REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
|
Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Crohn's | I'm no longer taking this medication. | Post surgery did not get back on any Crohn's meds. I am 1yr 3 months post op. In the last year eating everything organic and juicing organic: beets, ginger, cucumber, carrots daily. Probiotics daily, bosweillia capsules (4 weeks on 4 weeks off), cordycep with Reishi mushroom (daily) and tumeric capsules daily. Cut out mostly red meat and pork, only eating mostly chicken. Organic juice (Knudsen). Went for initially follow up with GI (and I suspected he was going to try to push more Crohns drugs and had a MRI that suggested Crohn's fistula forming)-kinda funny. The doctor was saying prescribing meds is just a guessing game. Wrong answer, so I requested a CT for a better view and an unrelated location/affilation. GUESS WHAT!!!! No active Crohn's, no inflammation, no fistula. Doctor had nothing more to say. | F | 46 | 0 years 5 mg 1X day | 3/21/2024 Patient History | 1 | Crohns disease | I was diagnosed with Crohns disease 5/24/2021. I was prescribed Remicade in May of 2022. I had my first infusion on 5/12/2022. Second was 5/27/2022. Third was 6/27/2022. Fourth was 8/22/2022. I had reactions ranging from: Chest and throat tightening. This occurred during infusions. I was told this was a minor allergic reaction, and to take Benadryl before infusions. Vomiting, occurred after infusions. Severe joint pain, swelling, and joint immobility. There were multiple ER visits for this: My jaw locked into place and I could not open it; my knees stiffened and swelled to the point I could barely walk; and my shoulder locked into place and I could not move it. When I told my GI doctor I was having these symptoms, this incompetent jackass told me that this was not the Remicade. He said it could be Rheumatoid Arthritis, and to see a rheumatologist. | I started to notice psychiatric symptoms after the 4th infusion. I had an anxiety/manic/depressive episode, and increased aggression. I assumed it was my preexisting condition (generalized depression/anxiety disorder), and asked my PCP to increase my Buspar dosage. On 12/19/22, I had my 5th and final infusion, and experienced a severe adverse psychiatric reaction. Within 3 days of the infusion, I had entered a deep psychosis, believing I was the devil, could control the weather, and the government was after me. I had other auditory and visual delusions, hallucinations, and paranoia. I shaved my freaking head (I am a 28 year old woman), and I quit my job at the onset of the psychosis. This psychosis lasted 6 months, until the latter part of June 2023. I am still recovering. This poison should not be on the market. There clearly have not been enough studies into what this drug does long-term. | F | 28 | 6 months 1X O | 7/7/2023 | 1 | Crohns | Update pathetic poison. After 8 months of recognizing the horrible toxicity of this drug I am still suffering the consequences of it. 5 visits to the ER. Loss of weight 60 pounds in 8 months. The last ER visit I was transported to a larger hospital where a picline was implanted to feed me. I am 5'7". My lowest weight was 100. A skeleton of myself. The remicade caused absolute loss of any appetite. I've caught a couple viruses and now have sibo. A skeleton body with a 9 month pregnant belly. Its been an ongoing costly nightmare. Most of my hair is gone and I look like I've lost 5 years of my relative youth. Readers, look into why you are having your symptoms. There are reasons. These biologics COVER the symptoms and introduce worse problems. I regret ever having that infusion needle in my arm. | Stole part of my life and I'm far from better | F | 68 | 6 months Every 8 we 4X O | 12/16/2022 | 1 | Crohns | I left a review pathetic poison. Its now 90 days since my last infusion. Im still having some stomach cramping and back pain daily. I count the days until its exited! The crohns area is not much worse than when I started remicade. Im an active 68 year old. But losing 50 lbs in 6 months wipes the energy away. Let alone the other horrid symptoms. Im still so angry. After 2 visits to the ER because of remicade one doctor said, when you get a 2 month infusion you are kind of stuck....after 90 days since the last infusion im still in a deficit in all ways. I pray for you all. Please pray for wisdom for yourselves. Then act on that wisdom. Be your own advocate. Do deep research. Look for reviews rating 1-3 to get a clearer picture of this particular drug. | F | 68 | 6 months Every 8 we 1X day | 8/11/2022 | 1 | Crohns | Pathetic poison. Scary stuff. All bad written above is on and off for months.Lost 40 lbs no appetite. Extreme nausea months. Pain back extreme fatigue. Muscle loss. Shell of me. Ruined my spring and summer. I warn everyone. Find other helps. Medicinal ghee. Remicade is unnatural. It goes against our smart bodies. Dr wanted me on it for years. So glad I said NO...until the last 5 months. Is THIS the best this medical system has to offer? Back to nature for me. Anti inflammatory foods. Please read the 1 and 2 level ratings. Not the 5s. Then make your decision. I just hope I don't develope some of the MANY worse side effects sneaking up on me! So thrilled its leaving my body and the symptoms are subsiding. Disgusted by remicade. Poison. | I had a fecal transplant 4 years ago. A beginning back to health! | F | 68 | 5 months 1X M | 7/31/2022 | 1 | RA | I have headache stomach pain back pain yeah it's a pain side pain all over my body pain I think my toes don't hurt. Lupus rash on faceJoint pain so intense. Pain is a 7 to 10 for the last 9 days. My tongue is swollen and my throat is very sore it's very sore I feel like I have a cactus in my mouth my tongue is on pins and needles. I have tried Benadryl however it is barely working is bleed working my neck hurts with a severe that's what they severe pain I will never ever take this medicine again. | I don't even know if this is a 100% normal in the head to even have another dose after after having massive side effects with the 1st dose | F | 54 | 1 weeks 1X day | 10/23/2021 | 1 | Chrohns | This medicine killed my mother. This is not a duplicate post. My mother deteriorated over a period of two weeks from an on-the-go wonderful grandmother (to 20 grandkids!) as well as an avid gardener. A year or so previous my mother ate some meat which disagreed with her. My sister recovered but she developed diarrhea that wouldn't go away. She was running to the bathroom constantly and it limited her life greatly as she couldn't leave the house. Her doctor diagnosed her with Chrohns (with no previous history of any digestive/bowel issues)and put her on Remicade pills. The pills helped. She would wean off them and the diarrhea would return. (Prior she had a trial of antibiotics which really helped but because they were really strong her doctor said she couldn't take them for a long time thus the Remicade). The issue kept coming back whenever she weaned off the pills. In October 2019 she had a bad case of vertigo with no known cause. Many test were run and came back negative. She was in rehab for 1 month and was able to resume normal activities upon arriving home. We all breathed a sigh of relief with no one questioning her medication because her doctors didn't. At the end of May 2020 my mother's handwriting changed and she began to slur her words. We thought it was a stroke. She entered the hospital. All test came back negative for stroke and cancer. She deteriorated more and quickly. | After multiple CT scans they thought they may have found a glioma at the brain stem. It wasn't showing in previous scans. They did a biopsy. It came back positive. Even though they saw no visual evidence of cancer during her biopsy she deteriorated to needing a feeding tube and, within two weeks, was gone. For six days she held on in our home proving to be the fighter she was and how strong her body was. The grief is unimaginable and difficult to surmount knowing that she would still be alive today if not for the Remicade. | F | 81 | 1 years 1X day | 8/31/2020 | 1 | Autoimmune disease, fibromyalgia, | I was given this drug 1 time, to treat a diffuse connective tissue disease, or autoimmune disease, by my Rheumatologist. The hospital that administered the drug, forgot or didn't bother to put a filter on the IV, which my Dr. ordered. I was so nauseated for a month afterwards, I couldn't function, that was my 1st & last treatment, to say the least! I got no relief, but I did get Non Hodgkins Lymphoma, 5-6 yrs later! I don't care what anyone says, I believe this drug caused my cancer, that was a st4, by the time they figured out I had it! I'm only 54yrs old, no Dr. should've given me this drug, in my 30's! | Unless you're in your late 60's-70's & have severe RA, I don't recommend this drug to anyone. When I was given this drug, there weren't as many newer RA drugs out. Now, I'm sure there are better one's, that hopefully don't cause Lymphoma or Leukemia! | F | 54 | 1 days Not sure | 5/26/2020 | 1 | My Dr recommended it to treat Sarco | Bad rash all over my body,Peeling skin on hands and feet,swollen feet and ankles,pain in calves | Horrible experience. After 3 months of treatment i developed a severe rash all over my body. I annot stop the itching. My hands and feet are dry,peeling and shedding and i have developed blisters.I can barely stand let alone walk. I was against using this drug.My doctor was trying to convince me for over a year. I finally agreed and now wish I never did. | F | 55 | 3 months | 3/8/2019 | 1 | rheumatoid arthritis | Achilles tendon rupture can't stand to walk | Quit giving people poison and making them think they can feel better but more problems come | F | 2 days 30mgachill | 6/17/2017 | 1 | Ra | After third infusion he got fungal meningitis and fungal pneumonia was in and out of hospitals for two years he also had colitis on his legs and eventually went Septic and died. Never ever ever did admit any wrong doing now I am alone with MS and can't fight them their attorneys have no heart | Please contact me my address is 9400 Fairway View Pl., Apt. 2120, Rancho Cucamonga, CA 91730 I phone number my phone number is 909-660-1714 I have all his records | F | 70 | 3 days 1X day | 11/26/2016 | 1 | R ,A. Sarcoidosis | mid to upper stomach pain, body aches, muscle weakness, high blood pressure, blurry vision,mom breast and gastric cancer | My mother died from this drug. For awhile it gave her relief from her R.A. Then she was having upper stomach pain. She was on the drug 10 years, and then developed a rare bone cancer, lightning speed growth in her breast. The Dr, wanted more testing to see if she had it anywhere else and low and behold the other side affect is gastric cancer. She had that too. They said she had maybe 6 months to a couple years. she made it 1 year.Bless her sweet loving soul, these are sad days for our family. My father is dying of a broken heart. I was on Remicade for 4-5 infusions but quit when I immediately found out she dx with cancer. I was put on it for sarcoidosis pain. My mom had been on it 10 years so I thought I should be OK. I was given a black box warning drug of side effects. I read rare fast growing cancers both breast and gastric. I was shocked that this was happening to my mom. I discontinued. I now have upper stomach pain and am scheduled to go in for upper endoscopy as I now also have trouble swallowing. They said I have achalashia motility.But want to due a biopsy and botox as My esophagus isn't working correctly.I never got relief from remicade, my eyes are blurry and my joint and muscle pain is horrific. I can't blame it all on remicade because I had these symptoms prior to my infusions, but I can't say I got any better and now my symptoms are worse or exasperated from the drug. | M | 76 | 10 years | 9/24/2016 | 1 | Ulcerative colitis | Throat closed. Heart rate was below 50 for a week. Fever and my heart rhythm changed. | I took my second dose of remicade and ended up having what I considered a severe reaction tot he medication. While at my infusion clinic 30 minutes in my throat felt like it was clising, head started getting red hot and going to explode. I was able to tell my nurse she did nothing! I had to tell her while I could barely talk to turn off the medication. She gave me no help she asked me to take my own Benadryl. Luckily I was able to swollen my OWN pill. Later that day I woke with a fever of 102. Went to the hospital and had a high heart rate. Ended up being admitted to the hospital. Later the next day my heart dropped to 45 then down to the 30's. I was told it was normal but then my QT intervals started to separate which was a bit concerning. Stayed in the hospital for 6 days! I usually have a higher heart rate so this was not normal for me. For another week my heart rate went up and down and thankfully back to normal. Was a horror sotory for me. | F | 28 | 2 weeks 300mg | 9/21/2016 | 1 | Crohns disease | Head felt like it was going to burst. Unable to breathe, turned purple. | Now have severe osteoporosis. Have been off it for 15 months. Am following Professor John Hunter's diet plan plus culture my own yoghurt without the bacteria bifidus. It's cultured for 24 hours and I feel amazing. I was told by specialist that if I did not improve I would have to have a "bag". No more drugs for me after having Crohns for 12 years. | F | 67 | 2 years Not sure | 9/14/2016 | 1 | Ankylosing spondylitis | Lumbar fractured, UCTD, acute kidney failure, aggressive osteoporosis, heart disease, vasculitis, Raynaud's disease, TBI, closed skull injuries, muscles atrophy, blurry vision, and more!! | I don't have any autoimmune diseases!! Anyone else destroyed by Remicade??? Incorrect dx. Damages ALL from Infliximab. | F | 53 | 8 months 100 | 7/25/2016 | 1 | neurosarcoidsis | Eyes jaundice after 4th infusion,went away after couple days.very sensitive to touch most of time. After 5th infusion eyes looked bad. No appetite, upper stomach pain, rarely moves arms,very irritable only wants to be left alone. This is my sister no side effects were mentioned to us from medical staff.would have never allowed treatment if had been aware of extreme effects! So sorry and unfair. | F | 67 | 4 months 6mg | 7/4/2016 | 1 | Chrones colitus distended bowel | Ist infusion my hand swelled 2nd I could not walk 3 headaches & earaches then mussel major problems skin problems soon as I took it I could fell my body pulsating from my toes to my head I could not walk with pain feeling my eyes under pressure it was not the right drug for me I wish I spoke up earlier I'm glad they tried to help me but I had this all my life I feel this drug is not for everyone it's being sold as the majic drug charging major amounts this drug if carried on could of I bealive killed me please read all u can and note down any immidiate reactions if u have none u will be fine most likley if not please speaks up I'm left with optic disk swell ect ect and that's just the start of the long lasting damage some ppl are sensative and when your sick anyway some drugs are just to strong I'm left with MS now and i told them my sister had MS and they carried on with the infusions I cry in pain constant please keep safe in your choices X | It's a difficult desision when faced with illness And when messing with your immunie system to soon when your ill anyway I feel I got my life bk when stopping them and pain management more In control everyone is different plz read more regards it making things worse if you have any other underline problems | F | 38 | 1 months Infusion | 6/11/2016 | 1 | diagosed with crohns | lost all hairs after my last infusion. Severely disfigured. Diagnosed with alopeccia Totals. Happened so fast .devasted . | F | 17 | 15 months 1X O | 5/12/2016 | 1 | Crohn's Disease | I'm seriously in misery due to Remicade.... I have Crohn's along with fibromyalgia, endometriosis, PCOS, the list goes on...... Needless to say I'm no stranger to pain in my life. I've become able to push through most of it all and keep on trucking. In 6 months of using this drug I've lost my job due to recurring illnesses in my lungs, MAJOR JOINT AND MUSCLE PAIN ( narcotics won't touch the pain ) I can barely walk my feet legs hips and muscles ache so terribly. I've been hospitalized for depression 2 times, and even experienced audio hallucinations. I have high blood pressure and gained 68lbs so far. My 10 year relationship that had been something of a fairytale now is hanging by a thread due to my lack of libido and irritability... In short, IM A RAGING BITCH.... but I'm not constantly searching for a restroom. In fact, I find I'm uncomfortably constipated most of the time ( even experiencing fecal impactions ). I'd rather be at risk for a flare and spend 2 weeks in the hospital 1-2 times a year than live in this hell... | F | 36 | 6 months | 4/17/2016 | 1 | UC & Chrons | total bowel stoppage, Hair loss, skin & hair rough and dried out, extreme fatigue, extreme nausea anxiety attacks more frequent, triggers asthma, heavy insomnia, hypertension & heightened blood pressure, | I have had 3 doses so far while it is controlling the inflammation the side effects a raking havoc, right after each dose my bowels stop up for a few weeks each time, I have mass nausea for weeks, still have the abdominal pain non stop, the hair loss is getting ridiculous lost about 1/3 of the hair I had, I have no will or energy to do anything active since starting this, gone through the prednisone, asacol, azathioprine and all have not worked effectively or my body rejected, this drug tho, really has more cons over pros and I urge it only as a last result | M | 30 | 2 months ? 1X O | 3/1/2016 |
REMICADE (INFLIXIMAB): This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease. (Sources: U.S. Centers for Medicare Services, FDA)