REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Age from youngest to oldest (reviews with no age reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26


More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Crohn's Mild tiredness, weaknes. M 24 1 days
5/22/2012
Email
 5  crohn's disease Very few side effects, sometimes a slight rash. I have used remicade for the past eight years until i lost my insurance and could not get it anymore. During those eight years my crohn's symptoms were almost non existant. the drug was really a miracle for me giving me the oppurtunity to live a normal life. now that i am off the remicade my sypmtoms are out of control and nothing will work prednisone and 6mp have yet to been able to control my syptoms. i am getting remicade donated through johnson n johnson and hopefully i will have my life back again soon M 24 8 years
1X day
2/8/2011
 2  Ulcerative colitis rectal bleeding Had infusion once so far and going to doctor tomorrow to see what I can do to help tolerate the side effects before I would have my second infusion. Severe body aches, headache, tired, nausea, stomach pain, weakness. Every day seems to be getting better but still feeling sick. F 24 4 days
5 mg
3/9/2017
 5  Ulcerative colitis No side effects so far, except of course drowsy day of infusion. The drowsiness is mostly from Benadryl before infusion. F 25 6 months
12/6/2011
 5  Crohn's Disease None! I was hospitalized, put on steroids, Pentasa and Imuran. None of those helped me. Then I was put on Remicade and it was a miracle drug. The IV is easy and I usually just sleep through it. I feel fine afterwards to go to work or usual day activities. I get an infusion every 6 weeks, but I have noticed it starts to wear off around 5 weeks. I would be so sick without this drug. F 25 1 years
5/26/2006
 5  Crohn's Disease None! I was hospitalized, put on steroids, Pentasa and Imuran. None of those helped me. Then I was put on Remicade and it was a miracle drug. The IV is easy and I usually just sleep through it. I feel fine afterwards to go to work or usual day activities. I get an infusion every 6 weeks, but I have noticed it starts to wear off around 5 weeks. I would be so sick without this drug. F 25 1 years
5/26/2006
 5  Crohns None Highly recommended. Went from being terribly sick for 3 months to feeling great within a few weeks. Have stayed healthy since I've been on it. No side effects. Only bad thing is that it is delivered by IV and you have to go back to doc often for the dosage, and its very expensive if you don't have insurance. F 25 4 years
1X O
8/13/2012
 5  Chron's Migraines which I have had to get a prescription for that I take every night and it helps tremendously but I still get at least one migraine a month usually a couple days after the infusion but is better than 4 a month, dry patchy spots on my face especially eye lids and of course very sleepy day of infusion. The difference is unbelievable, I Love It!! I had a very hard time agreeing to take the Remicade but it was well worth it because I now have my life back!! I was severly sick, 92 lbs., could eat very litte, used the restroom no joke about 20 times a day and had to go on medical leave for 11 months this past flare up....that's when my Doc. put me on Remicade and I am normal again. I usually feel icky a week to a couple days before my infusion which used to take 4 hours but there is a new nurse and she only takes 2 hours which I feel a difference in the effects, unless I'm just thinking that's why this last time I feel terrible 2 weeks before my infusion? Any how it's wonderful and I'd much rather deal with a few icky days than every day. F 25 10 months
11/19/2007
Email
 5  Ulcerative Colitis During my first infusion I mostly slept through it because of the Benadryl. My hand got a little itchy when they increased the rate of flow, no other side effects noted but I am also on Prednisone so that gets blamed for all my side effects right now. I started to feel better within hours of my first infusion. The next day there was a significant improvement in my condition, and I was released from the hospital 3 days later. The only thing that sucks is how expensive it is. It was a fight to get funding for it. =( F 25 24 days
11/21/2007
Email
 4  UC Taking my first dose today I was diagnosed with UC in 2004. I have taken steroids, 6mp 12 asacol a day, enemas, and a slew of other drugs since 04. I am worried about the long term effects of taking remicade. I have little anxiety about this first infusion. F 25 1 days
8/9/2007
Email
 4  Ulcerative Colitis Diagnosed Dec 2001. Taking Remicade for a little over a year. Some reactions have been getting warm/sweating, sharp pain in lower abdomen, nausea, vomiting, throat closing and not being able to breath. These severe reactions were controlled by having a steroid injection through the IV 30 minutes before the Remicade infusion. Lower back pain, joint pain in knees, usually disappears by the next day. Recently I have gotten Itchy skin, itchy bumps on face. Sensitivity to sun and tanning beds. I wouldn't get any color but the itching was horrible. Please let me know if you have found anyway to stop the bleeding/bloat entirely. I feel I am so close to remission. Not sure if Remicade is still working 100%. I was not able to reach remission. Every time I went of Prednisone I flared. Asacol didn't seem to work anymore. Was hospitalized a few times and 2nd time I had no choice but to take Remicade or lose my colon. When I first started infusions I had horrible reactions. The first 3 or 4 went fine but then out of no where I started having severe reactions that almost forced me to stop treatments, but we figured out what caused it. Examples include....getting warm/sweating, sharp pain in lower abdomen, nausea, vomiting, throat closing and not being able to breath. They would stop the infusion and the side effects would be gone within 30 minutes. They gave it to me slower and I was able to make it through. Later we realized that I had been on steroids before and that is why I had not bad reactions. These severe reactions were controlled by having a steroid injection through the IV 30 minutes before the Remicade infusion. I have had no other problems with the infusion process since then. After F 25 1.5 years
6/8/2007
 4  JRA After five iv's, I'm still glad I tried Remicade. But I'm a little concerned about some side-effects. During the infusion, I experienced some discomfort. Like someone was sitting on my chest, a feeling of pressure. I already recieved Tavegil, but I still had that same reaction. Next week I'm having another iv, including some more medication. Something like hydrocortisone or Prednison. I'm not sure what, but if it works? Why not??? I must say, I'm realy happy with the results. My joints are alot less inflammed and, finally, I'm enjoying life. A few years ago, no doctor knew what to do with my inflammed joints. There weren't any drugs I didn't try of have tried. My artrithis was so bad, all I could do was wait for a new drug. Because of my situation (two types of artrithis, 25 years of dissease and so much more...) it's hard to find medication that suits. With Remicade, I got my life back, after 8 years of total destruction. All I want to say is, that there's for everyone something good and a drug that helps. Just don't give up! BTW, I'm from Holland, so my english needs some work... ;-) F 25 5 months
240 MG 1X AN
10/28/2010
Email
 4  Crohn's Disease Fell asleep in my chair near the end of the treatment. Felt good that afternoon but needed a nap a few hours later. Could be a combo of the benadryl and the emotional drainage that's been going on for the last year or so. Just got out of the hospital 2 days before starting treatment. Insomnia that night (ugh) So far I'm really excited about the possibilities. Feeling good the day after first treatment, so I'm naturally looking forward to how the second one goes in 2 weeks. Still on prednisone (50mg right now) but weaning off of it as it doesn't seem to help me like it has in the past. Plus, lots of negative side effects! F 25 2 days
3/27/2009
 3  Crohns Had serve allergic reaction on 2nd dose 1 dose worked very well, the next day i felt 90% better. It wore off after 8 weeks. Yesterday i had my second dose after 25min into it i had a very bad negative reaction, I couldn't breath, got very hot, was vomitting nothing, it lasted 5 of the longest min's of my life. I wish it had worked because it was a great drug for me. very scary. F 25 8 weeks
8/11/2007
Email
 3  Crohn's Extreme knee Joint Pain. I had the infusion on a Tue. and by Wens. night early Thurs. I had extreme knee joint pain to the point where I could not walk. Popping a couple Vicodin seemed to dull the pain. My GI doctor prescribed 800MG of IBProven along with a regular dose of benadryl to help with the inflammation and it really did. The Joint pain did not go away until about Sunday. This was only my first infusion. Hopefully the next one will not have such side effects. M 25 5 days
1/21/2008
 3  Crohn's slightly lowered blood pressure. possible one-time allergic reaction which was more than likely caused by an anxiety attack which was concurrent with actual dosing. I have a fistula that actually clots and closes immediately after an infusion, however it reopens a few days after and i have to wait 8 weeks before i can get the next infusion. has anyone heard of continuous remicade infusion (not continuous-continous but like 2 hours a day for a few days to actually allow a somewhat more complete healing process to occur. i see that they warn against overdose, but there are no actual documented cases or injury. i receive this at an infusion center and of course would never alter or ask to alter my dose if there are actual dangers, but has anyone ever heard of a more aggressive use of remicade when circumstances might call for it. i can't seem to find any studies addressing this approach. i have tried the shots (Humira), but i have severe (fetal position-crying to violent behavior) fear of needles and suffered the skin side effects of the more lauded Humira to the extreme strangely enough. i'm in a bind and don't want any more surgery than i've M 25 3 months
2/26/2008
 2  U C / Ankylosing Spondylitis Had UC for 4yrs tried Remicade for it but it didn't work. Recently my Dr started giving it to me for Ankylosing Spondylitis and my throat closed during my infusion! I was really glad I was at my Dr's office. I broke out into hives and started choking. My Dr took me off of it now I am going to try Humaira. My Dr said I built up antibodies to Remicade over the years and now I can never take it again. F 25 2 months
2X M
3/7/2010
Email
 5  Crohns Occasionally, I will experience headaches and fatigue after infusions as well as hot flashes. I did develop a rash in the past that I believe was a direct result of the Remicade. Remicade worked for me when no other drug did. I will stay on remicade for the time being however I am concerned with possible side effects and I do fear future complications being that this is such a new drug. I will definatly stop taking the drug when I decide to get pregnant. F 26 2 years
1X day
2/23/2011
 5  crohns Remicade helped when no other drug would! I am thankful to be on it. Only downfall is 6 weeks into the infusion I get terrible joint pain ALL over my body. Ankles wrists feet hip knees shoulders! But once I receive the infusion I am back to myself. F 26 1 years
2/24/2012
Email
 5  UC I haven't experienced any side effects from taking Remicade. Remicade gave me life back. I get four vials every 8 weeks (not sure of the dosage). I am now able to eat and drink anything I want without worrying where a bathroom is! I feel like a normal human now! No more pain or embarrassing moments:) F 26 6 years
1X O
4/13/2011

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