REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Psoriatic arthritis | None from Remicade itself. | Enbrel was more effective then Remicade. | M | 59 | 3 months 1X O | 1/20/2015 | 2 | Crohns Disease | Brittle loss of hair, skin rash on left eye socket, vision impairment in the same left eye, groin, right arm and shin, Continued Crohn’s flares occurring 1-2 times/2 months. Continuous diarrhea, seemingly lack of absorption. Believe it is also is the cause of acid reflux, indigestion, loss of appetite, tiredness, loss of weight. Any of these symptoms occur at any time no matter the infusion introduction. At first, Remicade really worked-your body is smarter than the drug remember that, it will adjust. Be prepared to adjust/adapt. Every Crohn's patient knows how to adapt given our disposition. I tended to ignore the side effect symptoms given the trade off I thought I was benefiting. | Diagnosed at 12 years old-48 now. Resection surgery 1983 & 1984. Gallbladder removed 2010. | M | 48 | 12 years 1X O | 12/23/2014 | 2 | Crohns Disease | Swelling face, consticted airway, rash for 2 weeks after infusion, severe back pain, exhaustion for following days. | M | 22 | 3 months | 10/4/2014 | 2 | psoriatic arthritis | Instead of black mold lung disease it was an infection of Candida Albicans. That clarified by my GP this morning. The doctor was quite concerned as my "normal" heart ECG showed signs of damage. I feel horrible. | M | 66 | 8 weeks UKN 1X day | 1/17/2014 Patient History | 2 | Crohn's | my skin got extremely dry and itchy. I have intense itching episodes now whenever I workout or my skin is warmed/hot shower. They are crippling I have had to leave the gym many times. Vision problems, thinned my thick hair out really quickly, devastating. Hair loss. Joint pain, scalp issues, depression, extreme fatigue, sensitivity to the cold. This drug is awful, I would not recommend it unless you were desperate for relief. It does the job to control the Crohn's symptoms but at the expense of the health of your body. I feel like crap. Extremely fatigued all the time. Most GI doctors don't care at all about the other symptoms. | I'm skipping my 4th dose of Remicade after the extreme itching episodes started. My hair and visions is ruined. I hope everything returns to normal after I have stopped. I'm going to try my best to treat Cohn's with alternative treatments. F the GI Drs.!!!!! | M | 26 | 3 months 2X M | 1/2/2014 | 2 | Crohn's and reactive arthritis | Itchy between infusions, increasing nausea after infusion even though I was taking anti-histamines. Sadness. | I took Remicade for a year and came off approximately 2.5 months ago. It worked well for both my crohn's and reactive arthritis. However, the infusions made me increasingly nauseous and itchy - I've never had allergic reactions and now I seem to be allergic to a whole range of things. Remicade? The last infusion made me feel very ill and my feet and face were itching, etc. Eight weeks later when I went in for the next dose I told the nurse how I had felt, she spoke to the doctor and they decided they didn't want to do the infusion until I had spoken to my Rheumatologist. I made an apt with the Rheumatologist and when I told him he said (very casually) "it's lucky you didn't take it, you could have died". Now I don't want to be a panic merchant, however, I wasn't told when I began Remicade that the allergy to the drug can increase over infusions and can potentially be fatal. If you have allergy symptoms (I was even taking anti-histamines), just be careful, especially if they become greater with each infusion. Dr wanted me to swap to Humira, but after the Remicade experience I'm just too chicken. I'm not on anything now except huge quantities of fish oil and magnesium. It's nerve-wracking because I've been on drugs forever, but I actually do feel so much better mentally and physically and this is possibly a result of the Remicade as it can intervene in the course of the disease. The drug is a double-edged sword! | F | 41 | 1 years 1X O | 11/16/2013 | 2 | Psoriatic arthritis | Very swollen feet and ankles and severe muscle pain | I was given Remicade thru IV and than 2 weeks later, than 4 weeks later and from there it would be every 6 weeks. After going thru the initial introduction of Remicade, I do not like how I feel and the swelling keeps getting worse after each treatment along with continuos muscle pain! | F | 53 | 3 times 400 mg 1X O | 8/25/2013 | 2 | Crohns disease | Felt high after infusions. Experienced mysterious night itching with no rash although this may've been from Azathioprine (doctors do not know). Seemed to trigger symptoms of Crohns disease or simply was ineffective. | M | 38 | 6 months | 7/6/2013 | 2 | Ulcerative Colitis | Fever, chills, night sweat, fatigue, vision changes, trouble sleeping | Two days after my first infusion I had high fever for two days, and I've had intermittent low-grade fever, night sweats, and chills for the last several weeks. I have never been someone who gets random fevers until now. I was hospitalized for my fevers and dehydration one week after my first infusion, was given antibiotics, but no infection was found. The hospital also put me on 40mg of prednisone a day, which is the only thing that has positively helped my UC. My doc told me to start slowly tapering the prednisone, but as soon as I did that my UC came back immediately. Not sure the Remicade is doing anything, and given how it's kind of messed up my life I think I'm about done with it. The side effects have been worse than my original UC problems. | M | 26 | 4 weeks 1X O | 3/12/2012 | 2 | Crohn's Disease | I have only taken two doses but I did not see any relief and the doctor said it wasn't working. I did feel very tired for the first two weeks after taken medication. I am scheduled to have adhesions removed and a resection done on Tuesday. He said it is very unlikely that I will need a colonstomy bag. The doctor said I will be like a new person after four weeks. Can anyone give me advise or what to expect following surgery. I am only 42 years old and am very scared. I am a new grandmother and do not get to spend much time with her due to constant pain. Can the Crohn's return again? | F | 42 | 30 days 300 2X M | 2/9/2012 | 2 | Crohn's Disease | Had my first infusion on a Friday, the next Wed, I developed swollen lymph nodes in my head and neck, pain in my neck and head, I could not open my mouth or move my jaw without horrible pain, I have joint pain and I also have a weird, tight, slight tingling in my arms (like I continute to have my blood pressure taken) and was kept in the hospital all day today for all this and Tachycardia. They belive it is due to the remicade. I also now have sinusitis. | F | 35 | 7 days IDK 1X O | 11/25/2011 | 2 | PSORIATIC ARTHRITIS | While getting first infusion, my blood pressure went up. Also, I had trouble breathing. Infusion was continued.A day later, had migraines start Never had migraines before. A week later, I got a rash all over my body. Stabbing pains in my body, fatigued and increased sleeping. 2 weeks after infusion, started throwing up, migraines continue and nothing works, dizziness,chills,night sweats,could not eat anything without vomiting. Feel much worst than where I was before the infusion... | works for some people, but be careful. This drug can stop your breathing. Heed the warning signs. I regret trying this drug as it made me worst. I am going to seek other natural remedies as the price to pay for side effects is too much for me. Good luck to everyone. | F | 45 | 1 times 30 MG 1X O | 9/7/2011 | 2 | psoriatic arthritis | Frequent infections in the fingers (nail beds) and urinary tract infections. Headaches and dizziness too. pain at injection site for weeks. Also taking methotrexate. | Not sure if this is for me, very worried about the side effects of this medicine. They recently increased my dose and side effects are worse. | F | 46 | 1 years 60mg 1X M | 3/30/2011 | 2 | crohn's | Writing for my daughter, started Remicade shortly before bowel resection. Seemed to work for about 4 years with mild side effects. Recently developed horrible psoriasis-like rash (now well documented in the literature)- over about 75% body much worse than the Crohn's. No drugs working, need to go off Remicade. | F | 30 | 4 years 1X M | 10/10/2010 | 2 | JRA | No side effects during the infusion itself - so far it has been an enjoyable experience due to the IV benadryl. Afterwards, I feel itchy, puffy, and extremely tired sometimes for days. With this last infusion (my 6th), my joints felt noticeably worse for 2-3 days, in an unusual way - sharp pain, not the usual arthritis ache. Non day 4 after last infusion I am still extremely tired but at least my joints are getting back to where they were before the infusion. | I am underwhelmed by this medication's effectiveness. It has been nothing like the first time I took Enbrel, which gave me the sensation for the first time in my life what it would be like to live without JRA. Unfortunately, Enbrel stopped working for me. My doctor has increased the dosage of Remicade several times to see if it's a dosage issue. With this last cycle, I feel like it gave out about a week short of my infusion date. I learned from the nurses that sometimes the doctor will shorten the period between infusions. I take this in addition to prednisone and methotrexate injections (and a few other medications). Have to admit I am not always timely with the methotrexate injections so I can't say if this regime is effective due to user error. :-) I am thankful that this medication allowed me to stop doing 2 of 3 self-administered injections per week. Just before Remicade I tried Humira which was not effective and stung intensely during injection. | F | 45 | 1 years 1X O | 8/22/2010 | 2 | U C / Ankylosing Spondylitis | Had UC for 4yrs tried Remicade for it but it didn't work. Recently my Dr started giving it to me for Ankylosing Spondylitis and my throat closed during my infusion! I was really glad I was at my Dr's office. I broke out into hives and started choking. My Dr took me off of it now I am going to try Humaira. | My Dr said I built up antibodies to Remicade over the years and now I can never take it again. | F | 25 | 2 months 2X M | 3/7/2010 | 2 | rheumatoid arthritis | have had 2 iv infusions so far..my 1st infusion was 2 weeks ago. almost instantly i felt back pain as i sat in that chair..felt very sleepy, nurse said it was due to the benadryl. after a few minutes i could feel the pain spreading through out my whole body.. my back pain never went away and i actually felt worse than before my infusion. i called my doctor a few days before my 2nd infusion and told her about the side effects and back pain and she said i had to keep going. so thursday i had my second infusion and the same thing happened, as she injected the remicade into the line i felt the sharp pain in my back..it is now sunday and i have had a severe headache since thursday, back pain worse and every joint in my body aches bad...had to go to the store and had to get in one of those electric carts cause i cant walk without pain..maybe its just a flair up but, i was feeling MUCH better before the infusion of remicade..doctor said it was 1then another one after 2 weeks | F | 34 | 1 months 1X O | 2/21/2010 | 2 | ulcerative colitis | helped colitis symptoms but am now experiencing what they are calling "remicade induced lupus"? very stiff/painful joints and muscles--Headache, low grade fever some days, Sore throat, stiff, sore neck. Have had problem since October. Some days need help getting dressed and doing simple things. Very frustrated. Have not had an infusion since Dec., but no break in symptoms. stopping infusions due to painful, stiff joints and muscles and other negative side affects. | infusions were every 8 weeks. | F | 48 | 5 months not known 1X O | 2/8/2010 | 2 | Crohn's Disease | No real side effects. | Have not noticed any improvement, apparently my fistula's are getting smaller, but still have the day to day crohn's symptoms. I have been on Remicade since Aug 2008 and they had doubled my Remicade dosage with no improvement. I think I will be stopping after the next infusion, I gave it almost 18 months and nothing.... | M | 36 | 18 months | 1/15/2010 | 2 | crohns disease | Have been taking Remicade for over 4 years now. Took swine flu vacine in Late October or early November of 2009. I have broken out with sores all in my hand on the soles of my feet, on my arms legs and now they are appearing in my hair. | F | 15 | 4 years | 1/4/2010 |