TEGRETOL Reviews (CARBAMAZEPINE)

Average Rating: 3.3 (287 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TEGRETOL  (CARBAMAZEPINE):  Carbamazepine is used to prevent and control seizures. This medication is known as an anticonvulsant or anti-epileptic drug. It is also used to relieve certain types of nerve pain (such as trigeminal neuralgia). This medication works by reducing the spread of seizure activity in the brain and restoring the normal balance of nerve activity.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Age from youngest to oldest (reviews with no age reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on TEGRETOL: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR TEGRETOLCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  epilepcy/grand mal seizures The first time I took tegretol I acted drunk. It made me feel loopy, but as time went on my body adjusted. Over the years side effects have been fatigue, low libido, and now more memory loss...looking for the right words, remembering where I put things, etc. Now it is low sodium, anemia and lower white blood cell count (not an issue right now but could be later). No bone loss from last bone density test. Be careful with antibiotics they raise tegretol levels, especially erythromycin. I started taking Tegretol when I was 23 years old and basically was given my life back. I was having seizures every 7-10 days. With tegretol I have had only 1 seizure in 20 years . I was monitored for aplastic anemia in the early days which they have now stopped testing for. I have had two beautiful, healthy daughters even though there were low risks involved. At one time I was up to 1200 mg/day. Now I am on 800 mg/day. It has helped with side effects. F 32 years
200 mg 4X day
8/9/2013
Email
 4  Epilsey None Has help me alot M 5 years
3/17/2003
 4  To prevent epilepsy at sleep Make me feel tired and sleep M 1 days
400
11/11/2015
 4  To prevent Seizures from Brain Cancer Dry Mouth Symptoms such as Phlegm in the mouth when I wake up! Going to the toilet a Lot! F 2 years
600mgs 2X day
10/11/2020
Email
 1  It produces suicidal thoughts Suicidal thoughts Suicidal thoughts M 10 days
200
2/23/2017
 3  seizures dizziness,trembling,aggression (she is only 1 so it could be terrible two's?) the side effects are frightning, we are weaning her off but scared of those side effects too. Have any other parents had babies\toddlers on this medication? F 1 2 months
9/1/2008
Email
 2  Seizure disorder ITP a severe potenially FATAL illness where Platlets are DESTROYED. my son almost died after only 10 days of this drug. It is listed and many doctors and pharmasistes know of this. Drowisness, fatigue, SEVERE body Rash, Swollen Glands and Fever this Drug works well for millions of others. my son's seizures did stop 100% when on the drug. But the DEATH side effect is too scary M 4 11 days
9/22/2006
 4  seizure disorder My son had his first seizure at age 2. Between the age of 2 and 6 he had 10 other seizures. He is now 7 years old and he has been seizure free for the past 18 months. Tegretol successfully managed my son's seizure disorder. Ensuring that he took his prescribed dose was essential. If ever we missed a dosage, he had a seizure the following morning. Knowing this, we tried to be very diligent. However, the side-effects have been noticable. Grogginess and temper swings. Our son has also been much slower to read than our other children, and sometimes appears to have a hard time concentrating. We hope to be able to take him off the medication soon. M 7 5 years
8/27/2006
 3  seizures My daughter experienced trembling hands,drowsiness and a slight decline in her learning process while on the drug from age 2-8. After discontinuing the drug she has experienced behavioral problems-seems to have trouble dealing with emotions like anger and is a bit impulsive. She sometimes has tantrums almost as if she is reverting back to the terrible twos. She also began to gain weight rapidly after she stopped taking this drug. My daughters seizures were mild and not frequent without the tegretol.This medication did stop the seizures completely and she is now seizure free without Tegretol. If I had known that this drug was also used for impulsive behavioral problems and is mind altering, then I probably would have refused the medication. She was basically sedated for 6 years and the long term side effects were not worth it in her case. F 10 6 years
7/28/2005
 5  seizures, bipolar disorder I remember feeling dizzy and woozy when I first started taking it for a few days. My doc described the feeling as being like a "drunken sailor". He was right. Since then , no side effects. Just necessary to get bloodwork every three months to make sure it doesn't screw up your liver. M 13 14 years
6/12/2008
Email
 4  epilepsy Shaky, nausea only has been going on for a couple of months now, I've had blood tests done to rule out diabetes because it seems like my blood is going really low, good and bad days Tegretol is a really good medicine as it stopped me having seizures at the age of 2, I was having up to 20 a day. Fully controlled now bit usually return once a year and then my medicine is put a by two mls a day. M 14 10 years
32mls
4/29/2016
Email
 3  To stop "complex partial seizures" As soon as I started on the 100mg, I noticed my hearing was a bit off. I could listen to a song I know very well and tell that the pitch didn't sound right. The pitch has gotten deeper as I've increased my dosage. At least I haven't had any "episodes" M 14 8 months
500MG per
5/4/2015
 3  Epilepsy Drowsiness Unsteadiness Vomiting F 15 10 months
1600mg
5/12/2014
 1  Seizues dizziness, drowsiness, cant keep balence well, nausea, increaced muscle spasums, sensitivity to light and sound, aching joints, agitation, depression, blurred and double vision, confusion, fatigue, dry mougth and throat, frequent urination, INTENCE HEADACHES, can't eat, uncoordinated, ears ringing or feel as though they need to pop, can't speak well, lots of stomach aches i'm switching medicine M 16 1 months
11/18/2006
 5  Neural Net Mess Costs $$ This tegertal is dope yo ! M 17 1 times
400
9/4/2015
 4  Seizures Muscle Twitching Headaches Nausea Faint like feeling Foam like taste in my mouth Shaky Hallucinations Stomache Ache I think this medicine is good but, if not taken as prescribed, it can reverse it's treatment. Sometimes I wonder why a drug like this would be prescribed especially when most users are complaining. I am already an angry person, but my teacher said I acted like a BITCH!!!!!!!! She was right.If you have any questions email me.After experiencing Seizures I want to be a spokesperson for the epilepsy foundation, as well as be a successful singer. M 17 2 years
2/3/2009
Email
 5  Seizures Acne... can never get rid of it. Anyone have suggestions... have seen numerous dermatologist but have not had any success. Currently using a sulfric acid soap but not feeling like its working. F 19 18 years
800 mg 1X day
10/18/2010
 4  Seizure disorder After a few years of taking tregretol I now feel as if I'm getting a seizure but it doesn't actually take place also, I feel depressed more often than normal F 19 4 years
200mg
7/11/2014
 2  Nocturnal Epilepsy For the first week or two; itchiness and problems balancing. Since largely increasing the dose; difficulty concentrating, fogginess of the mind, every now and again the sensation of my skin crawling on the back and shoulders. Sometimes I still get the difficultly with balance. I hate that I can't concentrate. It got more and more difficult as my dose increased and just as school assignments and exams were getting more and more complex. The time it would take me to make decisions got longer. Some days I get bad speech days through which I have difficulty ordering and pronouncing the syllables of each word i say. This could very well be attributed to the difficulty concentrating as I have not previously had a speech disorder or defect. F 19 7 years
1600 3X day
7/29/2011
Email
 5   Blurry vision confusion skin problem M 20 1 days
1000
2/19/2016
  

TEGRETOL  (CARBAMAZEPINE):  Carbamazepine is used to prevent and control seizures. This medication is known as an anticonvulsant or anti-epileptic drug. It is also used to relieve certain types of nerve pain (such as trigeminal neuralgia). This medication works by reducing the spread of seizure activity in the brain and restoring the normal balance of nerve activity.    (Sources: U.S. Centers for Medicare Services, FDA)

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