TEGRETOL Reviews (CARBAMAZEPINE)

Average Rating: 3.3 (287 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TEGRETOL  (CARBAMAZEPINE):  Carbamazepine is used to prevent and control seizures. This medication is known as an anticonvulsant or anti-epileptic drug. It is also used to relieve certain types of nerve pain (such as trigeminal neuralgia). This medication works by reducing the spread of seizure activity in the brain and restoring the normal balance of nerve activity.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on TEGRETOL: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR TEGRETOLCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Epilepsy Drowsiness Unsteadiness Vomiting F 15 10 months
1600mg
5/12/2014
 4  Seizure disorder nausea, fatigue (after 4 hours of taking dosage I pass out for a few minutes), metallic taste in mouth F 25 2 years
1000mg
4/27/2014
 5  Bipolar II Initially and with dose increase: anxiety, headache, pressure in temples, very mild nausea, constipation. When trying to go above 600mg: persistent headache, metallic taste in mouth. Constant side-effect: jaw clenching. This seemed to take a while to kick in. Started on 400mg and went to 600mg after about 4 weeks. It lifted my depression quite quickly, but during both dose increases I got anxiety. The moodswings aren't gone, but they seem "shallower" and less frequent. Everything's much milder than it was and more manageable. It helps with sleep; even when "up" I manage 5hrs a night. After 6 months I can barely tell I'm taking any medication, the side-effects are so slight. Really pleased as I had a nightmare on lamotrigine. F 35 6 months
600 2X day
3/26/2014
 3  Trigeminal neuralgia Extreme fatigue and complete loss of taste which led to loss of appetite and loss of weight. Continuous salty taste in mouth. Drinking water is like drinking sea water. Am going to discontinue next week hopefully my taste will come back . Apparently diagnoses was wrong , but it did help me get rid of the continuous sharp pain on my head. F 34 1 months
400
3/9/2014
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 1  Bipolar I was just not getting back to myself with a manic to a depressed state. Doc switched from lamictal to this drug. Was tired,dizzy, thought process was bad. 7 day in I went totally 360, went into being dis-associated. It was bad, never been in that state before. Went off of it. I was hopeful that it was going to work. Even two days in, I didn't feel right. F 43 8 days
200 2X day
2/5/2014
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 4  non-cardiac chest pain short-term memory problem (feel profoundly stupid, forget what i am saying and lose words), loss of libido, tingling in tongue doctor prescribed it off label for non-cardiac chest pain. went from having severe pain for hours several times a day to having 0 to 2 short attacks a day F 41 1 months
100 2X day
12/14/2013
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 3  Dyskinesia Fatigue, sore neck, heard sounds differently (they sounded flat), had a bit of trouble with short-term memory. These were persistent for the first month and then went away. Now there are no side effects. F 37 3 years
200 MG 2X day
11/19/2013
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 3  bipolar I just started 2 months ago i feel calm but im getting werid sounds in my ear can anyone tellme if this will go away F 30 2 months
200
11/3/2013
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 3  BLACKOUTS AND MOODSWINGS I sometimes get the giggles, but i cannot giggle as much as I would like. Seemed as if my dyslexia has worsened. I tried to study on this drug..hahahaha man..I got so confused when I wrote the test..... I feel very calm though....which is very good. I don't get anger burst outs like I did before. Just I am wondering, how can I improve the memory loss problem on this drug, and I wonder why it is giving one such a problem? I have to study like 3x harder than I did. F 25 4 days
200 MG 1X day
10/3/2013
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 5  Trigeminal Neuralgia Exhaustion, confusion, word recall difficulties This drug has been a life saver! Very much worth the side effects as it has given me back some of my life. F 46 4 months
200 mg 2X day
9/9/2013
 5  epilepcy/grand mal seizures The first time I took tegretol I acted drunk. It made me feel loopy, but as time went on my body adjusted. Over the years side effects have been fatigue, low libido, and now more memory loss...looking for the right words, remembering where I put things, etc. Now it is low sodium, anemia and lower white blood cell count (not an issue right now but could be later). No bone loss from last bone density test. Be careful with antibiotics they raise tegretol levels, especially erythromycin. I started taking Tegretol when I was 23 years old and basically was given my life back. I was having seizures every 7-10 days. With tegretol I have had only 1 seizure in 20 years . I was monitored for aplastic anemia in the early days which they have now stopped testing for. I have had two beautiful, healthy daughters even though there were low risks involved. At one time I was up to 1200 mg/day. Now I am on 800 mg/day. It has helped with side effects. F 32 years
200 mg 4X day
8/9/2013
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 5  Epilepsy I took carbamazepine to treat my relatively mild temporal lobe epilepsy from 1995 until 2011. I cannot say I had any bad side affects. I lead a completely "normal" life. My concentration and memory were never good (but not bad either) but at least my seizures (petit mal) became less and less over the years. I think the drug really helped me. However! After not having a seizure (petit mal) for over a decade I came off the drug over a period of 3-4 months. Now I'm not sure why but my sex drive (after about 3-4 months off the drug) went through the roof! I was like a 17 year old boy. Then one day without warning bang I became impotent! Over night it all stopped (That would be 8 months after I came off the drug completely). The desire is still there but I no longer can function without the other drugs (and they are now starting to loose their effect)!!! I did find my concentration and memory and confidence also improved considerably after coming off the drug (well the confidence has taken a battering since the new thing) I do find it weird because carbamazepine can cause ED but I never had that problem while on carbamazepine. It was only after coming off carbamazepine that the ED problem started! However ED can be caused by loads of other things(I have been checked out from head to toe. All OK) so its probably a psyc thing (surely coming off carbamazepine did not cause my ED, could it?) Hope this helps someone (I cannot find anyone else with similar problems). M 44 16 years
400mg 2X day
8/5/2013
 3  epilepsy Mental anguish;emotions too available. I have also experienced significant depression and anxiety,which led to bleak and unusual thoughts ;vanity.Folicolitis on the back of my head.I also have unusually large breasts, considering I am a man. However,I am not entirely certain that tegretol is attributed to this. Memory loss.Intellectual decline.Initial hives and rashes,which I no longer experience. M 38 10 years
600MG
7/16/2013
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 4  sezuries Memory loss, dizziness fatigue and no sex drive at all sense I've been on tegretol. I thought maybe I was just getting up in age my wife started doing research because it was affecting us sexually frustration. So if anyone has any suggestion to another med without any sexual issues but also still does the job for my sezuries im open to new suggestions. I would not recommend because this affects a great deal of a mans man hood. M 42 3 years
200x2 dly
7/1/2013
 2  Epilesy Foggy, tried, memory lose, weight gain. It also made life very difficult as you can't seem to remember things to keep organised. Sex drive also decreases. For me it also numbed allot of emotions which is the worse thing. I spent 2 years slowly coming off the drug and my emotions seem exaggerated as allot have been suppressed for so many years. I now don't take any medication and feel much happier and have more empathy for everyone. F 36 10 years
800mg
6/30/2013
 5  Trigeminal neuralgia No bad side effects other than the occasional loss of words and stuttering at times. Get tired easily and at the beginning, had slight blurred vision F 37 5 days
500mg
6/11/2013
 1  post herpetic pain Emhanced sideeffects like difficulty in breathing joint pain abdominal problems F 65 2 days
200mg
6/3/2013
 3  Seizures Very sedated, confused, lack of emotion, nausea. Change in hearing noticed right away, everything sounded slightly off and increased hearing. Painful swollen gland on neck. Hangover like feeling upon awakening. Honestly this drug did its job very well to stop my seizures. I am only taking 400 mgs, which I was told was a pretty low dose. Either way I have been feeling mentally and physically more sick on this AED. I have no idea why but I am giving the med another month and if I still feel as mentally off im dropping it. Keppra was far less harsh for side affects so if your looking for a decent drug I would assure you to try Keppra first. M 25 1 months
200 MG 2X day
4/9/2013
 5  status epilepsy No sex drive whatsoever M 43 2 years
1000 mg
3/9/2013
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 5  seizures and bi-polar I have no side effects. I guess if you fell 20 feet hit a 10 foot fence and rim of a concrete pool and suffer from seizures and physcilogical depression this drug will certainly work for you. This drug works wonders if you have a multi issue. This drug works if you have a multi issue. Like Seizures, Physcilogical Depression and Nerve damage. M 40 6 years
400 mg 2X day
2/8/2013
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