Drug Ratings for HYDREAAverage Rating: 3.7 (46 Ratings)
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Results are sorted by Age from oldest to youngest Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 |
| RATING | REASON | SIDE EFFECTS FOR HYDREA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
  | F M | | | | |||
| 4 | Polycythemia Vera | I notice that I get tired more easily. One day of increased activity such as shopping, leaves me very tired the next day. | The medication really helped my numbers. The doctor adjusts the dosage as needed. I worry about the long term effect also. | F | 44 | 5 years | 2/21/2006 | 4 | ET-PV | nausea when first started - fatigue- chills | Have been taking it for 7 yrs. - dosage has increased over time due to symptons. Have many concerns. | F | 44 | 7 years | 11/18/2008 | 3 | JAK-2, Essential Thrombocythemia | At least once a month I experience such fatigue, dizzyness and nausea that my manager sends me home. I've been alternating the drug 1000mg and 1500mg but this doesn't seems to be helping although my platelet count is stabilised I really don't want to feel like this for the rest of my life :-( | F | 43 | 6 months 1500mg | 4/16/2012 | 5 | Essential Thrombothycemia | Light headed at times, occasional mouth sores | I have taken this drug since age 23, it saved my life. I presented with clots in Hepatic veins in liver and platelet count of 1.3 million. Now at 600,000 have had doses of 500 daily, 500 alternating with 1000 and now trying 1000 daily with 1500 Sat. and Sun. Side effects definitely tolerable considering alternative. Also taking warfarin since diagnosis. | F | 42 | 20 years 1000 1X D | 2/2/2013 | 3 | Essential Thhrombocytheamia | Stomach discomfort and fatigue for first month which subsided later. Just had dose increased from 500/day to 500 one day and 1000 the next as platelet count started to go up again 3 months ago and has continued upwards. Never been below 600 yet. | I Do worry about condition turning into Leukeamia especially as I've started at a younger age than appears typical (42). I also take cholestorol lowering meds, blood thinners and somrthing that makes the platelets slide over one another more easy (Lipitor). Heamo says the other drugs significantly lower my chances of another stroke. | M | 42 | 10 months 500/1000 1X D | 12/14/2011 | 4 | Polycythemia Vera | none that I know of, maybe some heartburn if I don't take it with something to eat, but I can't say that for sure. | F | 40 | 4 years | 2/7/2005 | 4 | essential thrombocytosis | none yet | It has worked very well to lower my platelts to a normal range, without any side effecs.I am worried about long tern use though as I am only 38. | F | 38 | 4 months | 10/9/2006 | 4 | Polycythemia Vera | Nausea is the big one, diareah at times, itchy skin at times, sores on my scalp at times, sometimes mouth sores. | I find that if I take my hydrea through out the day, and drink lots of water, the sideeffects are less. For nausea, I have found that "seabands" for the wrist work great. | F | 33 | 6 days | 5/5/2006 | 4 | Essential Thrombocythemia | Mild pain near the rib cage, fatigue, weight loss. Currently skin discoloration on hands and feet. Skin atrophy. | Helped with the platelets. Was up and down, but in a "good" range. Wish there was another drug I can try. I am told this is the only drug left. | F | 31 | 4 years 500 2X D | 1/11/2012 | 4 | Essential thrombocythemia | Intermittent but severe fatigue. Dry, itchy skin, rosacea. Constipation. Occasional nausea or lower leg pain. | Wish I didn't have to take it, but one of the only treatments for ET. Could be worse. Do worry about long term effects, though an oncologist said this drug has been around for a long time with no proven long term danger. | F | 31 | 6 months 500 4X D | 4/7/2011 | 4 | Sickle cell anemia (HbSS) | fatigue, deterioration of hip joints, extreme cycles of constipation and diarrhea, extreme weight gain (roughly 30kg or 66lbs), skin darkening, mouth ulcers, joint pain, increased risk of infection | this drug is supposed to substantially improve my longevity and overall quality of life. however, after having been on this medication for 11 years, i'm not sure how well I will be able to manage this for the rest of my life. I'm only 22. | M | 22 | 11 years 2000 MG 1X D | 6/10/2012 | 2 | Essential Thrombocythemia | Very tired, feeling drugged, pain in ribcage, numbness of arms and legs, neurological symptoms (probably got worse because I was on alfa interferon before), very weak, anemia, dificult breathing, in the begining large black bruisings on legs but I was taking 6-8 pills a day! Weight loss (6 kg) and hairloss with bold spots. Back pain, strange spleen sensation and enlarged spleen. In the begining trombophlebitis, putting legs higher then rest of body helped. Muscle pain and very nervous, got better after a few months. | I was also on Anagrelide and Interferon, Interferon was terrible, I had alucinations and thought cars were chasing me...Pain in the bones and very depressed. | F | 21 | 1 years 500 3X D | 12/8/2011 |
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