REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Pediatric Crohns Disease | Remicade at first seemed like a wonder drug. After the first three doses my son was running outside playing,something he never did before.Before the Remicade he had a poor quality of life, with bouts of depression and anxiety.All the medications had failed ;6mp,pentasa,steroid,flagyl. So his Ped.GI recomended Remicade.He was improving but around month 8 he started having signs of a flare, his Dr. had the dose raised to a higher theraputic level.A week after the infusion my son was covers from head to toe,even his hair with a strange bright red rash.I brought him to the Dr. They said they have never seen a rash like that ever.No one knows for sure what it is even top knotch universities and teams of Dr.s have no idea really.The most they do know is they believe it's a mutated form of Remicade induced psoriasis.Remicade can trigger psoriasis in people. Now my son has not only Crohns but a strange mutated form of psoriasis.There is no cure for psoriasis.His is so severe the only treatments are methotrexate or light therapy.And if you know you can't mix delivered with chemo drugs because you can get an incurable fatal form of cancer.So we said no thank you.My advice to parents of kids with Crohns,don't listen to these Drs. They're drug company puppets if your child dies they're just a statistic.If your state allows medical marijuana try it for your child.It does wonders for Crohns It puts ppl in remission and no weird side effects.Don't make the same mistake I did,save your selve | Dont use it for your kids Crohns stay far away!!!!!!!!!!! | M | 9 | 1 years | 2/26/2016 | 1 | Chrons disease | I've had 3 infusions of Remicade and it has ruined my winter. I used to be very active, skiing, enjoying stays at the remote cabin but now I do not want to leave the house. My GI recommended Remicade to heal up my rectal fistulas, and control my symptoms. Upon the first loading dose I got severe headaches, felt cold, nauseous, tired and weak. Within a week I had less bleeding and it appeared to be working. But after the second infusion I started to bleed more again. I developed abdominal pain, and joint pains as well. A few weeks after the 3 rd infusion I developed a rash on my face as the skin is dry, itchy and flaky. My hair is falling out, I already noticed much more hair on my hair brush after the second infusion. From the start I found myself urinating more, and the constant urge to go, along with swelling on my ankles signaling fluid build up. Cutting back on salt has helped, but there are times that I spend the whole night having to get up to urinate every 45 minutes. | This is a serious drug, and I would recommend to carefully think about it before taking it. I have decide to go off of Remicade and go the all natural route. I went successfully without treatment for close to ten years and I regret having taken Remicade. I can only hope that I can get my body back on balance. Tinkering with the immune system is a very dangerous approach. | M | 56 | 3 months 3X AN | 2/24/2016 | 1 | Crohn's Disease | Terrible joint and leg muscle pain. Hair loss, tooth loss, skin rashes, debilitating fatigue, zero quality of life. I would not recommend taking this drug. It is a silent killer and doctors act like it's some sort of miracle drug. I was not warned about any of the side effects (joined the dots from my own research). Every time I would mention the side effects to doctors they would dismiss it and refuse to even consider it could be the Remicade. Please, please do not let anyone you love or care about take this medication. | Should be banned. Ruined my life and my children's lives. | F | 36 | 4 years | 2/14/2016 | 1 | RA | My husband took remicade in the beginning it worked. The past two years has Been a nightmare. He got a bacterial infection in the joints that he had RA in. This spread into all his bones. He never should have been put on this because of all his years on prednisone. I do not think the doctors are connecting illnesses to the fact a patient is on remicade he spent a week in the hospital with all the symtoms of this bacterial infection that is a cousin to TB. Not one Dr said oh you're on remicade. He also had to have his foot amputated last year because of the damage. He has had over 20 surgeries. Make sure if you're sick with a high temperature and chills you tell your dr or hospital you're on this drug. I think this Bacteria was I his body a long time. My advice DO NOT GO ON THIS HORRIBLE DRUG!!!! | M | 68 | 7 years | 2/5/2016 | 1 | remicade will hair grow back? | After 2nd infusion my body broke out so servely my feet doubled in size hands the same whole body covered with large plaque my nails on feet and hands gone will my hair grow back my Dr says it's the reaction my body went threw with the remicade can anyone lete know if this is forever I'm so depressed thank everyone | I was desperate I thought remicade would just help or not I would tell anyone considering remicade really investigate | F | 60 | 1 days | 4/29/2015 | 1 | rheumatoid arthritis | Remicade killed my mother. The drug helped with pain at first, then she experienced extreme fatigue, loss of appetite, unexplained body rashes and confusion. She was admitted to the hospital after she had gotten down to 87lbs and could not eat at all. Various tests were done for cancer or other diseases and all were negative. She developed idiopathic pulmonary edema and died of heart failure within one month of being admitted to the hospital. Prior to taking Remicade, she was spunky, vivacious 81 yr old. THIS MEDICATION SLOWLY KILLED HER!! | F | 81 | 1 days 1X M | 3/19/2015 | 1 | Crohn's | During my 4th and last infusion I started having the first side effects, suddenly swelling throat, itching,sweating, panicing, etc... the Dr. was curt, rude and heartless and I left and never whent back! 5 Days later I had The MOST SEVERE Hip Pain Ever, that progressed from a dull ache to an unbearable state of being within about 5-8 hours & it sent me to the ER at 12am! Almost lost my leg because the Dr. Thought it was a bacterial infection and wanted to do explorative surgery asap! Scarry shite! While being preped for surgery, tests came back revealing it was EXTREME Bursitis AND Survitis in my Right hip socket! My hip has been weak and easily agrivated since. When I wake up in the mornings I have a heavy limp for the first hour or two, and I've never walked quite the same since! (I've even been told I walk "like a man"! LOL) | I'm glad for those of you whom have benifited but I myself would NEVER accept Remicade treatments again! | F | 34 | 4 months ? Infusion | 3/15/2015 | 1 | arthritis | Pneumonitis, bleeding lungs which lead to ventilator for 2 months. Hair fell out and medically induced hyperglycemia. My Mother was given injection after the 2nd she became extremely ill nearly passed away. After months of hospitalization and learning to walk again etc. She was NEVER THE SAME AND PASSED AWAY March 18, 2014. I would Never recommend this med to ANYONE!! | F | 76 | 2 times | 7/28/2014 | 1 | arthritis | Pneumonitis, bleeding lungs which lead to ventilator for 2 months. Hair fell out and medically induced hyperglycemia. My Mother was given injection after the 2nd she became extremely ill nearly passed away. After months of hospitalization and learning to walk again etc. She was NEVER THE SAME AND PASSED AWAY March 18, 2014. I would Never recommend this med to ANYONE!! | F | 76 | 2 times | 7/28/2014 | 1 | JIA juvenile arthritis / uveitis | Extremely tired a week after the infusion. Mood swings. No patience at all, poor concentration. Extreme rash around her eyes. Tingling in her arms and then she loses strength and sometimes drops things. Headache , she looks grey with no life in her. I want my vibrant girl back! | F | 9 | 3 months 1X M | 4/15/2014 | 1 | zieke van chron | prikkelhoest, kortademheid, neerslachtig,duiseligheid ademnood hartklopingen. | hoe vlugger ze de remicade gaven hoe slechter en zelfs prikkelend en verward ik was. Liep rond lijk een dronkaard. Laatst gaven ze het in driekwart uur en was fataal voor mij.Binnen de 3 weken verslechterde ik op mijn kortademheid en hartkloppingen heb mij in het ziekenhuis aangemeld en kwamen daar tot vaststelling dat ik longfibrose had. Nu sta ik dik van de medrol dat ze vlug als medictie gaven en nu heb ik nog het cushingsyndroom erbij. | F | 64 | 8 weeks 86 kg 1X O | 2/25/2014 | 1 | Crohns | I went into a hypersensitivity mode and became very confused with a head act hat lasted for 45 days and lost 70 pounds of weight. On top of this whole thing I was going to my GI dr and primary dr complaining about my problems and neither of them figured out I was having a reaction until I suffered severally and don't no if ill ever be the same again. | M | 48 | 5 months 70 | 12/11/2013 | 1 | chrons disease | After taking remicade from nov 2004 thru nov 2006. I was taken off after being diagnosed with chf. I am dying due to remicde causing my chf. No one will help me due to time lapse. Makers of remicade are criminal. Stephen Hoffpauir, crowley, la. 70526. | M | 51 | 2 years max dosage | 10/9/2013 | 1 | Psoriatic Arthritis | The day of infusion I'm wired. That is followed by severe mood swings ranging from anger to depression, my head feels like its going to explode, my eyes hurt, and I've lost all my energy in the days following the infusion. I'd rather live with pain than live like this. It makes me so miserable that it is affecting my family life. I just spoke with my doctor and I'm officially off this junk. If you read the various forums on side effects and what patients are reporting you can see there are issues but the medical professionals make you feel like you're a psycho because they do not have documented scientific evidence that these side effects exist. | M | 64 | 400 MG 1X O | 5/6/2013 | 1 | RA | Hives at first, possibly taste and hair loss | I had been taking Enbrel 4 years and it stopped working. Remicade just had little effect, and that didn't last but four weeks. - I was on 6 week infusion intervals. INCREDIBLY EXPENSIVE. I was fortunate to have medicare. | M | 82 | 4 months infusion 1X O | 5/6/2013 | 1 | Arthritis | My mum died 6days after having this horrible drug!!! she was too unwell to have it in the beginning! So if u suffer from regular infection or a low immune system do not go ahead with remicade! | F | 52 | 1 days | 4/9/2013 | 1 | Hidradenitis Suppurativa | During 2nd infusion: short of breath, pulse was 145, my blood pressure was 192/110, legs tingly and numb, eyes burning, neck and jaw were tight, my jaw was chattering, feeling of nonstop adrenaline rush in chest, felt very faint/dizzy/heavy, whites of my eyes turned bright red, received benadryl and cortizone in IV, moved to ER from infusion center | not sure if the benefits are worth the risks | F | 35 | 1X day | 3/14/2013 | 1 | Ulcerative colitis | Extremely dry skin, lost sense of smell for abt 2 months, every single hair follicle on my head burned and hurt and then I started balding. Arthritis in my hands and knees, tendonitis in my achilles tendons, dry inflamed eyes. | Remicade did nothing for my UC, but it ruined the rest of my body. I haven't taken it in 3 months and never will again, but the side effects still remain. I hope to God they will go away. I had only 3 loading doses, and on the 3rd one I had a horrible reaction where I couldn't breath and started sweating profusely-- instead of stopping the infusion, they just shot me up with a bunch of stuff to stop my reaction and continued till the bag was empty. I used to have oily hair and skin, now I'm dry and brittle... I could go a year without washing my hair that's how dry it is. I have so much pain from the arthritis it gave me, and I can barely open my eyes at night because they are glued to my eyeballs from being so dry at night. It hurts to walk because of the pain in my achilles tendons. All of my hair is falling out. I used to have thick thick long hair, now I only have 1/3 of it left and it's still falling out I won't be surprised if I go bald. So much has fallen out that I have a strange receding hairline. This is the worst drug you could ever take for UC. I never knew that there were mice antibodies or proteins in there, which is what causes these horrible reactions. If you are desperate, try Humira instead as it is made with HUMAN antibodies, not mice, and the bad reactions are much less in comparison. | F | 31 | 5 months 1X O | 2/22/2013 | 1 | pars planitis ETC.... | Numbness tingling in arms, legs,hands,feet slurred speech, disorrented, joint pain, headaches, neck pain, worse eye pain, dry mouth, anxiety. I've lost my job, sanity and all of my doctors are jackasses so I have decided to go all natural and if it means I go blind, so be it! Maybe that's the way God intent ex me to be but I'd rather be blind and healthy then sick and miserable!! I hope Thu helps someone out here!!!! Don't take this drug!!!! Its nasty!!!!! | F | 29 | 10 months not sure | 2/21/2013 | 1 | Crohn's | The 3rd infusion I broke out in hives, throat closed, etc. I was prescribed benadryl b4 infusion & had infusion rate decreased. I had similiar reactions probably 3-4 x's at least thru out yrs. I was nvr very consistent w/ infusion & had them every 10-12 wks instead of every 8. I quit taking Remi when I got pregnant & breast fed for almost 1.5 yrs. Remi didnt work as well when I resumed so my dose was doubled. That was 2 yrs ago. 4 wks after last infusion I noticed the following: hard, swollen lymph nodes all over body (neck the size of golf balls); dry scaly skin including soars in scalp; rash on face, neck, back, arms, & legs; itchy skin; night sweats; chest & back pain; joint & muscle pain; sinus soars; dry cough; neuropathy all over body; headaches; chills w/out fever; hair loss; pee all the time; extreme tiredness; the list goes on. I had these symptoms b4 but not at same time & minor versions so nvr put 2 & 2 together. My GI told me that I prob. h | Not sure how I feel about Remicade? I guess it will depend on whether I have something life threatening from it after further testing. I was always afraid of Remicade given its strength and the side effects that are possible hence me getting it every 10-12 wks instead of every 8. Given the extent of my disease, my GI really encouraged me to use it. I do think it played a role in me being in remission (or close to it anyway) for a decade or longer. CAUTION: Listen to your body...closely. YOU know it better than your doctor. If you think something is "off", communicate it immediately. If you don't think you should take it any longer, than don't, and come up with a better game plan. Immunologically, this medication is pretty scary stuff... I can personally attest to that. | F | 36 | 12 years 1X O | 11/2/2012 |