REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  RA Hives at first, possibly taste and hair loss I had been taking Enbrel 4 years and it stopped working. Remicade just had little effect, and that didn't last but four weeks. - I was on 6 week infusion intervals. INCREDIBLY EXPENSIVE. I was fortunate to have medicare. M 82 4 months
infusion 1X O
5/6/2013
Email
 1  rheumatoid arthritis Remicade killed my mother. The drug helped with pain at first, then she experienced extreme fatigue, loss of appetite, unexplained body rashes and confusion. She was admitted to the hospital after she had gotten down to 87lbs and could not eat at all. Various tests were done for cancer or other diseases and all were negative. She developed idiopathic pulmonary edema and died of heart failure within one month of being admitted to the hospital. Prior to taking Remicade, she was spunky, vivacious 81 yr old. THIS MEDICATION SLOWLY KILLED HER!! F 81 1 days
1X M
3/19/2015
Email
 1  Chrohns This medicine killed my mother. This is not a duplicate post. My mother deteriorated over a period of two weeks from an on-the-go wonderful grandmother (to 20 grandkids!) as well as an avid gardener. A year or so previous my mother ate some meat which disagreed with her. My sister recovered but she developed diarrhea that wouldn't go away. She was running to the bathroom constantly and it limited her life greatly as she couldn't leave the house. Her doctor diagnosed her with Chrohns (with no previous history of any digestive/bowel issues)and put her on Remicade pills. The pills helped. She would wean off them and the diarrhea would return. (Prior she had a trial of antibiotics which really helped but because they were really strong her doctor said she couldn't take them for a long time thus the Remicade). The issue kept coming back whenever she weaned off the pills. In October 2019 she had a bad case of vertigo with no known cause. Many test were run and came back negative. She was in rehab for 1 month and was able to resume normal activities upon arriving home. We all breathed a sigh of relief with no one questioning her medication because her doctors didn't. At the end of May 2020 my mother's handwriting changed and she began to slur her words. We thought it was a stroke. She entered the hospital. All test came back negative for stroke and cancer. She deteriorated more and quickly. After multiple CT scans they thought they may have found a glioma at the brain stem. It wasn't showing in previous scans. They did a biopsy. It came back positive. Even though they saw no visual evidence of cancer during her biopsy she deteriorated to needing a feeding tube and, within two weeks, was gone. For six days she held on in our home proving to be the fighter she was and how strong her body was. The grief is unimaginable and difficult to surmount knowing that she would still be alive today if not for the Remicade. F 81 1 years
1X day
8/31/2020
 5  severe, fistulizing Crohn's disease Loss of efficacy when hospital infusion room gave me the wrong (lower) dose. After an additional 600 mg, I got the Remicade working well again. I am 76-years-old. I was one of the first 100 patients placed on Remicade. I take it as a monotherapy. I've never had any surgeries. The doctor who gives me my infusions, wants to take me off the drug. I won't let him do it. I'll find someone else if I have to. Remicade is a miracle drug that gave me my life back. F 76 18 years
600 mg 1X M
1/14/2017
Email
 1  R ,A. Sarcoidosis mid to upper stomach pain, body aches, muscle weakness, high blood pressure, blurry vision,mom breast and gastric cancer My mother died from this drug. For awhile it gave her relief from her R.A. Then she was having upper stomach pain. She was on the drug 10 years, and then developed a rare bone cancer, lightning speed growth in her breast. The Dr, wanted more testing to see if she had it anywhere else and low and behold the other side affect is gastric cancer. She had that too. They said she had maybe 6 months to a couple years. she made it 1 year.Bless her sweet loving soul, these are sad days for our family. My father is dying of a broken heart. I was on Remicade for 4-5 infusions but quit when I immediately found out she dx with cancer. I was put on it for sarcoidosis pain. My mom had been on it 10 years so I thought I should be OK. I was given a black box warning drug of side effects. I read rare fast growing cancers both breast and gastric. I was shocked that this was happening to my mom. I discontinued. I now have upper stomach pain and am scheduled to go in for upper endoscopy as I now also have trouble swallowing. They said I have achalashia motility.But want to due a biopsy and botox as My esophagus isn't working correctly.I never got relief from remicade, my eyes are blurry and my joint and muscle pain is horrific. I can't blame it all on remicade because I had these symptoms prior to my infusions, but I can't say I got any better and now my symptoms are worse or exasperated from the drug. M 76 10 years
9/24/2016
Email
 1  arthritis Pneumonitis, bleeding lungs which lead to ventilator for 2 months. Hair fell out and medically induced hyperglycemia. My Mother was given injection after the 2nd she became extremely ill nearly passed away. After months of hospitalization and learning to walk again etc. She was NEVER THE SAME AND PASSED AWAY March 18, 2014. I would Never recommend this med to ANYONE!! F 76 2 times
7/28/2014
Email
 1  arthritis Pneumonitis, bleeding lungs which lead to ventilator for 2 months. Hair fell out and medically induced hyperglycemia. My Mother was given injection after the 2nd she became extremely ill nearly passed away. After months of hospitalization and learning to walk again etc. She was NEVER THE SAME AND PASSED AWAY March 18, 2014. I would Never recommend this med to ANYONE!! F 76 2 times
7/28/2014
Email
 2  Chron's Joint pain, and no stopping the bleeding and diaherra M 75 3 months
11/17/2009
 5  RA None. On it for 8 yrs. Symptom-free. Dose raised 3 times. Sorry to have to switch to another drug. But It no longer works. F 74 1 days
7.5
12/10/2015
 5   I have RA and have been in complete remission for 11 years with methotrexate weekly and Remicade every six months. No side effects. Methotrexate kept me in remission for three years, but then began to get nodules on my fingers. DR. added Remicade. I have been in remission now for over 11 years. This drug works like magic for me. F 73 8 years
300 1X O
5/3/2016
 5  ulcerative colitis No side effects I'm aware of Remicade saved my life over 12 years ago, when nothing else could stem the monster flare that had me hospitalized for two weeks, critically anemic, needing daily transfusions, IV nutrients, IV steroids, etc. I started Remicade as the last non-surgical resort, and it was like flipping a switch to "Life On." I've never had an adverse reaction after all these years of getting infused every eight weeks. I've never had a real flare on Remicade. It's like I don't have U.C. I'm a bit sleepy afterwards, but I think that's partly the antihistamine I take beforehand. The price is gross profiteering, but if you make it to Medicare, the coverage should be Part B, not D. M 72 12 years
1X O
4/20/2015
Email
 4  Rheumatoid Arthritis So far the worst I am experiencing is losing a great deal of my hair. Other than that am not tired or nauseous after an infusion. Took 3 infusions before it started to help. I am very pleased with the effect. Had been on 30 mg of prednisone before--which was limited in its effect. Kept waking up in the middle of the night in terrible pain. Remicade so far has given me back my life. F 72 7 months
? 1X O
12/21/2010
 4  RA Don't know F 71 1 days
200
2/11/2015
 1  Ra After third infusion he got fungal meningitis and fungal pneumonia was in and out of hospitals for two years he also had colitis on his legs and eventually went Septic and died. Never ever ever did admit any wrong doing now I am alone with MS and can't fight them their attorneys have no heart Please contact me my address is 9400 Fairway View Pl., Apt. 2120, Rancho Cucamonga, CA 91730 I phone number my phone number is 909-660-1714 I have all his records F 70 3 days
1X day
11/26/2016
 5  Ulcerative Colitis I have a skin lesion on my knee that won't go away with OTC ointments. Also, numbness in left arm when elbow is bent. Seems to have completely stopped my UC flares in the last year since my dose was increased to 10mg/kg every 8 weeks. M 69 3 years
10mg/kg 1X O
5/5/2011
Email
 4  rheumatoid arthritis None F 69 9 years
unknown
8/10/2012
 3  ulcerative colitis Extreme fatigue, severe joint and muscle pain, fever, shortness of breath, difficulty breathing beginning shortly after treatment and lasting till next one Diarrea and intestinal discomfort ceased almost completely after 1st treatment. F 69 10 days
8/4/2006
 1  Crohns Pathetic poison. Scary stuff. All bad written above is on and off for months.Lost 40 lbs no appetite. Extreme nausea months. Pain back extreme fatigue. Muscle loss. Shell of me. Ruined my spring and summer. I warn everyone. Find other helps. Medicinal ghee. Remicade is unnatural. It goes against our smart bodies. Dr wanted me on it for years. So glad I said NO...until the last 5 months. Is THIS the best this medical system has to offer? Back to nature for me. Anti inflammatory foods. Please read the 1 and 2 level ratings. Not the 5s. Then make your decision. I just hope I don't develope some of the MANY worse side effects sneaking up on me! So thrilled its leaving my body and the symptoms are subsiding. Disgusted by remicade. Poison. I had a fecal transplant 4 years ago. A beginning back to health! F 68 5 months
1X M
7/31/2022
 1  Crohns I left a review pathetic poison. Its now 90 days since my last infusion. Im still having some stomach cramping and back pain daily. I count the days until its exited! The crohns area is not much worse than when I started remicade. Im an active 68 year old. But losing 50 lbs in 6 months wipes the energy away. Let alone the other horrid symptoms. Im still so angry. After 2 visits to the ER because of remicade one doctor said, when you get a 2 month infusion you are kind of stuck....after 90 days since the last infusion im still in a deficit in all ways. I pray for you all. Please pray for wisdom for yourselves. Then act on that wisdom. Be your own advocate. Do deep research. Look for reviews rating 1-3 to get a clearer picture of this particular drug. F 68 6 months
Every 8 we 1X day
8/11/2022
 1  Crohns Update pathetic poison. After 8 months of recognizing the horrible toxicity of this drug I am still suffering the consequences of it. 5 visits to the ER. Loss of weight 60 pounds in 8 months. The last ER visit I was transported to a larger hospital where a picline was implanted to feed me. I am 5'7". My lowest weight was 100. A skeleton of myself. The remicade caused absolute loss of any appetite. I've caught a couple viruses and now have sibo. A skeleton body with a 9 month pregnant belly. Its been an ongoing costly nightmare. Most of my hair is gone and I look like I've lost 5 years of my relative youth. Readers, look into why you are having your symptoms. There are reasons. These biologics COVER the symptoms and introduce worse problems. I regret ever having that infusion needle in my arm. Stole part of my life and I'm far from better F 68 6 months
Every 8 we 4X O
12/16/2022
  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

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