Drug Ratings for HUMIRAAverage Rating: 3.3 (416 Ratings)
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Results are sorted by Date Rating Was Added Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
| RATING | REASON | SIDE EFFECTS FOR HUMIRA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
  | F M | | | | |||
| 3 | RA | After a number of the treatments I have experienced bouts of depression which last 5-7 days but this is not every time. Weight gain, severe acne, vision problems, localized itching. | It took about 3 months for it really to kick in and take full effect. However, this is when the side effects really started taking affect. | F | 35 | 6 months 1X O | 7/22/2011 | 5 | Psoriasis | slight headache on and off, felt a bt nauseous at times, slight fatigue but Humira worked fast and cleared my skin in only 5 days....but then a few days before my second injection my psoriasis came back. I am thinking I may need to take it weekly instead of twice a month and will definately discuss with my doctor on my next appt. | So wonderful to have clear skin even though it was for only a few days :) Just took my second injection tonight....so we shall see what happens. | F | 42 | 3 weeks 40mg 2X M | 7/20/2011 | 3 | Crohn's | biggest issue is skin cancer as am going to dermatoligist every 2 mths & having on average 8-10 pre-cancerous spots & 1-2 basal or squamous cell skin cancer removed, mainly on my legs, hands & chest. My skin is horribly dry everywhere & have bumps all over my body. Some are red like insect bites & others white bumps that are very dry. I also have very dry mouth, severe sinus infections & sores inside my nose constantly. When I started taking the Humira, it seemed to really have helped but now I am having more & more flare ups and all these side effects. I am headed back to Mayo Clinic soon & I am hoping that they take me off of it & try something new. | I was previously on Remicade for 3 yrs however, was having alot of issues with blood loss, anemia & shortness of breath, even had to go on oxygen for awhile. The Remicade was not even staying in my system for 3 weeks and I was getting it every 6 weeks. | F | 54 | 2 years 30 mg 2X M | 7/18/2011 | 3 | Crohn's/colitis | Hair loss! Fatigue, painful injections (I guess everyone has that). Some itching. I didn't have this with Remicade, & I took that for over 2 years. | I didn't even take my last injection this past weekend because I'm sick of my already-thin hair falling out even more. | F | 59 | 4 months ? 2X M | 7/13/2011 | 3 | RA | Besides the side effects I have commented on prior to this, I have been experiencing other side effects within the last month, whether be it Humira that caused it, is yet to be concretely determined, but the symptoms worsen right after the drug is administered. I have been experiencing severe itching on a certain area of my back within the last couple of months and within the last month I have been having what looks like sever insect bites, some of which become really inflamed. New ones show up nearly everyday. I would say that I have no less than 15-20 of these everyday with new ones every morning. I had first thought I might have got insect bites being in weeds but I have notice that I dont have to be in weeds and bound to the house and still have them. They become worse right after taking the injections so I am going to treat it as a side effect of the meds. Right after I started taking the med, I had what seemed to be misquito bites on the lower extremeties, legs, thighs and | M | 59 | 12 months 2X M | 7/7/2011 | 4 | Psorasis | I usually get a bad headache the next day | Since on Humira my psorasis (scalp) is 90% gone. Thank you Humira | F | 56 | 6 months 30 mg 2X M | 7/6/2011 | 3 | plaque psoriasis | Stop of menstrual cycle, facial hair growth, change in voice | Worked really wonderful for about the first year. Now noticing excessive facial hair growth. Bruises easy. Now plague psoriasis is back on knees and elbows. Scalp is worse now than before. First real side affect we noticed was the stopping of menstrual cycle, stopped after second injection never has started back. Just wondering if anyone else has had these same problems. My daughter is starting high school this year and we have stopped the Humira this summer to see if it helps. | F | 13 | 3 years 2X M | 7/4/2011 | 2 | Crohns | Extremely painful injections,swelling @ injection site - larger than 5 inches & is red,, hot and very itchy for 2 days, red rash on face, dry skin on face/ears, itching over entire body, "scattered" mind - can't keep things on track/straight, Possible weight gain (5-8lbs), | At first the injection site was okay - painful but an ice pack prior to injection helped - then at about month 4 the injection site started to swell and the entire body itching began with no relief as of yet (now on month 12). My face has a very dry, red, scaly rash over the cheeks, nose, forehead, ears are dry and flaky. My last colonoscopy a few months ago showed significant improvement in the areas where my disease was bad - but these side effects are casuing me more problems than what I can deal with. The memory issues and the itching are too much - fearful my job has suffered because of the drug... not sure what I will be switching to but will not be taking Humira any more. | F | 42 | 12 months 2X M | 6/10/2011 | 4 | RA | During the first few months I had severe fatigue, mosquito like breaking out on lower body, dry/scaley skin but all of these side effects have slowly subsided and have not any other side effects due to use. I havent had any RA flares other than sensitive joints occasionally but nothing radical since started taking Humira. I needed hip joint replacement before I started taking it and still need replacement. It will not fix something a bad as my hips but does keep the joints from flaring which is a tremendous help. | M | 59 | 12 months 40 2X M | 6/4/2011 | 2 | crohn's disease | uncontrolled bowel movements, sore feet | My doctor prescribed humira because Asacol wasn't managing my symptoms. While some of my symptoms have gotten better there has been one significant side effect. I have lost all bowel movement control. I would rather have to use the restroom several times a day to not being able to hold it in. | F | 40 | 2 months 40 mg 2X M | 5/27/2011 | 1 | Crohn's | Shortness of breath. Extreme upper leg fatigue. Stopped taking it a year ago and side effects came back once again. | Have had all the tests for heart, lung, and so on. All is well. Being a "biologic" nobody knows how long it can stay in the body. I would not recommend this medicine to anybody. | F | 64 | 10 months 2X M | 5/27/2011 | 5 | psoriatic arthritis | Zero side effects | I have arthritis in my foot, finger, wrist, mid spine, and sacroiliac joints. The pain completely went away in all but my sacroiliac joint which was the first to hurt. It has helped a lot with my sacroiliac joint, but I think some of the damage was permanent. It took my three years to figure out what was wrong and by then it was too late for the sacroiliac joints. It still has helped a lot though. | M | 36 | 17 months 30MG 2X M | 5/26/2011 | 2 | severe plaque psoriasis | severe fatigue; severe dry mouth; generalized weakness; mental fogginess | 5 months psoriasis is well-controlled after the first 12 weeks, but I had a severe exacerbation after the first month; I'm not sure if the side effects are worth it - I just can't stay awake even while driving | M | 61 | 30mg 2X M | 5/25/2011 | 1 | RA | Chest infection, sore throat, hair loss, tightness in chest, pain in back, shortness of breath, acne, weight gain | I detest this medication and will NEVER take it again. After only three shots I'm now on antibiotics to fight a killer chest infection that has me laid low now for almost 3 weeks. No energy, insomnia, exhaustion, and living with the fear of a heart attack because the pain in my chest was so bad. I also gained 12-1/2 pounds in a week and a half. The first shot worked right away, the second - no difference. The third just about killed me. Never, ever again. | F | 47 | 90 days 3X M | 5/24/2011 | 4 | Chron's Disease | Eczema type skin rashes (red patchy) on face, arms, shoulders and back-terribly dry skin, especially face-fingers and toes swell at night and when hot, pain and swelling at injection site terrible bruising and red patchy thick spots with itching after shots which last for up to five days, weight gain | Benadryl and ice (until numb) before shots has helped with injection site side effects Chron's Disease is in remission, only occassional abdominal pain, but very minimal compared to flare-ups | F | 37 | 10 months 80mg. 2X M | 5/11/2011 | 5 | Ulcerative Colitis | I was very sleepy for the first 3 days after injections, for several months. After that though, no side effects. | This drug has been a life changer for me. I have what I now consider a normal gut. After years of pain, bleeding, diarhhea, and total food intolerance, I eat whatever I chose to, whenever I chose to. No bleeding, rarely pain. I live a normal life again. I got serum sickness from remicade-I was so afraid. But now my life is great. | F | 45 | 1 years 40mg 2X M | 4/28/2011 | 2 | Crohns, Ulcerative Colitis, IBD | Red'' dry itchy rash on face, behind ears, chest, shoulders, neck and at injection site. Joint pain in most major joints, nueropathy in hands and legs. Severe fatigue | When I 1st started Humira I had been on Remicade prior. I first initially had pain and itching at the injection site (on my thighs). So I switched to injecting on my stomach w/moderate success. Started breaking out in a hive like rash after a yr of taking this medicine | F | 35 | 16 months pen 2X M | 4/9/2011 | 3 | Behcets Syndrome | stings for awhile after injection(doesnt leave mark). Im always tired, weight gain (maybe due to steroids)? My skins feels dry, i have suffered with psoriasis in my scalp for 9 years. Now my whole body has started to itch which im finding very irritating. | I've had 8 injections & so far have not noticed any effects. I still suffer with bad joint pain in my knees, wrists & is slowly spreading to other joints. Was previously on the Enbrel injection for 1 year without any effect, taken prednisone on many occassions also been on methotrexate & Azathioprine. | F | 32 | 2 weeks 40 1X D | 4/2/2011 | 5 | Psoriatic Arthritis | The only problem I have had is neutropenia. My bloodcounts are monitored regularly and when the neutrophil count goes low I wait until it goes back up before I inject again. | Humira changed my life. I am 100% free of psoriasis, even my nails grow normally. Still have some joint swelling in my hands but nothing like before. | M | 40 | 5 years 40mg 2X M | 3/28/2011 | 1 | Psoriasis | None, but my psoriasis was in my scalp, elbows some drops here and there, while on Enbrel. Now with Humira I have all over my body, looks like chicken pox!!! BIG MISTAKE switching. | F | 48 | 17 weeks 40 mg 1X O | 3/21/2011 | 4 | Crohn's Disease | Anal fissures, accumulation of extra fat at the injection site. | There is no doubt that my Crohn's Disease is in remission because of this drug, but having open wounds on my bum (that itch when attempting to heal)is the wost thing I have ever experienced as a side effect. I would actually take back Remicade if I could. | F | 28 | 1.5 years 2X M | 3/18/2011 | 5 | Psoriasis | no side effects! After maybe 2 shots in the past 7 months of taking them i got a hot rashno bigger that the size of a quarter around the injection site that clearned up after a few days. but NO PSORIASIS! | 18 year old, female. started 7 months ago because i suffered from severe psoriasis in my scalp for two years that started to take a large emotional toll on my life. I was very self conscious and used every topical cream out there. Also used a variety of oral pills that had not done the job or did not take well with my body and i had very bad side effects. Humira was my last option and after weighing its possible side effects i chose to take it. Best thing i had ever done. i was entering college, started two weeks before and i'd say about 4 weeks into college i literally completely forgot i had even had psoriasis. I have no scaling, or peeling, or itchy. I wear black again. All i have to do it take one shot every two weeks. It worked for me when i thought there was no hope, please dont give up! | F | 18 | 7 months 2X M | 3/16/2011 | 4 | Crohn's | really bad dry skin on face and ears and itchy/scabby rashes on arms, shoulders, back, and legs | the drug has helped my crohn's amazingly. not even a twinge of pain since using it. but this skin problem is starting to get out of control, meeting with my doctor next week so hopefully they can prescribe something that wont mean I have to stop humira | F | 22 | 4 months 2X M | 3/15/2011 | 4 | Crohn's Disease | Itching and dry skin, hair loss, as well as swelling, pain and redness at injection site. | The Humira started working within a few weeks of my first injections and has kept my symptoms from Crohn's away. Although I eventually developed extremely itchy and dry skin, and in the past two months I have developed hair loss on my scalp. More recently I have experienced large swelling (15cm diametre) on and around my injection sites, with pain, redness and itching, which starts developing within 10 minutes of injection. | F | 22 | 6 months 40mg 2X M | 3/15/2011 | 2 | PsA | Weight gain, tiredness, joint pain, brain fog. Slow recovery after knee surgery, but not sure if that's related. I think it might be based on other's recovery after same type surgery. | Started in Sept 2010 - noticed a bit of improvement in my arthritic symptoms. Never felt really good, however. Stopped 2 weeks before surgery (in Jan) and restarted after 2 weeks. I had one injection since and have decided not to return to the drug. I'm extemely achy now, more tired than usual and am now experiencing hand/wrist joint pain which I'm told is osteoarthritis in the basal joint. It's been recommended that I have additional surgery. I think I'll sit back for a while and see what happens. I'm relatively active - work out, walk, etc., and I just want to feel better! | F | 50 | 5 months 40 mg 2X M | 2/24/2011 | 4 | Crohn's | Dry skin, memory loss, painful joints (may or may not be from drug...had this worse without the drug), frequent sinus infections. Some hair loss. | You have to remember...this drug is for people who have had little or no relief from conventional drugs. It works really well for inflammation and is far better than uncontrollable bowel movements 20 times a day and crippling joint pain. You have to weigh the benefits verses the possible side effects. I for one, wouldn't be alive if not for this remarkable drug. It has given me my life back. You can find relief for the joint pain. My Rheumatologist has helped me tremendously. I have dealt with this disease for 8 years and would be glad to share my experience so feel free to e-mail me if you have any questions. GOOD LUCK ! | M | 49 | 2 years 40mg 2X M | 1/31/2011 | 3 | Crohns/Ankylosing Spondylitis | Acne, hair loss, red patches near my armpits (very ichy), back/brown color moles on my chest, dry skin, | The itching is driving me crazy. I hope the symptoms will start to decrease as I continue to take the medicine. My crohns is not fully controlled (mostly abdominal cramps). I'm worried about the side effects. My doc is thinking about adding Imuran. Do not whatelse to say but I'm worried with the side effects. | M | 40 | 2 years 40 MG 2X M | 1/31/2011 | 4 | ra | pain in lower left back (kidney) left testicle headaches for a few days after shots i shoot every 2 weeks fatigue | humira seems to work for me my hands are much better I HAVE TO SAY IM VERY APPRECIATIVE TO ABBOT FOR THERE ASSISTANCE PROGRAM WITHOUT IT ID BE SCREWED THANKS AGAIN | M | 63 | 16 weeks 40mg 1X O | 1/30/2011 | 2 | Fistulising Crohns Disease | Chronic diarrhea, painful cramps. | Had crohns for 8yrs with painful abcesses and fistulas thought this was a quick fix for all my symptoms but fistula sites are very sore and imflamed due to chronic bowel movements and bleeding from bowel. | F | 37 | 4 weeks 40mg 1X O | 1/24/2011 | 3 | psoriatic arthritis | not sure if related to humira or not, but ended up in the hospital about 6 wks after started using. said i had vertigo and a vestibular virus, maybe meniers disease. been off work since Thanksgiving, no pay. seen 5 different specialists and none have an answer for me. itching, burning, bruising at the injection site. extreme fatigue and forgetfulness. most of the psoriasis gone from scalp, and little pain from joints compared to w/out humira. | F | 42 | 3 months 40 mg 2X M | 1/19/2011 | 4 | Ulcerative colitis | Extreme fatigue 12-36 hours post injection. | F | 33 | 2X M | 1/15/2011 | 3 | ankylosing spondylitis | weight gain, bloating, distended stomach, constipation, toothache(?), stuffy nose, canker sores, less urination, legs and torso feel thick / heavy, irritability. Possibly related - pulled abdominal muscle. I have stinging at the injection site, but with icing prior it lessens the pain and feels like a bee sting which doesn't linger long. | Prior to starting humira I was taking sulfasalazine and prior to that prednisone. My body had similar side effects to both of these drugs as well. I've taken (2) pen injections of humira, bi-weekly. I'm into my 4th week of this drug and surprised to have these side effects almost immediately. I do have some relief from my AS symptoms. My hope is that these side effects might lessen or go away. | F | 52 | 1 months 2X M | 1/14/2011 | 3 | Crohn's | Itching, all over all the time, cloudy vision in one eye, fatigue, word finding problems | my symptoms are the same, no relief yet but I think I still have a month and a half to go before expecting it. The itching is driving me crazy. I hope the symptoms will start to decrease as I continue to take the medicine. | F | 32 | 1.5 months 2X M | 1/2/2011 | 3 | ra | my feet started with a fungus, now has spread all over my body have been there for a month now. went to normal doctor they could not help me waiting to see dermatoligist. At first it was red patches with fluid in them like a fever blister they do not heal. had blood work done by ra doctor last week, waiting to hear results. anyone else experiencing this? | i'm worried this drug is causing me to be sick, besides the open sores, my memory is not so good anymore. always tired and depressed | F | 40 | 6 months 30 2X M | 12/5/2010 | 1 | Arthritis | I was sent to the hospital with liver failure. I spent 5 moths waiting for a transplant. I was almost dead when a liver was found. It has been three years and i still have not returned to work. | The side effects of Humira can be very deadly . I would only recomend this drug if you are dieing. | M | 47 | 3 months 1X D | 12/2/2010 | 5 | Psoriasis | Increased infections (during first few months of taking drug). No other adverse side effects since then. Mild acne developed (but nothing compared to psoriasis!) | I was 80% covered in P and I am now totally clear and living a radically different and better life. I haven't had any side effects in nearly 8 months. Don't let the bad reviews freak you out. | F | 21 | 1 years 2X M | 11/29/2010 | 4 | ra | Last month i spent a few days in the hospital with extreme facial swelling that came from a sudden abcess in my middle bottom tooth and also had cellulitis in my face. I have never even had a cavity. I'm fully recovered but i'm not going back on my meds it scares me too badly to think how fast that all happened. Since being off of it for about 2months now i can breath out of my nose again my throat is'nt sore all the time and the tingling in my hands,arms,and legs has gotten 98% better. Oh and my hair has stopped coming out by the handfuls. | My RA hasn't kicked back in as of yet and I do know that i will have to do something when it does, but right now this is great!! I feel like i'm on vacation from feeling bad, what a glorious time. | F | 40 | 5 years 1X W | 11/28/2010 | 4 | Crohn's | joint pain, body aches and swelling, sore throat, tiredness, acne, exema has worsened, potential weight gain | This was working like a charm for a couple of months, then I started breaking out. Got that under control and then I noticed minimal and sporadic swelling and pain in my hands. Over the past month, it has gotten worse and worse and spread to my feet, arms, elbows, legs, scalp, ankles, etc. Pain and swelling moves to different locations on my body on a day to day basis and the severity is different each day too with no consistancy or pattern that I can tell. Could be RA, could be drug-induced Lupus, or just a general reaction to Humira. Allergic to remicade as well. | F | 30 | 8 months 40mg 2X M | 11/15/2010 | 1 | psoriasis | HAIR LOSS! (alopecia totalis?) | I was prescribed Humira for moderate to severe plaque psoriasis on my hands and feet. The drug seemed to clear the psoriasis fairly well but it was around after about 60 days of use I began noticing patchy hair loss on my scalp and arms. I have never had and signs of alopecia in the past and became quite concerned. My dermatologist, after about 30 days of continued hair loss, suggested I stop using the Humira because it might be the cause of my hair loss. I did and the hair loss seemed to subside and even grew back on my arms. That was about 4 months ago and unfortunately the hair loss hasn't gone away. In fact, after about a month of seeming somewhat better, the hair loss only worsened. At this point I have patchy bald spots on my head, no hair on my arms or legs, and a bald patch on one of my eyebrows. I am completely self conscious and depressed by what is happening and frantically searching for an answer. The doctors seem to think it is alopecia (possibly totalis/universalis) but haven't given me a definate. PLEASE if you have had any problems similar to mine and have any suggestions or answers, e-mail me. I would greatly appriciate any helpful advice and would be completely willing to share more of my story with anyone experiencing a similar problem. Thanks, Dave | M | 27 | 90 days 40mg 2X M | 11/12/2010 | 4 | Psoriatic Arthritis | Weight gain, about 10 lbs in 5 months, acne breakouts, injection site pain and itching for a short time. | This is the second time I have taken Humira, the first time was on a clinical study for 2 years and it was wonderful, no more psoriasis or painful joints, but the symtoms came back after 2 years without humira, now I am on humira again and this time it has not relieved all my pain, but the psoriasis is gone again | M | 50 | 5 months 40 mg 2x m 2X M | 11/9/2010 | 2 | Crohn's Disease | Was ok for about the first 4 or 5 months then developed psoriasis. Had extreme dry skin on face, arms, shoulders and chest area. Red dots on calves as well. Scalp was dry all over especially around the hair line and also behind the ears and flaking off and extremely itchy. Swollen lymph nodes and glands that were very sore and tender to the touch. Also had reoccurring case of anemia but this could have also been due to the 6-MP I was taking as well. | I am not sure this drug did anything at all in my case really. My bowel habits were unchanged and stool formation was not normal at all as diarrhea continued throughout the course. I did not experience any positive symptoms until I started taking a prebiotic and probiotic complex that you can get OTC. Due to the extreme discomfort of the symptoms and my own personal concerns over the permanency of their effects I have stopped this medicine as well as 6-MP. I have continued with the prebiotic and probiotic and things are still excellent with those. I must also say that Remicade on the other worked great for me except that I eventually had an anaphylactic reaction to it so that removed that as an option. | M | 39 | 7 months 40mg 2X M | 11/9/2010 | 4 | RA | Humira was wonderful for my RA symptoms,significant relief. The dose was increased from bi-weekly following a number of surgeries(repair of torn tendon, knee replacement.) I was also taking 5mg. prednisone OD....BEWARE of lowering you immune system...I now have Merkel Cell Carcinoma..very rare but most likely from my impaired immune system. Have any blemish checked immediately and tell dermatologist you take Humira! Do not ignore them...this could save your life. | Humira gave me back my life...I could finally move again. Humira does loose some of its effectiveness when it has to be stopped and started (as for surgery) frequently. That is why in my case I went from twice a month to weekly. Unfortunately repairing my immune system is not so easy....take with caution and never ignore even a small blemish particularly on face or neck. Merkel Cell is very rare but attacks those with impared immune systems. | F | 64 | 8 years 40 mg 1X W | 11/6/2010 | 4 | Crohn's and Ankylosing Spondylitis | Occasional irritation at injection site. | M | 24 | 2 years 40 mg 2X M | 11/1/2010 | 5 | Crohns Disease | I had severe crohns, and some pills helped, but were a hastle taking 9 pills a day and sometimes coming back to haunt me. I was put on Humira and the doctor has taken 3 colonoscopies since, and said that my insides loook brand new. He said it has really, really cleared me up. I have no problems now except for beinf tired all the time,insomnia,weight gain badly,skin blemishes and an awful immune system. But what is worse??? Crohns or a few little problems that can be handled? | F | 50 | 250 days 1xbiweekly 1X O | 10/30/2010 | 4 | Crohn's disease | injections are painful. I experience slight headache after injecting and suffer from bad sinus attacks almost constantly. Stomach is bloated and menstration has stopped. Tingling occurs in my hands and feet.I cough often and experience a slight fever after each injection for a few days thereafter. Weight gain | All the mentioned side effects are really minor in comparison to what I suffered with before. I no longer experience the permanent pain and cramping and I feel like I am 18 again. I have an amazing amount of energy after the initial two days of tiredness after the injection. To counteract the depression I take an anti depressant which assists greatly in controlling my moods. | F | 37 | 2 months 40 mg x 1 2X M | 10/28/2010 | 1 | RA | Horrendous headaches, mental confussion, nausea, exhaustion so that I am sleeping 12 hours a day or more. | Only was able to take 2 shots before being taken off the drug. I am now on short term disablity from work as I am unable to work. Dosage was actualy 1 pen every two weeks. Very disappointed with the drug and the lack of information on the side effects and how long I can expect to feel this rotten. In the case of Humira the cure is far worse than the disease it is trying to lessen the effects of. | F | 43 | 14 days 2X M | 10/25/2010 | 2 | chrons | bad joint pain all major joints and all joints in hands with thumbs being the worst mental foginess cant work problems out logically tiredness sleeping 12 plus hrs a day depression and weight gain | joint pain has kept me from working this in turn has led to weight gain money troubles and hence being depressed i am up and fighting now after stopping this terrible drug as it leaves my system i am getting better (6 weeks since last) i would rather suffer chrons than take this destructive drug listen to your body and not the quacks that are salesmen for drug companies | M | 40 | 6 months 30 2X M | 10/21/2010 | 4 | Crohn's | Weight gain. Distended stomach. Uncontrollable itching at injection site for up to a week after with large, raised, red bump (itching so bad the skin breaks). Pain in joints. Feet HURT most in the morning and quite a bit during the day. I have to have Crocs on before I can walk to my bathroom in the morning. Scaly patches skin. Headaches. Constipation. Extreme fatigue for a day or so after the injection. | Humira has pretty much eradicated my Crohn's, but now I have a bunch of other unpleasant side effects. The Crohn's was much worse though. The itching/rash has improved now that I take Benadryl and 650mg Tylenol about 1.5 hours before the injection and ice the injection area for 20 minutes prior. I still get it, but it's not as bad now. | F | 30 | 6 months 40mg 2X M | 10/20/2010 | 5 | spondylitis | The injection really stings, and for the first six months I had a pretty large site reaction to the injection that lasted several days (the area would be hot, red, swollen). Now the reaction is much less as my body has gotten used to it. I also get sick (bronchitis, sinus infections) very frequently. | Humira took a full 3 months of use for me before I got relief. Although, now, I feel incredible. I am running again, and experience no pain. I have needed to be hypervigilant about getting to the doctor as soon as I start to get sick because viruses just take right off into infections within a day or two. | F | 34 | 11 months 40mg 2X M | 10/19/2010 | 2 | Inflammatory Arthritis | My blood pressure is much higher than pre-Humira; I am short of breath and exhausted all day; I now have psoriasis in both ears; I feel some tingling in my face; my memory seems to be shorting out from time to time. Frequent headaches. | I have yet to feel any significant improvement in my leg pain or shoulders and hands. My mood is pretty low. I have been on prednisone for a couple of years, and now with the addition of Humira, I feel pretty bad. I'm going to see my internist before I return to the rheumatologist to see if I can make some improvements to my condition. I'm really tired of all the meds. | F | 71 | 7 weeks 2X M | 10/18/2010 | 5 | Crohn's | Occasional sore throat and general feeling as if I'm starting to get a cold, but this usually only lasts a day or two and no cold develops. Bruise more easily. Some injection site pain after injection, but ice and Tylenol help and its nothing unbearable (completely worth it for results and not having to take tons of pills each day). Bloated feeling the day after injection. | Amazing treatment! It took me a long time to get comfortable with the idea of taking a biologic, but the results have been amazing. I feel better than I have felt in over 10 years and my symptoms are finally under control (had NO relief/results with prednisone, Asacol, Pentasa...). I began to see/feel results within 5 days of the initial dose (4 injections) and have gotten increasingly better ever since. I am not 100% better after 5 months, but I would say 85%, which is amazing to me. I finally see a light at the end of the tunnel and have started to think that maybe I won't be sick forever. Benefits FAR outweigh any minor side effect annoyances I have had. Every time I go on a trip I am so amazed and grateful that I don't have to haul along an extra bag for all my meds! Its a serious drug, so do your own research before you decide to go on it, but my experience has been very positive. | F | 32 | 5 months 40mg 2X M | 10/13/2010 | 5 | Plaque Psoriasis | Absolutely None | Ive had moderate to severe Plaque Psoriasis for just over 7 years now, after 4 years of different teatments including UV, Oral and topical, nothing was working, nothing would even put a dent in the plaques, finally my dermatologist suggested Humira, afer weighing the pro's and con's I decided to give it a try and boy am I glad, Humira has given me a new lease on life, I recently moved and needed a new prescription for it, afraid of the plaques returning, I was frantically trying to get in to see a new doctor for the prescription (like a crackhead looking for a fix) That is the only concern I have, is that when you stop taking the injections, the plaques return.. Have been plaque free for 3 years and it has indeed changed my life. no more long sleeve shirts and pants in summertime!! If you have any questions about this drug, feel free to email me, I will naswer anything I can.. | M | 30 | 3 years 40mg 2X M | 10/10/2010 | 3 | Rheumatoid Arthritis and Lupus | Injection site pain and bruising (lasts about a week), drug causes a lump under my skin that goes away quickly, sometimes I bleed (usually just a drop of blood), frequently aware of nasal draining (by smell, taste), sore throat when waking that goes away. I've always had a bad memory, but it is pretty terrible now (I believe due to pain meds, but I can't tell if Humira has made it worse or not) and I only mention it because so many others have on this website. I also am very tired all the time, but that's probably due to my severe sleep apnea and pain meds. | I believe that Humira has worked for me, so far. Either that, or it is possible that my (severe) RA could be mostly in remission. Two months after starting Humira, I've had another issue with my ring finger where it locks in the position it was in when I went to sleep. In the beginning, it will open up during the day, but gets worse over 1-2 weeks until it doesn't release at all. I had to go to my doctor to get an injection in the joint to release it. This happens to both ring fingers and they alternate every few months. Before I was diagnosed with Rheumatoid Arthritis and Lupus, I had really bad pain and stiffness in my fingers, wrists, ankles, and knees. I'd wear braces wherever I went and the pain was severe when I'd move the "wrong" way. That stopped almost completely a few months after taking Plaquenil & Meloxicam, but my damage hadn't slowed enough, so my doc stopped Meloxicam and started a replacement drug (either Etodolac or Venlafaxine) and then Humira a few months after that. Luckily, I qualify for the $5/mo program. SIDE EFFECTS NOTE: I have other conditions and take other drugs, so the nasal draining and sore throat could be caused by the other drugs or could have something to do with my lowered immune system (is it lowered in only 4 months of taking the drug?). I have severe central sleep apnea, Rheumatoid Arthritis, Lupus, Degenerative Disc Disease, Stenosis (disc narrowing), Osteoarthritis, Bone Spurs, Herniated discs in my back and neck, and S | F | 31 | 4 months 30mg? 2X M | 10/10/2010 | 5 | Psoriatic Arthritis | Injection itself extremely painful, and causes worse than usual sickness when alcohol is drunk. Lately experiencing mood swings although not 100% whether this is the humira or not. Otherwise the benefit greatly outweighs any side effects, I would definitely recommend it to those suffering from extremely bad arthritis. | F | 21 | 3 years 40mg 2X M | 9/30/2010 | 4 | Ulcerative Colitis | Very tired the day of the injection, slight headache for 1-2 days, some joint pain, weight gain | My UC is under control, only had one minor flare up. Totally off Prednisone. I make sure I get rest the day of my injection and treat everything else symptomatically. Need to do something about the weight gain, that's a little worrisome. | F | 50 | 8 weeks 1X O | 9/29/2010 | 3 | Crohn's | Humira-induced psoriasis | Humira controls my Crohn's 100%. I have had severe reactions to purinethol and 5-ASA, and Humira really changed my life. However, a month and a half into treatment, psoriasis appeared mostly in my hands, under my feet and on my scalp and eventually got pretty bad. I have loss a substential amount of hair, I have bald patches all over my scalp, not sure if it is from the psoriasis or Humira. As of this week, the doctor suggested spacing out the doses to once every three weeks. Hope it will allow psoriasis lesions to clear. I have topical corticosteroids and tar preparations to help with the psoriasis, but I am not impressed with their effectiveness. If anyone experienced something similar, please email me, I would be interested into reading about other options or on how to cope with all of this. | F | 32 | 4 months 40mg 2X M | 9/27/2010 | 5 | Ulcerative colitis | I had an infected mosquito bite. Turned into a real skin infection not really that bad but lasted 2 months. I am SUPER tired for 3-5 days after my injection. | I have a life again. I can eat. I don't worry about what or where or if Im gonna have to have a BM. I cant even remember the last time I had pain. Which was a daily thing for years. I gained 35 lbs! I did remicade and had serum sickness. As I told my GI doc- yeah I only poop once a day- but I can't walk! Remicade didn't work nearly as well. So glad I got a reaction. I LOVE Humira. Hate to think that I will have to requalify every year (per my current insurance). Hate to think that I might flare again someday. This is the first respite I have had from my disease. | F | 44 | 3 months 40 mg 2X M | 9/26/2010 | 2 | chrons for 23 years | flu like symptoms,leg and feet swelling,insomnia,allergy rash,aching joints,and feel like have no energy | going to stop taking it as it has not helped my chrons,i had my large bowel removed 17 years ago so have an iliostomy bag and where i have had 8 bowel resections have short gut syndrome | F | 50 | 40mg 1X O | 9/20/2010 | 5 | plaque psoriasis | Some hair loss, 15lbs. weight gain | My head was covered in psoriasis. It covered approx. 30% of my body. It has cleared me 99%. I dont like to inject my legs as they are very sore for a couple of days and I walk alot. But for the most part.. I have done extremely well on this drug. Aside from the weight gain, I am very happy with my results. As another poster stated, not every drug is for everyone. It took me 4 years and many many many drugs to agree to inject myself. I am glad I made the decision to try it. | F | 42 | 2 years 40 MG 2X M | 9/18/2010 | 4 | plaque psoriasis | injection site reaction, goes away within hours | This medication has worked wonders and has eliminated my psoriasis completely. Though I did experience a brief outbreak of severe psoriasis while on medication, not sure quite why that happened. Humira says it could have been a bad batch (since it must be kept cold). This has improved my life 100% and I am no longer embarrassed about my skin!! When I go off it for as little as 2 weeks I notice some spots coming back. Otherwise no adverse side effects. | M | 30 | 2 years 40mg 2X M | 9/15/2010 |