TEGRETOL Reviews (CARBAMAZEPINE)Average Rating: 3.3 (287 Ratings)Filter ResultsCompare TEGRETOL with similar:
Type: Rx Drug
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Results are sorted by Age oldest to youngest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on TEGRETOL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TEGRETOL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Switched from keppra | Forgetfulness stumbling vision | Keppra was making me so tired. So I switched. Not as tired but hate both but of them | F | 74 | 0 times 200 | 5/21/2017 | 3 | Trigeminal neuralgia | Pain is controlled. But terrible headache was never there before. Only for last 1 month pounding headache with nausea. I am having long period of remission presently pain came back after 2 years. I do not take med when in remission | Only tablet to control TN pain. | M | 72 | 10 years 600mg | 6/19/2016 | 5 | epilepsy | No side effects and very good control. Had only 7 seizures during this period and 4 were on the same day. | Was taken off Tegretol because of the damage it does to the bones. | F | 70 | 16 years 2X day | 3/26/2010 | 1 | acute testicular pain | tiredness & blurred vision | Useless for acute pain | M | 68 | 30 days 100 2X day | 2/16/2024 | 3 | Seizures | Can't concentrate, memory terrible,. Start to talk and I know what I want to say but it want come out. Can be looking at a object and can't remember the name of it. | I have weaned myself off of this over about 4 months. Hadn't had any for 6 months. Seem to be doing ok. I haven't told my dr yet hadn't been for checkup yet. | F | 65 | 21 years 200mg 1 ti | 7/2/2019 | 3 | Seizures | Can't concentrate, memory terrible,. Start to talk and I know what I want to say but it want come out. Can be looking at a object and can't remember the name of it. | I have weaned myself off of this over about 4 months. Hadn't had any for 6 months. Seem to be doing ok. I haven't told my dr yet hadn't been for checkup yet. | F | 65 | 21 years 200mg 1 ti | 7/4/2019 | 1 | post herpetic pain | Emhanced sideeffects like difficulty in breathing joint pain abdominal problems | F | 65 | 2 days 200mg | 6/3/2013 | 4 | trigeminal neuralgia | Like many others I have the feeling that I am a space cadet. So far, I have not been too aggravating to my family, friends and co-workers with it. I try to make a joke of it. I am seriously bothered by any lighting. I feel like living in a cave is the answer, but not very practical. When I first began in January, 2012, the pain from the cold was unbearable. I could quickly understand why it is called the suicide disease. I have studied about the different procedures to relax the pressure of the blood vessel on the nerve and decided that taking the medication and being a space cadet was the better option. The condition is disabling and you just have the accept the lifetime condition. I still work, drive my car and have a social life, but none of them are the same. I have had to cut back on work (took my social security to cut back my hours), don't drive too much after dark because of the lights, and tire out a bit earlier (still can sing karaoke but not in extreme heat or cold) | I find that if I do not take my afternoon dosage I experience a more difficult time in the evening (more numbness and pain). Not much issue with the burning at all now. I hope to not have to increase my dosage. And I pray that my friends, family and coworkers will continue to understand the trigeminal neuralgia and not keep saying I am developing dementia or Alzheimers because the effect of not being able to think of words and repeating myself give them plenty to cause them to think I am at age 64. | F | 64 | 6 months 200 mg 3X day | 8/5/2012 | 4 | Atypical Trigemanil neuralgia | I have not had any side effects thus far hopefully I won't | I was hospitalized before I could get correct diagnosis.It has worked well so far pain is almost gone,I can open my mouth more than an inch now. | F | 64 | 2 weeks 100mg 2X day | 11/21/2016 | 1 | suspected epilepsy | Tegretol causes depletion of sodium (this can be sudden), Vitamin D, calcium, folic acid and biotin. Sudden sodium depletion can lead to confusion, disorientation, weakness and be mistaken for a psychiatric condition, with horrific consequences. Vitamin D depletion mimics many serious physical conditions like neuropathy, heart arrhythmias, loss of hearing, weakened bones and so forth. I experienced all of this. I kept being put in seclusion rooms in mental hospitals when I was severely sodium depleted and could have died. Be careful with this one. I had to go off of it incredibly slowly, as faster withdrawal leads to talkitiveness that can be mistaken for mania. | This drug ruined my career as a psychologist until recently and otherwise seriously limited my life for 20 years. I know others who have been through this as well. It causes symptoms similar to bipolar disorder when withdrawn, "proving" that a person is mentally ill and needs tegretol, like a vicious circle. I had to get off of it to have a clear enough head to find out what had caused all of this. With a Ph.D., I could save myself. Without that education, I might still be going in and out of hospitals. | F | 63 | 20 years | 8/19/2008 | 5 | Trigeminal Neuralgia | I take it with food, if not a meal time it goes down well with half a banana and causes no nausea. When I have to increase the dose, to 200mg three times a day, I get some vision effect, so cannot drive; I sleep longer of a night and achieve less thru the day... | I have learnt to 'go with the flow' when medicated; its better than the awful pain. It comes back every year about April so I go on 100mg a day, then it gets worse as the weather gets colder for winter. Its at its worse now July. and when Spring/Summer comes it disappears again, so I can reduce the Tegretol until I am taking none Sep/Oct. I was in NZ July 2008 and suffered badly in Christchurch where it was snowing, even 1200mg a day did not help much and I got Lupus on such a high dose... so slowly went back to 200mg when I came home, where it settled down as we had a mild winter... I hope it just goes away one day like it came... wish I knew what causes it though.. | F | 62 | 7 years | 7/4/2009 | 4 | trigiminal neuralgia | nausa | F | 62 | 1 months | 3/3/2003 | 2 | Trigmental neurogia | I woke up on Saturday and I could not walk in a straight line and could not function. I called the on call doctor and he told me to stop taking it and take 1/2 pill twice a day on Sunday. Monday I took 1/2 pill in the morning and I was cold and then discovered I was weak. I called the doctor. He told me to stop taking it and call my doctor tomorrow. My doctor was not in. | I do not have as much pain but the side effects of this medicine are not good. I need to not take this medicine or adjust the dosage. | F | 62 | 4 days 200 2X day | 11/24/2014 | 5 | Epilepsy | Have taken Tegretol for a very long time. Now that I am older I am wondering whether it is responsible for my brain fog and confusion. | F | 61 | 10 years | 11/4/2016 | 5 | Trigeminal Neuralgia | F | 60 | 200 mg 4X day | 6/23/2011 Patient History | 2 | Lethargy, vagueness, sun sensitivity. | It took me a month or so to get over the 'poisoned' feeling. Not too bad for several months, then side effects gradually re-asserted themselves over a period of a month or so. As my seizures were seen as the result of 'over doing' things, I have reduced to 1/2 dose (on my own) to see how that goes. I have started to get my life back a bit, and plan to stop taking altogether - and avoid late nights, heavy drinking etc. | M | 60 | 1 years 200 2X day | 9/23/2010 | 1 | unerupted shingles | I ended up in the hospital at death's door with Steven-Johnson Syndrome which is 99.99percent fatal. The prescribing Dr (?) I use that term loosely, did not have me back for follow-up. | DO NOT TAKE ON FEAR OF DEATH> | F | 60 | 5 weeks | 3/16/2001 | 1 | peripheral neuropathy | severe muscle and joint pain. neuropathy increased. loss of balance. nausea. weakness and fatigue. | started with a small dose as I take high dose of Gabapentin. I felt terrible and could not believe the pain, particularly in the areas where I suffer neuropathy most ( lower limbs) the pain comtinued for days after stopping. Awful. | F | 60 | 4 days | 10/20/2008 | 4 | Epilepsy | Weight loss,loss bone mass,and became imune to it so im on keppra now but i feel really shakey like tremors i am also on klonipin 2mg,3xdaily | Can i still be going through withdrawal from tegretol its been since september 6,2017 | F | 59 | 18 years 1200 | 10/22/2017 | 5 | glossopharyngeal neuralgia | I was really sleepy for the first few weeks but the effect wore off so that I didn't know I was taking it. No side effects after the first few weeks. | This was a miracle drug for me. I know it can be a dangerous drug but my blood levels were monitored monthly and I remained stable. I now -- over 20 years later -- have a mild osteopenia. I don't know if that's from the Tegretol or whether I would have had it anyway. I was able to gradually wean myself off of the Tegretol after taking it for 10+ years. Have been off of it and symptom free for 7 or 8 years now. | F | 58 | 10 years | 5/21/2007 |
TEGRETOL (CARBAMAZEPINE): Carbamazepine is used to prevent and control seizures. This medication is known as an anticonvulsant or anti-epileptic drug. It is also used to relieve certain types of nerve pain (such as trigeminal neuralgia). This medication works by reducing the spread of seizure activity in the brain and restoring the normal balance of nerve activity. (Sources: U.S. Centers for Medicare Services, FDA)