DILANTIN Reviews (PHENYTOIN SODIUM)Average Rating: 3.5 (185 Ratings)Filter ResultsCompare DILANTIN with similar:
Type: Rx Drug
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Results are sorted by Satisfaction highest to lowest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on DILANTIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR DILANTIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Seizure disorder | Osteopenia | In 40 years never had a seizure while on Dilantin. Docs tried two other medications; had seizures soon after both times. | M | 66 | 40 years 100 mg 4X day | 4/17/2021 | 5 | Epilepsy--53 years | Actually taking dilantin 53 years. Only side effect is depression and low energy. Otherwise, am very active--dance, walk, fitness, multitasking for years. | Found taking 400mg daily was too much. Alternated 400 and 300 daily. | F | 63 | 10 years 300-400 mg | 10/15/2016 | 5 | Seizures | It gives me energy and helps me lose weight I've never had a problem with this medicine as long as I've been taking it I've been taking it since I was 3 years old | 42 | 1 days 300mg | 9/28/2016 | 5 | seizure control | Gum overgrowth, possible psychosis when level is too high. agitation. irritable, fatigue | Dilantin has stopped nocturnal seizures, some partials, and may have reduced the overall number. Unfortunately, it is often elevated by other meds and when this happens there are psychological impacts, gum overgrowth and many other side effects that aren't positive. Still, it's been more successful than without it. Dilantin is normally the primary med for some and has required at least one add-on. | M | 50 | 27 years 330 1X day | 7/4/2016 | 5 | Epilepsy | At first I couldn't take it, it was making me sick and feeling funny. After a couple of months it worked perfect. | If your doctor tells you to take Dilantin, no matter how you feel, continue. Don't forget to take this medication, take it daily. The good news is once your used to it you should be able to take it once a day, in the morning. I went from a failure at high school to becoming a dispatcher for a huge company. i also wrote programs for the company. This is all due to the help of dilantin. Once your on your level you will find that if something very important is about to come up such as a meeting, one extra pill will zoom you in and focus you. Agree with this medication and you may be seizure free for years. | M | 59 | 40 years 400mg 1X day | 5/5/2016 | 5 | grand mal seizures | I was put on 300 mg of Dilantin at age 16 for seizures but after a week or so, it was reduced to 200 mg when I exhibited toxicity to it. I have osteopenia but so did my mother, and two of my sisters so I can not say that Dilantin has caused it. According to an MRI done at Mayo in Rochester, I have moderate cerebral shrinkage. This accounts for some of my unsteadiness at times and I realize this is a side effect of Dilantin. However at age 65, many people have an unsteady gait so I again can not say that Dilantin did that to me. I do not have any gum overgrowth. I have some elevation in my ALK Phosphatase count but not enough that my neuro is concerned about it. | At the age of 16, I felt my life was over when I started having seizures. Dilantin gave me my life back so that I could function normally and I married and had two sons. No one ever told me of the side effects until after my second son was born and thank God that both of them were spared any birth defects. I do seem to metabolize Dilantin differently and need to keep my levels up above 20 to avoid a seizure. Just this week I learned that Dilantin is also measured in "free" levels and that as long as they are between 1 and 2, I am in the normal range. That is still confusing to me as my last reading was 32.2 with free level at 1.7. Along with the knowledge of my neuro, I have lowered my dosage from 260 to 230. He hates Dilantin because it is so hard to keep a balance on levels especially as we age. For now, I have no plans to switch to another drug because Dilantin has kept me safe from seizures and all drugs have side effects. In a perfect world, I would not have to take any drugs at all. | F | 65 | 49 years 230 1X day | 2/26/2016 | 5 | I am taking 100 mg for seziure | I feel tingling I in my head and down my neck and down into my back. I take 100 mg of dilantin 3 times a day. | I have grandma seizures and I just feel sometimes I am still going to have a seziure and my ears ring and my stomach hurts then I feel like throwing up. | F | 25 | 3 times 100 | 12/25/2015 | 5 | seizure disorder | Always have problems with gums. | I've been taking it for 48 years. Upset about how much the price has risen over the years especially since I have no prescription insurance. | F | 69 | 300MG 1X day | 11/6/2015 | 5 | Grand Mal | Been taking 5 each night for 24 yrs. No problems! Bones now becoming brittle...arthritic! | F | 69 | 10 years 500mg | 2/27/2015 | 5 | Brain tumors/epilepsy | Hi, i've been taking Dilantin for 3 years since I was diagnosed. Recently my dr increased my dose from 400mg to 600mg daily. I have been feeling dizzy, off balance, foggy, I developed acne, my skin is pale, I cannot eat much, I fell down this morning and have been stumbling around. My dr thinks I may be toxic.. My advice to anyone... Trust how you are feeling on your dose, my blood work said I was at 4.8, but I had been off meds for almost a week. My dr said I needed the increase, and now I am trying to feel normal again because it was too much for me.. Ive been seizure free for years because of dilantin.. But this toxic feeling is scary.. Any abnormal feelings, call your dr asap!! | F | 30 | 3 years 400mg | 10/2/2014 | 5 | Brain Tumor/Seizure Disorder | I have had almost no problems on this drug except for some bone thinning. | Dilantin has allowed me to have a wonderful life, husband, daughter, career. I am dealing right now with a doc who wants to switch me because of the bone issues. Not sure what I will do, but really wonderful drug for me. As long as I take my pills I am doing just fine. | F | 43 | 20 years 500 1X day | 8/15/2014 | 5 | Epilepsy (Tonic Clonic) | Tingling and numbness (Paresthesia) in my hands occurred in the last year. | Two NHS Neurologists were convinced Phenytoin should be withdrawn as it was causing the Paresthesia. I had deep reservations so paid privately for a Parasitology test that revealed H-Pylori that causes a mayhem of symptoms including Tingling, Numbness, Reflux, indigestion, Irritable Bowel Disease and Ulcers. Dilantin/Phenytoin is well medically documented to deplete our body's stores of Vitamins B (especially B12) & D, Calcium and Magnesium. I implore patients with Paresthesia to insist their Doctors test them for vitamins and minerals deficiency before considering changing any anticonvulsant regimen. | M | 55 | 45 years 100 mg 3X day | 3/24/2014 | 5 | head injury playing football | numbness in feet, hard to focus in the morning until I get going, dry mouth and who knows what else. | Have had epilepsy for 58 yrs and dilantin was the drug that really made me abel to function normally after going thru other drugs. Who knows what ailments I am experiencing now are due to the dilantin or old age. Taking care of teeth and gums, exercise, vitamin supplements and eating properly are the key to surviving. | M | 74 | 41 days 300 1X day | 1/10/2012 | 5 | epilepsy | some trouble gums but brush 3 times day gums are good ..sometimes feel little tired thank god they found a drug helped me dilantin in great | F | 25 | 15 years 500 mg 1X O | 8/17/2011 | 5 | Partial-Complex eplilepsy | Tiredness, hair growth, continually worsening vision, decrease in bone density, | Lately I have noticed my eyes are slow to focus which is kind of new and may be due to me not getting enough sleep also. I have been taking this for the past 18 years and have not had any real problems with it. I lead a relatively normal life, I am a Police Officer, have two kids and a wife and seem to do ok. | M | 25 | 18 years 350 1X day | 6/10/2011 | 5 | epilepsy | none | M | 52 | 25 years 1X day | 11/10/2010 | 5 | Epilipse | I was diagnosed with epilipse in 1965 at the age of 18. The only side effect at that time was swollen gums in the mouth. Quite common as I understand. This subsided soon. | I have taken Dilantin since 1965. I have been taking this once a day 3 100mg tablets before bed. I have had no side effects and my life was as normal as if I never had epilipse until June 2006 when I had a seizure. My doctor increased the dosage to 4 100mg tables , 2 taken at 11 am and 2 at 11 pm. I thought that was it for another 40 years until Thanksgiving 2009 when I had 2 seizures within 8 hours. My doctor added 2 500mg Keppra to the Dilantin. Then in Sept. 2010 , I had a mini mal seizure where I was out for maybe a minute. What is happenning to me. Is it just because I'm getting older or because I have been taking the medication for so long ? Also , my feet have become dumb over the last few years, like pins and nettles. | M | 63 | 45 years 2 100mg 2X day | 10/27/2010 | 5 | Grand Mal | Moody and shaky as in motor skills. And a couple of much tolerable side effects. Was safe on this dosage for all this time.25 years. | AFTER 25 years, All of a sudden had seizures and could not be left alone, had seizures to point of comeing out of them and not at all "knowing" I had lost conscienceness until later that day. Of course stopped driving all together. Was treated after MRIs and EEGs with Keppra and I did not respond to this at all. Unable to even be trusted to walk outdoors and cried as the episodes/ much pain continued. Was then given dilantin again but increased the dosage to 200mg twice a day. It has now been almost one year and a half, and can now hold my grandchild. I do have poor bone density but am treated for this. Praise the Lord. | F | 55 | 25 years 100 mg 3X day | 6/10/2010 | 5 | grand mal seizures | M | 41 | 500 1X day | 4/11/2010 Patient History | 5 | epileptic seizures | My gums have receded. I have experienced no recent, significant side effects besides. | Dilantin has kept my seizures well under control. I have been seizure free since 1996. Compared to the benefits, I find that, compared to the benefits, the side effects are minimal. | M | 62 | 53 years 100 mg 4X day | 3/2/2010 |
DILANTIN (PHENYTOIN SODIUM): Phenytoin is used to prevent and control seizures (also called an anticonvulsant or antiepileptic drug). It works by reducing the spread of seizure activity in the brain. (Sources: U.S. Centers for Medicare Services, FDA)