REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Age from youngest to oldest (reviews with no age reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | crohns disease | Have been taking Remicade for over 4 years now. Took swine flu vacine in Late October or early November of 2009. I have broken out with sores all in my hand on the soles of my feet, on my arms legs and now they are appearing in my hair. | F | 15 | 4 years | 1/4/2010 | 3 | Stomach pain first infusion and now day 4 stomach pain after second infusion. | M | 16 | 1 weeks | 5/8/2016 | 2 | Ulcerative colitis | Okay I was diagnosed with UC seven years ago. I started remicade six months ago. I have not gotten any better. At all. And I'm experiencing hard bloody scabs on my scalp. And peeling which is causing awful dandruff. Is this normal for remicade patients? I honestly feel like I'm getting worse, and my energy continues to deplete. | M | 16 | 1 days Differs | 4/29/2016 | 2 | Ulcerative Colitis | I would recommend to NEVER take this medicine as a home infusion. After taking this medicine for 6 months with no negative reactions my son had an infusion Dec/08 and had a immediate severe reaction. Thankfully we were at a clinic located on hospital grounds with his doctor available. His reactions were lost vision, blood pressure drop to 50/30 and loss of bowel function and ready to pass out. It was incredibly scary. They immediately stopped the medicine and pumped saline into him. He started to come out of it as fast as it happened. We will NEVER use remicade again. | It did seem to help somewhat for a short time but he was not able to make it to the eight weeks on this last infusion (only make it to 7). Everyone's body reacts differently to different drugs. I know remicade works for some, but not my son, due to the severe reaction at infusion. Just be aware of the possibilities that could happen during infusion. | M | 16 | 6 months | 12/27/2008 | 5 | Ulcerative Colitis | Had a headache for a couple of days with the first infusion but no problems after the 2nd and 3rd. | After 1 year on prednisone and anti-inflammatory suppositories, I could never get off the prenisone w/o a flare up. I lost control of my bowels, incredible pain/pressure and bloody D. I felt much better within two days of the first infusion. But now two weeks after the 3rd infusion I am having symptoms again. I have a colonoscopy tomorrow-(3rd in a year and 2 sigmos) I hope we can get it back under control. Has anyone else had this reoccurrence during treatment? | F | 17 | 2 months | 10/11/2006 | 5 | Ulcerative colitis | none that i know of | I wrote in Oct-it turned out when they did my colonoscopy that my UC was in total remission-no inflammation or bleeding. I need to be more careful on my diet to add more fiber so I don't get D from fruits and veggies. But it was difficult in the 7th week to make it to 8 weeks between treatments. My Doc tells me that 8 weeks is best and that I can't stop treatment or my body will develop antibodies to the Remicade and I won't be able to use it again. I wonder if I'll have to take it forever. But its only been since August and I can function and go to school without having D accidents. If anyone here has developed antibodies against remicade, please email me. Without this drug I was homebound, afraid to leave the house because I needed to be near a bathroom, just in case. If you know of chat rooms or support for this disease, please email me. I live in California. Thank you. | F | 17 | 4 months | 11/23/2006 | 5 | Crohn's Disease | Mild exhaustion | Remicade saved my life. Without it, I don't know where I would be right now. It has eliminated many of my Crohn's related symptoms and brought me to remission. I've been in remission for almost two years because of it and I couldn't be more grateful to be where I am. I would highly recommend it to anyone with severe Crohn's Disease. | F | 17 | 3 years unknown 1X O | 4/22/2018 | 5 | Crohns | My 17 year old daughter was finally diagnosed after two years of unexplained weight loss (every doctor said she was anorexic)and intense abdominal pain (she was told it was just stress). Weighing just 87 lbs, she was diagnosed with Crohens and didn't respond to any of the medications. Last resort was Remicade. After the first treatment, pain free. After the third treatment, she is in remission, and has gained 32 pounds! She is going in for the 4th round next week. Remicade has given her her life back. She'll be off to college in the fall. | My daughter has some side effects. Weight gain - but that is good for her. Very dry skin. And thinning hair. Also, she has night sweats. The trade off is no pain and the ability to eat and keep weight on. Very much worth the side effects. And yes, I do worry about the chance, small though it is, of cancer. | F | 17 | 3 months | 1/23/2010 | 5 | JRA | None | My son was diagnosed with JRA when he was 5. Since then he has also been diagnosed with psoriatic arthritis as well. We tried everything from just methotrexate > Humira > Enbrell and now Remicade. He hasn't complained about any side effects to date. This is working! | M | 17 | 1 years 1X M | 1/20/2014 | 4 | Ulcerative Colitis | abdominal pain,cramping, goosebumps, bloating, | 400mg every 6 weeks | M | 17 | 10 months 400 1X O | 9/23/2014 | 4 | Crohn's Disease | Itching during infusion. Heightened depression and anxiety. Fatigue. | F | 17 | 3 months 1X M | 8/9/2014 | 4 | Chron's Disease | I've been taking Remicade for almost two years now and I've noticed that it has helped me a lot. I get remicade every six weeks and I don't have any symptoms related to chron's until about a week before I'm supposed to get remicade again but even then, my symptoms aren't bad at all. My best friend once told me that I'm more energetic and happy after I get remicade. I think the only thing that sucks about remicade is 1. Getting it (I hate needles) and 2. Joint pain. My joint pain is usually in my knees and my hips and it gets really bad sometimes and when thay happens, I take xtra strength Tylenol/ ibuprophen to help with the pain. My GI doctor referred me to a rheumatologist but they never sent all my info so I couldn't even make an appointment with rheumatology to see what is going on. | F | 17 | 2 years | 4/1/2015 | 4 | Crohns | Mostly fatigue, none other. Only taking remicade, no other medicine. | Worked well so far but a bit scared on side effects. | M | 17 | 3 years 500mg/kg 1X O | 2/14/2023 | 1 | diagosed with crohns | lost all hairs after my last infusion. Severely disfigured. Diagnosed with alopeccia Totals. Happened so fast .devasted . | F | 17 | 15 months 1X O | 5/12/2016 | 5 | ulcerative colitis | After my first remicade dose I felt like I got my life back. I was severely ill - could not attend school at all, could not walk, stooled 20-30 times a day. Remicade took my pain away, decreased my stool count, and made me feel energetic. No side effects for me. On top of a strict diet, golden. Life saver! | F | 18 | 3 years 5mg/kg | 5/21/2016 | 5 | Ulcerative Colitis | No side effects | I wrote here last in November, I've been on the drug for 7 months. I feel normal again w/infusions every 8 weeks. I wonder if I'll have to do this forever-I hope they come up with something less expensive! I thank the scientists that came up with this drug for giving me my life back. I hope it lasts. | F | 18 | 7 months | 2/22/2007 | 5 | crohns | Very tired immediately following infusion. Other than that it is PERFECT | Miracle! ...just concerned about the long term effects : / | M | 18 | 2 years | 4/18/2008 | 5 | Crohens | Hot flashes, thinning hair, very dry skin | F | 18 | 9 months 1X O | 7/10/2010 | 4 | Crohn's colitis | minor skin infections,headache, dermatitis (doctors not sure which), fatigue, severe scalp psoriasis (went away on its own after a year), full body itching, starting to have joint pain (ankles/knees), hospitalized for shingles after being prescribed pred for minor flare-up | 4oo mg every eight weeks - I've been diagnosed with moderate-severe IBD since 2005 and have had many hospital stays due to bleeding or never ending flares. I quickly went through asacol and 6mp, then they started me on Remicade. It worked really fast and well with no side effects except fatigue at first. I have had two flares on Remicade which resulted in a higher dosage. Over time I started to develope skin issues and am just now starting to feel some joint pain. I believe Remicade can work really well for some people and not at all for others and that our opinions are based on our experiances, which have a wide range of results. I hope everyone finds what works for them and maybe we might see a cure in our lifetime. | F | 18 | 3 years 400 mg 1X O | 3/10/2011 | 3 | Chrons/UC | I felt like someone was standing on my chest. My throat has been irritated and hurting since may and it is now september. I had some serious joint pain, head aches and dealthy low blood pressure. I also felt like I stopped breathing when I would relax, and it had been really hard to breath for about two weeks after my second infusion. I also experienced numbness and tingling in my hands and feet and I was extremely nervous and anxious feeling PLUS my hair was falling out in chunks in the shower. This all lasted for about two weeks after my second infusion. | I am really nervous to get my third infusion, all of those side effects freaked me out but they only lasted two weeks and I haven't seen blood in any of my stools since and I can leave my house now and not worry about having an accident. It has really improved my stomach and bowel movement problems and relieved me of bleeding to death. But I'm still not sure if it is worth taking again due to all of the other crazy side effects. The goodness kind of out weighs the bad, I mean I felt shitty for a couple of weeks but felt fucking fantastic for two months other than an irritated throat. This drug scares the piss out of me, but it seems to be the only thing working for my tummy. =/ | F | 18 | 1X O | 9/20/2010 |