REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Age from youngest to oldest (reviews with no age reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | UC | I am sorry I waited so long to make the decision to start, I must say I was very timid due to me having tried so many different meds to control my UC and the only form that has helped me was prednisone highest oral does 40 mg, before bathroom trips were timed every 45 min to an hr., or a few minutes after eating, abdominal cramping/uncomfortable pain, weight gain & no quality of life. Now I've lost over 50 pds, prednisone is down to 10 mg, bathroom trips are 2-3 times a day, I can go out and not have to track the bathroom down. Only con is that the infusion sucks your veins dry!, however I'd rather enjoy my life and kids opposed to complain about a couple of sticks (I refuse to get a port). I recommend you as the patient do your homework first, don't let anyone me or dr sway you either way, good luck ;0) | F | 4 years 700 mg | 8/29/2013 | 4 | Crohns disease | My symptoms clear up almost immediatley but I have fatigue, clearly lowered immune system (you sneeze near me and my glands swell), and within the first six months of being on the drug I gained 80lbs easily (not a good thing as I was a little pudgy already), but currently I have had severe depression due to a genetic predisposition and according to a doctor the remicade triggered it :| | It gets rid of inflammatory symptoms but messes you up mentally | F | 5 years | 11/8/2015 | 4 | Ulcerative Colitis | Fatigue, tired muscles, weak, bloating. Numb face. | Over the course remicade has become easier for me to tolerate. I recover more quickly now. I've been on it three years. I drink plenty of fluid during the infusion which seems to help so much. Before I was told to do that I was exceptionally fatigued for 4-5 days. Now I just factor in one bad day after. Numbness in my face (left side) is unexplained. Started with my first infusion but has never got worse. Seems to be more noticeable when I'm tired. I've had one bad chest infection while on remicade which developed into pleurisy. I had to delay my infusion to make sure I had completely recovered. | F | 3 years unsure 8X W | 2/23/2016 | 3 | | 2/28/2006 | 1 | Remicade Linked to Stevens Johnson Syndrome | | 6/30/2006 | 1 | rheumatoid arthritis | Achilles tendon rupture can't stand to walk | Quit giving people poison and making them think they can feel better but more problems come | F | 2 days 30mgachill | 6/17/2017 | 5 | Crohn's | None | My 4 year old son has his 3rd dose of Remicade tomorrow. Almost all symptoms disappeared after 1st dose. This was the first and only medication he has been on for Crohn's Disease. I am worried about the long term effects of this medication since he is so young and so little research has been done for his age group. | M | 4 | 6 weeks 1X M | 11/23/2010 | 5 | Ulcerative colitis | None that we have noticed except fatigue the at after | Has worked beautifully for my son except that he has to be on a 5-6 week regimine due to irritability and emotional meltdowns at about 5 weeks post infusion... On a 5 week cycle he does great! | M | 7 | 3 years 270mg | 1/14/2015 | 5 | PEDIATRIC CROHN'S DISEASE | (MOM) SON HOSPITALIZED FOR A MONTH BEFORE REMICADE. IT HAS BEEN AN ABSOLUTE MIRACLE NO SYMPTOMS UNTIL A COUPLE DAYS BEFORE NEXT TREATMENT MILD RECTUM PAIN . WOULD LIKE TO KNOW IF THERE ARE OTHER YOUNG CHILDREN THAT HAVE BEEN ON REMICADE LONGTERM .VERY SCARED BY FDA STRONGER WARNINGS OF INCREASED CANCER RISKS AFTER 30 MOHTHS .MY SON IS ALSO VERY SCARED AFTER HEARING THE DOCTORS TALK ABOUT CANCER.HE GETS VERY SAD AND DEPRESSED IF ANY TOPIC OF HIS DISEASE IS DISCUSSED. | M | 9 | 4 months | 10/23/2009 | 1 | JIA juvenile arthritis / uveitis | Extremely tired a week after the infusion. Mood swings. No patience at all, poor concentration. Extreme rash around her eyes. Tingling in her arms and then she loses strength and sometimes drops things. Headache , she looks grey with no life in her. I want my vibrant girl back! | F | 9 | 3 months 1X M | 4/15/2014 | 1 | Pediatric Crohns Disease | Remicade at first seemed like a wonder drug. After the first three doses my son was running outside playing,something he never did before.Before the Remicade he had a poor quality of life, with bouts of depression and anxiety.All the medications had failed ;6mp,pentasa,steroid,flagyl. So his Ped.GI recomended Remicade.He was improving but around month 8 he started having signs of a flare, his Dr. had the dose raised to a higher theraputic level.A week after the infusion my son was covers from head to toe,even his hair with a strange bright red rash.I brought him to the Dr. They said they have never seen a rash like that ever.No one knows for sure what it is even top knotch universities and teams of Dr.s have no idea really.The most they do know is they believe it's a mutated form of Remicade induced psoriasis.Remicade can trigger psoriasis in people. Now my son has not only Crohns but a strange mutated form of psoriasis.There is no cure for psoriasis.His is so severe the only treatments are methotrexate or light therapy.And if you know you can't mix delivered with chemo drugs because you can get an incurable fatal form of cancer.So we said no thank you.My advice to parents of kids with Crohns,don't listen to these Drs. They're drug company puppets if your child dies they're just a statistic.If your state allows medical marijuana try it for your child.It does wonders for Crohns It puts ppl in remission and no weird side effects.Don't make the same mistake I did,save your selve | Dont use it for your kids Crohns stay far away!!!!!!!!!!! | M | 9 | 1 years | 2/26/2016 | 4 | Juvenile Idiopathic Arthritis. | She has extreme mood-swings from the day of until the week after infusion, she is not hungry at all for the day of the infusion until about 3 days later, experiencing moderate/severe hairloss (very concerning) and she is itchy. However Remicade has been a life changer for her we love her being on it. So we will deal with the side effects. | F | 11 | 4 weeks 300mg | 10/4/2014 | 5 | crohns | no side effects | My doctor is a researcher and a gi doctor. Really in favor of just using remicade. Do not have to change choices for eating. Went into comploete remission after the first infusion. Doctor says there is many new drugs coming out that will change completely how crohns is treated. Best thing to take is folic acid and omega 3 in coated capsules. Do not take remicade with methatrixate. This may cause cancer when the two are combined. Doctor says continue to take pentasea pills because they will decrease risk of cancer. | F | 12 | 1 days | 1/1/2009 | 1 | Crohns | None at first. Then, severe neuropathies in toes and fingers. Blisters on toes. At five weeks, started vomiting and retching uncontrollably. Dystonias after the vomiting. | M | 12 | 7 months 1X O | 9/15/2010 | 4 | Crohn's | My son has had 3 infusions so far. The only side effects were sleepiness during the infusions and soreness for 1 day at the site of the infusion. However, in the last week he is complaining of a burning sensation on his right thigh. Like a sunburn, but there is no redness or rash. It subsides, then comes back. Now the burning is also on his stomach. I can't find anybody else that has had this symptom. | Remicade has almost completely eliminated my son's bleeding. He was diagnosed 2 years ago and this drug is much more effective than any of the others previously tried. I'm worried though because he's so young and there is very little research about the long-term effects on pediatric patients. | M | 13 | 3 months | 11/6/2008 | 3 | Crohn's | It is really the only thing that has meant my son is back at school most of the time and does seem to make a difference to his fistula. However, he has recently had a lot of problems with swollen lymph nodes, sore cracked mouth, dry itchy skin, ear infections and fevers which were put down to a virus. I am concerned they may be side effects of being on the drug for 2 years. Has anyone else had these symptoms? | M | 13 | 2 years | 7/30/2009 | 5 | Crohn's | One episode of shingles. Sleepy after infusions. | My son has had 7 Remicade infusions. He gets one every 8 weeks. His Crohn's symptoms have completely disappeared. He can even eat corn again. This is the only medication that has worked for him. Before starting Remicade, we tried Pentasa, Prednisone, Flagyl, and Imuran. None of them worked consistently. He's been symptom free for almost 6 months now. The only drawback is the cost. It's about $2,000 per infusion - thank God for insurance! | M | 14 | 8 months | 7/1/2009 | 5 | Rheumatoid Arthritis | Stomach aches occasionally | My daughter has been on Remicade since September 2007. Prior to that she had been on Methotrexate (which she still takes weekly). Her arthritis was so bad she could not walk up or down stairs and she was in constant pain. The Remicade started to work within two weeks and has produced an amazing turn around for her. She skied for the first time in two years this winter. We are worried about potential long term affects because she is so young but her life was miserable prior. | F | 14 | 7 months | 3/29/2008 | 4 | Pediatric Crohns Disease | Has worked great for 6 months but recently had joint pain, pleural efusions and vision issues. | This drug has worked great for my son's Crohns. He was diagnosed 3.5 years ago and has never had very severe symptons but the 6 Mp didn't keep him in full remission or give him an appetite. The Remicade put him in remission, he gained 20 pounds and grew 2.5 inches in 6 months. However lately he has started complaining of joint pain but I thought (hoped) it was growing pains. He now has chest pain, fluid in his lungs and some vision changes. We will find out this week, hopefully, if it is Remicade related. Then what? | M | 15 | 7 months 1X O | 12/13/2010 | 4 | Sapho Osteomyelitis and JRA | I tend to sleep alot more then i used to about 12-14 hours a day. I also had some mood changes. | I have been taking remicade for 8 months and so far its working. I tryed enbrel before and got optic neuritis, witch in some cases you could go temp. blind. My doctor is not 100% sure if it was from remicade or enbrel. If you going to take remicade i would look at the side effect before you take it, some of the side effect are fatle. How I look at it is if you already got a rare condition you could get another one. | F | 15 | 8 months 1X M | 3/7/2011 |
REMICADE (INFLIXIMAB): This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease. (Sources: U.S. Centers for Medicare Services, FDA)