DILANTIN Reviews (PHENYTOIN SODIUM)Average Rating: 3.5 (185 Ratings)Filter ResultsCompare DILANTIN with similar:
Type: Rx Drug
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Results are sorted by Age from youngest to oldest (reviews with no age reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on DILANTIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR DILANTIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | epilepsy multiple seizure types | on normal drug level :I am tired and my thinking isn't efficient Memory slow it does impair my thinking process alot . Really bad gum over growth Extra growth of hair over legs and face which is not what a girl wants.And my eyes bother me don't focus as fast On toxic blood levels:Can't do nothing can't see nystagmus dizzy sleepy my head is floppy and I am completely goofy | it works well in emergencies and neurologist are comfortable with it I don't like it I wish I don't have to | F | 19 years | 8/20/2009 | 1 | Dilantin Linked to Stevens Johnson Syndrome | | 6/30/2006 | 1 | epilepsy-grand-mal seizures | Tremors, slurring of speech, increased seizure activity | My son was on this after Depakote, and he had longer seizures, and ended up in the emergency room having a grand-mal seiure over 5 minutes long. | M | 5 | 4 weeks | 7/19/2005 | 4 | Asperger Syndrome - 9 yrs old | Dilantin Infatabs were very easy for my 9 year old to take. | REmained on this medication for 9 years. Good mood stabilizer for children. Made him more outgoing. | M | 17 | 9 years | 8/29/2009 | 3 | Cavernous Angioma-Brain Sugery | I have a terrible memory to small details, have a very short attenion span during school, mental confusion, sometimes spaz attacks, unsteady gate when driving, some not so noticable twitches | It helps for siezures but its hard to say i would have more because I have only had 2 (that i know of) before sugery, and i was up too 10 give or take petite siezures daily. School is rough! My teachers do nothing. | M | 17 | 8 months | 3/31/2005 | 3 | Epilepsy | Headaches, dizziness, drowsiness, tired all the time, hard to sleep at night, can't find the right word at times, problems with speech at times, overgrowth of gums, can't concentrate, some shakiness in hands. | I think dilantin is good for stopping seizures, but the side affects are really bad. They seemed to take over my life more than the seizures would have. | F | 17 | 3 years 100MG 2X day | 7/20/2011 | 2 | seizures | I'm always tired.I sleep most of the day. It was going well, but when i recently increased it, my body hair has darken from blonde to black.It's happen to my arms,legs,and even my face! Oh, i forgot to mention hair grow also on my arms and now its started on my face.(facial)I've never had that problem until now.I'm so upset that I'm going to switch medications soon.The only good thing is,it helps my seizures. | F | 17 | 7 years | 4/30/2004 | 3 | epilepsy | loss of sleep/inability to fall asleep. loss of coordination/balance. | while not having had seizures since beginning taking dilantin i found that after about a week i started having problems sleeping, average sleep time a night now being about 3/4 hours a night, and i no longer enjoy dance due to increase in stumbling about. | F | 19 | 7 months | 7/8/2004 | 1 | Epilepsy | My IQ managed to drop ten points and I found problems with abstract thinking. My reading comprehension fell and my word usage became confused. My teeth hurt, and my eyes were twitching constantly. | M | 20 | 2 years | 6/28/2008 | 1 | Seizure due to heatstroke | dizziness, memory issues, chest pain, rash on legs and stomach, sudden anger issues, crying all the time, easy bruising, vivid dreams, loss of coordination, forget words/names/places | I had a seizure in my sleep because of a heatstroke and went to the hospital. The doctor put me on IV and sent me home with dilantin to take before bed. I didn't feel like the drug was helping at all so I went back to the hospital and stayed overnight for monitoring. Have been off it for 2 days and still feel dizzy/ light headed/ anxious. This drug should NOT be used for seizure brought on from heat stroke. Big mistake. | F | 20 | 7 days 300 1X day | 5/18/2013 | 4 | Epilepsy | You get drowsy,uncordinated,dissoriented(sometimes). Also for me made it very hard to drive long distances, stay out late. | At first it worked with out a hitch but after 5 yrs of taking it I have developed worse and worse symptoms every year. Driving is becoming bothersome and drug seems to drop after 12hrs instead of the 24 its supposed to work. | M | 21 | 5 years | 2/5/2007 | 3 | seizure | Moody, memory loss, bleed gums. dizzyness, felt lost, depressed, yawned all day nd slept more than was a wake. | I was cut down from 3 pills to 2 1/2 pills (half pill was chewable) The mix of pill and chewable made it worse symptoms. | M | 21 | 2.5 months | 5/16/2007 | 1 | seizures | mouth decay and seirus mouth pain can't eat regurly | we should be compasated for pain and suffering | M | 22 | 1 days | 8/18/2007 | 4 | unexplained Grand Mal seizure | "in a fog"; extreme short term memory loss very often; takes longer to recall long term memories; excess hair growth and darkening of body hair!!!; sleep up to 10 hours at night; coming out of sleep is very hard as if I am drunk; jitters; can't find the word; headaches if I take a few sips of alcohol | I take 100 mg 3 times a day. I have been on it for 4 1/2 months. No seizures although the one I had is still unexplained. My doc says it may have just been a "once in a lifetime event." I think it was caused by months of anxiety, stress, and insomnia before my seizure. By 3 months, I have gotten used to the side effects although if I am very tired or become upset, they intensify. I brought up switching meds to my doc to Trileptal but after reading the side effects for that drug I think I will stick with Dilantin. | F | 23 | 4 months | 4/13/2008 | 4 | benign brain tumor(being monitored) | - drowsiness was the first noticable one, and probably most prevalant - loss of concentration, focus, and motivation - feeling of "emotionless" states, feeling indifferent to major happenings in my life (either good or bad) - definate loss of co-ordination (state soccer player) now I'm struggling at local level - weight gain (do to lack of energy to continue sport), had very high matabolism but seems as though dilantin has effected it quite a bit - stress related "auras" (mini-seizure) brought on by long work hours - slight gum decay (swelling of the gums) - depression - adverse reactions to alcohol (only 1-2drinks), result in stomach pains, headaches, feeling of unwellness, as such I have gone from a regular drinker to maybe 5 drinks a month | - must say sleep has not been a problem on dilantin, if anything the sleep that I do get is deep and uninterrupted - no real hair gain - has resulted in no grand-mal seizures since first taken | M | 23 | 14 months | 4/15/2006 | 3 | Seazure | none except seazure | I hope the seazure go away and the only time i am having the seazure is at night while i am onthe bed | M | 23 | 1 days | 11/14/2004 | 2 | Diabetes | Loss of Memory, Forgetfullness, Tired all the time, stomach pains,and pimples. | I had to start taking Dilantin because I would have seizure when my blood sugar would be too low. The doctor said the medicine might help with them. I guess as an extra precaution but I don't think its good and I don't like the medicine. | F | 23 | 1 months | 7/19/2005 | 4 | seizure treatment | The day i started taking this medicine i am suffering from sun burns, eye conjuctivity, temper, easily struck by communicable diseases etc | It has helped me to control seizure...i didnt had single after the medicine course i have begun | M | 24 | 1 years 300 mg | 4/13/2015 | 3 | "Focus" for seizures in brain | After taking Dilantin now for my fourth week, I feel safe in regards to my seizure prevention, yet have many concerns towards my Dilantin medication. Since being on the medication - 400mg at bed time - I have experienced extreme mood swings including frustration, impatience and anti-social feelings towards my friends and family, even towards my girlfriend. I also find myself at times very dizzy for a minute or two at a time to the point where I feel I have to sit down in order to continue walking or even standing. I have also felt a major loss of appetite complete with almost daily headaches. My final symptom since beginning Dilantin is a very ugly rash beginning on my feet and hands and spreading upwards towards my legs and arms. The rash is similar to a Measles rash - and I have had my shots for that - with tiny red spots not very raised that itch on occasion, complete with shakiness and tingling of these extremities. | Has anyone else near my age with a seizure issue had the same sort of side effects to Dilantin or possibly have any advice? Is this something like an allergic reaction to the medication or the standard side effects for it? Are there any substitute prescriptions anyone knows of that I may be able to ask my Doctor about? Thank you for your time. | M | 24 | 1 months | 7/10/2007 | 2 | Epilepsy | Many-dizziness, confusion, lack of balance, darkened body hair, increased hair growth, loss of memory, difficulty thinking clearly, many reactions with other drugs, receding gums, seizures controlled but I had seizure "auras" daily. | The drug was very effective in controlling seizures but the wealth of side effects made it unrealistic to stay on the drug. I was on Dilantin for 6 years and most side effects were severe for the entire time. I had only limited memory, concentration etc for 18 months after I started the drug. In time, the severity of the side effects did decrease but they always affected my life greatly. I changed drugs at age 22 to trileptal and most side effects are gone (some remain but are far less intense). Dilantin was a great started drug for me when I was diagnosed and the severity of my epliepsy was unknown but I recomend changing to a long-term drug as soon as you can -- you don't have to live with the side effects! | F | 24 | 6 years | 2/21/2006 |
DILANTIN (PHENYTOIN SODIUM): Phenytoin is used to prevent and control seizures (also called an anticonvulsant or antiepileptic drug). It works by reducing the spread of seizure activity in the brain. (Sources: U.S. Centers for Medicare Services, FDA)