Reviews for PLAQUENIL

72 ratings: (taken because of sjogren, date posted between 2000 and 2016)

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PLAQUENIL  (HYDROXYCHLOROQUINE SULFATE):  Hydroxychloroquine is used to prevent or treat malaria infections caused by mosquito bites. It does not work against certain types of malaria (chloroquine-resistant). The United States Center for Disease Control provides updated guidelines and travel recommendations for the prevention and treatment of malaria in different parts of the world. Discuss the most recent information with your doctor before traveling to areas where malaria occurs. This medication is also used, usually with other medications, to treat certain auto-immune diseases (lupus, rheumatoid arthritis) when other medications have not worked or cannot be used. It belongs to a class of medications known as disease-modifying antirheumatic drugs (DMARDs). It can reduce skin problems in lupus and prevent swelling/pain in arthritis, though it is not known exactly how the drug works.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Date added.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4


More on PLAQUENIL: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR PLAQUENILCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Sjogrens Rheumatologist prescribed Plaquenil for inflamation due to autoimmune disorder. On third day, I developed an itchy bright red rash on neck. Stopped medication and started taking Benadryl for the itch. Two days later the rash spread to my chest, stomach, and back. Went to urgent care where I was told it was most likely a reaction to the Plaquenil. Received a cortisone shot and a prescription for Prednisolone (six day pack), and an antihistamine. When I asked the urgent care doctor how long it would take to clear, he said that it was going to get worse before it got better. Well, true statement on his part! The itchy rash moved all over body except legs and feet. My face has peeled as if I was sunburned (face did not itch but was red and a bit swollen). Two weeks later, and after a follow up with an allergist and primary care physician, I am still itchy and the rash is starting to disappear. My scalp has been very itchy and flaky and lots of hair loss when I brushed after washing my hai F 63 3 days
200 mg 2X day
9/19/2016
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 1  Sjogren's & RA Terrible drug. Increase in all-over horrible pain, more eye pain, pain in face, increase in weakness, terrible dizziness, emotional, wanted to cry, agitated, , more balance issues. Stopped taking it and can't wait for it to clear system. Will try taking anti-inflamatories although they cause me colon issues, they can't be as bad as this nasty drug. F 68 2 months
200 1X day
7/14/2016
 1  Sjogrens Diarrhea, blinding headaches, eye pain and dimmed vision, insomia,itching everywhere, ears ringing, emotional, muscle weakness, dizziness Yes it helped within a week of taking it for joint pain but the side effects were overwhelming F 40 3 weeks
400mg
6/15/2016
 5  Sjogrens I've found that this is a miracle drug for me. I had experienced fatigue,low blood pressure, dry mouth, dry eyes, my sweat glands were hardly working, dry skin, achy joints . I just felt awful and it had gone on for years! Finally diagnosed put on Plaquenil and after 5 months most of my symptoms are either gone or have subsided to a manageable level. F 56 5 months
400 MG 1X day
11/2/2015
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 3  Sjogren No side effects for first 6 1/2 years, then my eyes started hurting very bad. I have been off the generic Plaquenil now for 2 months. My vision is less blurred, both pupils are now the same size and less pain in eyes. BUT, now my whole body hurts so much. Trying to decide which is worse the eye pain or body pain. For now I have decided I can't do without my vision. Needing a substitute for Plaquenil??? Any suggestions? F 58 7 years
30 2X day
6/23/2015
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 3  sjogren's syndrome No side effects Plaquenil helped with body pain and a little bit with fatigue, but I stopped take it, because I don't have medical insurance and it is way too expesive for me now. F 48 1 days
200 mg 2X day
5/20/2015
 5  Sjogrens I get very dizzy off and on. I was diagnosed with Sjogrens in 2014. I DID NOT want to take ANY medication. I had been feeling so exhausted all the time. I could not sleep well. My body hurt all over, my back abdomin, shoulders and my feet ached so bad. I just saw a new Rhuemy 1 week ago who was very compassionate. He asked me to at least give the plaquenil a try. He said it may very well help with my pain and fatigue. Thank You Jesus, my pain is lessened. I am sleeping like Sleeping Beauty. My fatigue is slowly getting better. I went for a short walk monday and tuesday. Yesterday I washed the car. Today I walked around the antique shop for an hour. I feel good. Getting back to my self again, and I have only been on it for 1 week. I do believe in Jesus Christ, the power of prayer and healing. I believe the sjogrens is a SIN issue. A spritual condition of my heart, Where I have harbored self hatred and unforgiveness for things I have done in the past. I am dealing with those issues head on. Forgiving myself and praying as I study the Word of God. I believe God for total healing in my Body. Afterall, He made me in His Image and I am the APPLE OF HIS EYE. I believe God for a Miracle and you can too. Be encouraged. Have Faith from Fifty something :) F 59 7 days
200mg
3/20/2015
 5  Lupus (SLE), Sjogrens (SS), FIbro I have experienced skin discoloration on neck and spots on face. I'm curious to know if it is the cause of my major issue w/Longterm/short-term and immediate memory and fumbling my words?? I did grow up with horrible ADD then got on wonderful Vitamins at 27 - couldn't pay for them Bc stopped wkn in 09 due to all this. But starting them back up thanks to some wonderful Friends Family in Christ! I would like to share Lupus SLE affects ALL Organs-That is the "Difference" between "SLE". So if your heart or Kidney start really giving you problems all of a sudden after 15 yrs being on Plaquenil -I personally if it were me would Stay on it!! I have personally been through the ringer since 2007 with DRS Bc "i don't 'Look' like I feel bad"(so in other words I'm a druggy and a faker and a liar) ~ O how many of U have heard that? Drives me Crazy!!!! After 3 Tries w/SSA/DI I think it Finally may really come thru. Since I started in 2009 Every 6 months I've gone down so bad.:(( Really when I was growing up I lived on Advil then I started meditating myself bc I was hurting so bad... I've gotten so bad I'm now living in my bed reading with meds next to me. Amazing....May you All be Blessed Exceeding Abundantly through your Journey and remember this word in 2 Cor 12:9-10 ~"And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. 10 Therefore I take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when I am weak, then am I strong." Amen ❤😊☀ F 48 8 years
200 MG 2/D
2/16/2015
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 2  sjogrens, osteoarthritis, fibromyal Extreme external vaginal itching. It seems to be lessening the longer I am off it altogether. Quit a couple weeks ago. Feeling much better after going off this medication. Jury is still out as to how I will feel after being off it for a while. Dr. Said I could just quit once I finished my last prescription, since I was showing no symptoms at the time. F 66 1 years
200 MG X d
1/5/2015
 4  Sjogrens Farts are uncomfortable and embarrassing. I can't wait to get over this! I hope it works for my pain and swelling. F 54 2 weeks
200mg 2X day
3/12/2014
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 4  Sjogren's Syndrome Started with name brand, then switched to generic. After several refills, I noticed that I was feeling like I wasn't taking any all at. My rheumatologist said that some patients do not do well on the generic, so she put me back on the name brand. I've been taking Plaquenil for 16 years, and except for the generic not being effective for me, I've had no problems. If I forget to take it, I can definitely feel it! I've always gone in for twice-yearly eye exams and so far, I'm doing very well and even my ophthalmologist is very surprised. Make sure your ophthalmologist does the "vision field" test every year as problems with peripheral vision is the most likely sign of damage from Plaquenil. F 68 16 years
200 MG 2X day
5/3/2013
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 4  Sjogrens,Raynauds,Possible RA I am allergic to a long list of drugs. Nurses groan when I take the list of allergies. I did not have a single symptom on the brand name Plaquenil. None, no stomach problems, no diarrhea. I was waiting for the side effects and none occurred. Helped me to get out of bed, decreased fatigue. Not a great improvement but much better. After 3 months my rib pain decreased and knee pain decreased greatly. I thought it would be a cure though. Not so. My mistake. Definitely helps though. I would still be in bed without it. F 54 1 years
200 mg 2X day
2/6/2013
 3  RA, Sjogren's vomiting, diarrhea,rash that itches, sun sensitive, return of menstrual cycle after 5 yrs. After this short amt of time I have less pain. My fatigue hasn't gotten better yet. My dr says it may take up to 3 months before it helps all my symptoms. F 48 26 days
200 2X day
9/2/2012
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 4  probable sjogren's some GI discomfort initially, but it went away. itchy rash on trunk for around 2 weeks before it went away. sun sensitivity. some mood issues, but mild. initially some wild dreams. took a few weeks to feel effects, and then i swore i'd NEVER quit taking the drug - my joint pain left and my energy returned. doc mentioned decreasing the dosage and i gradually left off one dose/day, but had a flare up and returned to full dosage. the second time my energy returned, but still some joint pain, particularly in elbows, wrists, hands. also fairly photosensitive. F 61 7 months
200 mg 2X day
6/24/2012
Email
 5  Sjogrens and Lupus Its wonderful. Only symptoms were the first 2 or 3 days I was a bit depressed. My appetite is a LOT less but then I needed to lose some weight. But after that, I felt better and better. Its been a miracle drug for me. My eyes stopped being dry; mouth no longer dry either. Increased energy; better spirits. My joints only hurt a little now so I take some tramadol. Overall, It's a miracle drug for me. I love it and I don't know what I would have done over the last 6 months without it. It saved my life. F 65 6 months
200mg 2X day
3/26/2012
Email
 4  Sjogrens Syndrome I had rashes on face, neck, inside of elbows, behind knees and all of Sjogrens symptoms. When started taking plaquenil I had crazy dreams at first. After 3 months I feel so much better. My energy is not back 100% but I feel that I can function with my busy teenagers schedules. The rashes are much better and if they start to come back I just use some hydrocortizone lotion in addition. I worry about my eyesite and if it will stop working over time. Have pain in joints during the night if I miss a dose. F 46 3 months
200mg 2X day
3/3/2012
Email
 4  MCTD, Sjogrens, Reynauds, Fibro Occasional nausea, diarrhea, gastro issues, HTN with tachycardia. Nothing that would outweigh the benefits I have experienced. Also got itching on legs that turned into severe ugly bruises about a month into taking meds and then went away until it happened again about a week ago. However I am on a few other meds and cannot say for sure it's the Plaquenil causing this. Seems to be working great for me! I also believe that I feel well due to my positive mind set and the fact that I am very active. I've been at the other end of the spectrum before with negativity and depression and I see a world of difference! Good luck to all of you suffering with auto immune disorders... if Plaquenil isn't working for you I hope you find something that will! F 35 5 months
200 2X day
2/9/2012
Email
 3  RA & Sjogrens stomach cramping, gas & gas pains, headahes, increased depression & irritability (not sure if this is due to not feeling good or directly from the drug) Not far into treatment yet, but feeling somewhat less achy. However, headaches stomach cramps and mental state are not good. Feel like crying all the time & have no motivation. I used to be a regular runner & self-motivated self-employed person. Just want to feel like 'myself' again...hoping the Plaquenil helps me return to 'normal' after a few more weeks of treatment. Doc said 6-8 wks for results to show. F 38 21 days
200 MG 2X day
1/29/2012
 5  RA and Sjogrens In the beginning I had the stomach pain but my doctor ordered Omeprazole and I have not had any problem since. I will get itchy at times. I also take Ibuprofen 400mg TID, Tramdol 100mg about every 4 hours, Vitamin D supplement. It changed my life. I was in bad pain for about 8 years before this. It took a little while for meds to kick in (3 months). I lost 40 pounds ( but that was good) I was overweight. I take my meds regular and on time. If I get off schedule it does not work as well. At bedtime, I take 100mg of Tramadol, 800mg Ibuprofen and I sleep like a baby. I take the Plaquenil 200mg in the morning. Take at the same time every day and keep schedule. Be patient and give it time, it is worth it. Check eyes yearly. Get doctor to give meds for stomach pain. F 53 3 years
200mg 1X day
1/18/2012
 2  SLE, suspected RA & Sjogrens Stomach cramping, diarrhea, mild to severe headaches, dizziness, bloating, gas, loss of appetite and nausea. After having a terrible 4yr battle with debilitating fatigue, joint pain, muscle weekness, neuropathy, you name it and I suffered from it, I finally found a doctor whom discovered I was positive for certain antibodies and suspected that I had Lupus. I later became pregnant with my son and I was terrified knowing the condition of my health... The further along I became, the better I felt as odd as it sounds. It seemed that my sickness went into remission. I had my energy back and my body didnt hurt half as bad. It was great. My son was born 5wks early and the hospital encouraged me to breastfeed. I still felt better while nursing until I stopped producing milk after about 6wks and all of my symptoms came back tenfold. Obviously there must have been certain horomones that played a role in my remission. I was baffled. I was referred to a Rheumatologist a few wks ago and he ordered another blood test. My blood results showed the presence of antibodies ( ANA, Histone autoabs, U1RNP autoabs, Rheum abs). Amongst other findings my neutrofils where low, lymphocytes where high, and eosinofils where high. Also, the tourniquet was left on my arm the entire time and thats usually a no no when checking blood for certain things because it can cause inaccurate results. He said little about my results other than diagnosing lupus. I have had alot of symptoms of Sjogrens syndrome as well and severe dry skin all over, dry mouth, and dry eyes are just to name a few. I was eager to start whatever F 26 10 days
200MG 2X day
10/20/2011
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PLAQUENIL  (HYDROXYCHLOROQUINE SULFATE):  Hydroxychloroquine is used to prevent or treat malaria infections caused by mosquito bites. It does not work against certain types of malaria (chloroquine-resistant). The United States Center for Disease Control provides updated guidelines and travel recommendations for the prevention and treatment of malaria in different parts of the world. Discuss the most recent information with your doctor before traveling to areas where malaria occurs. This medication is also used, usually with other medications, to treat certain auto-immune diseases (lupus, rheumatoid arthritis) when other medications have not worked or cannot be used. It belongs to a class of medications known as disease-modifying antirheumatic drugs (DMARDs). It can reduce skin problems in lupus and prevent swelling/pain in arthritis, though it is not known exactly how the drug works.    (Sources: U.S. Centers for Medicare Services, FDA)

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