REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Age from youngest to oldest (reviews with no age reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Crohn's disease | upper respiratory infections, bronchitis, strep throat. Just more susceptible to colds. | I have been recieving this for Crohn's since October and although it took until the 3rd infusion I am feeling great from it. I had to have my tonsils and adenoids out this feb. because of all the throat infections and strep I was constantly battling. Other than that it is glorious! | F | 21 | 6 times | 4/19/2006 | 5 | UC | None, maybe some breathlessness but big deal, after prednisone for 3 years Remicade is like a dream come true | Ummm, yeah, so if you experience severe allergic reaction within the first infusion, YOU ARE ALLERGIC TO IT! This is not the drugs fault, your doctor should not have kept you on it, thats just stupidity, people can be allergic to some medications. When I brok out in hives from infused iron we stopped and I never used it again, doesn't mean it's not a good drug. My UC is so severe that remicade only helps to keep it bearable, but thats amazing for me because I rather have something keep my under control than to go through all the pain and steriods or even surgery. I have been having the treament for 5 years(I was the first in my area to have it in the US for UC) and I am doing fine. Honestly for me and my doctor, the possible side effects(even lymphoma) are outweighed by my need for this drug. Steriods are more destructive anyways. There are possible side effects that should be considered but there is a risk in taking any medication | F | 21 | 5 years | 7/19/2006 | 4 | Crohns | Lots, I suppose the worst was the ulcers, lots of extreme pain, a good bit beyond the regular extreme pain of an extremely raw and inflamed stomach. Arthritis, keeps getting worse, tylenol arthritis barely helps. Constant sore throat, congestion, headache, really weird sleep (insomnia, wake up going crazy (never happened in my life before),night sweats), constant backache, increased frequency for urination. I guess there are a bunch of internal things too, gastritis, esophagitis, ulcers, i forgot the other stuff but it wasn't pretty. The arthritis and body problems only started up maybe in my last couple treatmments but even since it stopped taking it over 2 months ago, its worsening. Can hardly type now, can barely open bottles of juice, when I wake up I literally cannot bend my fingers for 5 minutes. The ulcers healed and I am still drugged up good, on a pretty good crohns definition of quality of life (you know only 6 trips to the bathroom a day, eating nice rich foods like rice | After the first two infusions I started to know big differences, i was able to eat a lot more, put on muscle from lifting. I could excercise a lot more, better sleep, less bathroom scares. Could finally sit in a car for more than 15 minutes without having an emergency. I actually didn't feel that much pain if any for about a year on the infusions, never had any reaction with the IV or anything. So for me, if I quit it maybe 4 months early I might have not suffered for 2 months in severe pain because of side effects. | M | 21 | 1.5 years 1X M | 2/18/2010 | 1 | Crohn's Disease | hives, racing heart, throat closing up, inability to breathe, bright red skin, eyes protrusion, sore joints, vomiting, constipation after infusions...all occuring during or a few hours to days after infusions | Had 6 infusions, become more and more allergic to the drug after each infusion. Almost died from the reaction the last infusion I had. Can't take this drug anymore. | F | 21 | 6 months | 6/7/2006 | 5 | UC | Insomnia, restless legs(initially after infusion), joint pain(after only second infusion) | M | 22 | 6 months | 4/26/2013 | 5 | Chrons | I was always exhausted after the infusion until I stopped recieving the Benadryl before. Other than that I have had itching during one of my infusions. I get it every 8 weeks and experience no side effect after. It really helps me. | F | 22 | 5 years | 11/18/2008 | 5 | Crohns | I feel drowsy during the infusion. I feel hot flashes shortly after the infusion. But feel fine the next day. | Remicade stopped my fistula but returns when the drug wears out. | M | 22 | 2 years | 4/28/2007 | 5 | Ulcerative Colitis | mild rashes all over my body. dry skin. itchy bumps with a clear liquid secreting. night sweats. fatigue/dizziness for 24-48 hours after each treatment. bruising easily. not healing as quickly as I used to. | I was diagnosed with UC at the age of 6. I have been on a plethora of meds/treatments since including prednisone, imuran, azulfadine, colozol, humira, etc. Remicade has definitely been my favorite so far. Not having to take 15 pills every day has been amazing. I hope it keeps working! | F | 22 | 3 months | 12/22/2009 | 4 | Crohn's Disease | Fatigue the day of infusion, slight insomnia for days after, pain around injection site and soreness in veins. | I was recently diagnosed with crohn's and after refusing to take prednisone (read a lot about the negative effects of it) and having a severe allergic reaction to pentasa (chest pain, shortness of breath, fevers, chills, runny nose, cough, sore throat, severe migraines) my other option was the remicade infusion. i have only had one infusion so far, but after it i felt significantly better. it reduced the number of times i had to run to the restroom, and is slowly eliminating my diarrhea. i find that i have my appetite back and have even gained a little bit weight. (5'10" and 125 lbs. due to crohn's). i am a kind of worried about the long term effects of the drug though. but for now i'm fairly satisfied and hoping that i will go into full remission soon. | F | 22 | 5 days | 2/12/2009 | 4 | Crohn's disease | Memory loss, pain at injection site, fatigue, much more prone to sickness and infection. | Remicade is pretty much the only reason my life is being sustained with Crohn's disease. Even though I am weary of the long-term effects of being on such a strong dose of a such a strong drug, I still completely think the benefits and quality of life it has given me are totally worth it. | F | 22 | 2 years 10 mg/kg 1X M | 8/12/2011 | 3 | Crohn's | Started in August, got DVT in right knee in early October. Another infusion in May - had stroke and multiple hepatic vein thromboses in June. Not sure if Remicade is responsible for the abnormal clotting but be careful. Unfortunately, I am stopping the drug although it was the only thing to bring me into remission and give me my life back. | Got rid of my symptoms immediately when nothing else would even come close. Minimal side effects except the ones listed that may or may not be associated. Had infusions every 6 weeks and usually lasted approx. 4 weeks with no Crohn's symptoms. Was great while it lasted! | M | 22 | 1 years | 7/23/2006 | 3 | crohn's | constant cold/sinus infection, hair loss?, can't get enough sleep, headache | two days after my first infusion I was completely in remission, night after my first three infusions i was very ill feeling with flu like symptoms, by the fourth time around didn't happen since. without a daily drug be warey of antibiotics, advil, and alieve... brings symptoms back for awhile. after a few months side effects started, not sure if side effects are worth it | M | 22 | 7 months | 11/16/2006 | 2 | Crohns Disease | Swelling face, consticted airway, rash for 2 weeks after infusion, severe back pain, exhaustion for following days. | M | 22 | 3 months | 10/4/2014 | 1 | I have Crohn's disease | I just had my third treatment about 3 weeks ago and during the treatment i started feeling really hot,swollen, and i couldnt breathe. The doctors finally came to check me and gave me oxygen and benadryl then i felt fine. They gave me the rest of the treatment slowly and sent me home. I woke up that night in tears i couldnt move. My boyfriend had to take me to the hospital all side affects from remicade. My docotor told me i got short term lopus from this medication and arthritus. At first the treatment was working the best then any of the others ive been given and now they took me off cause they reactions. Not something you want to go through all the time. | I wish everyone the best of luck when taking this treatment. Make sure to consult your doctors if you start getting any new problems! | F | 22 | 4 months | 9/9/2009 | 5 | Crohn's | Nothing really. | Has given me my life back, I feel great most days, sometimes a bit less than perfect but not too bad at all, I work out four days a week, am 210lbs, very healthy, and very strong. Do not take the negativity on the Internet to heart too much, this stuff could help you, and I know it helps ALOT of people. I can only hope it continues to work as well as it has been. | M | 23 | 5 months 5 viles 1X O | 6/21/2012 | 5 | UC | Itching (hives), soar joints (might be unrelated) | I was very sick with UC, I was on the Canadian National rowing team and had just finished Racing at U23 World when I became ill. I lost 20lb in two weeks and another 10 in the next two months. I was using the washroom as frequent as 30+ times a day (no joke). Finally I started Remicade and things began to improve. Compared to where I was the immediate improvement was amazing, but I was still going 10+ time a day and waking up a couple times a night without fail. After having my dose doubled and frequency shortened to every 6 weeks I am back to where I was. It took 11 months, and coming close to getting surgery, but I am back to what I was before, using the washroom from 3-5 times a day and sleeping all night. I have gained back my weight and have begun training again. Although I might no longer be able to row on the national team, to be able to have my life back is awesome. | M | 23 | 11 months 90MG 1X O | 9/13/2013 | 4 | Crohn's Disease | Intermittent rashes for the first 3 months or so on the Remicade, frequent colds starting at about 5 months, and intermittent mild nausea which may or may not be related. | I have been on Remicade for about 9 or 10 months now for Crohn's Disease (which was originally Ulcerative Colitis when diagnosed 11 years ago, and has slowly converted since then after 8 IBD-related surgeries). I became hot and nauseous during the first infusion and am now premedicated with tylenol and IV Benadryl before each infusion and I no longer experience infusion-related side effects. I had my Remicade level checked through a blood test a couple months ago and it was found that at 6 weeks since the last infusion, my level was undetectable and therefore not therapeutic. I am now being infused every 6 weeks instead of 8, and am to have the level re-checked prior to my next infusion. We may increase it to 5 weeks or increase the dose (currently getting 300mg - 5mg/kg). It took about 6 months to start working, but I am now beginning to notice some changes in my symptoms, and endoscopically my inflammation appears to be improving. | F | 23 | 10 months | 10/8/2009 | 1 | ulcerated colonitis | Severe nausea, loss of appepitite( I lost 17lbs in four weeks following my third remicade infussion.) Also, I had severe anxiety, which progressed after IV infussions one and two; by the third IV my aniexty continued to escalate and I was unable to function, which lead to severe depression!!! I have never felt so horrible in my life. I strongly do not reccommend remicade!!! | Although my UC is severe, I'll take the disease, steriods and all over remicade. I hope all of the cns side effects wear off soon! | M | 23 | 2 months | 7/7/2008 | 5 | Crohn's Disease | Fatigue from the Benedryl given before the Remicade treatment, but the only noticeable side effect for me has been SUPER dry skin. I'm on my sixth treatment and haven't noticed anything else! | This drug has been a life-saver for me! I can tell when I'm getting close to my next treatment, as my Crohn's acts up a bit. Then the day after the Remicade infusion, I'm back to normal! The tiredness the day-of treatment and the insurance hassles are worth it! | F | 24 | 1 years | 3/17/2009 | 5 | Behcet's Disease | Fatigue for a week after infusion, low blood pressure during infusion, slight itching of my arm | Remicade has been my miracle drug. I lost vision in my left eye and was legally blind in my right eye. I have now recovered most of the vision in my right eye (20/30). Most other symptoms of the disease have been quiet as well. The doctor is going to try and stop all meds so I can get pregnant though! Apart from the fear of side effects, this medcine has given me my life back. | F | 24 | 1 years | 9/4/2008 |