DILANTIN Reviews (PHENYTOIN SODIUM)Average Rating: 3.5 (185 Ratings)Filter ResultsCompare DILANTIN with similar:
Type: Rx Drug
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Results are sorted by Gender males first. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on DILANTIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR DILANTIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | epileptic seizures | My gums have receded. I have experienced no recent, significant side effects besides. | Dilantin has kept my seizures well under control. I have been seizure free since 1996. Compared to the benefits, I find that, compared to the benefits, the side effects are minimal. | M | 62 | 53 years 100 mg 4X day | 3/2/2010 | 5 | grand mal seizures | M | 41 | 500 1X day | 4/11/2010 Patient History | 5 | Epilipse | I was diagnosed with epilipse in 1965 at the age of 18. The only side effect at that time was swollen gums in the mouth. Quite common as I understand. This subsided soon. | I have taken Dilantin since 1965. I have been taking this once a day 3 100mg tablets before bed. I have had no side effects and my life was as normal as if I never had epilipse until June 2006 when I had a seizure. My doctor increased the dosage to 4 100mg tables , 2 taken at 11 am and 2 at 11 pm. I thought that was it for another 40 years until Thanksgiving 2009 when I had 2 seizures within 8 hours. My doctor added 2 500mg Keppra to the Dilantin. Then in Sept. 2010 , I had a mini mal seizure where I was out for maybe a minute. What is happenning to me. Is it just because I'm getting older or because I have been taking the medication for so long ? Also , my feet have become dumb over the last few years, like pins and nettles. | M | 63 | 45 years 2 100mg 2X day | 10/27/2010 | 5 | epilepsy | none | M | 52 | 25 years 1X day | 11/10/2010 | 5 | Partial-Complex eplilepsy | Tiredness, hair growth, continually worsening vision, decrease in bone density, | Lately I have noticed my eyes are slow to focus which is kind of new and may be due to me not getting enough sleep also. I have been taking this for the past 18 years and have not had any real problems with it. I lead a relatively normal life, I am a Police Officer, have two kids and a wife and seem to do ok. | M | 25 | 18 years 350 1X day | 6/10/2011 | 5 | head injury playing football | numbness in feet, hard to focus in the morning until I get going, dry mouth and who knows what else. | Have had epilepsy for 58 yrs and dilantin was the drug that really made me abel to function normally after going thru other drugs. Who knows what ailments I am experiencing now are due to the dilantin or old age. Taking care of teeth and gums, exercise, vitamin supplements and eating properly are the key to surviving. | M | 74 | 41 days 300 1X day | 1/10/2012 | 5 | 2-3 Seizures | I can relate to many of you. I have been on Dilantin for nearly a year now and I thank the gods it has set me straight. For the past 7 years of my life I suffered from significant sleep issues. After about 6, combined with high levels of stress, burning the candle from 2 ends, and one time a nasty flu, I had a few seizures over the course of 3 months. 2 were with one day due to that fact that I hurt my back during seizure #1 and could not sleep following the episode. I have been seizure free since I started taking dilantin. I definitely have side affects that seem to line up with many of you. Some I am sure are just due to that fact that all the years of abuse have affected me neurologically. The effects that bother me are poor concentration, memory issues, an occasional frustrating search for a word, and perhaps that is it. All in all, I can say reduced stress lessens these side effects and they have gotten marginally better over time. The first 4-6 months where difficult. I truly f | M | 29 | 1 years | 1/22/2006 | 5 | 2-3 Seizures | I can relate to many of you. I have been on Dilantin for nearly a year now and I thank the gods it has set me straight. For the past 7 years of my life I suffered from significant sleep issues. After about 6, combined with high levels of stress, burning the candle from 2 ends, and one time a nasty flu, I had a few seizures over the course of 3 months. 2 were with one day due to that fact that I hurt my back during seizure #1 and could not sleep following the episode. I have been seizure free since I started taking dilantin. I definitely have side affects that seem to line up with many of you. Some I am sure are just due to that fact that all the years of abuse have affected me neurologically. The effects that bother me are poor concentration, memory issues, an occasional frustrating search for a word, and perhaps that is it. All in all, I can say reduced stress lessens these side effects and they have gotten marginally better over time. The first 4-6 months where difficult. I truly f | M | 29 | 1 years | 1/22/2006 | 5 | siezures (neurocardiogenic syncope) | I usually have to keep my level on the high side of the theraputic range (about 20-22) so when it goes too high I usually get memory problems and Coordination problems. It's hard to tell if I am getting hair growth because I am italian. But the coordination has definetly been a big issue, which I noticed quite a bit out on a boat. The memory problems have hindered me a little bit, since I am in grad school but I've learned that if you really wotk on it, it is possible to train your memory better in spite of the medication. Problem with side effects is unless it's obvious, you get the med student sydrome and feel you have each thing you see on the list. | My problems may be casued more to a problem in the cardiovascular system, However, since I changed from tegretol to phenytoin I have only had siezures due to the change in medication. It really has been a great medication and allowed me to stop worrying about when my next seizure is going to be. | M | 28 | 2 years | 2/1/2006 | 5 | 4+ gran mal seizures | Trouble with concentration, memory, and depression (but may also have to do with the removal of brain tumor). Haven't had a seizure since the surgery 1.5 years ago. Still taking 600 mg. Has anyone experienced any problems with rashes with Dilantin? | M | 29 | 3.5 years | 10/15/2006 | 5 | I had two seizures within 3 months | Occasional slight dizziness, but rare. | This drug has put my mind at ease about seizures. However, it has really rated high with my wife ! She observed both seizures I had while I was asleep. Scared her near to death, but had the presence of mind to call the EMT's. During the 2nd seizure I dislocated my left shoulder. Since taking 300 mg of Dilantin per day, I feel relaxed and at ease about not having to worry about future seizures. The V.A. has taken great care of me to insure no further seizures by continuing to prescribe Dilantin. | M | 65 | 3 days | 1/26/2007 | 5 | epliepsy | some light headedness | Stay with the original brand. After being stabilized on Dilantin for 43 years, a change to the generic brand, Mylan, 2 years ago caused seizures to re-occur. There is a lot of information about Mylan not providing the same blood levels - mine were 1/2 what they should be. So be careful if your Dr. (or Insurance Co.) tries to change you to the generic form, Mylan. | M | 57 | 43 years | 3/11/2007 | 5 | epileptic-grand mall | nothing noticable until doctor recently said I had bone loss, but I have been taking dilantin for 50 years. only 200mg a day This drug stopped my seizures for the last 40 years except when I went off the drug as a test, I had a seizure in about 3 weeks. | This drug gave me a life that I thought I was loosing at age 13. | M | 65 | 50 years | 7/13/2006 | 5 | I had two seizures within 3 months | Occasional slight dizziness, but rare. | This drug has put my mind at ease about seizures. However, it has really rated high with my wife ! She observed both seizures I had while I was asleep. Scared her near to death, but had the presence of mind to call the EMT's. During the 2nd seizure I dislocated my left shoulder. Since taking 300 mg of Dilantin per day, I feel relaxed and at ease about not having to worry about future seizures. The V.A. has taken great care of me to insure no further seizures by continuing to prescribe Dilantin. | M | 65 | 4 years | 1/26/2007 | 5 | Epilepsy | Memory loss,can't find the right word, tired in the afternoon, hair growth, Eye floaters. I am not sure but after 38 years of taking Dilantin I have progressively bad eye floaters, in the last 10 years I have develope atrial fibrillation an lately tremors. I wonder if these are connected with the extended use? | In talking to my doctor he has told me that dilantin was used to deal with A Fib for many years. I wonder if there is any connection with onset from prolong use in people who never had it? I will add that Dilantin has kept me seizure free for 38 years though I still get aors from time to time. I am greatful for the drug despite the after affects. | M | 53 | 38 years | 10/23/2008 | 5 | Epilepsy | I have been taking Dilantin for over ten years I now feel that I have an excellent memory, I have a increased interest in learning, given I can remember more. I feel stronger than ever and no longer suffer from seizures. I have been fit free for over four years and those were only caused from incorrect dosage and marijuana use. Friends comment on my young looks and my skin seems to be remaining young looking, we shall see how the next tens years treats me. | Dilantin lets me continue to live a fit free life, and I feel has given me reason to learn. | M | 30 | 10 years | 9/27/2004 | 5 | epilesy from car accident | some motor skill loss(but that could be due to the brain injury and breakage of middle ear), memory loss - short term (or head injury related?), bleeding gums(just bad dental practices occasionally or bad diet?). Hard to tell which does what. But get anger spurts which are uncalled for and unexplainable. | Heard that dialantin would slow me down. Compensated by drinking coffee. Was more of a manic normal worker. Take 300mg/day Blood count as low as 40 and as high as 150. What is considered high for "toxic liver"? | M | 52 | 34 years | 12/27/2007 | 5 | seizure | Level went up to 22.8 I normally have a level of 14.5 to 15. Supplier said there is not difference in the new DIlANTIN. But as you can see something may be different. | Although my supplier said that there is no difference. How do you account for the raised level? I have been taking Dilantin for 8 years and as additional information I believe my seizure in 2000 was a direct result of having a flu shot. I had a flu shot at 10.00a.m and 12 hours later I was being taken to local hospital because of a seizure. Kind of makes you wonder about FLU shots!!!! | M | 62 | 8 years | 4/15/2008 | 5 | skull fracture at age 10 | At age 66 I only have a very small amount of memory loss, names and this just may be old age. | At age 10 the specialist put me on 400 mg/day dialntin & 60 mg/ day phenobarbatol, 1/2 morning and 1/2 at bed time. He also told me that I would have to avoid cafine, nicotine,alcohol, & later I found aspertaine to be included. Very important. | M | 66 | 55 years | 11/22/2008 | 5 | Seizure Control | Slight drowsiness, bad constipation, & intermittent (last for a few minutes every few days) uneasy dizzy feeling. Mostly these side effects were only during the first few months of taking this medication then subsided or learned how to control. | Excellent medication that I am very grateful for as it has eliminated seizures for over 20 years. Very few side effects and this medication controls seizures for me even though my blood levels show that I am below the therapeutic level. I take 400mg of Phenytek (time released Dilantin) and my body must metabolize most of it as my blood levels are below theraputic....but it is still very effective and controls my seizures. No need for me to increase level and every time I had lowered my dose I have had a seizure. Early on I had some uneasy dizzy spells where it kind of felt like the earth was moving and I would get very anxious (sweaty palms, increase heart beat) but it wouldn't last very long. It was not so bad that it would affect my driving, walking, function or anything, just an uneasy feeling as I thought maybe it was a sign that I was going to have a seizure. Once I realized this feeling was from the medication and not a forewarning of a seizure then it didn't bother me. Mo | M | 42 | 22 years | 2/21/2009 |
DILANTIN (PHENYTOIN SODIUM): Phenytoin is used to prevent and control seizures (also called an anticonvulsant or antiepileptic drug). It works by reducing the spread of seizure activity in the brain. (Sources: U.S. Centers for Medicare Services, FDA)