REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Ankylosing spondylitis | Lumbar fractured, UCTD, acute kidney failure, aggressive osteoporosis, heart disease, vasculitis, Raynaud's disease, TBI, closed skull injuries, muscles atrophy, blurry vision, and more!! | I don't have any autoimmune diseases!! Anyone else destroyed by Remicade??? Incorrect dx. Damages ALL from Infliximab. | F | 53 | 8 months 100 | 7/25/2016 | 4 | Ulcerative colitis | Oh geez. I had remicad even before. I'm now on my second dose and had no problem until my second dose for this time around. My head started feeling like it was going to explode. I felt like I was on fire and my throat was closing. I was going to die!! Sadly the nurse called it a panic attack and didn't do nothing about it. I still am having pains in my chest. | Remicade does work for me. Pretty much cleared up after the 1 st infusion. But the 2nd was truly a horrir for me. | F | 28 | 2 weeks 300mg | 7/7/2016 | 1 | neurosarcoidsis | Eyes jaundice after 4th infusion,went away after couple days.very sensitive to touch most of time. After 5th infusion eyes looked bad. No appetite, upper stomach pain, rarely moves arms,very irritable only wants to be left alone. This is my sister no side effects were mentioned to us from medical staff.would have never allowed treatment if had been aware of extreme effects! So sorry and unfair. | F | 67 | 4 months 6mg | 7/4/2016 | 2 | Crohns | Crohn's symptoms relieved, but now experiencing hair loss and swelling ankles. The hair loss is far, far worse than when on 6mp. This is utterly devasting. Doctor is blaming the hair loss on Crohn's, but it's never been an issue until this high dosage. | F | 49 | 14 years 1200mg 1X O | 6/30/2016 | 3 | Chrons | Severe fatigue. | Just had my first treatment on the eight week cycle. At week five everything was about as good as you could hope then three horrible weeks happened with some of the worst fatigue I have experienced to the point 12 hours days were very challenging. In the past this level of fatigue is extremely rare and only happens when I have a major flare up. Not sure where to go from here. | M | 42 | 4 times | 6/12/2016 | 1 | Chrones colitus distended bowel | Ist infusion my hand swelled 2nd I could not walk 3 headaches & earaches then mussel major problems skin problems soon as I took it I could fell my body pulsating from my toes to my head I could not walk with pain feeling my eyes under pressure it was not the right drug for me I wish I spoke up earlier I'm glad they tried to help me but I had this all my life I feel this drug is not for everyone it's being sold as the majic drug charging major amounts this drug if carried on could of I bealive killed me please read all u can and note down any immidiate reactions if u have none u will be fine most likley if not please speaks up I'm left with optic disk swell ect ect and that's just the start of the long lasting damage some ppl are sensative and when your sick anyway some drugs are just to strong I'm left with MS now and i told them my sister had MS and they carried on with the infusions I cry in pain constant please keep safe in your choices X | It's a difficult desision when faced with illness And when messing with your immunie system to soon when your ill anyway I feel I got my life bk when stopping them and pain management more In control everyone is different plz read more regards it making things worse if you have any other underline problems | F | 38 | 1 months Infusion | 6/11/2016 | 3 | Pyradurma Gangrenosum | After recent increase of dosage having extremely painful periods. | F | 41 | 1 years 10mg | 6/8/2016 | 5 | ulcerative colitis | After my first remicade dose I felt like I got my life back. I was severely ill - could not attend school at all, could not walk, stooled 20-30 times a day. Remicade took my pain away, decreased my stool count, and made me feel energetic. No side effects for me. On top of a strict diet, golden. Life saver! | F | 18 | 3 years 5mg/kg | 5/21/2016 | 1 | diagosed with crohns | lost all hairs after my last infusion. Severely disfigured. Diagnosed with alopeccia Totals. Happened so fast .devasted . | F | 17 | 15 months 1X O | 5/12/2016 | 3 | Stomach pain first infusion and now day 4 stomach pain after second infusion. | M | 16 | 1 weeks | 5/8/2016 | 5 | I have RA and have been in complete remission for 11 years with methotrexate weekly and Remicade every six months. No side effects. | Methotrexate kept me in remission for three years, but then began to get nodules on my fingers. DR. added Remicade. I have been in remission now for over 11 years. This drug works like magic for me. | F | 73 | 8 years 300 1X O | 5/3/2016 | 4 | Chrones | Hard to say. None that I can directly tie to the remicade. I do tend to have more energy after getting the treatment. I have had more (minor) infections, it seems and a little nausea. But I became a teacher so that may have something to do with it. | Remicade has worked for me. I do start going downhill a few days to a week before treatment, so Im always ready to get the injection. (I also get a day off work and a nice nap so that helps. :) | F | 39 | 6 years ?? 1X O | 4/29/2016 | 2 | Ulcerative colitis | Okay I was diagnosed with UC seven years ago. I started remicade six months ago. I have not gotten any better. At all. And I'm experiencing hard bloody scabs on my scalp. And peeling which is causing awful dandruff. Is this normal for remicade patients? I honestly feel like I'm getting worse, and my energy continues to deplete. | M | 16 | 1 days Differs | 4/29/2016 | 1 | Crohn's Disease | I'm seriously in misery due to Remicade.... I have Crohn's along with fibromyalgia, endometriosis, PCOS, the list goes on...... Needless to say I'm no stranger to pain in my life. I've become able to push through most of it all and keep on trucking. In 6 months of using this drug I've lost my job due to recurring illnesses in my lungs, MAJOR JOINT AND MUSCLE PAIN ( narcotics won't touch the pain ) I can barely walk my feet legs hips and muscles ache so terribly. I've been hospitalized for depression 2 times, and even experienced audio hallucinations. I have high blood pressure and gained 68lbs so far. My 10 year relationship that had been something of a fairytale now is hanging by a thread due to my lack of libido and irritability... In short, IM A RAGING BITCH.... but I'm not constantly searching for a restroom. In fact, I find I'm uncomfortably constipated most of the time ( even experiencing fecal impactions ). I'd rather be at risk for a flare and spend 2 weeks in the hospital 1-2 times a year than live in this hell... | F | 36 | 6 months | 4/17/2016 | 4 | The first week after is pretty rough for me. I had my last infusion on 3/28/16. Day 10 and I have considerably less symptoms. Fatigue and stiffness, pain is managed. Over all, Remicade has been good for me. | F | 51 | 6 months | 4/7/2016 | 4 | Behcets | F | 56 | 7 years 400mg 1X O | 4/5/2016 | 5 | Chrons disease | We fought and fought the dr not to take this drug I said this was not worth it the side effects the whole practice kept telling me that my daughter was so sick because of being in and out today the hospital with her flare ups and she was always so depressed with the bathroom visits and then she developed C diff the GI Doctor used this to scare her I said to her this was not it was not a normal situation and it was such a small area of concern in her intestine and the side effects did not out weigh the drug. But she was 18 at the time and decided she wanted to try it he said she had to use 6-mp with it I was like I don't think that is a good Idea he insisted. Few treatments have passed not even a year...So she did this she recently had a follow up visit with him and he Said from her blood test something wrong with her Liver we have to stop the 6-mp and this is where the nightmare has began I had no idea he was such a horrible doctor and did not think clearly what not to do prior to a remicade treatment and what to test for when your liver is like that!!! he said she needed a vaccine pneumonia and flu, so we did (we never should have) then she went for a remicade treatment her very last which we should have never done!!! we are praying to God her body can recover and she does not develop any cancers or any of these diseases- you see the doctor thought the 6-mp was the problem we went to a hematologist almost had a liver biopsy she was getting worse so tired sleepy. | I wish I knew. If I had not taken my daughter to that last treatment. And that doctor should have tested her for mono he would have known she was sick and not had her get vaccines or a treatment she would not be this sick! I really think a lot of this is the doctors fault and he is trying to place blame on me or ignore the situation. We have gotten a referral to a new Dr. The saddest pet is he referred us and then reached out to the new doctor to discuss her new treatment which makes me more upset! Now I don't even know what my recourse is! | F | 19 | 10 months 30 | 3/31/2016 | 5 | Crohn's Disease | Nothing that I can identify as a direct result of the drug. | I've been taking Remicade every 8-10 weeks for 14 years, starting when I was about 16 years old. It was a new drug when I started, and the rapidness with which the administration of the drug has gone from an intensive ICU experience to a very casual environment is apparent. I have been stable since my initial 1-year bout after diagnosis as a result of chronic diarrhea and fistula. Highly recommended, revolutionized the treatment of this disease. | M | 30 | 14 years 1X O | 3/9/2016 | 5 | Crohn's Disease | Volunteered to be guinea pig for my GI Dr after it came out because nothing else was helping my fistulizing Crohn's. To this date, I still consider it my wonder drug. Within a week of my dosage, fistulas disappear and my active life goes on. Slight headache after infusion, and a little tired, but I am on THRIVE by Le-Vel, and have all kinds of energy. I feel like as though I have converted back to my teenage years, before the Crohn's Disease. | Worried about reading all the bad side effects scares me, but so far, so good for me. Live each day to your fullest. This has given me better quality of life, plain and simple. Was told at age of 19, my probability of reaching 30 was slim. I am now 50, having been, and still on Remicade, living a very active life. | F | 50 | 14 years 1X O | 3/2/2016 | 1 | UC & Chrons | total bowel stoppage, Hair loss, skin & hair rough and dried out, extreme fatigue, extreme nausea anxiety attacks more frequent, triggers asthma, heavy insomnia, hypertension & heightened blood pressure, | I have had 3 doses so far while it is controlling the inflammation the side effects a raking havoc, right after each dose my bowels stop up for a few weeks each time, I have mass nausea for weeks, still have the abdominal pain non stop, the hair loss is getting ridiculous lost about 1/3 of the hair I had, I have no will or energy to do anything active since starting this, gone through the prednisone, asacol, azathioprine and all have not worked effectively or my body rejected, this drug tho, really has more cons over pros and I urge it only as a last result | M | 30 | 2 months ? 1X O | 3/1/2016 |