DILANTIN Reviews (PHENYTOIN SODIUM)

Average Rating: 3.5 (185 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

DILANTIN  (PHENYTOIN SODIUM):  Phenytoin is used to prevent and control seizures (also called an anticonvulsant or antiepileptic drug). It works by reducing the spread of seizure activity in the brain.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on DILANTIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR DILANTINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Seizure I have been taking Dilantin for five years, first seizure, only have had two. ( liver enzymes got high). Somedays my gait was off. The doctor cut dosage to 200 mg and started me on lamotrigine. With in a week I felt so much better. It took several months to get me completely off of Dilantin. When the dose was cut another 100 mg my liver enzymes were normal. With all the seizure medications to chose from, I do not understand why a doctor would put anyone on Dilantin. I will give an updated on how the lamotrigine is working for me. Good thought to all! F 75
300 mg 3X day
4/16/2017
 1  Seizures tooth loss I took dilantin from age 7 to 17. Started loosing teeth in my 20s and it was a domino effect after that. Eventually got dentures at age 50.I'm now concerned about bone loss as I am experiencing pain associated with the dentures. Id love to get implants but am concerned that I don"t have enough bone left for that and can't afford it anyway M 54 10 years
200 mg dai
3/21/2017
Email
 1  seizures I have severe leg(calf) muscle damage. The doctor that began prescribing Dilantin to me told me that I wouldn't be able to walk by the time I reached 60. I didn't think it was true. But it is. I knew I needed something for my seizures. I took Dilantin for 20 years. That was the only medicine they offered me. Through the whole time I still had seizures. Three years ago I changed Doctor. Was prescribed Keppra haven't had but a two seizures in three years. But have severe leg(calf) damage. M 58 10 years
600mg
3/12/2017
 1  Had one seizure went to shands Gave me dilantin on first seizure at hospital shands live oak Fla been six days still haven't slept feel weak feel cold while I'm sweating M 33 1 days
2/24/2017
 1  Grande mal seizures Moody, depressed, irritable, hostile, fatigue, strange sensations I can't even describe, ringing in my head. This drug made me very depressed and moody and played a key role in destroying my most important relationship which of course led to further suffering. I switched to another drug and immediately those depressive symptoms disappeared but by then it was too late, I was alone. M 40 5 months
400 1X day
2/16/2017
 1  seizures,brain injury as a child Mentally unstable. Panic attacks, mania, confusion, memory loss. Extreme aggression, Depression. Have to get a lawyer and ask to be on disability, would not recommend at all. M 57 10 years
200 & 300 2X day
4/10/2016
 1  yes, i was taking dilantin Unable to control eyes, couldn't see anything. My eyes will roll in my head when immediately introduced to light. I was told I had acute intoxication of Dilantin. I was given 1600 mg on the first day and 900mg every day after that. Until hospitalized. F 37 2 weeks
1600mg
8/14/2015
Email
 1  epilepsy Severe heat sensitivity leading to heat stroke last year and it's harmed my liver.Doesn't control my levels on the highest dose that's safe. I have had several very bad seizures while on this medication. F 29 2 years
300 mg
6/12/2015
 1  siezures since age 11, im now 49 yo not only does it attack your teeth, your bones are in great danger. it eats the calcium up in your body. my spine and nerves in my body are screwd. i have poly neuropathy spinal stenosis Todd's paralysis disease advanced bone deterioration amongst others. im in pain 24/7. wow, thanks to the person/persons who invented this med. Stay away from this med, along with phenobarbital, my neurologist and spine specialist said both are toxic to the body, hince the law suit against id maker of dilantin. too late for me. oh, and ive been on it for38 yrs. F 49 10 years
100
3/22/2015
Email
 1  electrolyte imbalance seizures You name it..horrible drug. No need for it. Balanced electrolytes, keep them balanced. No problems. Has it's place and practical use. Docs should prescribe less and learn more about their patients before prescribing this drug. F 60 14 days
100mg 2X day
1/3/2015
Email
 1  Seizure due to heatstroke dizziness, memory issues, chest pain, rash on legs and stomach, sudden anger issues, crying all the time, easy bruising, vivid dreams, loss of coordination, forget words/names/places I had a seizure in my sleep because of a heatstroke and went to the hospital. The doctor put me on IV and sent me home with dilantin to take before bed. I didn't feel like the drug was helping at all so I went back to the hospital and stayed overnight for monitoring. Have been off it for 2 days and still feel dizzy/ light headed/ anxious. This drug should NOT be used for seizure brought on from heat stroke. Big mistake. F 20 7 days
300 1X day
5/18/2013
 1  seizures I've been on it for a while,my new doctor told me that its short term use,i had a seizer in april have to check my level,if its not ok my doctor will refer me to another seizure doctor. M 33 5 days
100mg
5/15/2013
Email
 1  Dilantin Memory Loss Bleeding Gums and Depression I found a good Doc and he took 1 look at my gums and took me right off this stuff and gave me a prescript for Phenobarbitol I take it at night only 100mg 2 pills before bed. I have taken it for about 25 years and felt much better F 63 7 years
1X day
1/5/2012
Email
 1  seizures tired and sleepy, level were always high , admitted to the hospital for this since i have been taking this F 29 6 years
100 4X W
8/11/2011
 1  Gran Mals I had the side effect within 2 weeks of a rash all over my legs and arms. I was taken off it and given prednisone. That was awful. From what I remember about those 2 weeks, I was nervous, tired or just out of it. Was in a store calm and then had this overwhelming anxiety. I had to leave the store. Obviously not for me. The rash and borderline Psychotic behavior was enough to convince. I am on Depakote and although tired at some times, no seizures. M 27 2 weeks
1/10/2009
 1  bullet in brain grand mal seziours sex drive whats that...is what i would say the first few years i was on it,memory loss,at times i cant sleep to save my life sometimes days at a time,for lack of a better way to put it my hands twitch out on me at random,i had all mt teeth pulled for two reasons 1 no more bloody toung and not eating for a week because of it and 2 pain, fall over for no reason people think im drunk at times, lets see i know theres more but the memory loss is kicking in dont have as many seziours but for all the down sids im gitting off thees pills i shouldnt have any i still from time to time wake up in the E.R idk there has to be something else i can be taking if any1 has any info i would love to hear it btw i also heard it can make it harder to have kids i hope this is not the case we are trying to start a family with no luck so far like i said any info will help M 28 10 years
12/20/2008
Email
 1  Epilepsy My IQ managed to drop ten points and I found problems with abstract thinking. My reading comprehension fell and my word usage became confused. My teeth hurt, and my eyes were twitching constantly. M 20 2 years
6/28/2008
 1  epilepsy head injury from rta poor memory, unsteady on feet, mood swings, low on patience, poor sleep patterns cant fall asleep. BAd gums, black and bleeding, poor concentration, skin rash, confusion at times, word finding difficulties, slow tired have to compensate with caffiene, constipated, reduced dexterity to fingers. Dont take it! M 49 14 years
4/24/2008
 1  Epilepsy It is a good medicine for seizure control. BUT, I have been taking it for 40 years and stopped it three years ago because I had heard of dilantin related problems especially after long-term use. I switched to LAMICTAL, which is a 3rd generation seizure medication and which is keeping me seizure free. About ten years ago, I began to have issues with balance and my gait. This worsened and a few times I fell while teaching a class. Sometimes carrying chemicals, I felt unsteady and was fortunate not to have an accident. My balance issue has worsened considerably, falls much more frequently and 'almost' falls (where I fell against a wall or counter, etc). By October of this year, I was falling one to three times a day. Some very seious -fell backwards down our stairs, another time fell into our fish pond and was lucky not to drown. I have broken furniture. Apparently, long term dilantin use can damage the cerebellum (Which controls balance and arm use) and also can cause ext I think Dilantin is a good short term drug but should never, ever be used long term. There are new, anti-seizure medications with fewer side-effects. M 60 40 years
4/21/2008
Email
 1  temporal lobe epilepsy Very spongy, horribly swollen gums, in a matter of two months. Grew to cover half my teeth. Skin thickened and became pebbly and rough. Thick black hair grew on lip, chin, throat and limbs. Utterly terrifying and disgusting. Depression, suicidal thoughts, lack of dreams, edema. Massive weight gain, caused in part by the lethargy. Muscle weakness, often unable to bend over or stand up. Worse of all, became incapable of concentrating on reading, working math and physics problems and now forget from one second to the next what I am doing. Became the complete opposite of what I was physically and creatively before drug use. This drug is a favorite of neurologists where I lived. Yes, it controlled my seizures for a while and I turned into a physical and emotional monster that I can't bear to look at. When I voiced my concerns of my appearance and physical deterioration, I was promptly told off and the drug increased. Bad drug, bad. Destroys the body and mind. F 45 9 years
4/11/2008
  

DILANTIN  (PHENYTOIN SODIUM):  Phenytoin is used to prevent and control seizures (also called an anticonvulsant or antiepileptic drug). It works by reducing the spread of seizure activity in the brain.    (Sources: U.S. Centers for Medicare Services, FDA)

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