REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date from oldest to newest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Ulcerative Colitis | I would recommend to NEVER take this medicine as a home infusion. After taking this medicine for 6 months with no negative reactions my son had an infusion Dec/08 and had a immediate severe reaction. Thankfully we were at a clinic located on hospital grounds with his doctor available. His reactions were lost vision, blood pressure drop to 50/30 and loss of bowel function and ready to pass out. It was incredibly scary. They immediately stopped the medicine and pumped saline into him. He started to come out of it as fast as it happened. We will NEVER use remicade again. | It did seem to help somewhat for a short time but he was not able to make it to the eight weeks on this last infusion (only make it to 7). Everyone's body reacts differently to different drugs. I know remicade works for some, but not my son, due to the severe reaction at infusion. Just be aware of the possibilities that could happen during infusion. | M | 16 | 6 months | 12/27/2008 | 5 | crohns | no side effects | My doctor is a researcher and a gi doctor. Really in favor of just using remicade. Do not have to change choices for eating. Went into comploete remission after the first infusion. Doctor says there is many new drugs coming out that will change completely how crohns is treated. Best thing to take is folic acid and omega 3 in coated capsules. Do not take remicade with methatrixate. This may cause cancer when the two are combined. Doctor says continue to take pentasea pills because they will decrease risk of cancer. | F | 12 | 1 days | 1/1/2009 | 5 | RA | After my first infusion, I slept for an entire day. Every infusion since, no side effects. | This drug as been my miracle! I am very lucky that it works very well for me. Prior to remicade I was walking with a cane, my hands were frozen, the fatigue was debilitating and I was getting very depressed. It started working after the second infusion and has worked ever since. I take it every 8 wks. I am extremely grateful for this drug. No one even knows that I have RA. I have my life back. Thank you!! | F | 49 | 4 years | 1/15/2009 | 4 | Ulcerative Colitis | During my 4th infusion, within 5-10 minutes I started getting really naseaus and felt like I was sweating all over and I thought I was going to faint. They immediately stopped the IV and gave me Phenagren for the nausea. We started it backup about 10 minutes later and I seemed to be fine except really knocked out from the Phenagren, and a weird feeling in my legs that made me feel like I needed to keep moving them. | F | 29 | 10 months | 1/20/2009 | 4 | Crohns | My 19 yr old son has had Crohns for the past 4 years and has been on Remicade for 2 years. He use to take Benadryl before his infusion but it made him very groggy for hours and now takes a Zyrtec and a TYlenol. With Zyrtec he is awake and uses his lap top to kill time. Remicade is the only drug that helped him and he contunues to do well as long as he gets an infusion every 8 weeks. I am concerned about the long term effects and no doctors have answers. | If anyone has any info on long term side effects of Remicade use, please email me. I am running a half marathon in Miami next weekend for CCFA and the n'tal team has raised a lot of money for resarch.(I am the mother of the patient). | M | 19 | 2 times | 1/21/2009 | 3 | Behcet's Syndrome | chest tighness during infusion, they had to stop the infusion and restart after about 20 min. Chills while getting the infusion. Fatigue lasting for 2 days where I couldn't get off the couch. Increased pigmentation on skin, looks like freckles but could be petechie?? Had a punch biopsy waiting for results. Biopsy in 2005 showed leukocytoclastic vasculitis. | My dosage has been increased and the interval decreased to every 5 weeks. I have been feeling more energy, mouth and vaginal ulcers are improving. I have less joint pain. Concerned about inflamed vessels, dermatologist says that you lose subcutaneous fat from remicade and that could be the reason for the prominent blue vessels that I am seeing on my hands and arms. | F | 45 | 6 months | 2/3/2009 | 4 | Crohn's Disease | Fatigue the day of infusion, slight insomnia for days after, pain around injection site and soreness in veins. | I was recently diagnosed with crohn's and after refusing to take prednisone (read a lot about the negative effects of it) and having a severe allergic reaction to pentasa (chest pain, shortness of breath, fevers, chills, runny nose, cough, sore throat, severe migraines) my other option was the remicade infusion. i have only had one infusion so far, but after it i felt significantly better. it reduced the number of times i had to run to the restroom, and is slowly eliminating my diarrhea. i find that i have my appetite back and have even gained a little bit weight. (5'10" and 125 lbs. due to crohn's). i am a kind of worried about the long term effects of the drug though. but for now i'm fairly satisfied and hoping that i will go into full remission soon. | F | 22 | 5 days | 2/12/2009 | 5 | Ulcerative Colitis | I fall asleep during most infusions. I am always given tylenol and benadryl right before the infusion, so it could be the benadryl, but I take it sometimes for allergies and I get a little sleepy but don't actually fall asleep. So I think there's a combination effect. After my last infusion (my 9th one), I slept during it as normal, but then when I got home I was still exhausted and slept from 6 pm to 8 am the next morning. | Beginning with the first infusion, my severe UC began to improve. Once I was on the 8 week schedule (the 4th infusion), I experienced failure at 5 weeks, so my doctor changed me to a 6 week schedule and I've been kept on that frequency. Each infusion brought me progressive improvement and by the 7th one 3 months ago, I began to feel that my UC symptoms were finally completely gone. Maybe a tiny bit of gas or bloating, but only if I eat certain foods - a huge change from where I was ten months ago. At that time, I had been living with a flare up that had lasted almost a year, had landed me in the hospital for 18 days, caused me to lose 40 pounds and suffer extreme malnourishment, and even though I was mostly feeling better, still was causing me to go to the bathroom 6-12 times per day and in the middle of the night, extensive bleeding, diarrhea, and extremely painful cramps with many bowel movements. I just knock wood that Remicade continues to work for me. | M | 45 | 11 months | 2/22/2009 | 5 | Crohn's | Only had two infusions so far, tired AFTER infusion & for next day or two, I get very anxious w/Restless Leg Syndrome during infusion & have had to take an Ativan. (I think it's being "strapped" into a chair for so long that does it for me, or it's the anti-histimine they give me). I just started noticing my scalp getting dry & itchy and I feel like my hands look a bit "blotchy" Certainly all better than the psychosis I experienced w/prednisone and the pain & trips to the bathroom from the Crohns. | I tried to put off going on this drug because my disease seemed to be getting progressively worse & I'm afraid of it not working forever & I'm only 30. However, one four month bout w/Prednisone after a week long hospitalization and I was ready for anything that would get me off the sone. | F | 30 | 2 weeks | 2/25/2009 | 4 | ulcerative colitis | My 19 year old son has had 2 Remicade treatments and experienced chills and fever the night of. He has also had a constant sore throat, congestion and nasal sores. | Has anyone had similar symptoms? Dr. still has him on asacol as well. Is anyone else taking both remicade and asacol? Would appreciate any information you can give. | M | 19 | | 3/16/2009 | 3 | chrones | besides the physical, like sore sites and nasel congestion, i had to change from 8 weeks to 6 weeks because the strength is getting weaker. also bone density test show brittle bones, so i take calcium chews (of course with sucralose) | i wonder if it has any psychological side effects, such as irritabillity, anxiety, or anything more like aspartame. long term effects are never showen till twenty years later, right? | M | 26 | 6 years | 3/16/2009 | 5 | Crohn's Disease | Fatigue from the Benedryl given before the Remicade treatment, but the only noticeable side effect for me has been SUPER dry skin. I'm on my sixth treatment and haven't noticed anything else! | This drug has been a life-saver for me! I can tell when I'm getting close to my next treatment, as my Crohn's acts up a bit. Then the day after the Remicade infusion, I'm back to normal! The tiredness the day-of treatment and the insurance hassles are worth it! | F | 24 | 1 years | 3/17/2009 | 3 | Chrohn's Disease | I use the bathroom at least 10 to 15 times a day. | I'm not sure if it's helping or hurting. I don't recall using the bathroom so much. I don't have a life outside of my home anymore. | F | 39 | 3 times | 3/17/2009 | 2 | Colitis | I developed Remicade induced Lupus after being on the drug for about 9 months. I had extremely painful swelling in most of my joints. I got put on Prednisone to alleviate the Lupus symptoms. The Lupus should go away once the Remicade leaves my system. | The Remicade worked fairly well on my Colitis symptoms. Now that I can't take Remicade, my doctor is not hopeful that I can take other drugs and is suggesting that surgery is my best option. | F | 43 | 1 years | 3/22/2009 | 4 | Crohn's Disease | Fell asleep in my chair near the end of the treatment. Felt good that afternoon but needed a nap a few hours later. Could be a combo of the benadryl and the emotional drainage that's been going on for the last year or so. Just got out of the hospital 2 days before starting treatment. Insomnia that night (ugh) | So far I'm really excited about the possibilities. Feeling good the day after first treatment, so I'm naturally looking forward to how the second one goes in 2 weeks. Still on prednisone (50mg right now) but weaning off of it as it doesn't seem to help me like it has in the past. Plus, lots of negative side effects! | F | 25 | 2 days | 3/27/2009 | 3 | Psoriatic Arthritis | Angioedemas. It started out with just a couple on my neck, head or back every couple of months. Very painful. Then they increased to one or more a day. Those have gone away after about 15 months but have been replaces with chronic external ear infections. My ear canal will swell and drain. Very painful. | I know the remicade is helping because I tried going off it and could not function. Different and numerous swollen, red and painful joints each day. On the remicade that does not happen often. Just the nasty side effects, extreme exhaustion and what I consider normal and mostly tolerable joint pain. | F | 41 | 24 months | 3/31/2009 | 3 | ankylosing spondylitis | really tired for 3-4 days | coming up now to the end of the 3rd year on remicade now it was great at the start crp/esr both around 5-10 considering before i got the first infusion of it both were 111 and 87 started going downhill again about a year ago crp was 144 + esr 91 the rhumy brought me in then every 6 wks for infusions no relief worth only getting a week or 2's benefit bloodwork still very high so they switched from mtx to arava which helped the bloods a bit but did nothing for the pain im so pissed off at the moment with the doc's as they dont seem to be doing alot for me at the mo ive got thorasic fusion and around 5mm chest expansion also it feels like someones twisting a knife in me just below the left shoulder blade also came out in small redish lumps on my fingers/thumbs and elbows they did a biopsy and came up with non-specific inflamation in other words they hadn't got a clue its a real pain in the a** | M | 42 | | 4/7/2009 | 1 | Rheumatoid Arthritis | Tired for days after, tightness in the chest, itchy, and weak | I went to the doctor, after going to work one day and by the end of 12 hour shift not being able to walk upright without pain. My regular doctor thought maybe I had Fibro Myalia, because of the problems I was having. So he sent me to a rheumatoid doctor. After blood test that doctor told me I had RA and put me on steriods and methotrexate. When that combo didnt help, he put me on Embrel shots. One a week as prescribed. . they didnt seem to be helping but the doctor says it would take time. My insurance only covers 6 grand a year with the shots and insurance i was footing the full bill in 5 months and still not feeling better. So doctor got me on Remicade infusions as an out patient. So was covered by medical insurance. Frst infusion was groggy and tightness in chest. Blood pressure dropped so severely that the nurses were concerned that something was wrong. Started out one infusion every 8 weeks. . not helpign so then was every 6 weeks. . still no help. Blood work doctor said looked promising. I was then going once every month. Still groggy and sleeping through it. Sleepy for days after. Still in pain and getting depressed. Doctor had my infusion dose raised as high as he dare go with it. I was not feeling better, but he was telling me to give it time. Was almost 2 and half years of infusions. He then informed me he was moving and sent me to a new rheumatoid doctor. Who did not recieve all my records from first doctor so he sent me to do new tests. The new doctor informed me | F | 34 | 2.5 years | 4/10/2009 | 3 | UC | This is my first infusion and I am really tired and I feel like I can have the flu but with no symptoms. I was really sick last night vomiting and going to the bathroom all night/day (what else is new). | I am pregnant and it worries me to take another medicine (on Asacol and Predazone) even though they are all considered "safe". I am waiting for the benefits of the drug to kick in. | F | 34 | 3 days | 4/17/2009 | 5 | Psoriasis | NONE!! | Having this medication has been a life changing experience. I have had many infusions (over 20)and was clear of all psoriasis until recently and even now I only have one or two small patches.Pre Remicade most of my body was covered in psoriasis. | F | 31 | | 4/24/2009 |