SINEMET Reviews (LEVODOPA; CARBIDOPA)Average Rating: 2.5 (87 Ratings)Filter ResultsCompare SINEMET with similar:
Type: Rx Drug
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Results are sorted by Age oldest to youngest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on SINEMET: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR SINEMET | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Restless leg syndrome | Addiction, acute anxiety, suicide ideation, Augmentation, severe dyskenesias, weight loss, weakness and muscle loss. She became a shadow of her previous self. This drug should never be prescribed at This dosage to elderly. No help from her docs weaning her off so I moved in briefly to get her off it myself. A nightmare drug! | F | 88 | 1 years 25/100x6 | 7/16/2013 | 1 | Osteoperosis | My father has been taking Sinemet for 5 years. He has experienced dreadful hallucinations, paranoia and psychosis. Shocking visions of ugly monsters and people trying to murder him and his loved ones. If he had alcohol at his disposal he would have become an alcoholic too, there we're signs of additiction type of behaviours. | My father began taking this drug at the age of 80 and we believe he was overmedicated by the nursing home he was living in. This high dose has now caused terrible mental problems for my father that he would have been better off without it and at least sane. | M | 86 | 5 years 250mg 4X day | 5/21/2011 | 3 | Parkinsons | My husband had major side effects: hallucinations, paranoia, increased anxiety, screaming fits, throwing himself out of bed..it was terrible. But after awhile, seemed to adjust. He began with it 3 times a day, but is now up to 7. I think I read that the max that should be given is 8 which he is quickly approaching. | He takes an anti psychotic drug (Seroquel) and antidepressant (Prozac) in addition to the Sinemet which seemed to eliminate hallucinations etc..Sinemet seemed to decrease drooling and mask like facial appearance. His hand writing is still extremely small, his voice very soft. He is in a wheelchair and unable to walk. My understanding is that he is in the Advanced stage of Parkinson's. Recently, he has increasing dystonia on the left side (leaning), and left foot twisting. | M | 84 | 7 years 25/100 7X day | 7/10/2015 | 2 | symptoms after Keppra increase | muscle weakness in both arms and legs within 36 hours; inability to stand or walk without two large people helping to lift him up, in doctor's office, fatigue--whereas prior to drug he could walk slowly to bathrooom with a walker just fine. (In short, same results as when he tried this same drug in 2005) | It concerns me that the neurologists keep pushing Parkinsons meds like this one and Mirapex on my dad. An 84-year old man with a prior cerebral hemorrhage from a vehicle accident, who's on increased Keppra dosage needed to avoid new seizure problems, plus BP meds, cholestrol drugs, Terazosin, Plavix, Zoloft and others, who also has neuropathy, severe sleep apnea and no CPAP yet (getting retested) could have increased slowness, problems walking and falls for a number of reasons. I am guessing that treatment via Parkinsons meds for symptoms of slowness and falls is likely a standard AMA protocol once someone is in their 80's, even if other causes are a possibility, especially since Parkinsons diagnosis is limited to observing visual symptoms. Therefore neurologists are afraid not to prescribe Parkinsons meds? A respected Chicago hospital had already declared my dad does not have Parkinsons disease; only features of Parkinsons (shuffling, etc.), yet once we come back home, that's all we get from the local neuros. All I can say is beware: consider looking at other causes of the symptoms AND getting other opinions before using this drug--every article I have seen written by patients/families on the internet seem to contain a number of horror stories about this drug. I'm adding ours. Our loved ones deserve better. (Time length taking Sinemet in 2009: 2 days. In 2005: about a month) | M | 84 | | 3/27/2009 | 5 | PD | Provider reduced sinemet while in hospital from 9 pills/day to 4. Side effect is inability to stand or walk, very unstable blood pressure. | it keeps abnormal thoughts to a minimum in combination with seroquel at bedtime. While sinemet is working, thoughts are normal and able to function | F | 83 | 2.5 years 25-100 3X day | 6/29/2012 | 1 | PARKINSONS to help tremor | restless leg syndrome, insomnia, increased tremors | Initially I had a tremor. Prescribed sinumet and took for one month. I started having rls and insomnia after three weeks on med. Even after doctor weaning me off Sinumet side effects continued. Searched blogs and tried several ideas from them which included increasing protein in diet and avoiding citrus. In my case this worked and the side effects disappeared. | F | 83 | 1 months | 6/12/2009 | 1 | My Dad had Parkinsons. | Please see my orriginal note on 8/6/2008. I have included my email address. Dad became very delusional and we were afraid to keep him at home. He rarely slept and was combative all the time. He had me take him to the hospital so they could terminate his life. | Dad would rip out his IV's at the hospital. We couldn't keep him at home like this, so Mom and I decided to take him off the Sinemet. He was acting so paranoid and aggressive he would have to be locked up. We refused to do that. Dad became much happier and like his old self when he went off the Sinemet. We were able to keep him home until he died on Feb 1st of this year. This drug works great at first, then seems to build up and turn on the patient. In my opinion, it should be taken off the market. Find something else! I am putting my Dad's gender and age down. Take care! ALso...the neurologists were useless. They are bored with Parkinsons patients and keep pushing the Sinemet. It's up to you to find what works. | M | 81 | 1 years | 9/23/2009 | 1 | Parkinson's | My Husband has been taking Sinemet for about 7 yrs. Over the last year he has been having terrible confusion, insomnia and very bad dreams. We are now finding out the trouble is being caused by Sinemet. We went to a Parkinson's doctor and she told use she has heard the same comments from other patients. She said if it bothers you this much, just quit taking the medicine. So, as of today he will no longer take Sinemet. | M | 80 | | 10/3/2008 | 1 | Parkinsons | Like those already mentioned. Dangerous medication is my opinion after all my husband suffered taking it. | WHAT IS THERE THAT A PARKINSON PATIENT CAN TAKE. MIRAPEX AND SINAMET WAS DESTRYING MY DEAR HUSBAND. HE IS OFF THEM AND IT IS THE WORST TIME IN MY LIFE WATCHING HOW BAD HE IS., WE ARE TOLD THERE ISNT ANYTHING ELSE TO GIVE HIM. MY PRAYERS FOR EVERYONE SUFFERING THIS HORRIBLE DISEASE AND I KNOW SO WELL THE PAIN YOU FEEL THAT ARE CARING FOR YOUR LOVE ONE. | F | 78 | 4X day | 4/21/2013 | 1 | Parkinsonism | Dad is experiencing acute hallucinations, anxiety, paranoia with dosage increase. Thinks there are children in his room along with what he describes as "a menagerie". | Weaning off/stopping med. and hoping the hallucinations will subside. His tremors and shuffling are minor compared to the side effects he has been having. Not glad that others had these symptoms but relieved to know Dad wasn't alone in his experience. | M | 78 | 3 months 25/100 3X day | 6/30/2015 | 4 | Parkinson's | Difficulty walking right leg leans toward left leg. Had left hip replacement and is doing well. | Just lately last few days started taking flexerell and also celebrex foir back spasms. | M | 77 | 2 years 100mg 3x d | 9/18/2015 | 3 | Parkinsonism | none | Have been taking it for about 3 months. Seems to have reduced tremor and improved speed of movement | M | 77 | 3 months | 3/29/2002 | 1 | Parkinsons | Delusions, erratic behavior, disturbed dreams, memory loss, and insomnia. | My father was on this drug for two years. He became increasingly delusional and we were told it was because his disease had progressed and that we should put him in a locked unit. After 4 hospitalizations one physician told us of the drugs side effects. We discontinued the drug. Dad is now back in his own home and doing well without assistance. Shaking is better than the suffering he went through. | M | 77 | 2 years | 11/5/2007 | 1 | Parkinson's Disease | My Mom has severe depression and anxiety. She was originally diagnosed with PD and given Sinemet to help with slight tremor and balance issues. Has become addicted to Sinemet and can't come off of it. takes 4 pills a day. | Don't believe that perscribed Sinemet has ever worked for her slight tremors. I believe it has only made things worse for her. | F | 77 | 5 years 25/100 | 3/2/2022 | 4 | for Parkinson's | I get spells where my jaw gets stiff, my hands get stiff, my toes curl up, I have difficulty walking, my blood pressure goes up, i sweat and have to lay down. Doctors can't figure it out. I was doing okay until I got the flu last January and have been miserable ever since. One doctor went so far as to tell me I don't have the disease because my brain MRI does not indicate such. | F | 76 | 14 years 25 - 100 9X day | 12/5/2014 | 1 | Parkinson's disease | Hallucinations, bad dreams, nausea, pain and itching in limbs. | These are side effects described by my mother. She was diagnosed with PD just a few years before her death. She said it stopped her tremors for a while, but shortly this effect waned and the side effects remained. She wanted off almost at once, but took them for some time because of the doctor's persuasion. | F | 76 | 6 months | 12/25/2009 | 2 | PD | My mother took her first pill this morning and then I discovered this website and after reading several posts, I'm not sure if I should proceed with Sinemet. Please feel free to contact me with suggestions or recommendations. | My mother has what I would describe as "light" tremors in her hands which is a problem when she's eating. She also has problems walking sometimes. What's most important to us is that she has good quality of life. The comments about not sleeping, nightmares, nausia, etc. from taking this medication concerns me. | F | 75 | 1 days | 3/19/2009 | 1 | suspected Parkinsons | Dementia, COD, anorexia | Please beware side effects | M | 75 | 7 days | 1/27/2008 | 1 | PD | My father was prescribed this medicine for PD. Within 48 hours of starting to take this, he started hallucinating. He couldn't tell what was real and what wasn't real. He was convinced the police were coming to force him back to the hospital. He was up for over 30 hours conversing with people who weren't there. When I talked to him about what was or was not happening - he would sometimes say "so this is all fictitious" but then go right back into that world I couldn't see. It was horrible. | I took him off the sinemet. Within 8 hours the hallucinations were completely gone. | M | 75 | 2 days 3X day | 5/13/2013 | 1 | Assumed Parkinson's | M | 74 | 1X day | 12/25/2012 Patient History |