DILANTIN Reviews (PHENYTOIN SODIUM)

Average Rating: 3.5 (185 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

DILANTIN  (PHENYTOIN SODIUM):  Phenytoin is used to prevent and control seizures (also called an anticonvulsant or antiepileptic drug). It works by reducing the spread of seizure activity in the brain.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on DILANTIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR DILANTINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  nocturnal seizures Biggest side effect imo is face irritation (a feeling like your face is drooping), foggy mindset, 10 hour sleeping cycles, a feeling of anti social behavior because of low energy. Random mood swings I've been taking dilantin for 19 years now and I have to deal with it for the time being, otherwise I would have night time seizures (seizures that only happen when asleep). I would like to get on something else as I feel this prescription medicine has ruined many aspects of my life. I'm just so afraid if I change my medicine i'll have new side effects I will hate. Why drugs, why oh why? M 30 19 years
300 2X day
5/31/2013
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 1  Seizure due to heatstroke dizziness, memory issues, chest pain, rash on legs and stomach, sudden anger issues, crying all the time, easy bruising, vivid dreams, loss of coordination, forget words/names/places I had a seizure in my sleep because of a heatstroke and went to the hospital. The doctor put me on IV and sent me home with dilantin to take before bed. I didn't feel like the drug was helping at all so I went back to the hospital and stayed overnight for monitoring. Have been off it for 2 days and still feel dizzy/ light headed/ anxious. This drug should NOT be used for seizure brought on from heat stroke. Big mistake. F 20 7 days
300 1X day
5/18/2013
 1  seizures I've been on it for a while,my new doctor told me that its short term use,i had a seizer in april have to check my level,if its not ok my doctor will refer me to another seizure doctor. M 33 5 days
100mg
5/15/2013
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 4  epilepsy dizzy, unsteady, weird depressing thoughts, anger, anxiety this is the only drug that has worked for my seizures. i hate it. however, it beats seizures. M 61 720 days
300 2X day
4/23/2013
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 2  seizure disorder I was fine on the old dilantin kapseal for over 10 years. when pfizer changed the formulation in 2008 all of my problems began. Even in my therapeutic range I had seizures.I tried other meds, Dilantin kapseals worked for me with no side effects, . Maybe that's why so many people are having problems with this drug. did your problems start after 2008 F 55 10 years
500 mg 1X day
3/13/2013
 3  pettite mal seizures I experience few side effects similar to what people are stating. Little shaking in the hands, i feel rather dumb at times, little memory loss, and a fuzzy feeling at times. M 30 3 weeks
300mg
6/27/2012
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 3  undiagnosed seizure Though I am new to this medication and adjusting to the baseline feeling on this medication, there have been several noted side effects Troublesome memory loss. 'train of thought' issues, loss of concentration, hand tremors, bleeding gums and a worsening body tremor as I initially stretch in the morning. One side effect I have enjoyed is hair growth. My daughter noted that I am no longer bald. As it increases growth of facial hair I could see this side effect being troublesome for women My blood levels have failed to maintain within clinical levels which is worrisome. Working with neurologist to establish correct levels M 50 2 days
300 mg BID
6/4/2012
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 2  seizures When there are many other anticonvulsants available, its side effects make Dilantin undesirable and unnecessary. F 66 10 years
100
5/25/2012
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 2  PCSeizure Lack of focus, fuzzy feeling, tingling in hands and feet, issues with memory. While I'm sure this medication works well for others, it has been affecting be poorly, as I have been unable to work. If this happens to you recommed you do not wait as long as I did. The doctor has now put me on another medication which is working well. M 60 6 months
300MG 1X day
3/9/2012
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 2  seizures I feel lightheaded, unable to focus, fatigue, Some loss of balance, Some trembling of hands The side effects of this medication is worst than having the seizures themselves. I would not recommend it to anyone, my doctor Changed my medication two weeks ago and am no longer seeing these side effects M 60 4 months
300 mg 1X day
3/8/2012
 5  head injury playing football numbness in feet, hard to focus in the morning until I get going, dry mouth and who knows what else. Have had epilepsy for 58 yrs and dilantin was the drug that really made me abel to function normally after going thru other drugs. Who knows what ailments I am experiencing now are due to the dilantin or old age. Taking care of teeth and gums, exercise, vitamin supplements and eating properly are the key to surviving. M 74 41 days
300 1X day
1/10/2012
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 1  Dilantin Memory Loss Bleeding Gums and Depression I found a good Doc and he took 1 look at my gums and took me right off this stuff and gave me a prescript for Phenobarbitol I take it at night only 100mg 2 pills before bed. I have taken it for about 25 years and felt much better F 63 7 years
1X day
1/5/2012
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 5  epilepsy some trouble gums but brush 3 times day gums are good ..sometimes feel little tired thank god they found a drug helped me dilantin in great F 25 15 years
500 mg 1X O
8/17/2011
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 2  Diabetes Extreme fatigue, headaches, unable to concentrate or remember things. I had seizures from low blood sugar associated with insulin use for diabetes. I would not recommend this drug for this purpose.I experienced a seizure from the drug itself, and was promptly taken off the medication. F 45 2 years
3X day
8/12/2011
 1  seizures tired and sleepy, level were always high , admitted to the hospital for this since i have been taking this F 29 6 years
100 4X W
8/11/2011
 3  Epilepsy Headaches, dizziness, drowsiness, tired all the time, hard to sleep at night, can't find the right word at times, problems with speech at times, overgrowth of gums, can't concentrate, some shakiness in hands. I think dilantin is good for stopping seizures, but the side affects are really bad. They seemed to take over my life more than the seizures would have. F 17 3 years
100MG 2X day
7/20/2011
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 5  Partial-Complex eplilepsy Tiredness, hair growth, continually worsening vision, decrease in bone density, Lately I have noticed my eyes are slow to focus which is kind of new and may be due to me not getting enough sleep also. I have been taking this for the past 18 years and have not had any real problems with it. I lead a relatively normal life, I am a Police Officer, have two kids and a wife and seem to do ok. M 25 18 years
350 1X day
6/10/2011
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 4  Petitte Mal Seizures Extreme fatigue, Light headedness, Nausea, Loss of balance, Dizziness I didnt know that I was having these seizures until one day when I went into a full blown Grand mal seizure while I was working. It started off as a severe head ache that last about 2 minutes, dizziness, nausea and a weird iron taste in the back of my throat. I was finally diagnosed that I have scar tissue on my right front temporal lobe from a old car accident where I sistanded from moderate head injury. F 26 3 years
500mg 3X day
4/27/2011
 4  Idiopathic siezure disorder None until about three years ago: initial peripheral neuropathy in toes(now diagnosed as axonal degeneration / demyelinization), has now progressed to reduced NCV below the knee with loss of muscle tone; upper extremities not affected; now Vit B12 and D deficient; tinnitus with mildly impaired hearing (unilateral), now showing increased inflammation parameters, with unusually elevated Dilatin blood levels. In general, I tolerated this drug without side effects until about three years ago. As are many people, I'm uncertain as to the bioavailability of the new formulation, although I am also aware that this varies greatly between patients. Final comment: If nothing else works and side effects are minimal, the duration of use should be 5 years maximum for patients like myself (well-controlled idiopathic generalized seizure syndrome). There are a number of other equally good or superior AEDs on the market today. M 54 38 years
100 4X day
3/5/2011
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 4  Night time seizures only Reaction time is slower. Slurred speech comes and goes 3-4 times a month or more. Face irritation occurs (a feeling like your face is drooping). May have an effect on your extremities (hands and feet). Blood levels may be altered by medication. (Elevated liver enzymes, auto immune diseases). Effects are different for everyone, this does not mean everything I said here will happen, this is only from what I've experienced living on dilantin. I've been on dilantin for a little over 16 years and counting. Its helped me with my seizures at night. I have ones where they only happen at night in my sleep. I'm athletic and eat fairly well (semi vegetarian Is suppose lol) and in need for change. I'm done with doctors experimenting with my brain, late in this stage I just can't handle these side effects, it ruins a large aspect of my social life and I feel stupid around others when I'm not engaging quick enough in conversation. This medication is helping me control my seizures and I'm grateful for that but at what price? There are so many medications and dosages out there, I don't know where to look anymore. I simply want to feel "right" again. M 27 16 years
400 2X day
1/7/2011
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