REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

Filter Results

Compare REMICADE with similar:
 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Satisfaction lowest to highest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26


More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Psoriasis SEVERE JOINT PAIN, CHEST PAIN, FATIGUE After the first infusion my psoriasis went away.....NOT WORTH IT! I was getting infusions every 8 weeks and about the time my 6th infusion was due...EXCRUTIATING JOINT PAIN EVERYWHERE. It felt like I had been in a severe car accident and every bone, muscle, and joint hurt tremendously. I have a 9 month old baby who I can't even pick up in the morning because my joints in my hands hurt so bad. I wish I had never taken this horrible drug! I was diagnosed with drug induced lupus from the Remicade. NIghtmare. I have no idea how long this is going to go on for and the prednisone and pain medicine only gives me little relief. The rheumatologist wants me to start plaquenil but after having such horrible side effects from Remicade I'm scared to start a new medication. I was so much better off before starting Remicade. My advice to anyone out there thinking about taking a biologic....DON'T DO IT!!!! F 38 6 days
8X O
7/14/2012
Email
 1  RA; I don't take drugs now I took Arava and it gave me periodic psoriasis like rashes; I am warning people not to take drugs, I am effectively cured naturally. I have cured myself with apple cidar vinegar. To the lady posting on 5/31 who got cancer from remicade your e-mail does not work for me. You can potentially cure your breast cancer with vitamin C crystals or injections and manage your psoriasis with apple cidar vinegar externally and internally. It can also effectively cure Crohn's/Colitis but you may also need vegetable juice fasting. Much of this is at doctoryourself.com and earthclinic.com, or you can e-mail me. 'Just say no to drugs' (Nancy Reagan). M 57 0 days
0 1X day
6/21/2012
Email
 1  Crohn's Disease None Did not work. Even doubled the doses the last two times and no results M 39 1.5 years
1X AN
6/19/2012
 1  Crohns disease Was diagnosed with sarcoidosis (enlarged lymph nodes in my chest 6 months after stopping Remicade - I did not have this when I started Remicade This drug caused me to be hospitalized on several occasions - the final straw was I ended up in the hospital 3 days with a very severe rash all over my body that started within a few hours after my infusion - I would NOT recommend this drug to anyone as my blood work went off the charts I ended up with pneumonia and now I have sarcoid (and had to have a medialstenoscpy to get bioposis in my chest) I have a hard time breathing, am so tired no energy now from Sarcoid - both specialists blame the Remicade for what has happened to me but no one will put it in writing. I would like to see how many other people have had this problem - I was only on it 2 years - my GI wanted me to start Humira - NO WAY - my crohns disease is now controlled by a NO FIBER diet and have had no GI problems since I got off Remicade but now have worse problems from it F 63 2 years
8 weeks 1X day
5/10/2012
Email
 1  Yes Was on Remicade Infusion took first 3 infusions. After 3rd infusion have burning feeling all over body. When I swallow it hurts. Have done test everything seems normal. Only thing is the Remicade. No problem with first infusions but felt no difference just a slight change in pain. Overall no difference. Now I have fatigue night sweat and overall joint pain. F 53
3X AN
5/9/2012
 1  Psoriasis During treatment: Nausea, severe chest pain, hives, & itching and burning all over. F 56 6 months
2/28/2012
 1  Crohn's Severe joint pain. Diagnosed with Drug Induced Lupus. Drs. did not want to acknowledge that remicade could cause this and continued the infusions until I did my homework and stopped it. Found a new GI and a rheumatologist. F 52
1X O
1/23/2012
Email
 1  Ulcerative Colitis Joint pain in every joint in my body, which got worse with each infusion. Stiffness. Excessive sweating at night, chills, yeast infections, weight gain. I wish I would have listened to all the actual people on here who said this medication causes joint pain instead of my Dr! F 42 2 months
1X day
1/22/2012
Email
 1  Crohns Disease Severe Joint pain- headaches-swelling of feet and hands-rashes. Serum Sickness- Lupus, and Steven Johnson Syndrom. Numbness and tingling in arms, hands, and legs. Couldn't move head, arms, legs, and hips. Exray taken- they said it looked like I was in a car accident- dislocated jaw, 4 protruding disc in neck. Tumor on left shoulder, I stuttered for 2 months. I still have protruding disc, lupus, numbness and tingling- it's been 4 years since I took remicade. If you feel pain- stop the medication.. Doctors will tell you it's normal or that it will go away with predisone- it won't. It gets worse you won't be able to walk or sit up. Knees will feel like your getting hit with a baseball bat everytime you go to sit or stand. HORRIBLE!! I went 9 months not being able to move without help or pain. They don't know anything about this med.. My blood test were off the charts.. And they hide it- my medical records through doctors office were wiped clean of my complaints.. But luckly I had gone to the ER on several occasion and it was documented through them.. It took me 4 months to get medical records from my Rheumy, and a threatening phone call from another Rheumy. Be Careful, and keep records. F 31 2 months
1X M
1/12/2012
Email
 1  Colitis Severe reaction, still nausea 8 wks on, still no appetite. Heart palpitations, low BP, low blood sugar. Ached from head to toe for 4 days unable to get out of bed due to this. Spent 8 days in hospital was admitted after having reaction during infusion, was almost out of it & did nothing but sleep felt so drugged up. Scary experience I'm now 8 wks since last infusion things are better but I still don't feel right still NO appetite & lost a total of 2 stone 10lbs in 8 weeks. Look very pale & drawn. Constant nausea still . Was doing so well on it. Consultant confirmed it's a severe reaction, a frightening one for me as I felt I wasn't in control of my body & scary for my parents to now see me a shadow of my former self. *not everyone gets a reaction F 31 1 years
12/30/2011
 1  Ulcerative colitis I have had infusions for UC for 1 1/2 yrs every 8 wks. No improvement. Had my first 6 wk infusion this week. Guess we will see. F 60 1 years
12/18/2011
 1  Crohn's I was getting an infusion once every 8 weeks One word: Histoplasmosis. I haven't seen it here. I didn't know what it was until it almost killed me. It was caused because my immune system was so compromised that when I went to the Southern region of the US I got a fungal infection called Histoplasmosis. I was in the hospital for 28 days. The docs couldn't figure out what was wrong. My kidneys and heart were starting to fail. Had to go through a lung and liver biopsy. They thought it was a lung infection. Once they finally figured it out and treated me I get better. But people don't know this can happen. I had a high fever and generally felt bad for about a week before I was admitted to the hospital. Saw my regular doc and he gave me anit-biotics for bronchitis, but I kept getting worse. I didn't realise how sick I was until my daughter made me go and took me to the ER. Tell your doctor you are on Remicade and to check for fungal infections if you get sick and think it's a flu or virus. F 56 6 years
Don't know 1X O
10/5/2011
Email
 1  CD Was referred as an reaction which caused swelling of both hands and forearms, witch resulted after several months, with several specialist's an outcome including surgery and elevated levels of things that I do not understand including lupus. After 2 years later the drug has left my body and all blood levels have returned to normal, feeling has resumed but have been left with ongoing problems for life Does not work for everyone, there is a risk involved, not every, but not any health professional will willfully agree F 47 4 months
? 1X O
9/23/2011
 1  Crohn's Disease Severe hives after a week. She was tired all the time. My mother was rushed to the ER was told it wasnt a reaction. Yesterday while she was having remicade treatment she threw up, passed out and stopped breathing. I am writting this for my mother who is currently in the hospital because of the reaction it had on her. F 65 1 months
1X O
2/11/2011
 1  fistulas Joint pain that moves all over my body. Knees, to hands, wrists, elbows, jaw, fingers, neck. I am 46 yrs old and very active (had colon cancer 12 yrs ago) and been doing great (minus fistulas). Took drug to help. Remedy way worse than original issues. Stopped plan for next infusion this week. Been 2 months since last infusion. Pain meds do not help. High doses of prendisone help. At night gets worse. Any one know how long these side effects will last? Very scary sife effects and no one has answers. At first, all went well first 2 treatments. (About 9 weeks apart) Then notice right hand and fingers tight or locked up. Assume too much racquetball or mouse on computer. Then next treatment...both hands, followed by elbow. Each dose created more issues after about 3 weeks. Early Dec 2010, resort to medro dose pack...helps for a short term. Currently the past week, pain had made life upside down. Feel 85 yrs old. Went from biking, golf sports etc to difficulty getting up from chair or walking! What a sick disturbing position. Pray this wears off soon. M 46 8 months
1X O
1/19/2011
Email
 1  Ulcerative Colitis About 5 days after my first infusion, I developed severe, excruciating lower back and hip pain that was a 10+ on my pain scale. Pain medications would not relieve this and I could not walk. As the days progressed, it go worse and would show up in a different joint every night. My only relief was that it would go away by morning. However, then I was tired all day from lost sleep. I had never had joint pain in my life before. I told my doctors no more Remicade and cancelled my second infusion. The pain let up after 12 days only to start up again last night. I am worried it may never go away. Not worth the joint pain! I can't believe this started after one infusion. I didn't even want to take this medication and already decided I would rather have surgery than deal with what I felt was a dangerous drug. However, I was in the hospital for two weeks with a flare that wouldn't respond to steroids and was rapidly losing weight and getting sicker. My doctor wanted to end my flare and get me strong again for surgery using 3 infusions of Remicade as an intermediate step. Thinking that only 3 infusions couldn't possibly cause permanent problems, I agreed. The 1st infusion did end the flare but then the intense joint pain started. I have heard that the pain is usually temporary so I am crossing my fingers. I would hate to cure my UC with surgery only to be left with the debilitating joint pain from the one infusion of Remicade. F 38 17 days
? 1X day
10/18/2010
 1  Crohns None at first. Then, severe neuropathies in toes and fingers. Blisters on toes. At five weeks, started vomiting and retching uncontrollably. Dystonias after the vomiting. M 12 7 months
1X O
9/15/2010
 1  Psoriasis severe Stopped breathing completely, almost died, they had to put all kinds of drugs in the iv to revive me Be careful if you start coughing at the beginning of an infusion this may be the start of anaphylaxis F 40 3 months
? 1X M
5/12/2010
 1  Ulcerative Colitis Extreme, horrible back and chest pain. I have also had joint pain in my knees and fingers. It has been about a month since my third treatment, and the pain is getting worse. Cannot take deep breaths, sneeze or cough without horrible pain in my back, and it feels like someone is standing on my chest. My doctor took me off the drug immediately, and told me the side effects will eventually go away. We will see. The medicine has not even made any improvement in my UC whatsoever. The risks are not worth the possible benefits, of which there were none for me, anyway. F 28 3 months
1X O
4/25/2010
 1  crohns It was a God send at first. But I was so sick I was at the point of kill me or cure me. I should of been stronger and really researched what a Black Box Labeled Drug means. Because it did almost kill me. Because of me the warning label has been changed yet again. This is a very scary drug. I contracted MUCORMYCOSIS a rare and 96% fatal infection. My face is disfigured now and I can take nothing for my crohns. I am furious with centacor the manufacture of remicade. And our goverment. It is made from mouse and humane protein. If you ask where they get the humane protein you will not get and answere and if you do some home work you will find out that the lab mice and least some of them have been proven to be sick due to lab mutations to make them "better" and that little bag of poison cost around $6000.00 Since when did mice and dead babys cost so much? Biomed is the same as Biowarfar. Be afraid. the 6mp was giving you cancer the steroids made you crazy and the other stuff did F 40 0 days
0 1X M
3/2/2010
Patient History

Previous Page       Next Page

BACK TO TOP