REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date from oldest to newest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | psoriasis and psoriatic arthritis | no real noticeable side effects for one or two years except extreme sleepiness and confusion after the infusion, but the last time slept for a day off and on, had a horrible headache, dizziness, and nausea (but since benadryl is given with remicade, don't know which drug caused it) Also, have noticed more acne and skin tags than before and seem to go through periods of hair loss, but i have thick hair, so it's not noticeable at all. | I guess it is a "miracle drug". Most of my psoriasis is gone. It definitely improved my life - for the first time in years, men noticed me and I could date without fear or embarrassment. My boyfriend loves my skin, and loves to touch me. But psoriasis will return if I stop to take it, and that's the ultimate problem. | F | 26 | 2 years | 12/18/2007 | 4 | ulcerative colitis | At first hair began to thin, had dry scalp and feelings of fatigue. More recently have had joint pain and stiffness in hands and feet. | It has kept my colitis under control since June 07 with no flare ups. | F | 37 | 8 days | 1/13/2008 | 3 | Crohn's | Extreme knee Joint Pain. | I had the infusion on a Tue. and by Wens. night early Thurs. I had extreme knee joint pain to the point where I could not walk. Popping a couple Vicodin seemed to dull the pain. My GI doctor prescribed 800MG of IBProven along with a regular dose of benadryl to help with the inflammation and it really did. The Joint pain did not go away until about Sunday. This was only my first infusion. Hopefully the next one will not have such side effects. | M | 25 | 5 days | 1/21/2008 | 4 | Rheumatoid Arthritis Ankylosing Spo | 3-4 days of severe fatigue, muscle pain, hard to even hold a cup of coffee the next morning. Nausea to the point of vomiting once or twice per infusion. Headache,slowed breathing and blood pressure drops during infusion. Started having Myoclonus spasms (involuntary twitching of a muscle or a group of muscles) after 1 yr of use. Very Heavy Periods. | This drug has been a miracle for me. It got me off weekly methotrexate injections and gave me a life. Everything in my life based around my 6 week infusion, wk 1, do nothing, wks 2,3,4 I feel GREAT, by end of wk 5, I start to flare up. It does not last 6 weeks. My rheumy says benefits of going to a 5 wk cycle dont out weigh the side effects. The muscle twitching is so bad now (was even tested for MS!) hope I dont have to quit.I'm sure it the Remicade Anyone want to talk about this? Please email me | F | 40 | 21 months | 1/28/2008 | 5 | I am having soreness in neck and back muscles but it may not be related to the medication also insomnia | F | 32 | 3 days | 2/6/2008 | 1 | Ulcerative Colitis | I only had one injection, but several days before I was due for my second I experienced a horrible reaction. I had a high fever, was unable to get out of bed due to debilitating abdominal cramping, was running to the bathroom every 10 minutes (when I could muster up enough strength to actually get up), and had a rash covering my entire body. I had to go on 40 mg of Prednisone to counteract the reactions. | I've heard it works wonders for other people, so I suppose it's worth a try. Check out my blog on UC at: www.UCgirl.blogspot.com | F | 20 | 2 weeks | 2/19/2008 | 4 | Ulcerative colitis | Swelling of the bottom of the feet, ankle joint pain, Swollen lip, Sore knees, sore elbows, sore shoulders. Allergic reaction of sweeling of the throat, lips, and tongue. It almost killed me. | I kept telling the doctor that one week i would get sore feet. Next week i would get sore elbows. Then the time i got the swollen lip for no reason i told him that too. They put me on steroids before my last infusion which didn't help because that's when i got the allergic reaction that shut off my throat and voice. | M | 44 | 5 days | 2/21/2008 | 3 | Crohn's | slightly lowered blood pressure. possible one-time allergic reaction which was more than likely caused by an anxiety attack which was concurrent with actual dosing. | I have a fistula that actually clots and closes immediately after an infusion, however it reopens a few days after and i have to wait 8 weeks before i can get the next infusion. has anyone heard of continuous remicade infusion (not continuous-continous but like 2 hours a day for a few days to actually allow a somewhat more complete healing process to occur. i see that they warn against overdose, but there are no actual documented cases or injury. i receive this at an infusion center and of course would never alter or ask to alter my dose if there are actual dangers, but has anyone ever heard of a more aggressive use of remicade when circumstances might call for it. i can't seem to find any studies addressing this approach. i have tried the shots (Humira), but i have severe (fetal position-crying to violent behavior) fear of needles and suffered the skin side effects of the more lauded Humira to the extreme strangely enough. i'm in a bind and don't want any more surgery than i've | M | 25 | 3 months | 2/26/2008 | 5 | Crohn's | Head-ache, temporary nausea, temporary light appetite, itching, rashes from Remicade and mild swelling from the Steroids they put in your IV before Infusion. Cronic Mild Sinus and Bronchitis. | These side effects are tolerable compared to how sick I was without Remicade. I could not eat, even drink water without pain and was in a size 0. Now after 5 years on Remicade and a size 8 I can live. I am Blessed. | F | 47 | 5 years | 3/11/2008 | 1 | Rheumatoid Arthritis | I was infected with histoplasmosis. Now I cannot take any biologic without also taking Sporanox (forever). Had I been warned about histoplasmosis, I could probably have avoided it by wearing a dust mask when working in dusty conditions (mowing weeds). | There seems to be a closer association between Remicade and histoplasmosis that with Enbrel and histoplasmosis. I am now beginning tratment with Enbrel. Remicade was great for my RA until this problem. | M | 64 | 6 years | 3/15/2008 | 5 | Rheumatoid Arthritis | Stomach aches occasionally | My daughter has been on Remicade since September 2007. Prior to that she had been on Methotrexate (which she still takes weekly). Her arthritis was so bad she could not walk up or down stairs and she was in constant pain. The Remicade started to work within two weeks and has produced an amazing turn around for her. She skied for the first time in two years this winter. We are worried about potential long term affects because she is so young but her life was miserable prior. | F | 14 | 7 months | 3/29/2008 | 3 | RA | Headache started during infusion and worsened after it to being one of the worst headaches of my life, nausea, butterfly rash on face,general itchy rash over arms and torso, cough 3 days after infusion that turned into bronchitis and still hasnt left (even after steroids) | This was my first infusion, not sold on continuing it yet. The headache grew in severity so much so that I was sure a knife was sticking out of my head. Three days later a 'butterfly' rash appeared on my face and I started with a dry hacking cough. The rash led my doc to think the possibility of Drug Induced SLE, still awaiting blood results. The cough has grown to bronchitis, had it for 2+ weeks now. Bad enough that my doc cancelled the 2nd infusion and put me on steroids. The Remicade has done nothing for my RA yet, but I know it is too early in the treatment to expect it. I am just not sure I should continue, the side effects coupled with the joint pain are miserable. I feel like a walking science experiment, just trying to figure out the right combo of drugs and tolerable side effects to get me up and working let alone caring for my toddlers again. | F | 34 | 2 weeks | 3/30/2008 | 5 | crohns | Very tired immediately following infusion. Other than that it is PERFECT | Miracle! ...just concerned about the long term effects : / | M | 18 | 2 years | 4/18/2008 | 2 | crohn's | severe allergic reaction, fast heart rate, high blood pressure, difficulty breathing, teary eyes, red face. All effects are not usually that common. | My first dose had zero effect, then after 20-30 into my second dose I had a severe allergic reaction. Doctor happened to be present and stopped infusion. Then gave benadryl and steroids, then fluids and started infusion again. Allergic reaction happended again!!! Stopped infusion for good. My doctor said this was so rare and he couldn't believe it happened so quickly. | F | 30 | 4 weeks | 5/27/2008 | 5 | crohn's | During infusion i feel very sleepy. And the whole day is basically shot dur to fatigue. The nurse said it is from the benadryl that is given before the infusion. Itching has increased over the years. It drives me crazy. I am so glad to read that many others have had this problem too. Many dermatologists and therapists have said there's no reason for the itching and to basically deal with it. Itching occurs on my arms, face, hair, thighs. I've learned to put anbosol teething gel on the itching spots. that helps some. | This drug has saved my life. I have had this disease for 45 years. In and out of hospitals with intestinal agony for years. In 1994 I finally gave in to having surgery - bowel resection. After that I could finally eat. I was pain free til I got a rectal fistula in '02 that would not heal. I had my first remicade treatment Dec. 02, and the fistula healed within 1 week. I've had infusions every 8 weeks since and i've had no outbreaks. But I think this unusual itching and leg twitching might be side effects. Getting rid of Crohn's symptoms is worth it. | F | 64 | 6 years | 7/3/2008 | 1 | ulcerated colonitis | Severe nausea, loss of appepitite( I lost 17lbs in four weeks following my third remicade infussion.) Also, I had severe anxiety, which progressed after IV infussions one and two; by the third IV my aniexty continued to escalate and I was unable to function, which lead to severe depression!!! I have never felt so horrible in my life. I strongly do not reccommend remicade!!! | Although my UC is severe, I'll take the disease, steriods and all over remicade. I hope all of the cns side effects wear off soon! | M | 23 | 2 months | 7/7/2008 | 5 | UC | Not sure if this is due to the Remicade, but my elbows hurt if bent too long. | Was diagnosed with Chronic UC in JUN07 and also became pregnant in JUN. After Mesalamine pills and two types of suppositories, I flared and was placed on prednisone until the end of my pregnancy. After delivery I received my first Remicade infusion and have felt like a normal person ever since. I have had 5 infusions so far. | F | 30 | 4.5 months | 7/22/2008 | 4 | Crohns Disease | Remicade worked for a while, I had to take DOUBLE the dose for it to work for me, then that quit qorking so i was put on HUMERIA, both can cause you to get TB(one of the side affects), guess what 1 of then did give me Laten TB. Wish I wouldnt have taken either one. Not worth it. | tokk Remicade for over 12 months also bad for the viens. | F | 42 | 12 months | 7/28/2008 | 5 | R.A. | Throughout the years I have developed reactions to the treatements. Low Blood pressure,low grade fever, head ache and stomache ache.Rarely I get painful joint/muscles. I don't always get all these reactions and sometimes none at all. If I recieve the infusion too fast I get them all and they continue for a few days. I don't let that happen anymore. I am pretreated with Claritin and Tylenol. Sometimes I have to continue allergic reaction treatment that night and rarely for a day or two. Tylenol and 300 mg Zantec along with my daily Zertec keep away the side effects. I take the Zantec weather or not I have a stomache ache becuase it's an H2 blocker that works differently than the other allergy medication. | I was worried when I first developed reactions to treatement that they would continue to get worse and I might have to get off Rhemicade.The side effects are manageable for me.Thankfully I have been in remision sense shortly after starting treatement.Twice I have had to delay Remicade do to surgery and had major flair ups until I could recieve my treatement. 3mg/kg every 6 weeks. I tried to go eight weeks but my body needs it evey six. I am again worried because so many others have had to switch to another biologic agent. It seems it can just stop working. I am at the point I no longer know anyone with R.A. that has been on this treatement as long as I have. | F | 47 | 8 years | 8/11/2008 | 4 | ulcerative colitis | I get pretty dizzy especially during the last hour of treatment when the Remicade is going in faster. After the infusion, I get really tired and my arm hurts around the infusion site. I am fine the next day. | I didn't notice anything after the 1st treatment, but after the 2nd one two weeks later, I was much better. I had the best weeks I've had in over 2 years. The 3rd treatment also seemed to help, but symptoms came back before 8 weeks for the next treatment | F | 32 | 4 months | 8/27/2008 |