Drug Ratings for IMURANAverage Rating: 3.0 (440 Ratings)
Compare IMURAN with similar: |
Results are sorted by Date Rating Was Added Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
| RATING | REASON | SIDE EFFECTS FOR IMURAN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
  | F M | | | | |||
| 1 | Crohn's | Severe vomiting, lots of hair loss, bad acne, a rash on my face, WARTS, major fatigue, fever. | I basically felt like I was dead. Once I got off it, I felt much better, but I don't think a Dr. could burn off the warts because there's so many of them. I hope they go away eventually. | F | 20 | | 4/14/2009 | 1 | Ulcerative colitis | Skin discoloration, yellow eyes, hair loss, warts, acne, severe nausea, flu-like symptoms, infections...and no positive effect whatsoever...Gee, what a great drug. | Never in my life have I felt worse than taking Imuran. Maybe it works for some, but it can also be extremely dangerous to many others. Make sure your doctor knows that. There are some bad, incompetent doctors out there. You can't assume your doctor knows what's going on. The field of gastroenterology is filled with the absolute worst of the medical profession in my experience, greedy people just interested in money, people who have no integrity about doing their job properly, people who care not all if you have good outcomes or not. | M | | 4/2/2009 | 5 | crohns diease | severe neusea, vomiting, fatigue, fevers, | After being on high dose of prednisone for many years with little results. While first taking Imuran I was also reducing my prednisone weekly with horrible side effect. And the Imruan together I spent 6 weeks on the lounge with my head in a green bucket I had to dropped out of Uni for one tearm and stop working as a nurse for 10 weeks. But it get better once all the side effects were gone Iam no in 95% remission. I do however still get joint pain and feel fatigued at times. | F | 46 | 3 years | 3/28/2009 | 2 | ulcerative colitis | I took Imuran 100mg. per day. A rash appeared on my torso, front and back. These rashes itched terribly. Then the hair fell off of both of my legs. I discontinued taking Imuran. I'm taking Humira in place of the Imuran. The Humira is an injection. | M | 3 weeks | 3/15/2009 | 4 | Autoimmune Hepatitis | fever, joint pain at higher doses (100 MG/day) none at lower dose (75MG/day) | Have been on the medicine for five years and it has controlled my aut hep for the most part. Dr increased dosage last year to 100MG and I started experiencing some bothersome side effects-namely fever and feeling like I am coming down with the flu. Severe joint pain and achy feelings. Dr has lowered me back to 75 and am already feeling better. | F | 53 | 5 years | 3/13/2009 | 5 | NSIP, fibrotic | So far, so good. Have been on imuran (150 mg) for about 5-6 months for suspected NSIP (along with 20 mg pred). No side effects from the imuran. Prednisone is a different story. I feel better than I've felt in months! Record is 11 hospitalizations since 9/08 and almost 20 since 2/08 for pneumonia/exacerbations. Rarely went more than 20-30 days between hospital stays...usually 2-3 weeks was the average. I broke my record! I've now been pneumonia/exacerbation free for FOUR months! | F | 57 | 6 months | 3/5/2009 | 1 | UC | Skin discoloration, warts, acne, vomiting, hair loss, fatigue | Got much sicker when I took this + other weird side effects. Skin discoloration has never gone away. | | 3/2/2009 | 5 | UC | Extreme fatigue. mild hair loss at first, very stiff hand,knee and feet joints. lower back pain. nausea for most of day. weak grip in hands.disturbed sleep.eyesight has worsened on third prescription for reading glasses in 12 months. | I was prescibed azathioprine in may 2008 after suffering from sever uc for about 7 months. prednisolone could not control it even when administered intravenously in massive doses when I was hospitalized. I found the secret to overcome the fatigue and nausea was by taking the azathioprine after my evening meal instead of in the morning, this way I slept through the symtoms overnight.I have been in remission now for about 6 months. I also take Asacol, 6 tabs daily and alendronic acid once a week . My only other option was surgery as the whole of my colon was affected. So as long as I stay in remission and my regular blood tests are ok I will stay on the drug and will have to live with the stiffness in my joints. I did loose a lot of weight at first but have now returned to my normal weight, but still have a fat stomache which hasn't gone down, I suppose this is due to the steroids I was on for so long. Good luck everyone and do try taking your aza in the evening, it worked for me by stop | F | 64 | 10 months | 2/21/2009 | 5 | Ulcerative colitis | Rash,some acne | This drug combined with asacol has put me in remition I am so thankful for it. | F | 36 | 3 months | 2/19/2009 | 2 | Autoimmune hepatitis | I was fine when I was taking it with Prednisone (but had major side effects with that).. then took it alone, and had major pain in my body. Went to the ER and was told I had pancreatitis due to the drug! Was immediatly taken off of it. | F | 30 | 6 weeks | 2/17/2009 | 5 | Crohn's Disease | Thinning hair | I have been on Azathioprine (Imuran) for a long time and take 100mg a day. It is the only thing that keeps the Crohn's stable. Have also had Asacol (didn't do anything at all) and Prednisolone (three courses, only the first of which worked) and Metronidazole (keeps the anal abcess at bay) over the years. This drug takes a long time to get in/out of your system, don't expect things to happen overnight. Also, I was advised to not get pregnant while on it. | F | 41 | 12 years | 2/11/2009 | 4 | UC | Fatigue only. | Have had UC for ten years. Well controlled on Asacol until this past year. Went on Imuran 6 months ago. Daily dose is only 50 mg. and have been able to cut back on my Asacol dose to 2400mg. two times a day. Significantly less meds. as I was maxed on Asacol, plus Prednisone, plus Entrocort. Eeek!! So glad to be off steriods, period. Totally normal bowel function now. But do notice I am tired a lot. Find working out more difficult, fatigue much quicker. Presuming it's the Imuran but my physician also blamed it on advancing disease, so could be a little of both. So far have had no problem labs. I am an ICU nurse, take care of the sickest pts. and have not been sicker myself on this med., but am very careful. Overall happy with Imuran. | F | 44 | 6 months | 2/9/2009 | 4 | polyarteritis nodosa vasculitus | fatigue, joint pain in hands and feet. | 50mg twice a day. I much prefer Imuran to the prednisone, but the fatigue is starting to get to me. My rheumatologist wants me to wait a year before we evaluate a lower dose. | M | 43 | 9 months | 2/6/2009 | 1 | Crohn's | Lymphoma!! | My son was just diagnosed with t-cell non-Hodgkins lymphoma with a guarded prognosis! It was explained this was most likely a result of his 4 year use of 150 mg. of Imuran daily. Worked great on the Crohn's but is it worth the risk? | M | 19 | 4 years | 2/5/2009 | 1 | Crohns | massive trembling, severe lower back pain, shivering, night sweats, hot all day long | wouldn't care if I was dieing there is no way I would put myself through the 8 days of horror I had taking this drug. Doctor said liver test wasn't too bad so I wasn't allergic to this drug - he said I was having anxiety attacks - funny how I haven't had one since I went off this drug. | F | 44 | 8 days | 2/2/2009 | 1 | Crohns | Fever, vomiting, severe joint pain, low white blood cell count | After 10 years on Salozopyrin, doc (quack) decided to switch me to Imuran. Side effects were crippling. Ended up in hospital for a week vomiting everywhere, with ridiculous fever, crawling to the bathroom as the joint pain made it impossible to walk. Didn't go to work for 3 months. Developed an anal fissure (finally resolved with Remicade) and now have cyclical neutropenia that requires weekly injections of Filgrastim to boost my immune system. Why suppress your immune system? It's there for a reason. Now I have to balance an auto immune disease with an immune disorder. It's hard work maintaining a balance. I will never take this drug again. | F | 40 | 30 days | 1/21/2009 | 5 | cutaneous polyarteritis nodosa | Very little side effects. Occasionally felt fatigue, but it allowed me to live a normal life and got my disease into remission. | Also helped me wean completely off prednisone. | F | 55 | 1.5 years | 1/15/2009 | 1 | Crohn's Disease | Muscle pain, tiredness, acute pancreatitis with a 5 day hospital stay. | F | 56 | 2 weeks | 1/12/2009 | 5 | lupus | no side effects for me. | have been extremely satisfied. imuran also allowed me to reduce my prednisone use to 6mg.have my quality of life back, can do everything i used to do before being ill. only problem i just found out is that my white blood count is getting low | F | 44 | 2 years | 1/10/2009 | 5 | Crohn's Disease | Mild fatigue, susceptability to chest infections, unusual dreams (No concomitent meds taken with Imuran during past three years) | I have responded incredibly well to Imuran (100mg qd) and my Crohn's has been effectively in remission for two years. If this medication does not agree with you, stay in the loop and talk with your doctor about HUMIRA. Newer and very promising alternative! | M | 26 | 3 years | 1/9/2009 | 3 | Crohns | Major hair loss, odd skin growth/rash, and acne for the first 3-5 months on the drug. The only remaining side effect that I am certain is due to Imuran is acne that I just can't get rid of despite trying almost every perscription and over the counter acne treatment available. | I have been on Imuran for almost 2 years. I started Lialda about 6 months into the Imuran. Together they seem to keep me stable, but I don't know if I can handle the side effect of acne much longer. My doctor perscribed Imuran as essentially a life time drug to prevent flare ups, but I feel like I have a life sentence of acne. It also doesn't help that I want to have children and Imuran is not recommeded prior to or during pregnancy. | F | 30 | 2 years | 1/8/2009 | 3 | auto immune hepatitis | Loss sex drive aches and pains trouble breathing when walking or doing exercising joint pain | I am taking 150 Mgs of Imuran for AIH and feeling like I have very little energy. I am very short winded. I am having joint pain which I did not have at lower levels. Like the previous gentlemen I also have no motivation. My sex drive which has always been high is non existent | M | 56 | 3 years | 1/5/2009 | 3 | auto immune hepatitis | nausea, appetite loss, hair loss, general feeling of unwellness, anxiety, depression, lack of motivation | I have not had any flare ups with my liver. I'm experiencing some joint pain and a lot of fatigue. My "get up and go" got up and "went!" Climbing stairs is a killer (only 13 steps). I'm generally in very good condition and I also wonder if these symptoms are side effects of the Imuran as well. | F | 47 | 18 months | 1/1/2009 | 4 | Crohn's | acne, skin rash, disturbed sleep | i was initially on pentasa and entocort. they stoped working for me and after a massive flare up and hospital stay, i was put on prednisone and imuran. i gained back all the weight i had lost during my illness (pentasa never helped me gain my weight back.) i came off the prednisone after 2 months. Im still on the imuran (5 months now). it has helped me SOOOO much. For the first time since i got diagnosed, i actually feel normal again. Im at a healthy weight, eat normal, no cramps and only 1-2 BM's a day. After 3 months of being on it, i started experiencing some acne, skin rash and disturbed sleep. I reduced my dosage by half a pill (went from 2 pills to 1 and 1/2). im using a acne gel for my face and its much better. The benefits outway the cons. It feels good to feel normal. I can always pay more attention to my face and use acne gel to clear up my skin. | F | 23 | 5 months | 12/15/2008 | 5 | myasthenia gravis | Bad nausea at first which lessened after around 6 weeks. Now - loss of appetite, slight nausea, very slight hair loss. Pain in several joints but not confirmed yet if this is caused by the Imuran. | Started on Imuran after 2 years on prednisone. Now taking 150 mg per day plus Mestinon. I have good days and bad days but generally speaking I feel a whole lot better. Have regular blood tests but no problems so far. The pain in my hip and knee is troubling but I'm not sure yet if this is a side-effect as it could also be linked to prednisone withdrawal. Loss of appetite is a bonus(!) after putting on so much weight with prednisone! | F | 52 | 6 months | 12/11/2008 | 4 | Ulcerative Colitis | Fatigue, loss of interest in most things, really bad headaches and migranes, short term memory loss, joint pains (especially in elbows and knees), mood swings (nasty), dark urine, and trouble loosing weight(from prednizone of course). I've been on 300 mg per day for 2 years. | I also will take this forever over prednizone. No problems with alcohol. Mostly fatigue, headaches (migranes), memory loss(maybe from the heaqdaches) and lack of interest in things is my biggest problem. I get some pretty nasty mood swings, but people SHOULDN'T TICK ME OFF! :-) | M | 31 | 2 years | 12/7/2008 | 1 | Crohn's | Tumors, skin growths, yellow skin, acne, vomiting | I had no idea this drug can give you cancer. My doctor, Bushra Sulieman, repeatedly told me it was safe. Well, now not only do I have cystic acne scars from prednisone, I have a large surgical scar from having a TUMOR removed on my face. These scars will NEVER go away. Facial scars are devastating to a person's body image. I don't even want to leave the house. | F | 17 | 6 months | 12/7/2008 | 3 | IPF Pulmonary Fibrosis | Hard to say whether it's the Imuran or prednisone. Major hair loss, still falling out after 7 months. Itchy skin, bitter taste in mouth (wine tastes terrible) joint pain, tired, disturbed sleep (even with a sleeping pill). Never had any stomach problems or nausea. No acne either. | I was diagnosed 06/04 with IPF. Started on prednisone 01/08 @ 25 mg. weened down to 10 mg a month ago. Started on Imuran around May @ 50 mg daily; now at 150 mg daily. The Imuran is supposedly helping me stay on a lower dosage of pred. Is it helping with the way I feel; not really. Symptoms are all still there and slowly getting worse especially on exertion. Progression of the disease. At least I don't have to increase the prednisone, yet...tomorrow is another day. | F | 53 | 7 months | 12/1/2008 | 3 | cryoglobulinemia/vascultis | Not sure what to blame or praise this drug for. If I can figure out how to get off it, I might discover what it is or is not doing. | I want to wean off this drug but there is no information about the process. I called Glaxo and they have nothing in the drug info about weaning, which I find scary. There should be some kind of guideline. If the people who make it don't know how to get off it, how is a doctor supposed to know? | F | 54 | 8 years | 11/26/2008 | 2 | Connective Tissue Disease | SEVERE back pain(had to be put on oxycodone), EXTREME fatigue(have been in bed for almost a month), loss of appetite, bursitis flare up in hips, wrist pain, upper respiratory infection, anemia | I began on 50mg and worked up to 100mg...noticed nothing (no better, no worse)until the dosage was at 100mg, then the side effects hit me like a ton of bricks. Stopped taking it 4 days ago and the pain seems to have gotten a little better. My doctor told me I wouldn't notice any changes for about 1 week. | F | 38 | 4 months | 11/24/2008 | 4 | colitis | liver problems also fatigueness | Anybody on this medication able to consume alochol | M | 32 | 5 months | 11/14/2008 | 5 | Ulcerative Colitis | Nothing like the side effects of Prednisone! Occasional tiredness and a noisy stomach, nautiousness with alchohol consumption & prior to some bowel movements | I refuse to ever get back on Prednisone, so I will stay on Imuran for the rest of my life to prevent another flare up. I was initially prescribed Colozal and ended up in the hospital from severe dehydration within two weeks. Prescribed Lialda next and dehydration reoccured in just 3 days. Imuran was the only medication that prevented the bloody stools & constant gas. Prednisone turned me into a "monster" and gained ~15 lbs within a few months. | F | 31 | 10 months | 11/10/2008 | 4 | ulcerative colitis | hair loss, folliculitis (acne) | Imuran seems to be the only drug so far to keep me in remission, i have been on many drugs that have not helped..i have been in remission for about 2 yrs!!! | F | 23 | 2 years | 10/28/2008 | 1 | Crohns | Migraines, joint pain in my elbow , right shoulder and ankle. Cant walk on that foot. Still have diorrhea. Back pain and chest pain. Sore throat, Blocked nose all the time. Seem to be getting sick alot. Moody. Just dont feel well | F | 22 | 3 weeks | 10/20/2008 | 1 | auto immune | hair loss, acne, warts, yellowing of skin, nausea | Imuran didn't work for me. I don't know anyone who's been helped by it either. | F | | 10/11/2008 | 5 | Ulcerative Colitis | Recently noticing hair loss; not sure if it's from Imuran or from stress. Hair thinning considerably near part at hairline. Sometimes feeling of general unwellness, but nothing major. Removal or biopsy of several "dysplastic" moles on my torso. Very fair skinned, tanned in tanning bed on occasion through HS and college. So far all labs for liver function, etc are normal. | This drug has put my UC in remission. Diagnosed in 2001-2002. I tried discontinuing it and relying solely on the Colazal about 8 months ago (9pills/day) but symptoms returned after a month. Resumed Imuran and symptoms stopped after 8 weeks. No flares since as long as I take it. Take 3 pills once a day and 9 Colazal pills (3/3x/day) | F | 29 | 4 years | 10/9/2008 | 5 | auto immune hepatitis | Upset stomach every morning, like morning sickness when you are pregnant. I am having hair loss which i believe that the meds are the cause. | I am greatfull to be able to function on a daily basis, before I had the disease under control it was horrible. So although there are side effects, I am alive and well. Only major issue I have is that I want another child and I cannot be pregnant and on these meds. | F | 30 | 10 months | 10/3/2008 | 1 | autoimmune disease | A tumor, yellow skin, vomiting, massive hair loss, and I was always sick and got acne too. | I wouldn't take this again; it's not safe. | | 9/22/2008 | 4 | Crohn's Disease | Headache | I've had Crohn's disease for about 26 years now. Have been on Asacol for most of that time but would have repeated flare ups. I started to develope pretty bad reactions to the prednisone used to control the flare ups so my doctor put me on Imuran. It kept me flare up free for about 4 years until I convinced him to try to get me off the Imuran. I had been on 100 mg. and he reduced the dosage to 50 mg. Within 3 months I developed another flare up. Went up to 75 mg. of the Imuran and have felt great ever since. | F | 56 | 5 years | 9/17/2008 | 3 | Ulcerative Colitis | For the first two weeks, I noticed no side effects at all. Now, my knee joints ache but are okay ater taking Ibuprofen. I am also tired and don't sleep real well. At this point I'm a bit concerned about the fact that my asthma (which I've had under control for years with a steroid inhaler) seems to be acting up. Now this could be related to the fact that it is fall and there are more alergens in the air. | I have had significant bleeding for 3.5 years, with few other symptoms. Then began having symptoms - abdominal pain, lots of gas, etc. and flare ups. Tried over the counter and internet advertised remedies, none worked. Then found a group of Gastoenterogists, who prescribed one by one all of the prescription remedies without side effects, none worked. My doctor I would need to take the Imuran and did baseline blood work. She also gave a prescription for Entocort and Lialda. Though I had taken all the other Lialda like drugs - since it had a different formulation, thought we should give it a shot. She wasn't sure the Entocort would work at all. I began it at 3 per day for 2 weeks before starting the Lialda. Entocort was like a miracle drug and I began to think it was the answer. Then began the Lialda and right away all symptoms returned. After 10 days stopped Lialda - I was then taking 2 Entocort a day and began Imuran. Since Imuran is supposed to take 4-6 weeks to get up to speed, I | F | 60 | 21 days | 9/12/2008 | 1 | Crohn's Disease | Tumors, warts, fatigue, violent vomiting, jaundice, acne | I wouldn't have taken it if I knew it could give me cancer. | M | 32 | 3 months | 9/7/2008 | 3 | Crohn's Disease | Headaches, nightmares (not sure if these are related to Imuran or not), occassional nausea, itchy skin | So far I've only been on imuran for 5 weeks. I'm not sure if the side effects will get better, worse, or stay the same as my body adjusts but so far it's not too bad. I haven't noticed the Crohn's pains getting better but I haven't been on Imuran very long yet. If the side effects I listed are the only ones I get and the Crohn's pain decreases I'll be one happy camper! :) | F | 27 | 5 weeks | 8/30/2008 | 1 | colitis | massive hair loss, the most fatigue i've ever experienced, weakness, aches, acne, warts | | 8/24/2008 | 1 | Crohn's colitis | Neoplasia, extreme nausea, infections of all kinds, sore throat and a cold the whole time I was on it, extreme weakness, extreme fatigue, so tired I could barely move, it was like my body was just shutting down, warts all over my body and face, acne. | It doesn't work, just suppresses your entire immune system, which basically assures you're going to get infections and things like that and it also makes you sick and can possibly give you skin cancer, leukemia, or lymphoma. You have an immune system for a reason. It's pretty stupid, I think, for doctors to give you a drug that shuts down your entire immune system. This might work for some people with very mild forms of the disease. For people with serious or even severe forms, however, in my experience, it doesn't work at all. Probably the people for whom it works are only experiencing a placebo effect and could get the same effect from a sugar pill--without the serious risks, of course. | F | 7 months | 8/22/2008 | 1 | Crohn's or UC | hair loss, acne, weakness, bruising, tiredness, skin growths, | M | 32 | 3 months | 8/5/2008 | 1 | Autoimmune haemolytic anaemia | Fatigue, jaundice, Hair thinning (no loss yet), Interstitial pulmonary infection, Excessive sweating | My mother has been on Imuran for about 2 months and so far has been hospitalised for a severe pulmonary infection. She is 69 and the doctor that was called out to see her at home seriously didn't think she'd make it. She is tired all the time and suffers with yellow jaundiced eyes. She hasn't lost any hair yet but it's thinning and only time will tell I guess. My mother is a get-up-and-go woman who cannot sit still but since she has been on Imuran she has lost her zest for life and I am very worried - I have never seen her like this before. We are at present compiling reserach on alternative treatments. | F | 69 | 2 months | 8/2/2008 | 5 | microscopic colitis | Nausea if I don't eat a hearty breakfast when I take the Imuran. | I didn't respond to traditional drugs or diet for microscopic colitis, even Prednisone. Imuran has saved my life. I started on 50mg, and then 8 weeks later another 50mg, and then 8 weeks later he increased it by 25mg. I think I am good to go now. I really couldn't tell it helped until recently. I also have been taking Entocort to help me get by until the Imuran kicked in. I am weaning off the Entocort now. I get my blood tested regularly and everything so far is good. Fingers crossed! | F | 54 | 5 months | 7/26/2008 | 1 | Auto Immune Hepatitis | 2 hours after taking the pill for the first time, became violently ill, vomiting and diarrhea at the same time. At times blood both ways also. Immense pain in stomach. Became uncontrollable. This lasted for over an hour when my office called the paramedics. My stomach lining was being torn up by the pill. Two days after being off the pill, I was fine. | I would not recommend this pill to anyone. I have been taking prednisone for over two years. I have gained over 50 pounds and my face in quite full. However, can live with these sides effects without hesitation compared to those of Imuran. Imuran is a nasty drug with too many bad side effects. Don't take it. | F | 60 | 1 days | 7/26/2008 | 1 | Crohn's disease | acne and consequently acne scars, tumors, vomiting, yellowing of skin, it severely suppressed my immune system and i was sick the whole time i was on it. i felt very weak. i played sports in high school. never after any workout did i feel so weak as i did on imuran. also, redspots on skin, fast heartbeat, mouth sores, and i kept getting bruises. | I just found out that using drugs like Asacol with Imuran should only be done with extreme caution. I wonder if that's why Imuran didn't work for me and why I only had bad reactions. My skin is still yellow and I've been off Imuran for quite some time now. I wonder if my yellow skin could be a sign of a liver problem? I know Imuran takes a while to get out of your system, but it seems like my skin should return a normal color at some point...i don't like this drug. | F | 33 | 7 months | 7/24/2008 | 4 | Autoimmune Hepatitis | I had no side effects in the frist year. Reciently I have had my dosage dropped to 50 mg from 100mg and have noticed an increase in hip abduction pain and muscle spasms. I have also found it difficult to take the weight off I gained from the use of prednisone. The muscle spasms are what is really troubling me, because I can not tell if it is a side-effect, withdrawl, or something else completly. | I am completly greatful to have my life back thanks to prednisone and imuran. I would like to find more information about any withdrawl symptoms imuran may have. | M | 32 | 1.5 years | 7/13/2008 | 1 | UC | Skin growths on face, severe acne (was also on prednisone) that left scars, warts that won't go away, incessant nausea, significant hair loss, and a serious eye infection (Imuran decreases your ability to fight infection.) | I would try safer treatments first. My disease was supposedly very severe, and yet I put my disease in remission with just a strict diet and probiotics. The drugs never did anything for my disease, just bad things for my overall health and quality of life. If you know what to expect, of course, you can mitigate and prevent some of the damage the drugs can cause. Still, I'd recommend trying the safer treatments first. For me, they weren't just safer; they were also more effective. | M | 4 months | 6/26/2008 | 1 | RA | Pancreatitis, Severe Gastritis, Nausea, Severe Bruising | I took this medication for three weeks, after two weeks I began to feel unwell (like I was getting flu), was covered in bruises, started vomiting but did not connect it with the medication as I had been told nothing. Ended up in hospital with severe pancreatitis, hospital did'nt make the connection between the pancreatitis and the medication and told me to carry on taking it, eventually stopped taking it myself took the hospital 6 weeks to make the connection. I lost six months of my life from taking this medication, thats how long it took me to recover, even now i have stomach problems which have never stopped. The RA Consultant said to me well when you started to feel unwell you should hae stopped taking it, bit difficult when you have been given no warnings and not being told to have your blood tested. If you are ever given this drug, make sure you get your blood tested very early on, if I had i would have known to stop taking it. | M | 44 | 21 days | 6/25/2008 | 2 | Polymyositis | Hair loss and most recently, affected my liver function so the dr. took me off it altogether! | F | 46 | 7 months | 6/19/2008 | 1 | UC | Extreme tiredness, nausea, warts--lots, all over my neck--a rash--I was probably allergic, but I had a really stupid doctor--and a tumor developed on my face--had to have it removed and it left a large, hideous scar. | If you absolutely need it, make sure you have a competent, caring doctor. You really need to be monitored closely on this drug. And there are serious risks--like cancer--so keep that in mind. Don't let you doctor brush aside your concerns. If he or she does this, find a different doctor. You really need to know what you're getting into and what to expect BEFORE you use the drug. | M | 19 | 6 months | 6/2/2008 | 2 | myasthenia | Swollen, blistered sore tongue; severe headache (migrane) | I was advised to take this for the next 6 months so that I could get off of Mestinon for my condition. I would love to hear from anyone who could offer advice. At this point, I have stopped taking any meds for this condition. | F | 57 | 9 days | 5/31/2008 | 2 | Crohn's | nausea, vomiting, headaches, join pain | Started off with 75mg after dinner, was okay for 2 weeks, had occasional headaches, then had nausea and vomiting 4 nights in a row. Went off of it for 5 days per doctor's orders, and then started again taking half a dose at bedtime. Was fine for another 2 weeks, but then started having nausea and vomiting, as well as join pain in my knees and hands. | F | 26 | 1 months | 5/27/2008 | 4 | Ulcerative Colitis | Severe joint pain in hands, arms and ankles, tiredness, more suseptible to infections, some hair loss at the start but this has decreased over time, sensitive teeth, mood swings, headaches. | I started imuran after my worst flare up 6 months ago, which required hospilisation for over 2 weeks and took 3 months from my life. I nearly lost my whole bowel. i was dependent on prednisolone for nearly a year and had put on over 2 stone which i have now lost, so glad to be off the steroids i had terrible side effects from them, didnt sleep for about 3 months. Since starting on imuran my uc symptoms have decreased, minimal bowel pain and less bowel movements, has given me my life back without the operation, apart from the joint pain and tiredness but ill suffer it as long as i can, never want to be that sick again and want to avoid operation for as long as possible. | F | 23 | 6 months | 5/26/2008 | 4 | UC | redness around neck and face, bloated moon face could be from the prednisone, tightness in chest if I take a deep breath and stretch, mood swings, loss of interest in things I once liked (Could be from Iraq, who knows) | I feel like it is working well for me. I no longer have blood in my stools. No more severe cramping that has put me in the hospital 3 times now. I went to the GI yesterday and I am finally coming off prednisone, im nervous cuz everytime I do, everything comes back...This is the longest I have ever been on it though. Started at 50mg and came down every 2 weeks, 40, 30, 20, 10, 5...It turns out im alergic to Asacol which I know is the prefered drug for UC. All in all, I like Imuran so far.. Good luck everyone. | M | 23 | 2 months | 4/29/2008 | 4 | CROHN'S DISEASE | hair loss, chills, fatigue, nausea, but my biggest complaint is that i have severe muscle aches over my entire body that i cannot get rid of. | This medication has done wonders for my crohn's and have not had any flare up's in the entire time i have been taking it. allowed me to get off of steroids after an entire year on them. | F | 26 | 12 months | 4/26/2008 | 1 | chrons disease | major hair loss | no one warned me I could lose my hair,if they had I would have declined using this drug | F | 32 | 90 days | 4/26/2008 |