REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | I have Crohn's disease | I just had my third treatment about 3 weeks ago and during the treatment i started feeling really hot,swollen, and i couldnt breathe. The doctors finally came to check me and gave me oxygen and benadryl then i felt fine. They gave me the rest of the treatment slowly and sent me home. I woke up that night in tears i couldnt move. My boyfriend had to take me to the hospital all side affects from remicade. My docotor told me i got short term lopus from this medication and arthritus. At first the treatment was working the best then any of the others ive been given and now they took me off cause they reactions. Not something you want to go through all the time. | I wish everyone the best of luck when taking this treatment. Make sure to consult your doctors if you start getting any new problems! | F | 22 | 4 months | 9/9/2009 | 1 | Crohn's | Stopped breathing | Horrible, almost died. All other crohn's meds had terrible side effects too. Tried Maker's Diet (get in any book store). Symptom-free for 2 years now. On no meds at all. Please try. | F | 26 | 2 months | 8/4/2009 | 1 | Rheumatoid Arthritis | Tired for days after, tightness in the chest, itchy, and weak | I went to the doctor, after going to work one day and by the end of 12 hour shift not being able to walk upright without pain. My regular doctor thought maybe I had Fibro Myalia, because of the problems I was having. So he sent me to a rheumatoid doctor. After blood test that doctor told me I had RA and put me on steriods and methotrexate. When that combo didnt help, he put me on Embrel shots. One a week as prescribed. . they didnt seem to be helping but the doctor says it would take time. My insurance only covers 6 grand a year with the shots and insurance i was footing the full bill in 5 months and still not feeling better. So doctor got me on Remicade infusions as an out patient. So was covered by medical insurance. Frst infusion was groggy and tightness in chest. Blood pressure dropped so severely that the nurses were concerned that something was wrong. Started out one infusion every 8 weeks. . not helpign so then was every 6 weeks. . still no help. Blood work doctor said looked promising. I was then going once every month. Still groggy and sleeping through it. Sleepy for days after. Still in pain and getting depressed. Doctor had my infusion dose raised as high as he dare go with it. I was not feeling better, but he was telling me to give it time. Was almost 2 and half years of infusions. He then informed me he was moving and sent me to a new rheumatoid doctor. Who did not recieve all my records from first doctor so he sent me to do new tests. The new doctor informed me | F | 34 | 2.5 years | 4/10/2009 | 1 | crohns disease | Rash on side of lips, extreme muscle pain,headachs, Many kidney stones est in the hundreds. kidney stone surgery at least half the time I get one. | (LONG TERM USERS BE AWARE OF REMECADE, THIS IS MISERABLE) I was diagnosed with crohns disease in 1988, during the next 5 years I was in and out of the hospital. In april 1993 I had an emergency bowel recection. The pain went away, but I had frequent trips to the bathroom. I have taken every medicine on the market (at times I felt like a test animal). I was On prednisone for 10 years. I started remecade in 2000. It was great until now. I have extreme muscle pain to the extent I have not worked since march 2008. The muscle pain is worse than the crohs disease. I have not taken the last treatment and have felt some better. I have been to Duke University and am going back Sept. 08, 2008 for my second visit , also been to University of Georgia medical college where I was treated like I was trying to get disability but I could have gotten it 10 years earlier but I didn't want it. I never missed more than 4 weeks of work at any given time until now. | M | 38 | 8 years | 9/2/2008 | 1 | ulcerated colonitis | Severe nausea, loss of appepitite( I lost 17lbs in four weeks following my third remicade infussion.) Also, I had severe anxiety, which progressed after IV infussions one and two; by the third IV my aniexty continued to escalate and I was unable to function, which lead to severe depression!!! I have never felt so horrible in my life. I strongly do not reccommend remicade!!! | Although my UC is severe, I'll take the disease, steriods and all over remicade. I hope all of the cns side effects wear off soon! | M | 23 | 2 months | 7/7/2008 | 1 | Rheumatoid Arthritis | I was infected with histoplasmosis. Now I cannot take any biologic without also taking Sporanox (forever). Had I been warned about histoplasmosis, I could probably have avoided it by wearing a dust mask when working in dusty conditions (mowing weeds). | There seems to be a closer association between Remicade and histoplasmosis that with Enbrel and histoplasmosis. I am now beginning tratment with Enbrel. Remicade was great for my RA until this problem. | M | 64 | 6 years | 3/15/2008 | 1 | Ulcerative Colitis | I only had one injection, but several days before I was due for my second I experienced a horrible reaction. I had a high fever, was unable to get out of bed due to debilitating abdominal cramping, was running to the bathroom every 10 minutes (when I could muster up enough strength to actually get up), and had a rash covering my entire body. I had to go on 40 mg of Prednisone to counteract the reactions. | I've heard it works wonders for other people, so I suppose it's worth a try. Check out my blog on UC at: www.UCgirl.blogspot.com | F | 20 | 2 weeks | 2/19/2008 | 1 | Remicade Linked to Stevens Johnson Syndrome | | 6/30/2006 | 1 | Crohn's Disease | hives, racing heart, throat closing up, inability to breathe, bright red skin, eyes protrusion, sore joints, vomiting, constipation after infusions...all occuring during or a few hours to days after infusions | Had 6 infusions, become more and more allergic to the drug after each infusion. Almost died from the reaction the last infusion I had. Can't take this drug anymore. | F | 21 | 6 months | 6/7/2006 | 2 | Ulcerative colitis | I really didn't have any side effects but two years later I develop Lupez I had a seizure and now I have a cute kidney disease and possibly | I know they have a lot of lawsuits about it so I just wondered because I when I had my seizure that ended my job and I was seeing a neurologist for a year | F | 59 | 1 years 7 bottles 1X M | 10/31/2020 | 2 | HS | From first dose I had the most severe headache and back ache I’ve ever had. Lasting into a week or so. Also felt I was extremely moody even angry. I’m not an angry person. I’m very laid back and easy going. Next dose same effects and third one has scared me I feel like I’m going insane. My mind is not right, I’m thinking things that are not good. My mental health is very important to me so I’ve made people aware of how I’m feeling. But if this keeps up I may have to stop taking this drug. I don’t like how it’s making me feel. Also extreme lethargy and fatigue since day one. | I should add I have been on anti depressants for a few years. I know what depression is and this is not it. This is horrors. Like a woken nightmare going on in my very much awake head. Will discuss this on my next visit and hope they have answers. Stay well. Smile even when it’s really hard to.💜 | F | 52 | 3 months | 2/6/2020 | 2 | Adult Stills disease | I am in the hospital as I write this. They took me off Humira and started me on Remicade and it has gone downhill since then. I came down with sudden pneumonia in both of my lungs and sepsis. I am lying here with massive doses of antibiotics going into my veins and they are trying to save me. I regret are going on this drug | F | 57 | 3 months Top dose | 7/15/2017 | 2 | Ulcerative colitis rectal bleeding | Had infusion once so far and going to doctor tomorrow to see what I can do to help tolerate the side effects before I would have my second infusion. Severe body aches, headache, tired, nausea, stomach pain, weakness. Every day seems to be getting better but still feeling sick. | F | 24 | 4 days 5 mg | 3/9/2017 | 2 | My husband was taking | Within 2 weeks if husbands infusion, I had cascade of symptoms starting with itchy, runny nose, stomachache, , mouth sores, achy tendor lymph nodes, achy joints, head and eye aches, flu-like feeling, malaise. Went to many doctors, specialists, for 3 years with no answers. Husband and I linked it to his Remicade infusion as possibility. We decided to have no body fluid exhange including kissing a year ago and I have been symptom free since then! Most doctors I went to said "not possible" when we asked if I could b e hypersensitive to it when excreted or during clearance from his body. By the way, he did have skin cancer issues after being on it for couple years so it obviously affected skin cells. It was a few years of hell especially having physicians doubting the reality of symptoms I described to them. | Except for husbands skin caner issues, it did help his rheumatoid arthritis symptoms immensely for first 2 1/2 years. | F | 55 | 3 years | 10/22/2016 | 2 | Crohns | Crohn's symptoms relieved, but now experiencing hair loss and swelling ankles. The hair loss is far, far worse than when on 6mp. This is utterly devasting. Doctor is blaming the hair loss on Crohn's, but it's never been an issue until this high dosage. | F | 49 | 14 years 1200mg 1X O | 6/30/2016 | 2 | Ulcerative colitis | Okay I was diagnosed with UC seven years ago. I started remicade six months ago. I have not gotten any better. At all. And I'm experiencing hard bloody scabs on my scalp. And peeling which is causing awful dandruff. Is this normal for remicade patients? I honestly feel like I'm getting worse, and my energy continues to deplete. | M | 16 | 1 days Differs | 4/29/2016 | 2 | Psoriatic arthritis | Symptoms of TB disgnosed now. | M | 41 | 1 years 400 mg | 2/24/2016 | 2 | Crohns/UC | Severe debilitating joint pain. Sudden pain, travels, difficult to get rid of. Abaits after treatment but returns 3 weeks later. | This drug is ruining my husband's life. Life is full of worry and on-going concern. Crohns/UC symptoms abated. Difficult to live like this. | M | 55 | 7 months 1X O | 2/3/2016 | 2 | u/c | Itchy scalp, shortness of breath & stomach ache | Had 2 infusions 4 u/c and I still feel the same if not worse, seems every1 gets good results from this med just not me gonna ring ibd nurse 2moro | F | 28 | 2 months | 11/30/2015 | 2 | ulcerative colitis | First 2 loading doses were ok. I was on 40mg of prednisone and premedicated with steroids, benadryl, and tylenol. After 3 dose, developed extreme joint pain, knee pain, muscle pain, swollen left ankle, rash on eyes. Last treatment was over 8 weeks ago and still in a lot of pain. Trouble walking, limping around like a 95 year old. Not sure if it worked or if it was the prednisone. Now taking VSL3 and bone broth diet. That really helps. Plan to go off the Remicaid and stick to gluten free diet, vsl3, and SCD diet. | Went to the rheumy and everything came back normal. On Norco for the pain but it doesn't help. | F | 50 | 1 days 500mg | 5/11/2015 |