLE. F 67 10 years
10X day
7/8/2012
Email
 5  PD Provider reduced sinemet while in hospital from 9 pills/day to 4. Side effect is inability to stand or walk, very unstable blood pressure. it keeps abnormal thoughts to a minimum in combination with seroquel at bedtime. While sinemet is working, thoughts are normal and able to function F 83 2.5 years
25-100 3X day
6/29/2012
Email
 1  Parkinson's Disease Dystonia in left leg, with toes curling, foot twisting at the ankle, aching leg, cringing feeling in ankle/foot and difficulty walking. I had very minor Parkinson's symptoms. After about 3 months the dystonia started. I thought it was the Parkinson's worsening. The neurologist suggested increasing the dosage and it seemed to make things worse, and I started noticing the dystonia would come & go depending how long it had been since I'd taken the medicine. The doctor suggested botox injections in my leg which didn't appeal to me. After much research in books & on the internet, I began to suspect the medicine was causing the dystonia. I told the doctor I wanted to stop the meds & got instructions on how to stop it. The dystonia is gone and I feel great. It was much worse than my current symptoms. F 60 7 months
25/100 3X day
4/6/2012
Email
 2  Parkinson's Disease "On" time (when it works) gets shorter and shorter, excess sweating when it stops working, also excess hand and arm shaking when it stops working. I have been taking this for tremors of my right hand (now arm and leg) supposedly due to Parkinson's Disease for one and a half years. For about 3 months it worked (meaning I had no tremors) and gradually the "On" time became shorter and shorter. The doctor increased the dosage and the "On" time increased slightly. I was also taking Azilect but discontinued to see if it was interfering with the Sinemet. Was also on REQUIP but it caused a number of side effects of it's own. The doctor increased Artane and it caused hallucinations so I discontinued using it. I think I may have been misdiagnosed as having Parkinson's Disease and will be tested for other causes. F 61 1 years
25/100 4X day
7/23/2011
Email
 4  parkinsons I have so far Gained from this medicene. I do find myself bored alot. but I live in the country an its quite here. F 52 3 months
10/100 4X day
7/22/2011

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