REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Date added.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Seronegative arthritis No major side effects after two infusions, a bit of nausea, tiredness. Has transformed my life, almost pain free and fully mobile. F 41 2 months
4/14/2014
 5  Psoriatic arthritis/psoriasis I guess I am one of the lucky ones. Maybe a slight sore throat or slight head ache was the extent of the side effects.i had "P" severe...remicade has given me my life back. After 7 years of infusions I am still 99.9% clear and I am never sick anymore. Before I started remicade I always had some kind of infection , from ear ...chest...sinuses...bronchitis!!! This to me is my miracle drug and would never skip an infusion. F 41 7 days
30 MG
3/13/2014
Email
 3  Ulcerative Colitis Infusion once every 2 months after initial loading dose. Joint pain, itching, accute liver function problems (as worded by my GP) Loading dose's went with no problems. After 2 dose itching and joint pain. With the 3rd dose itching and skin problems (started loosing patches of skin on my scalp) became much worse, nausea so bad I lost 31lb in 2 months and liver function test showed damage (at one point my ast was 394 and alt 531 and climbing, pre remicade it was 16 and 14) GI had ignored my side effect complaints up to the point where I declined to get the next treatment then sent me to a liver specialist. As I withdraw from the medication I am having severe joint pain that moves to a new joint every few days. The medication worked, the colitis symptoms were completely gone, but the side effects were worse in this case. Have liver function tested before starting and regular liver function tests done during treatment. M 52 6 months
500 mg 1X O
2/27/2014
Email
 1  zieke van chron prikkelhoest, kortademheid, neerslachtig,duiseligheid ademnood hartklopingen. hoe vlugger ze de remicade gaven hoe slechter en zelfs prikkelend en verward ik was. Liep rond lijk een dronkaard. Laatst gaven ze het in driekwart uur en was fataal voor mij.Binnen de 3 weken verslechterde ik op mijn kortademheid en hartkloppingen heb mij in het ziekenhuis aangemeld en kwamen daar tot vaststelling dat ik longfibrose had. Nu sta ik dik van de medrol dat ze vlug als medictie gaven en nu heb ik nog het cushingsyndroom erbij. F 64 8 weeks
86 kg 1X O
2/25/2014
Email
 5  Crohn's disease Hair loss F 59 6 weeks
2/23/2014
 3  fistulising crohns Migrating joint pain which is excruciating usually 6 weeks post infusion. . Its happened twice now been on Remi for 1.5 yrs.. I'm on 8 weekly infusions. . Remicade has caused the joint pain as I've never ever had joint pain prior to Remicade. . The pain is really really bad.. soon as I have infusion the pain goes away 100% even before I leave the hospital. .. I'm very worried. . Am I now dependant on Remicade. . Whats going to happen to my joints that were normal before remicade? ????? F 51 2 years
2/15/2014
Email
 5  Crohn's Disease and RA so far, I actually have not experience any side effects of this drug. it has been a miracle drug and has eliminated about 90% of the pain I was going through daily between both of my diagnoses. I am extremely happy with this medicine. M 19 2 months
XX
1/21/2014
Email
 5  JRA None My son was diagnosed with JRA when he was 5. Since then he has also been diagnosed with psoriatic arthritis as well. We tried everything from just methotrexate > Humira > Enbrell and now Remicade. He hasn't complained about any side effects to date. This is working! M 17 1 years
1X M
1/20/2014
Email
 3  Crohns Disease Nausea, joint pain, brain fog, extreme hair loss, extreme dizziness, exhaustion, headaches, hives/rash, random red patches on skin, very dry/painful eyes, bloating, mild depression, constantly feeling like I had to pee, always freezing. I was on Remicade exclusively for 8 months with my infusions occuring every 8 weeks. I had my last & final infusion in Oct 2013. I have mixed feelings about this drug. Not being keen on the idea of getting infusions, I had nixed Remicade whenever my doc suggested it. Fast forward a few years and mid-flare, I was no longer responding to Pentasa and doc said it's either Remicade or surgery. I've stubbornly refused surgery in the 13 years with this disease (which is the best decision I've ever made) and I wasn't about to give in, so I signed up for Remicade. There's no doubt it made me feel better in the first few months but the negative side effects and the tedious process of administering the drug were outweighing the postives for me. That and the cost... even with insurance & Remistart, this drug is expensive!! So with the blessing of my doc, I quit taking it...or any drugs. Ultimately the best thing Remicade did for me was push me to take responsibility for my own health and change my diet to Paleo, which has helped me feel truly healthy for the first time since being diagnosed with CD. After 13 years of one crappy drug after another, I am 100% pharmacutical free & loving it. F 38 8 months
Not sure 1X day
1/17/2014
Email
 2  psoriatic arthritis Instead of black mold lung disease it was an infection of Candida Albicans. That clarified by my GP this morning. The doctor was quite concerned as my "normal" heart ECG showed signs of damage. I feel horrible. M 66 8 weeks
UKN 1X day
1/17/2014
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Patient History
 5  Crohn's No side effects but I got shingles six days after my first infusion I have had Crohn's for 21 years and have been horribly sick for 18 months. I was hospitalized for a month in july and was literally near death. I had my first infusion ten days ago and am shocked at how much better I feel. I can eat!!! Even though I got shingles I would highly recommend Remicade. It is a miracle for me. I feel so much better!!! F 44
30 1X day
1/4/2014
Email
 2  Crohn's my skin got extremely dry and itchy. I have intense itching episodes now whenever I workout or my skin is warmed/hot shower. They are crippling I have had to leave the gym many times. Vision problems, thinned my thick hair out really quickly, devastating. Hair loss. Joint pain, scalp issues, depression, extreme fatigue, sensitivity to the cold. This drug is awful, I would not recommend it unless you were desperate for relief. It does the job to control the Crohn's symptoms but at the expense of the health of your body. I feel like crap. Extremely fatigued all the time. Most GI doctors don't care at all about the other symptoms. I'm skipping my 4th dose of Remicade after the extreme itching episodes started. My hair and visions is ruined. I hope everything returns to normal after I have stopped. I'm going to try my best to treat Cohn's with alternative treatments. F the GI Drs.!!!!! M 26 3 months
2X M
1/2/2014
Email
 3  crohns I only had one yesterday, today i have stomach pains in upper stomach feel really bloated. I am also running a low grade feaver was wondering if this is normal, Thanks F 42 1 days
infusion
12/11/2013
 1  Crohns I went into a hypersensitivity mode and became very confused with a head act hat lasted for 45 days and lost 70 pounds of weight. On top of this whole thing I was going to my GI dr and primary dr complaining about my problems and neither of them figured out I was having a reaction until I suffered severally and don't no if ill ever be the same again. M 48 5 months
70
12/11/2013
Email
 2  Crohn's and reactive arthritis Itchy between infusions, increasing nausea after infusion even though I was taking anti-histamines. Sadness. I took Remicade for a year and came off approximately 2.5 months ago. It worked well for both my crohn's and reactive arthritis. However, the infusions made me increasingly nauseous and itchy - I've never had allergic reactions and now I seem to be allergic to a whole range of things. Remicade? The last infusion made me feel very ill and my feet and face were itching, etc. Eight weeks later when I went in for the next dose I told the nurse how I had felt, she spoke to the doctor and they decided they didn't want to do the infusion until I had spoken to my Rheumatologist. I made an apt with the Rheumatologist and when I told him he said (very casually) "it's lucky you didn't take it, you could have died". Now I don't want to be a panic merchant, however, I wasn't told when I began Remicade that the allergy to the drug can increase over infusions and can potentially be fatal. If you have allergy symptoms (I was even taking anti-histamines), just be careful, especially if they become greater with each infusion. Dr wanted me to swap to Humira, but after the Remicade experience I'm just too chicken. I'm not on anything now except huge quantities of fish oil and magnesium. It's nerve-wracking because I've been on drugs forever, but I actually do feel so much better mentally and physically and this is possibly a result of the Remicade as it can intervene in the course of the disease. The drug is a double-edged sword! F 41 1 years
1X O
11/16/2013
Email
 1  chrons disease After taking remicade from nov 2004 thru nov 2006. I was taken off after being diagnosed with chf. I am dying due to remicde causing my chf. No one will help me due to time lapse. Makers of remicade are criminal. Stephen Hoffpauir, crowley, la. 70526. M 51 2 years
max dosage
10/9/2013
Email
 5  UC Itching (hives), soar joints (might be unrelated) I was very sick with UC, I was on the Canadian National rowing team and had just finished Racing at U23 World when I became ill. I lost 20lb in two weeks and another 10 in the next two months. I was using the washroom as frequent as 30+ times a day (no joke). Finally I started Remicade and things began to improve. Compared to where I was the immediate improvement was amazing, but I was still going 10+ time a day and waking up a couple times a night without fail. After having my dose doubled and frequency shortened to every 6 weeks I am back to where I was. It took 11 months, and coming close to getting surgery, but I am back to what I was before, using the washroom from 3-5 times a day and sleeping all night. I have gained back my weight and have begun training again. Although I might no longer be able to row on the national team, to be able to have my life back is awesome. M 23 11 months
90MG 1X O
9/13/2013
Email
 3  chrones Unpredictable nights with no sleep. Remicade is the only thing that has helped. I am feeling a little better more and more. It has been a slow recovery but ill take it. I have a sleepless night about once a week that could be do to anything. When my chrones was at it's worst my sleep was too. F 29 3 months
4X O
9/5/2013
 5  UC I am sorry I waited so long to make the decision to start, I must say I was very timid due to me having tried so many different meds to control my UC and the only form that has helped me was prednisone highest oral does 40 mg, before bathroom trips were timed every 45 min to an hr., or a few minutes after eating, abdominal cramping/uncomfortable pain, weight gain & no quality of life. Now I've lost over 50 pds, prednisone is down to 10 mg, bathroom trips are 2-3 times a day, I can go out and not have to track the bathroom down. Only con is that the infusion sucks your veins dry!, however I'd rather enjoy my life and kids opposed to complain about a couple of sticks (I refuse to get a port). I recommend you as the patient do your homework first, don't let anyone me or dr sway you either way, good luck ;0) F 4 years
700 mg
8/29/2013
Email
 3  Colitis chills, joint pain, abdominal cramping, tired M 48 5 years
1X M
8/26/2013
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