FLORINEF Reviews (FLUDROCORTISONE ACETATE)Average Rating: 2.6 (29 Ratings)Filter ResultsCompare FLORINEF with similar:
Type: Brand name discontinued; available as generic
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Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 |
More on FLORINEF: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR FLORINEF | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | hypotension | Horrible headache | I only took florinef once, so I never got to see if it helped with the hypotension. Once my head began to hurt, I called my doctor and he told me to stop taking it. | F | 23 | 1 days | 10/14/2005 | 1 | Low Blood Pressure | Terrible pressure in my whole body but mostly like my head is going to explode. | M | 50 | 1 days | 12/2/2006 | 2 | hypotension | Massive headaches,bp was still on the low side | F | 21 | 3 days | 10/1/2005 | 2 | Orthostatic Hypotension | Pressure in the skull, pressure in the eyes, vision problems, migraines, chest pain | I had to stop taking it after 4 days. Days 1-3 my energy was definitely improved but my vision was so impacted I was afraid to drive. On the 4th day I had migraines coming and going all day long. I had to have someone drive me to a cardiologist appointment. The side effects are too extreme for the benefit of added energy. I'm going to go back to licorice and add it in at the time of day I feel the worst. I didn't realize until I stumbled over this site that I could use licorice for OH. I may try florinef again after a sinus infection I'm fighting clears up but only if cardio thinks I should. | F | 34 | 4 days .1-.05 1X day | 6/2/2021 | 1 | Addisons disease | Headache, blurred vision, cranial pressure, just feeling lousy | First time I tried it had a horrible experience. Endocrinologist cut my cortef dosage in half and then added florinef, which I had not taken previously. Couldn't stand it any longer after four days. I cut out the florinef and went back to my original dosage of cortef and began to feel normal again. Got a new endo and adjusted my cortef down without florinef to where I still felt okay. Then added florinef again. Same problems as before. Cut florinef in half. Still felt lousy. Cut florinef altogether and felt better again. For addisons patients, it is supposed to substitute for the natural hormone aldosterone but in my case I don't tolerate it. | M | 60 | 4 days 125 mcg 1X day | 10/22/2015 | 2 | POTS | Increased nausea, dizziness, muscle pain, confusion, sweating, extreme fatigue and headaches | Started it about a week ago, but have had to stop due to the debilitating side effects. I cannot function normally anymore and has made my POTS 100x times worse | F | 15 | 7 days 0.1 2X day | 5/24/2020 | 2 | POTS | Severe edema of feet/ankles. | I'm not sure this medication helped my POTS much - I was still having some episodes of pre-syncope even after I'd been on this med a few weeks. After a particularly bad pre-syncope episode I took in extra salt as directed by my doctor and as I'd been doing prior to starting this med - and several hours later my right foot was twice the size of my left. I never had edema of any kind before this, and the swelling started to go down as soon as I stopped the Florinef. My doctor later re-introduced this med at a reduced dose, and the edema came right back, although milder this time. | F | 35 | 30 days 0.1 mg 1X day | 12/27/2011 | 4 | Neurally Mediated Hypotension | Some water retention in the first 2 weeks, then went away. Some migraines/headaches and pressure in my head, but went away as my body adjusted. Now that im adjusted the extreme fatigue I felt from even minor/moderate exercise is gone. Took me weeks to figure out the correct dosage. Florinef has a long half life and takes your body a long time to adjust. People who complain about headaches should try a lower dose and try again. Stay on the same dose for at least 2 weeks before changing it again, unless you are in lots of pain from headaches. Best to start with a small dose and go up until you hit side effects, and then back off a bit. It can take several months to find the right dose for year. Also, I start every day with a big glass of water filled with 1 teaspoon of salt. (non-iodinized) | M | 44 | 60 days .100 1X day | 5/31/2012 | 3 | Pots. Weakness. Coat hanger pain | Urinating beyond.. for a drug that is meant to hold on to water it certainly does the opposite.. | It may of helped with muscle weakness but the urination causing too many other problems | M | 34 | 4 weeks | 2/22/2021 | 5 | hypotension/migraines | slight water retention, not enough to make me stop taking it | After years of searching for a cure for my migraines, i have found it! When I told the doctors I got a headache from standing/sitting, they said it was sinuses. I knew it had to be my low blood pressure and finally convinced one doctor to prescribe this and I finally am migraine free 90% of the time. I am no longer afraid of the throbbing pain I will experience when getting out of bed or standing from a chair. | F | 32 | 6 weeks | 3/27/2009 | 2 | Low blood pressure & dizziness | Taking due to chronic low bp for no known reason. Negative for cushings. I don't feel it's worth the side effects which are mood changes & low energy. I'm going to wean off | F | 55 | 1 months 1 mg | 3/9/2016 | 5 | Orthostatic hypotension | None. | I have orthostatic hypotension/neurocardiogenic syncope as determined through a tilt table test. I was constantly having episodes of frequent urination, dehydration and dizzy spells when getting up and standing too long. While I don't think I will ever be healed, the Florinef has made all the difference in the world. If I do not take it one day, I pay for it with near syncope spells. The doctor initially told me to increase my salt and fluids, but that did not work so they put me on 0.1 mg a day. Florinef has been a miracle drug for me. | F | 38 | 2 months | 4/2/2008 | 5 | hypoaldosteronism | 100 ug dose once daily slight puffy heel when estrogen spiked at PMS and ovulation. Otherwise no side effects. | F | 28 | 2 months | 11/1/2005 | 4 | POTS - Postural Orthstc. Tacy. Synd | Feel somewhat better; however, my periods are nuts - average bleeding about half of any given month. It's ridiculous. (And I have been on the same birth control for 6+ years; no other med changes) | F | 27 | 3 months 10mg 1X day | 3/15/2011 | 3 | POTS | Insomnia, shortness of breath, confussion, joint pain, weakness, nausea, mood swings, increased thirst, extreme fatigue, bruising | Although I am getting a belting from the side effects, I don't pass out 8-15 times a week anymore... Now its 1-4 times... This is a very big change and I am okay with having side effects if it means less collapsing. | F | 19 | 3 months 0.1mg x3 d | 7/31/2016 | 2 | neurocardiogenic syncope | Signigicant water retention; I gained significant weight in my waist area and lost it all nearly a week after stopping the medication. | F | 22 | 3 months | 1/6/2007 | 2 | neurcardiogenic syncope | -terrible head pressure -shortness of breath -very puffy/swollen -hair falling out -vomiting -blurry vision ***these side effects could be just b/c I'm getting sicker for some other reason and unrelated to the florinef*** | F | 17 | 5 months | 1/27/2006 | 2 | neurcardiogenic syncope | -terrible head pressure -shortness of breath -very puffy/swollen -hair falling out -vomiting -blurry vision ***these side effects could be just b/c I'm getting sicker for some other reason and unrelated to the florinef*** | F | 17 | 5 months | 1/27/2006 | 1 | Hypotension | After taking this medicine since June, I am having EXTREME muscle weakness. EXTREME | M | 24 | 5 months | 10/21/2009 | 1 | neurocardiogenic syncope | Dizziness, lightheadedness, migraines, nausea | I've been takind florinef for five months in addition to midodrine to treat neurocardiogenic syncope. For the first couple months i took it i honestly couldn't tell the difference, it didn't seem to help or hurt. But, lately i've been getting dizzy spells much more frequently and nothing seemed to make them go away. They would occur for days at a time with migraines and nausea. I stopped taking Florinef 3 days ago and already feel much better! | F | 21 | 5 months | 12/7/2009 |
FLORINEF (FLUDROCORTISONE ACETATE): Fludrocortisone is a man-made form of a natural substance (glucocorticoid) made by the body. It is used along with other medications (e.g., hydrocortisone) to treat low glucocorticoid levels caused by disease of the adrenal gland (e.g., Addison's disease, adrenocortical insufficiency, salt-losing adrenogenital syndrome). Glucocorticoids are needed in many ways for the body to function well. They are important for salt and water balance and keeping blood pressure normal. They are also needed to break down carbohydrates in your diet. (Sources: U.S. Centers for Medicare Services, FDA)